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A mixed-method approach to examine the needs of youth in Northern and rural Canada
RESULTS
CONCLUSION
Functional Status:
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(2016) NorthBEAT: A mixed-method approach to examine the needs of youth in Northern and rural Canada (IEPA Poster C22)

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2016 International Early Psychosis Association (IEPA) 10th Biennial Conference: Milan, Italy. October 2016.
Poster Presentation

CHENG C, NADIN S, KATT M, LEM C, DEWA CS, MINORE B

Acknowledgements: The NorthBEAT Project was funded by the Sick Kids Foundation in partnership with CIHR. Attendance at this conference is supported by St. Joseph’s Care Group Thunder Bay.

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(2016) NorthBEAT: A mixed-method approach to examine the needs of youth in Northern and rural Canada (IEPA Poster C22)

  1. 1. A mixed-method approach to examine the needs of youth in Northern and rural Canada RESULTS CONCLUSION Functional Status: Scores on the psychometric scales suggested participants were functioning relatively well (GAF & PANSS) and had a positive outlook on their recovery (RAS): Acknowledgements: The NorthBEAT Project was funded by the Sick Kids Foundation in partnership with CIHR. Attendance at this conference is supported by St. Joseph’s Care Group Thunder Bay. References: *: Statistics Canada. 2013. North West (Health Region), Ontario, North East (Health Region), Ontario and Ontario (table). Health Profile. Catalogue no. 82-228-XWE Statistics Canada. 2007. North East Health Integration Network, Ontario (Code3513) (table) and North West Health Integration Network, Ontario (Code3514) (table). Catalogue no. 92-591-XWE. Demographics Ethnicity Caucasian: 61.5% Other: 11.5% Indigenous: 27% Female 54%, male 46% Enrolled in school: 85% Mental health related interuptions to school: 73% Employed (paid or volunteer): 58% Living with Family: 77% Paying Rent: 46% No physical illness: 99% Mean age = 17.3 years All were single None had children 3 DUPs ranged from < 1 month to 96 months . (Median = 12; IQR = 36). 96 Duration of Untreated Psychosis (DUP) KT Workshops: Workshop participants validated they study findings, and suggested areas for further EPI research and action. Youth and families created a variety of arts-based KT products. Barriers & Service Needs: Unique rural barriers and service needs were revealed. There were no statistically significant differences between Indigenous and non-Indigenous youth in DUP or any of the other indices (t-tests, p >.05) Cheng, C.1,2,3 ; Nadin, S.1,3 ; Katt, M.3 ; Lem, C.1 ; Dewa C.S.4 ; Minore, B.3 1. 2. 3. 4. Aims: • To understand how youth in Northern Ontario experience early psychosis and services for psychosis; • To understand what are the barriers to receiving appropriate EPI; • To examine Indigenous youth as a significant and vulnerable population in Northern Ontario. BACKGROUND NORTHERN ONTARIO Northern Ontario (rural Canada) is an area with a vast geography, scarce population and many Indigenous communities, and where EPI programs struggle to understand and meet service needs.* Research Question: What are the perceived service needs of Indigenous and non-Indigenous youth in Northern Ontario who experience first episode psychosis? (Barriers to Early Assessment and Treatment) is a 3-year, descriptive, mixed-method project that explored the service needs of youth in Northern Ontario. Population: 786 290 Land mass: 802 396.28 km2 6% of Ontario’s population 90% of Ontario’s landmass 32% of Northern Ontario’s population is rural, vs 14% in Ontario overall 2 out of 50 of Ontario’s EPI programs service the entire region 6x the Indigenous population, as compared to the rest of Ontario (15% vs 2%) MIXED-METHODS APPROACH 1. Structured interviews assessed demographic characteristics, duration of untreated psychosis (DUP) and functional status of a subset of rural youth: - Convenience sample of rural EPI clients aged ≤ 21 years (n = 26) - Domains assessed (measure): Duration of Untreated Psychosis (NOS) Psychosis Symptomatology (PANSS) Global Functioning (GAF) Hope and Recovery (RAS) - Analyzed using descriptive & univariate statistics 3. End-of-project data validation & knowledge translation (KT) workshops validated project findings and resulted in arts-based KT products and possible KT strategies: - Workshops were held separately with youth study participants, family study participants, and a larger group of project stakeholders. - Preliminary results were presented to workshop participants who reacted to our interpretation of the study findings. - A series of facilitated activities then lead to the co-creation of arts-based products from the study data to use in KT activities and ideas about possible KT audiences and venues. 2. Qualitative interviews explored the help seeking experiences of rural youth, their mental health service needs, and the barriers they face to receiving appropriate EPI. This project revealed important EPI barriers and service needs that are unique to northern and rural contexts and Indigenous youth living in these contexts. Bringing together multiple stakeholders for the end-of-grant workshops strengthened the project and its results, and also created innovative arts-based knowledge translation products that we have shared to engage decision- makers with the project findings. PANSS: When compared to the normative sample, participants were experiencing less symptoms and general psychopathology. RAS: Participants generally had high levels of hope and confidence and goal/success orientation, and were not dominated by psychosis symptoms. GAF: 90% of participants were coded as 60 or higher (i.e., mild-moderate symptoms) Only 23% of participants had a DUP of < 3 months. mildsevere Positive Scale Negative Scale General Scale 39.65 (8.54) 32.77 (5.13) 32.77 (7.72) Mean (SD)PANNS Scale Compared to Norm Slightly below average Much below average Much below average Personal Confidence & Hope Goal & Success Orientation Not Dominated by Symptoms 32.38 (7.28) 19.65 (3.54) 9.42 (3.58) Mean (SD)RAS Scale Maximum Possible Score 45 25 15 Participant DUP Recommended: <3 months <1 month to 96 months 96 View related presentations: www.slideshare.net/drcheng View related presentations: www.slideshare.net/drcheng NorthBEAT’s qualitative methods/results are the focus of IEPA poster AI36: View related presentations: www.slideshare.net/drcheng View the detailed results as part of IEPA poster AI36: View related presentations: www.slideshare.net/drcheng View past presentations on NorthBEAT’s KT Workshops: Next steps for NorthBEAT include addressing some of the barriers revealed through this project. This includes developing, implementing, and evaluating an eLearning training program that can be accessed online, especially for people living in rural, remote and northern regions. For more information, visit: www.chicheng.ca

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