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Hacking for Healing at SXSW Interactive

Hacking for Healing at SXSW Interactive

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Content and Visual Design by Tiffany Simms

Do you know why you should take steps to get healthy when you already think you are healthy?

DrBonnie360 brings together Linda Avey (We Are Curious Inc.), Poonacha Machaiah (JIYO), and Nicole Guthrie (HopeLab), to present you with your #HacktoHeal.

With Chronic Disease, especially autoimmune disease, slowly creeping up on us at an epidemic level, we can no longer ignore the importance of being healthy. The stage is set for personalized prevention. The science, research, data, digital health, and patients, are all ready for personalized prevention to become a reality.

We Are Curious, JIYO, and Hopelab bring SXSW the steps to finding and maintaining their optimal health.
The key to all this is finding the right feedback loops for each of you and maintaining balance.

Content and Visual Design by Tiffany Simms

Do you know why you should take steps to get healthy when you already think you are healthy?

DrBonnie360 brings together Linda Avey (We Are Curious Inc.), Poonacha Machaiah (JIYO), and Nicole Guthrie (HopeLab), to present you with your #HacktoHeal.

With Chronic Disease, especially autoimmune disease, slowly creeping up on us at an epidemic level, we can no longer ignore the importance of being healthy. The stage is set for personalized prevention. The science, research, data, digital health, and patients, are all ready for personalized prevention to become a reality.

We Are Curious, JIYO, and Hopelab bring SXSW the steps to finding and maintaining their optimal health.
The key to all this is finding the right feedback loops for each of you and maintaining balance.

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Hacking for Healing at SXSW Interactive

  1. 1. HACKING FOR HEALING Answer Our Twitter Poll! #HacktoHeal @DrBonnie360 @AutoimmuneMom @WeAreCurious @jiyo4life @HopeLab
  2. 2. What Does Healthy Look Like? Carrie Johnson 3x Olympian Selena Gomez Actress, Singer Karolina Kurkova Victoria’s Secret Angel #HacktoHeal
  3. 3. What Does Autoimmune Disease Look Like? Crohn’s DiseaseLupus (SLE) Thyroid Dysfunction
  4. 4. An Invisible Epidemic 100+ 16% 10 diseases US population Top leading cause of death in women less than 64 yrs I’ve been told too many times that I was too young to have the symptoms I was having I was refused proper care and testing for “old people” diseases and disorders. This happened in my 20s on. “ ”
  5. 5. Answer Our Twitter Poll! #HacktoHeal Do you believe your genes dictate your health?
  6. 6. Genes Are Not Your Destiny
  7. 7. You Engage with App Capture Data Provide Feedback Change Behavior Repeat & Reinforce Change Persists Evaluate, Iterate, & Experiment The Stage is Set for Personalized Prevention
  8. 8. The Key to Healing is Balance Work & Money DIY Tracking Stress Management Community Family & Friends Food as Medicine Exercise Sleep & Rest
  9. 9. #HacktoHeal @HopeLab @guth_cole @WeAreCurious @lindaavey @jiyo4life @poonacha_bm @DrBonnie360
  10. 10. The Science Antoni, MH et al. “Cognitive-Behavioral Stress Management Reverses Anxiety-Related Leukocyte Transcriptional Dynamics.” Biological Psychiatry 71.4 (2012): 366-372. <http://www.sciencedirect.com/science/article/pii/S0006322311009656>. Irwin, MR, and SW Cole. “Reciprocal Regulation of the Neural and Innate Immune Systems.” Nature Reviews Immunology 11.1 (2011) : 625-632. <http://www.nature.com/nri/journal/v11/n9/abs/nri3042.html>. Qu, S et al. “Rapid Gene Expression Changes in Peripheral Blood Lymphocytes upon Practice of a Comprehensive Yoga Program.” PloS One 8.4 (2013) : n. pag. . <http://dx.plos.org/10.1371/journal.pone.0061910>. The Immune System’s Feedback Loops Community Kok, BE et al. “How Positive Emotions Build Physical Health Perceived Positive Social Connections Account for the Upward Spiral between Positive Emotions and Vagal Tone.” Psychological Science 24.7 (2013): 1123-1132. <http://pss.sagepub.com/content/24/7/1123.short>.
  11. 11. The Science Black, DS, and GM Slavich. “Mindfulness Meditation and the Immune System: A Systematic Review of Randomized Controlled Trials.” Annals of the New York Academy of Sciences 20.1(2016): 1-12. <http://onlinelibrary.wiley.com/doi/10.1111/nyas.12998/full>. Tang, YY, BK Hölzel, and MI Posner. “The Neuroscience of Mindfulness Meditation.” Nature Reviews Neuroscience 16.1 (2015): 213-225. <http://www.nature.com/nrn/journal/v16/n4/abs/nrn3916.html>. Hill, PL, M Allemand, and BW Roberts. “Examining the Pathways between Gratitude and Self-Rated Physical Health across Adulthood.” Personality and Individual Differences 54.1 (2013): 92-96. <http://www.sciencedirect.com/science/article/pii/S0191886912004011>. Neff, KD, and CK Germer. “A Pilot Study and Randomized Controlled Trial of the Mindful Self‐compassion Program.” Journal of Clinical Psychology(2013): 1-17. <http://onlinelibrary.wiley.com/doi/10.1002/jclp.21923/full>. Mind-Body Feedback Loops

Editor's Notes

  • Welcome, I am Bonnie Feldman, affectionately known as DrBonnie360 and I am thrilled to welcome all of you to our South By Southwest panel with the hashtag #hacktoheal.
    We will share with you the latest research on how data and digital tools can help each of us take better care of ourselves.

