1May , 2010Designing for Health Consumer Engagement:The Multi-Channel Redesign of Diabetes.orgDavid Nickelson Psy.D, J.D.A...
2American Diabetes Association Overview■ The nations leading 501(C)3 nonprofit health organization providing diabetes rese...
3My Background Health Law, Policy, Technology and Association Experience      Clinical Psychologist      Attorney (Memb...
4Agenda Where We Started Channel to Audience Alignment and Setting the Methodology Research and Persona Creation Audie...
5ADA’s Success Story                       Site launched in 2004 based on how the                        organization vie...
6Engagement -- A New Approach: Use All Channels Support Your Users                                                        ...
7Have Your Methodology in Place                                 7
8Project Phases & DeliverablesResearch                              Visual Design• Stakeholder Interviews              • C...
9Where we started: Research! Reviewed existing data      Search logs and basic web traffic metrics      Initial content...
10More Research Build Consensus on:     • What ADA needed to succeed     • What diabetes.org needed to succeed     • Who ...
11And More Research                    • Interviewed with Call Center                      reps                    • Analy...
12Creating our personas from research Three themes emerged in terms of what our audiences were looking for:      Managin...
13Diana – Adult with Type 2 DiabetesDemographics                                                                          ...
14Amanda - ParentDemographics                                                                                             ...
15Relationship Pathways After creating the personas, we needed to determine how each audience could reach our  engagement...
16 Key eCRM Interactions   Forms                 Tools                  Monetary     Events     Contact             Ask th...
17          Diana – Adult with Type 2             Live                                            Ask the                 ...
18           Amanda – Parent           Message                                              Family                        ...
19Deeper Engagement Once someone decides to leave an email address and/or donation, what happens to continue the  engagem...
20    Deeper EngagementConversion  Flow           E-mail #1               E-mail #2               E-mail #3   E-mail #4   ...
21Managing Content Inventory                             21
22Creating Structure to Support Users, Technology, and the Business                                                       ...
23Wireframes             23
24Designing with Support of Testing, Data, and Success Metrics                                                            ...
25Personas post-launch                          The Personas will serve as a long-term tool for the                      ...
26Three key takeaways Consider your 3-4 priority audience groups and document a description of each Consider how your mi...
27David Nickelson Psy.D, J.D.Director, Internet Strategy & Operations(703) 299-5522dnickelson@diabetes.orgConnect with me ...
28  Julia – Young Adult with Type 1 DiabetesDemographics                                                                  ...
29     Stephanie – Young CaregiverDemographics 26-years-old                                                               ...
30     Garrett – Adult At-RiskDemographics                                                                                ...
31     Greg – Adult with Type 1 DiabetesDemographics                                                                      ...
32     Nancy – Older CaregiverDemographics                                                                                ...
33      Julia – Young Adult with Type 1        Live                                   Messag                          Loca...
34        Stephanie – Young Caregiver        Messag                                      Action                         To...
35      Garrett – Adult At-Risk        My                                      Action                        Step       Fo...
36        Greg – Adult with Type 1         Live                                        Action                         Dona...
37       Nancy – Older Caregiver       Messag                                      Live                       Donate      ...
