Mary Kane Presentation

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2nd Annual DCC Retreat

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  • 1/8/2009 DRAFT FOR CCWH ONLY
  • 1/8/2009 DRAFT FOR CCWH ONLY
  • 1/8/2009 DRAFT FOR CCWH ONLY
  • 1/8/2009 DRAFT FOR CCWH ONLY
  • Concept mapping is a term that has been applied to a number of different kinds of processes. We are going to focus on the mixed methods process developed by Bill Trochim. In the broadest terms, this structured, group cm is a process for gathering and organizing the input of many different people into a single, shared conceptual framework. This framework forms the basis for further value analysis, planning, action, or evaluation. This method involves the following steps which we will look at in more detail through two examples. Before we get into the details:
  • 1/8/2009 DRAFT FOR CCWH ONLY
  • 1/8/2009 DRAFT FOR CCWH ONLY
  • 1/8/2009 DRAFT FOR CCWH ONLY
  • 1/8/2009 DRAFT FOR CCWH ONLY
  • 1/8/2009 DRAFT FOR CCWH ONLY
  • 1/8/2009 DRAFT FOR CCWH ONLY
  • 1/8/2009 DRAFT FOR CCWH ONLY
  • 1/8/2009 DRAFT FOR CCWH ONLY
  • 1/8/2009 DRAFT FOR CCWH ONLY
  • 1/8/2009 DRAFT FOR CCWH ONLY
  • 1/8/2009 DRAFT FOR CCWH ONLY
  • Mary Kane Presentation

    1. 1. Delaware Cancer Consortium Continuing Progress, Identifying Potential Mary Kane, President and CEO Concept Systems, Inc. © 2010 Concept Systems, Inc.
    2. 2. <ul><li>The Cancer Consortium and Concept Mapping </li></ul><ul><ul><li>What we asked ourselves in 2001, and what we developed </li></ul></ul><ul><li>Process of Concept Mapping to inform, plan and track progress </li></ul><ul><ul><li>Showing you some results from the start of the Consortium </li></ul></ul>Looking Back, Looking Forward © 2010 Concept Systems, Inc.
    3. 3. <ul><li>Two-phase initiative </li></ul><ul><ul><li>I. Large stakeholder group issues identification: around 300 key informants throughout the State </li></ul></ul><ul><ul><li>II. Action Planning Subcommittees: priorities identified through Phase I to recommend to Governor and Legislature </li></ul></ul><ul><li>Leadership </li></ul><ul><ul><li>Council </li></ul></ul><ul><ul><ul><li>citizens, legislators, advocates, medical professionals, community support and service providers, survivors and family members </li></ul></ul></ul><ul><ul><li>Staff </li></ul></ul><ul><ul><ul><li>Department of Public Health, Division of Disease Prevention and Control </li></ul></ul></ul>At the beginning: The Cancer Advisory Council © 2010 Concept Systems, Inc.
    4. 4. <ul><li>The foundation of a strong framework </li></ul><ul><li>A way to </li></ul><ul><ul><li>engage individuals in contributing to a common cause </li></ul></ul><ul><ul><li>create a shared awareness and agreement on the range of issues to be addressed both now and in the future </li></ul></ul><ul><ul><li>set priorities and establish agreement on resources </li></ul></ul><ul><ul><li>create a “road map” structure and action agenda </li></ul></ul><ul><li>A group approach that’s supported by well-tested technology </li></ul><ul><li>An inclusive process that involves the voices of many points of view, and integrates them </li></ul>Concept Mapping © 2010 Concept Systems, Inc.
    5. 5. <ul><li>From the participants' perspective: </li></ul><ul><li>Participatory, democratic </li></ul><ul><li>Provides results that are immediately useful </li></ul><ul><li>Helps build consensus vision </li></ul><ul><li>From the organization’s perspective: </li></ul><ul><li>Always focused on the purpose of the initiative </li></ul><ul><li>Flexible design and participation options </li></ul><ul><li>Creates a framework that is multi-purpose, taking you from planning to implementation through evaluation </li></ul><ul><li>For the Delaware Cancer Advisory Council (2001) </li></ul><ul><li>Allowed flexibility, inclusiveness </li></ul><ul><li>Helped to keep the Council start with a nimble but well-defined structure for the future </li></ul><ul><li>Described priorities that guided the work that has followed </li></ul>Why Concept Mapping? © 2010 Concept Systems, Inc.