    My work at DrBonnie360 Consulting focuses on using data and digital tools to confront the growing, yet invisible, epidemic of autoimmune disease.
    You may be surprised to learn how the #DIY health or #hacktoheal approach to wellbeing can be applied to chronic diseases such as autoimmune diseases.

    With me today are
    Linda Avey of We Are Curious, @WeAreCurious; you may remember her as one of the co-founders of 23 and me.
    Poonacha of Jiyo @Jiyo4life, is a social entrepreneur working with Deepak Chopra to democratize wellness.
    and Nicole Guthrie of Hopelab @hopeLab, the non-profit started by Pam and Pierre Omidyar, eBay’s founders.

    We encourage tweeting so let’s get started with a twitter poll.

  • What does healthy look like? (Twitter Poll)
      Young? Energetic? Strong? Attractive?
    Unfortunately, even people who appear to be the very definition of health could actually be sick.
  • Such is the case with
    Selena Gomez an actress and singer who has Systemic Lupus Erythematosus
    Carrie Johnson a sprint kayaker with Crohn’s Disease
    and Karolina Kurkova a Victoria’s Secret angel who has a thyroid autoimmune
    condition

    They and 16 percent of the American population battle a losing fight against autoimmune disease.

    So while we may feel healthy and look healthy, autoimmune diseases lurk in the shadows, ready to creep up on us and gradually erode our picture-perfect health.
  • How many of you in the audience have an autoimmune disease?
    or knows someone with an autoimmune disease?

    This invisible epidemic is plaguing millions worldwide.
    Today, chronic diseases are recognized to be the biggest public health problem confronting us.

    Autoimmune diseases make up the majority of chronic disease, in fact there are about 100 different kinds that affect more than 16% of the general population in the US.
    That is more than cancer and heart disease combined, but you wouldn’t know it from the public health statistics, which don’t yet aggregate autoimmune diseases as they do cancer. Sadly, autoimmune disease is increasing in incidence among young adults in their 20s, many of whom battle more than one autoimmune disease in the prime of their life.
    And now we are seeing an exponential increase in incidence among children!
    Yet, despite the lifetime of suffering these young adults and children face, they are under-recognized and under-served.

    Autoimmune diseases are individually, statistically and practically invisible.
  • So, what can we do to change this?

    Can we turn the tides of this losing war against chronic and autoimmune disease? Better yet, CAN we change our fate?

    Twitter poll
  • Yes! Genes are NOT our destiny.
    Each of us is different and personalization is key.

    The good news is that we live in amazing times where a convergence of scientific discoveries with technological advances can give each of us the power to #hacktoheal and #diy health.

    On the science side, we see multi-disciplinary teams working in genomics, immunology and other specialties in systems biology.
    Through microbiome research we discovered a whole new ecosystem. As we begin to understand that the gut is an organ of immunity, which may even explain our moods, we are unveiling some of the mysteries behind immune health and disease
     
    Underpinning these scientific advances are better ways to collect, store, and analyze data.
    We have better analytics such as predictive modeling, artificial intelligence, machine learning and other techniques to help us turn data into personalized, useable information.

     
  • The Stage is Set for Personalized Prevention Whether it’s changing your diet, sleeping better, exercising your mind-body connection or applying ancient wellness techniques,
    we now know that changing your lifestyle can change your biology.
    Despite scientific support for these lifestyle changes, we all know implementing new habits are hard.

    So how do we make getting and staying healthy easy?

    Getting started begins with finding your optimal feedback loops in food, sleep, work, etc.. To implement new habits and change old ones.
    The key to this is maintaining a spirit of experimentation for iterative improvement. We must go through a process of tracking, analyzing, adjusting, modifying and iterating, in order to find the right balance that works for each of us

  • The next step to MAINTAIN these new habit changes is incorporating all these iterative feedback loops to achieve balance in your mind, body, and soul.
    As shown here, we believe the major components are: exercise, musculoskeletal integrity, food as medicine, mind-body connection.
     
    So
    genes are NOT your destiny.. you CAN change your fate.
    Your #hacktoheal is in your back pocket and the time is right for personalized prevention.
    The key here is to find and maintain your balance.

    Starting our discussion on moving from precision medicine to precision prevention, is Linda Avey, the CEO and founder of We Are Curious.
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