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Are We Meeting Breast Cancer Survivor
Preferences for Communication
and Wait Times?
Deanna J. Attai, MD FACS, Regina Hampt...
Conflict of Interest
• No Disclosures
ASBrS Mastery of Breast Surgery Forum
Methods
• IRB approved, de-identified survey
• Cancer survivors
• Posted--social media forums and in-person cancer support...
Modes of Communication for Test Results
Wait Times
Results of 1000 responding cancer survivors
• 784 breast cancer survivors
• 89% Non-Hispanic White
• 79% college educated
...
Mode of Communication of “New Cancer Diagnosis”
39%
54%
7%
50%
34%
16%
0%
10%
20%
30%
40%
50%
60%
Face to Face Phone Other...
Wait Time for “New Cancer Diagnosis” ≤ 2 days
40%
82%
0%
20%
40%
60%
80%
100%
≤ 2 days
%patients
Wait Time
Actual
Preferre...
Mode of Communication of “Radiology Results”
27%
35%
0%
5%
10%
15%
20%
25%
30%
35%
40%
Phone
%patients
Mode of Communicati...
Wait Time for “Radiology Results” ≤ 2 days
51%
84%
0%
20%
40%
60%
80%
100%
≤2 days
%patients
Wait Time
Actual
Preferred
p<...
Mode of Communication of “Blood Tests”
19%
31%
49%
32%
25%
43%
0%
10%
20%
30%
40%
50%
60%
Phone Face to Face Electronic
%p...
Wait Times for “Blood Tests” ≤ 2 days
53%
79%
0%
20%
40%
60%
80%
100%
≤ 2 days
%patients
Wait Time
Actual
Preferred
p<0.00...
Other Findings
• Preference for mode of communication depends on
type of test
• Face to face and telephone equally accepta...
Limitations, Future Steps
• Narrow demographic profile
• Survey has not undergone reliability or validity testing
• Interr...
Conclusions
• Patient reported care outcomes must be sought if we want to
identify gaps in the quality of national healthc...
Acknowledgements
• Dr. Susan Love Research Foundation
• Seattle Cancer Care Alliance
• Living Beyond Breast Cancer
• Norma...
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Survey of Patient Perspectives on Receiving a New Breast Cancer Diagnosis and Test Results

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Oral abstract presentation from the 17th Annual Meeting of the American Society of Breast Surgeons: Survey of Patient Perspectives on Receiving a New Breast Cancer Diagnosis - Can We Do Better

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Survey of Patient Perspectives on Receiving a New Breast Cancer Diagnosis and Test Results

  1. 1. Are We Meeting Breast Cancer Survivor Preferences for Communication and Wait Times? Deanna J. Attai, MD FACS, Regina Hampton MD FACS, Alicia C. Staley BS MBA, Andrew Borgert PhD, Jeffrey Landercasper MD FACS
  2. 2. Conflict of Interest • No Disclosures
  3. 3. ASBrS Mastery of Breast Surgery Forum
  4. 4. Methods • IRB approved, de-identified survey • Cancer survivors • Posted--social media forums and in-person cancer support groups • 11 days • Actual care versus preferred care
  5. 5. Modes of Communication for Test Results
  6. 6. Wait Times
  7. 7. Results of 1000 responding cancer survivors • 784 breast cancer survivors • 89% Non-Hispanic White • 79% college educated • 97% online social media use • 84% community size – not rural The most “advantaged” demographic group in public health literature • How well do we meet their preferences?
  8. 8. Mode of Communication of “New Cancer Diagnosis” 39% 54% 7% 50% 34% 16% 0% 10% 20% 30% 40% 50% 60% Face to Face Phone Other %patients Mode of Communication Actual Preferred p<0.0001
  9. 9. Wait Time for “New Cancer Diagnosis” ≤ 2 days 40% 82% 0% 20% 40% 60% 80% 100% ≤ 2 days %patients Wait Time Actual Preferred p<0.0001
  10. 10. Mode of Communication of “Radiology Results” 27% 35% 0% 5% 10% 15% 20% 25% 30% 35% 40% Phone %patients Mode of Communication Actual Preferred p<0.0001
  11. 11. Wait Time for “Radiology Results” ≤ 2 days 51% 84% 0% 20% 40% 60% 80% 100% ≤2 days %patients Wait Time Actual Preferred p<0.0001
  12. 12. Mode of Communication of “Blood Tests” 19% 31% 49% 32% 25% 43% 0% 10% 20% 30% 40% 50% 60% Phone Face to Face Electronic %patients Mode of Communication Actual Preferred p<0.0001
  13. 13. Wait Times for “Blood Tests” ≤ 2 days 53% 79% 0% 20% 40% 60% 80% 100% ≤ 2 days %patients Wait Time Actual Preferred p<0.0001
  14. 14. Other Findings • Preference for mode of communication depends on type of test • Face to face and telephone equally acceptable for radiology results • Email, patient portal or other electronic preferred for blood test results
  15. 15. Limitations, Future Steps • Narrow demographic profile • Survey has not undergone reliability or validity testing • Interrogation of other demographic groups is critical
  16. 16. Conclusions • Patient reported care outcomes must be sought if we want to identify gaps in the quality of national healthcare • Actual care did not meet preferred care expectations for any domain of communication or wait times! • Patients prefer rapid results, ability to ask questions • Ask patients about preferences for mode of communication • Evaluate system issues to best honor patient preferences
  17. 17. Acknowledgements • Dr. Susan Love Research Foundation • Seattle Cancer Care Alliance • Living Beyond Breast Cancer • Norma J Vinger Center for Breast Care • Gundersen Medical Foundation • Ms. Choua Vang

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