38Methodology              38
39Methodology              39
40Methodology              40
41Methodology              41
42Methodology              42
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Designing for Health Consumer Engagement: The Multi-Channel Redesign of Diabetes.org

  1. 1. 1May , 2010Designing for Health Consumer Engagement:The Multi-Channel Redesign of Diabetes.orgDavid Nickelson Psy.D, J.D.American Diabetes AssociationDirector, Internet Strategy & Operations 1
  2. 2. 2American Diabetes Association Overview■ The nations leading 501(C)3 nonprofit health organization providing diabetes research, information and advocacy■ Founded in 1940, the ADA conducts programs in all 50 states and the District of Columbia.■ The mission of the Association is to prevent and cure diabetes and to improve the lives of all people affected by diabetes.■ To fulfill this mission, the ADA funds research, publishes scientific findings, provides information and other services to people with diabetes, their families, health professionals and the public. The Association is also actively involved in advocating for scientific research and for the rights of people with diabetes.■ Diabetes.org: 17 million visits/year 10 million unique visitors/year $20+ million in online revenue and sales (2010) 2
  3. 3. 3My Background Health Law, Policy, Technology and Association Experience  Clinical Psychologist  Attorney (Member, PA Bar) AAAS Congressional Science Fellow/Legislative Assistant  Telehealth and Medicare  Health Information Privacy/HIPAA  Mental Health Parity  Health Care and Technology Immigration Associate Executive Director, American Psychological Association  Developed successful online practitioner, consumer, and business portals  Product development , fulfillment, distribution, and marketing Director, Internet Strategy & Operations, American Diabetes Association  Executive leader accountable for ADA’s award-winning Internet strategy, infrastructure, staffing, operations, development and revenue activities. Full Profile: http://www.linkedin.com/in/dwnickelson 3
  4. 4. 4Agenda Where We Started Channel to Audience Alignment and Setting the Methodology Research and Persona Creation Audience Driven Interactions Audience and Product Decisions 4
  5. 5. 5ADA’s Success Story  Site launched in 2004 based on how the organization viewed itself  Health Information provider  Site structure mimicked org structure  Siloed content and no engagement pathways  Audience segments were loosely defined for product development  The website contained over 19,000 pieces of content. 5
  6. 6. 6Engagement -- A New Approach: Use All Channels Support Your Users 6
  7. 7. 7Have Your Methodology in Place 7
  8. 8. 8Project Phases & DeliverablesResearch Visual Design• Stakeholder Interviews • Creative Strategy• Discovery Workshop • Style Guide• Focus Group Activities/ Card Sort • Color Comp Usability Testing • Integration & Development PhaseArchitect• High Level Sitemap Deployment• Content Inventory • Migration Planning• Site Model • CMS Object Model (Publisher• Areas of Focus Experience)• Conceptual Wireframes • Front End Development• Finalized Wireframes • Development QA• Specifications 8
  9. 9. 9Where we started: Research! Reviewed existing data  Search logs and basic web traffic metrics  Initial content inventory  Message boards Interviews and Surveys  In-person interviews with key internal stakeholders • Our content was not well-organized and there was too much of it • We don’t give people clear options or help them find what they need • Our site isn’t personal or engaging enough • Our site only facilitates one-way conversation 9
  10. 10. 10More Research Build Consensus on: • What ADA needed to succeed • What diabetes.org needed to succeed • Who should be served by diabetes.org • What our constituents want to do online • What online content and functionality helps them do what they want 10
  11. 11. 11And More Research • Interviewed with Call Center reps • Analyzed Search and Keyword patterns of current ADA site • Conducted card sorts with 40 audience members using top 100 keywords • Overlaid keyword rank with sorting cluster for priority 11
  12. 12. 12Creating our personas from research Three themes emerged in terms of what our audiences were looking for:  Managing diabetes  Food and nutrition  Engagement (i.e.: volunteer, give, etc.) That meant we needed to:  Focus our architecture, content and engagement opportunities on helping people manage diabetes and understanding food and nutrition as they pertain to the disease  Provide engagement opportunities that were contextual to the user’s experience on the site Using the research and high level segmentation, ADA and Convio created 7 Constituent Personas to focus the web site engagement paths and additional marketing efforts moving forward 12