    6. 6. The Process © 2010 Concept Systems, Inc. Planning: Planners and key issue advisors develop a focus prompt and identify participants Idea Generation: Communities of interest and expertise are identified, and respond with brainstormed ideas Structuring: Communities of interest and expertise sort and rate the results of the idea development. Representation: Analysis compute the maps, pattern matches and “go zones,” and prepare them for interpretation by communities of interest. Interpretation and Use: Strategies and tactics for action follow directly from the interpretation of the results. Pattern matches and go zones help build consensus on action.
    7. 7. We Defined Focus and Participants Identify the participants Develop a focus © 2010 Concept Systems, Inc. Who has knowledge, interest? Who can contribute relevant content? Who may be involved in using the results? A specific issue that needs to be addressed in comprehensive cancer control planning in our state is... We collected knowledge and opinion from participants in three ways during the process: Idea Generation Sorting Rating Over 300 people were involved total
    8. 8. We Gathered and Organized Knowledge and Opinion Generate Ideas Identify the participants Develop a focus Structure Ideas © 2010 Concept Systems, Inc. Individual Sorting by each participant Ratings on Importance Feasibility <ul><li>Some extracted statements: </li></ul><ul><li>Legislation/ incentives for insurance companies to cover prevention, screening and tobacco cessation. </li></ul><ul><li>Increase access to palliative care and pain management. </li></ul><ul><li>Invest in portable or mobile screening programs, at work or in neighborhoods. </li></ul><ul><li>Educate physicians to recognize symptoms and encourage/include screening in routine physicals and well-child visits. </li></ul><ul><li>Educate the public on the benefits of early diagnosis and treatment, and appropriate diagnostic tests. </li></ul><ul><li>Increase the tobacco excise tax and put the money in a fund earmarked for health. </li></ul><ul><li>Increase awareness of toxic chemical use in lawn/garden care. </li></ul><ul><li>Fund a comprehensive study of ambient air to determine airborne carcinogens. </li></ul>
    9. 9. Produced, Enriched and Used the Results Interpret Maps Generate Ideas Identify the participants Develop a focus Structure Ideas Compute Maps Use Maps © 2010 Concept Systems, Inc. Access to Care Insurance & Funding Leadership/Accountability Medical Community Action Public Awareness & Education Tobacco Control Cancer Information Systems Environmental Carcinogen Exposure/Assessment Research & Data Analysis
    10. 10. On a concept map Conceptually different ideas are further apart conceptually similar ideas are closer. © 2010 Concept Systems, Inc. Fund a comprehensive study of ambient air to determine airborne carcinogens. (97) Partner with industries to identify causes and create solutions to cancer problem. (53) Implement environmental strategies that are evidence-based. (104) Legislation/ incentives for insurance companies to cover prevention, screening and tobacco cessation. (19) Investigate the role of secondary insurance to cover services not covered by primary insurance. (113) Establish programs to assist patients with the cost of drugs and treatments. (76) 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 93 94 95 96 97 98 99 100 101 102 103 104 105 106 107 108 109 110 111 112 113 114 115 116 117 118
    11. 11. Cluster Label (F) An Example © 2010 Concept Systems, Inc. Standardize and centralize the collection and dissemination of data on cancer incidence in DE, including occupational history, demographics and exposures. Budgetary priority. (10) Find out why energetic robust children get cancer. (17) Increase high quality causative factor and clinical trial research. (26) Look at whether the high cancer rate is related to an aging population. (27) Use miscarriage/ birth defect case data to look at the effects of carcinogenic exposure. (29) Determine how many deaths from the 6 leading cancers in DE were avoidable. (30) Determine the effect of the Cancer Society on recidivism rates in DE. (32) Consider the potential years of life lost to certain types of cancer when setting state priorities. (33) Conduct a study to determine the impact of the use and abuse of alcohol. (48) Address the high incidence and death rate for African Americans. (54) Standardize specific, accurate reporting of the cause of death for cancer patients. (60) Examine how the high incidence of HIV and other sexually transmitted diseases impacts the cancer rate (sarcomas, cervical) (64) Use registry data to create a geographic map of cancer incidence (by type), including the risk factors and causes associated with each area. (65) Focus on survival rates due to early detection and advancements in treatment. (69) Research cancer incidence and cure rates for children (18 yrs. and younger). (81) Determine why DE cancer rate is so high. (88) 10 17 26 27 29 30 32 33 48 54 60 64 65 69 81 88
