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EPAD 2017 - Francesco De Lorenzo

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Introduction on the role of patients and the importance of EPAD Francesco De Lorenzo, President European Cancer Patient Coalition (ECPC)

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EPAD 2017 - Francesco De Lorenzo

  1. 1. 1 Introduction on the role of patients and the importance of EPAD Francesco De Lorenzo 27th September, Brussels “Nothing about us without us!”
  2. 2. 2 Facilitating access to diagnosis and treatment through a multidisciplinary approach – the Prostate Cancer Unit • To ensure a true patient-centred approach, PCa patients should be provided with thorough information on multidisciplinary treatment strategies, in order to allow them to make an informed choice on the various possible treatment options for each patient, based on their individual risk- benefit assessment. • A close collaboration of multiple specialists in addition to urologists (e.g. pathologists, radiation oncologists, medical oncologists, nuclear medicine physicians, imaging specialists, psychologists, experts in palliative and supportive care etc.) is important to improve the outcome of PCa, to improve patients’ care and to lower the costs. The close involvement of well-informed patient representatives should be part of this approach. • The PCa Unit Initiative in Europe: a position paper of the European School of Oncology, describing the minimum criteria for setting up Prostate Cancer Units (PCU) which facilitate access to PCa care in European countries. The European Association of Urology (EAU) was involved in the multi- professional task force of the Initiative.
  3. 3. 3 3 Conclusions from the EAU White Paper on PCa Point 6: “Finally, the EU and its Member States should promote the implementation of survivorship cancer plans, including specific plans for PCa patients, to facilitate the return to a normal life for all European PCa patients.”
  4. 4. 4  The Joint Action on Cancer Control – CANCON is a common effort between representatives from 17 EU Member States, co-funded by the European Commission to create guidelines for harmonization of NCPs  Work Package 8 developed recommendations for high-quality survivorship care and rehabilitation: • a European framework for high-quality cancer survivorship care and rehabilitation that could be promoted at EU level; • tools, a European "distress barometer", and personalised rehabilitation and survivorship care plan.  Work Package 8 recommendations aim to: - Deal with all fields across the cancer control continuum from clinical guidance to psychological and social rehabilitation - Take into account patients' status (patient’s reported outcomes) - Include subsequent policy recommendations, which take care of the feasibility and acceptability of recommendations by all MS and associated countries, and have a special focus on employment issues.
  5. 5. 5  Created by: ESMO and ECPC in collaboration with International Psycho- Oncology Society (IPOS).  Aimed at: (1) post treatment cancer survivors having no disease after treatment, or (2) continue to receive treatment to reduce the risk of relapse, and (3) people with well controlled disease and few symptoms, who receive treatment to manage cancer as a chronic disease.  Why?: To regain (1) the important aspects of a patients’ life before cancer, and (2) to find new pathways to a satisfactory life going forward. Patient Guide on Survivorship – transferring policy recommendations into concrete action
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