  13. 13. 13Diana – Adult with Type 2 DiabetesDemographics "I know nothing about diabetes and I’m 43-years-old overwhelmed. I want to know what to do, what to eat Middle income and if it’s going to get worse." Works full time Married, with 2 childrenDescription Diana works full-time as a paralegal in a busy office. She’s also a full-time mom to an 8-year-old daughter, 10-year-old son and 48-year-old husband. Diana was recently diagnosed with Type 2 diabetes and is worried about all of the ways itwill affect her life, her job and her family. She’s heard conflicting advice from her friends, family and various doctors about what sheshould and shouldn’t eat and how often she should monitor her blood sugar. Diana hasn’t found a doctor she trusts and has questions about how to manage diabetes.Technological Diana has a Blackberry she uses for work so she can always be available via email. Being a busy mother of two, she doesn’t spend much time online for personal use – only a few minutes each night checking emails. Diana also recently got a Facebook account so she could watch over her kids’ pages and also keep up with her friends.Needs Being recently diagnosed and still struggling to manage diabetes, Diana wants to find practical ways she can change her lifestyle to keep the diseaseunder control. She’s still learning how to eat and test and would benefit from hearing others’ experiences to help her determine what’s good, bad and normal. Diana would like to know of some doctors in her area or some criteria to look for to help her find a good doctor. She’s interested in knowing what her rights are at work too now that she’s been diagnosed so she can know who she should tell and how to tell them. Diana wants to find ways to encourage a healthy lifestyle and eating habits for her children to prevent them from getting diabetes.Scenario After work one evening, Diana is feeling a little icky and decides she’s not up to making dinner. She picks up a pizza for the family and gets a salad forherself. When she gets home, she tests her blood sugar and realizes its extra high so she gets online to find out what the cause might be. So many siteshave conflicting information that she really wants to talk to someone or hear opinions from others going through the same thing. 13
  14. 14. 14Amanda - ParentDemographics “I’d like quick resources to share 47-years-old with my busy husband about how Upper income to react in an emergency” Works as a full time mom Married, 3 kidsDescription Amanda is a full time mom for her 3 kids, the oldest of which (Matthew) was just diagnosed with Type 1 diabetesat age 13. Her husband (Steve) works full-time as an architect. Amanda’s father-in-law has Type 1 diabetes, but she is relatively unfamiliar with the disease and is still workingout the kinks of what Matthew can eat and when to test his blood sugar. Her husband works long hours and it’s been difficult for Amanda to educate him on the basics of taking care ofMatthew. They have different styles of approaching the disease as Amanda tends to baby the kids and is alwayschecking in on Matthew, where Steve would rather pretend everything’s okay.Technological Amanda spends a lot of time on their high-speed Internet during the day, doing research on diabetes, checkingemail and reading news. She doesn’t have a mobile device and isn’t interested in social networking sites.Needs Amanda would love a support group of other parents like her so she can learn from their successes and mistakes and try to do best by Matthew. She’dalso like to learn from others about how they’ve coped with tension in their marriages since she and Steve seem to disagree so often nowadays. Since Matthew was just diagnosed, Amanda needs resources and talking points to use to inform his teachers and coaches at school about his disease. She’d like straightforward, factual information about what foods Matthew can eat and when to test so she can develop a plan that works for them. Amanda would also like quick resources and tip sheets she can use to educate Steve about what to do in case of an emergency and how to stay on trackwith their maintenance plan.Scenario Feeling more and more confident about which foods Matthew does well with and which foods aren’t so good, Amanda decides to create a spreadsheetwith a “Good” and “Bad” column so she can display it in the kitchen for Steve and the rest of the kids to use as a reference. Thinking there must besomething like this already available so she wouldn’t have to start from scratch, she starts Googling for resources. 14
  15. 15. 15Relationship Pathways After creating the personas, we needed to determine how each audience could reach our engagement points through our new site architecture and content Relationship pathways were created for each persona for testing of the website  Health Information  Help  Hope  Support  Donate  Join and Event (Fund raise)  Advocate  Volunteer 15
  16. 16. 16 Key eCRM Interactions Forms Tools Monetary Events Contact Ask the Form Expert Tour de Site Live CureRegister Chat Store Local Email Purchase Event My Food Register Advisor Donate Step OutVolunteer Message Form Boards Family Action Link Alert Engagement 16
