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How to Develop a Thriving Facebook Patient Community


Published on

For online patient communities with fewer than 1500
members, Facebook Groups can provide a simple,
easy-to-access platform. This 7-step checklist
will help you build a thriving Facebook patient community.

Published in: Healthcare
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How to Develop a Thriving Facebook Patient Community

  1. 1. How to Develop a Thriving Facebook Patient Community Dan Hinmon | @HiveDan | HCO | Nov 3, 2017
  2. 2. “A Facebook group is like instant gratification. You get answers when you need them from people who have been there.” Janet Gripshover, NP University of Maryland Medical Center
  3. 3. “I do not have any family support — physical or emotional. At times the isolation and the depression are too much to bear alone, and that's when I cry a few tears. It is receiving support from this group that is my life line.” Online community member
  4. 4. “Researchers found that patients who were more knowledgeable, skilled, and confident about managing their day-to-day health had healthcare costs that were 8% lower in the base year and 21% lower in the next year compared to patients who lacked this type of confidence and skill…” Health Affairs | February 2013
  5. 5. How many of you: Manage a FB page or group? Manage an online patient community?
  6. 6. Facebook Community <1,500 Icons by Pierre-Luc Auclair, Jamison Wieser and Parmelyn Basic Community 1,500 – 20,000 Advanced Community 20,000 +
  7. 7. IT Support
  8. 8. Resources for Advanced Community:
  9. 9. Icon by Anton Noskov 7 Steps to SUCCESS
  10. 10. Step 1: ASSESS
  11. 11. What’s the ROI?
  12. 12. Pro Tip: Does the community meet a key marketing objective? Do your patients even care?
  13. 13. Step 2: LOGISTICS
  14. 14. 3 Types of Facebook Groups: Secret Closed Public
  15. 15. Pro Tip: Use Description section for rules and disclosures.
  16. 16. Pro Tip: Design for mobile. Percentage of FB users who ONLY log in on mobile: 56.5%
  17. 17. Mobile
  18. 18. Pro Tip: Without daily management your community will fail.
  19. 19. Step 3: LAUNCH
  20. 20. Pro Tip: Start with a small group. Invite more as activity increases.
  21. 21. Step 4: INVITE
  22. 22. Pro Tip: The most successful way to invite someone to join your group is a personal invitation.
  23. 23. Step 5: ENGAGE
  24. 24. Pro Tip: The glue to community is peer support - NOT education. Personal disclosure is gold.
  25. 25. Step 6: MONITOR
  26. 26. Pro Tip: Resist the urge to answer questions. Let the community nurture each other.
  27. 27. Step 7: ANALYZE
  28. 28. Pro Tip: Group Insights is not enough. Install Grytics, Sociograph, or another analytics program.
  29. 29. More tips Icon by Attilio Baghino
  30. 30. Keep stakeholders in the loop
  31. 31. Give serious thought to naming your group.
  32. 32. Screen your new members.
  33. 33. Schedule your posts.
  34. 34. Use Facebook Live
  35. 35. What about HIPAA?
  36. 36. Clearly state your policy in your community description.
  37. 37. Monitor the community daily for HIPAA violations.
  38. 38. “It’s okay if someone outs themselves, but don’t you out someone.”
  39. 39. “This patient was freaking out. By the time I saw her posts there were 5 or 6 comments already. She got that help right there.” Janet Gripshover, NP University of Maryland Medical Center
  40. 40. Questions?
  41. 41. Email Dan@HiveStrategies for a 7 Steps Checklist