    12. 12. Participants decide where the details belong… … so that many concepts can be considered in a shared structure © 2010 Concept Systems, Inc. Environmental Carcinogen Exposure/Assessment Access to Care Insurance & Funding Leadership/Accountability <ul><li>Medical Community Action </li></ul><ul><ul><li>Education </li></ul></ul><ul><ul><li>Collaboration </li></ul></ul><ul><ul><li>Quality / Best Practices </li></ul></ul>Public Awareness & Education Tobacco Control Cancer Information Systems Research & Data Analysis 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 93 94 95 96 97 98 99 100 101 102 103 104 105 106 107 108 109 110 111 112 113 114 115 116 117 118
    13. 13. Disparities Topics: Basis for the subcommittee assignments. © 2010 Concept Systems, Inc. Leadership/Accountability: Council’s responsibility. Workplace/ Workforce Early Detection/ Prevention Access to Care Insurance & Funding Leadership/Accountability Quality Cancer Care Public Awareness & Education Tobacco and Other Risk Factors Cancer Information Systems Environment Research & Data Analysis Crosscutting
    14. 14. Standardize and centralize the collection and dissemination of data on cancer incidence in DE, including occupational history, demographics and exposures. Budgetary priority. (10) Determine how many deaths from the 6 leading cancers in DE were avoidable. (30) Address the high incidence and death rate for African Americans. (54) Standardize specific, accurate reporting of the cause of death for cancer patients. (60) Use registry data to create a geographic map of cancer incidence (by type), including the risk factors and causes associated with each area. (65) Focus on survival rates due to early detection and advancements in treatment. (69) Research cancer incidence and cure rates for children (18 yrs. and younger). (81) Research & Data Analysis 5 Priorities: Basis for the subcommittee charges. 5 4 3 2 4 3 2 Feasibility Importance 88 81 69 65 64 60 54 48 33 32 30 29 27 26 17 10
    15. 15. <ul><li>Strategies and Tools </li></ul><ul><ul><li>Built a Common Conceptual Framework and Determine Priorities: Concept Mapping </li></ul></ul><ul><ul><li>Confirmed with agency, volunteers and community: meetings and public information </li></ul></ul><ul><ul><li>Got additional input: public comment, personal stories, research </li></ul></ul><ul><ul><li>Got down to work: Action Subcommittees </li></ul></ul><ul><ul><li>Took new action together: Consortium </li></ul></ul><ul><ul><li>Produced the plan: The first four year plan--The Green Book </li></ul></ul><ul><ul><li>Considered accountability: Continual assessment, program evalaution </li></ul></ul><ul><ul><li>Extended the Consortium’s commitment -- The Purple Book </li></ul></ul>Using the Map Effectively © 2010 Concept Systems, Inc.
    16. 16. <ul><li>Strategies and Tools </li></ul><ul><ul><li>Recognize progress, change in context and status: retreat and ongoing Consortium work </li></ul></ul><ul><ul><li>Consider what we need to know now, from multiple perspectives: planning for input </li></ul></ul><ul><ul><li>Ensure inclusive awareness and participation </li></ul></ul><ul><ul><li>Begin now to construct a new road map: concept mapping </li></ul></ul><ul><ul><li>Start using the future-focused road map by Fall 2010 </li></ul></ul>Now © 2010 Concept Systems, Inc.
    17. 17. <ul><li>CSI is a woman owned small business </li></ul><ul><li>15 year history of working to engage communities for group consensus and decisions, with rigor and sensitivity </li></ul><ul><li>Over100 initiatives in the Federal government and state government for planning, implementation, communication, and evaluation </li></ul><ul><li>Some recent and current relationships </li></ul><ul><ul><li>DHHS Office on Women’s Health </li></ul></ul><ul><ul><li>NIH Office on Behavioral and Social Sciences Research </li></ul></ul><ul><ul><li>Mental Health America </li></ul></ul>Concept Systems, Inc. © 2010 Concept Systems, Inc.
    18. 18. <ul><li>If you have additional questions or would like more information, </li></ul><ul><li>please contact: </li></ul><ul><ul><li>Concept Systems, Inc. </li></ul></ul><ul><ul><li>136 East State Street </li></ul></ul><ul><ul><li>Ithaca, New York 14850 </li></ul></ul><ul><ul><li>Phone: (607) 272-1206 </li></ul></ul><ul><ul><li>www.conceptsystems.com </li></ul></ul>Thank You… © 2010 Concept Systems, Inc.

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