  17. 17. 17 Diana – Adult with Type 2 Live Ask the Email Chat Expert Register Message My Food Boards Advisor Googles for Browses Message Visit “diabetes recently through “Living Boards 1: diagnosed” with Diabetes” Visits site for Browses through My Food Visit 2: info on what “Food and Advisor she can eat Fitness”“I know nothing about diabetes and I’m overwhelmed. I want to know what to do, what to eat and if it’s going to get worse." Visits site to browse Glad to find tips Email through Message Visit 3: Boards and My Food on selecting a Register doctor Advisor 17
  18. 18. 18 Amanda – Parent Message Family Donate Boards Link My Food Email Advisor Register Googles for Browses through Family Visit “diabetes and “For Parents and Link 1: school” Kids” Clicks on an Browses My Food Visit 2: email to see a “Food and Advisor new recipe Fitness”“I’d like quick resources to share with Visits the site to Reads throughmy busy husband about how to react the Message Donate in an emergency” Visit 3: find support Boards and from others feels compelled 18
  19. 19. 19Deeper Engagement Once someone decides to leave an email address and/or donation, what happens to continue the engagement experience? Based on how they interact with us, we put them on a conversion pathway through an email series • Series of 4-5 emails over a 31 day period aimed at increased engagement (larger/recurring gift, advocacy action, etc.) 19
  20. 20. 20 Deeper EngagementConversion Flow E-mail #1 E-mail #2 E-mail #3 E-mail #4 E-mail #5 (7 days) (14 days) (24 days) (31 days)      New Thank You Repeated Appeal Stewardship Second Advocates Auto- Thank You / Piece (i.e. appeal responder Campaign profile piece) with tell-a- Update / Tell- friend a-friend  Goal – convert Advocates to Donors • Need to ensure they aren’t already donors • Appeal based on the topic of the alert taken  Once Advocate becomes a Donor • Move to another communication segment • Appeals should be for larger and/or sustaining gifts 20
  21. 21. 21Managing Content Inventory 21
  22. 22. 22Creating Structure to Support Users, Technology, and the Business 22
  23. 23. 23Wireframes 23
  24. 24. 24Designing with Support of Testing, Data, and Success Metrics 24
  25. 25. 25Personas post-launch  The Personas will serve as a long-term tool for the life of the new diabetes.org, and new product development.  They can be used repeatedly for future decision- making to ensure a consistent, user-centered approach  Using throughout the organization for:  Direct Mail  Email  Print  Corporate Development  Product Development  Any other consumer facing activity 25
  26. 26. 26Three key takeaways Consider your 3-4 priority audience groups and document a description of each Consider how your mission, business goals and product goals apply to your audiences Apply each persona to your website and products  Are there clear pathways for information each persona is seeking?  Are there relevant devices for each persona to engage that are prominent and natural?  Do you have a plan for following up with each group? 26
  27. 27. 27David Nickelson Psy.D, J.D.Director, Internet Strategy & Operations(703) 299-5522dnickelson@diabetes.orgConnect with me on LinkedIn and TwitterTwitter: DrDNickelsonLinkedIn: http://www.linkedin.com/in/dwnickelson 27
  28. 28. 28 Julia – Young Adult with Type 1 DiabetesDemographics “I’m embarrassed to ask my 22-years-old doctor how much alcohol I can Lower middle income drink with diabetes.” Works full time Single, no kidsDescription Julia works full time as a school nurse. She’s had Type 1 diabetes for 7 years and takes care of many kids withdiabetes. She lives an active lifestyle, surrounded by supportive friends and family and has learned to live comfortably withher disease. Julia is usually confident in her boundaries and limitations as a diabetic, but sometimes has questions she’s notcomfortable asking her doctor. Now that she’s financially independent, she’s learning how expensive her testing supplies can be.Technological Julia doesn’t spend a ton of time online at work, but she does use her high-speed Internet at home to do researchfor work and for personal use after work as well. She likes to search for recipes, read celebrity gossip and keep up with friends on Facebook.Needs Julia is already comfortable with the basic facts about her disease but since college, she’s had questions about how well her system can handlealcohol. She’d like to connect with other diabetics her age to hear about their experiences living active lifestyles with diabetes. She loves exercise and theoutdoors and wants to know what kinds of limitations she should be aware of. Julia would like to find opportunities to volunteer for diabetes research and possibly meet some new friends in the process. She’d like to stay up to date and learn about the latest treatments and would also like to know how to get assistance for her supplies. Being a school nurse, she’d also like information on how to help children with diabetes.Scenario After her morning workout, Julia gets online to check her email. She subscribes to a runners magazine and gets updates about events in her areaabout once a month. She scans through the email, and then sees an event to raise money for diabetes research, which sparks her attention. 28
  29. 29. 29 Stephanie – Young CaregiverDemographics 26-years-old “I want to be supportive and help raise Middle income awareness about diabetes and learn all I Works full time can about the disease.” Engaged to Mark, 32, who has Type 2 diabetesDescription Stephanie works full time as a teacher. She and Mark, now engaged, have been dating since high school. Since Mark’s diagnosis two years ago, they’ve been learning together about how he should eat, exercise andmonitor his blood sugar. Stephanie tries her best to be supportive by cooking low carb meals and joining Mark as he exercises, but she’salso realized that she doesn’t have to live like she has diabetes just because Mark does.Technological Stephanie uses high-speed Internet at work and at home, but doesn’t connect with a mobile device. She spends lots of time online for work to help her plan lessons for school and keep her students informed ontheir class website. She also stays in touch with her family and college friends via email, Twitter, Facebook and has recently starteda website for her and Mark’s wedding.Needs Thanks to Mark’s doctor, Stephanie has access to a lot of information for people with diabetes. She needs information on how to be supportive for Markwithout letting diabetes consume her life. Since she and Mark will be living together soon, Stephanie would also like access to some fun new recipes she can try that Mark can enjoy. She only has a fewin her repertoire right now and they’re starting to get a little boring. Seeing how diabetes has affected Mark’s life and her own, Stephanie would love to find a creative way to support diabetes research, either through a localrun or coordinating it into their wedding somehow.Scenario Just home from work, Stephanie gets online to make some updates to her wedding website. She also checks her email and scans a newsletter she getsweekly with recipe ideas. Not seeing any recipes that are diabetes-friendly, she looks at some of her bookmarked recipe websites to find some ideas for whatto make for dinner tonight when Mark comes over. 29
  30. 30. 30 Garrett – Adult At-RiskDemographics “I’d like to know some specific warning signs 42-years-old of diabetes.” Middle income Works full time Single, no kidsDescription Garrett works full time as a database administrator. He works long hours and doesn’t have time forexercise or to think about healthy eating. Garrett knows he’s overweight and at-risk for diabetes since both of his parents are diabetic. He knows that some diabetes symptoms are fatigue, blurred vision and irritability, but because of his workconditions, he’s been suffering from all of these conditions for the past 5 years.Technological Garrett is always online, whether on his iPhone, workstation or laptop at home. He’s working most of the time, but also finds time for personal detours to check email, Facebook and playonline games.Needs Since Garrett knows his risk level is high, he’d like to know about some more specific symptoms to watch for so he can be sure to take care of himself. Even though he currently doesn’t exercise or eat healthily, he’d be willing to make a change if he knew about some easy ways to do so that would fit with hisbusy, workaholic lifestyle. Since he’s already been affected by diabetes with both parents, Garrett would like to know about ways he can support diabetes research and get involved inthe community.Scenario After a phone conversation with his Mom, Garrett is concerned about his risk of getting diabetes. He’s asked his Mom to email him some resources and shesends him several links about the warning signs to watch for and lifestyle changes to prevent diabetes. Garrett spends some time clicking through his Mom’slinks so he can ease both of their worries. 30
  31. 31. 31 Greg – Adult with Type 1 DiabetesDemographics “I’d like some hope that things 34-years-old will get easier in the future.” Upper middle income Works full time Single, with 1 childDescription Greg works full time as a financial analyst. He’s recently divorced and his wife takes care of his 3-year-old son. He has had Type 1 diabetes since he was 17 and has learned to care for himself but has constantly suffered fromdepression. He has also faced some discrimination at work. To avoid this, he often tries to ignore or forget about the disease andpretend like nothing is wrong, which results in dangerous highs and lows. Greg’s ex-wife wanted him to consider anti-depressants or a support group to help him cope with the disease, butGreg could never find the time.Technological Greg is always on his iPhone, either for work or texting with friends. He has a high-speed Internet connection at home and goes online for several hours a day before and after work tocheck and update his Facebook page, monitor his stocks and his Fantasy sports teams.Needs Greg needs to know that it’s okay to be depressed and frustrated about diabetes so he’ll be more comfortable expressing himself. He could also benefit froma private, anonymous venue where he can share his thoughts or even talk to someone knowledgeable via chat. Greg needs to learn about simple ways to keep diabetes under control that won’t make him feel like an outsider so he will stop ignoring the disease. He would also like to stay up to date about diabetes research and news to give him hope that life with diabetes may get easier. He’d definitely be interestedin supporting any legislation in favor of diabetes research, affordable healthcare, or making life in general easier for diabetics.Scenario On the subway on the way home from work, Greg is reading the news and checking email on his iPhone. He’s signed up to get Google Alerts when diabetesappears in the news and receives an article about some new research that needs congressional support. Greg clicks to read the full article, then does a Googlesearch for how he can alert his congressman to vote in favor of this legislation. 31
  32. 32. 32 Nancy – Older CaregiverDemographics “Now that David’s getting older, I need to 64-years-old be prepared to care for him and know what Upper income health risks to watch for.” Retired Married to David, 66, who has Type 2 diabetesDescription Nancy and David are retired and David’s had Type 2 diabetes for 12 years. David recently retired from his job as an attorney and his long hours didn’t allow him to devote enoughtime to losing weight and eating right like Nancy’s been encouraging him to do. Nancy has read about long-term health effects of diabetes and is worried that David may be at risk forheart disease or kidney failure. She wants to know what she can do to help prevent it.Technological Nancy spends a couple of hours online each day, keeping up with her grandkids through email andreading their family blogs. She doesn’t connect with a mobile device and isn’t into social networking.Needs Nancy needs information about what the health risks are for older adults with Type 2 diabetes and some techniques for educating David on what he can doto prevent these risks. She’d like to be prepared to take care of David in any situation and wants to know what specific tasks would be required of her in any scenario. Nancy needs to be knowledgeable about the signs and symptoms of all of these health risks and needs to know what kind of medical care David needs nowthat he’s getting older too.Scenario After a day of golfing, David comes home and looks exhausted. Nancy gets him to check his blood sugar and they discover it’s extremely high. After calling thedoctor and making an appointment for the next day, Nancy gets online to search for “diabetes complications” so she can be prepared for any news they mayget at the doctor’s office. 32
  33. 33. 33 Julia – Young Adult with Type 1 Live Messag Local Chat Volunteer e Event Email Form Boards Register Googles for Comes to Visit 1: “alcohol and diabetes.org in Live diabetes” Food section Chat Visits site for Browses through Visit 2: info on testing “Living with Messag supply costs Diabetes” e Boards“I’m embarrassed to ask Clicks on an Browses my doctor how much Local Visit 3: email to find info “Communityalcohol I can drink with about an event Events” Event diabetes.” 33
  34. 34. 34 Stephanie – Young Caregiver Messag Action Tour de e Alert Cure My Email Boards Food Register Advisor Googles for Browses Visit 1: “diabetes through “Food My recipes” and Fitness” Food Advisor Visits site to Takes interest in Visit 2: look for more the “How to Action recipes Help” section Alert “I want to be supportive and help raise awareness Visits site for Learns about a about diabetes and learn “Tour de Cure” Tour de Visit 3: recipes and event in her Cureall I can about the disease.” Message Boards area 34
  35. 35. 35 Garrett – Adult At-Risk My Action Step Food Alert Out Live Email Advisor Chat Register Clicks on a link Browses through Visit 1: from his mom “Food and My to “Prevention” Fitness” section Food Advisor Visits the site Takes interest Visit 2: for easy in “How you Action exercise tips can Help” Alert “I’d like to know somespecific warning signs of Receives ADA Sees promo diabetes.” email and visits for a “Step Step Visit 3: site to read an Out” event in Out article his area 35
  36. 36. 36 Greg – Adult with Type 1 Live Action Donate Chat Alert Messag Email e Register Boards Receives Browses Visit 1: Google Alert “Diabetes in Action email and clicks the News” Alert to read article Visits the site Finds good Visit 2: to check for info in “Living Messag new news with Diabetes” e Boards “I’d like some hope that Finds great Visits site again Donatethings will get easier in the advice on future.” Visit 3: for the Message dealing with Boards discrimination 36
  37. 37. 37 Nancy – Older Caregiver Messag Live Donate e Chat Ask the Email Boards Expert Register Browses Googles Visit 1: “diabetes “Complications” Ask the and has Expert complications” questions Visits the site Visit 2: to find Explores “Food Messag healthy eating and Fitness” e tips “Now that David’s getting Boardsolder, I need to be prepared Visits site Finds great to care for him and know concerned advice in the Donatewhat health risks to watch Visit 3: about a health Message for.” risk Boards 37
  38. 38. 38Methodology 38
  39. 39. 39Methodology 39
  40. 40. 40Methodology 40
  41. 41. 41Methodology 41
  42. 42. 42Methodology 42

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