Nepveux, syracuse


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Critical Junctures Nov 2010

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Nepveux, syracuse

  1. 1. Negotiating Agendas and Expectations in a Diverse University-Community Research Team ž Learning from a Sexual Health Study with LGBTQ Youth Labeled with Intellectual Disabilities ž November 4, 2010 ž Critical Junctures Conference, Guelph, Ontario
  2. 2. Presenters ž Denise Nepveux — York and Syracuse Universities ž Zack Marshall — Griffin Centre Mental Health Services ž Tess Vo — Griffin Centre Mental Health Services
  3. 3. Presentation overview ž Project overview ž Study context ž Team assets ž Unanticipated difficulties ž Suggestions for practical change ž Strategies that have worked
  4. 4. Project overview ž Focus — HIV Prevention Project for Youth with Disabilities ž Project history and context
  5. 5. Study context ž Ideal: — Interdisciplinary — Research initiated from grass roots — Partners engaged in all steps incl. funding app. — Shared goals — Long-term commitment ž Reality: — Interdisciplinary — Research initiated by university researchers; no particular push from community — Partners came in toward end of grant — Complementary goals, needs and resources — Short-term, one-off project
  6. 6. Team assets ž Multiple kinds of diversity ž University partners experienced in community-based research ž Community partners experienced in collaborative projects and research ž Shared values — Queer- and trans-positive — Sex-positive approach to HIV prevention — Youth engagement — Arts-based approaches
  7. 7. Unanticipated difficulties ž Time pressures ž Communication ž Learning and unlearning ž Differing theoretical and disciplinary perspectives
  8. 8. Suggestions for practical change ž Take time to establish a clear Memorandum of Understanding — Acknowledge Theoretical Frameworks — Establish Principles of Collaboration — Define Roles with Detailed Descriptions ž Set aside time to attend to group process ž Anticipate tensions and set up a plan for addressing them ž Clarify publication process, including authorship and decision making
  9. 9. Strategies that have worked ž Strengthening interpersonal relationships — Increasing dialogue — Demystifying the research process ž Adding specificity as project progresses — Committing through verbal written agreements which were honoured ž Explicitly value the contributions of team members and offer constructive feedback
  10. 10. Authors ž Nepveux, D.1, Marshall, Z. 2, Vo, T. 2, Proudfoot, D. 3, Nixon, S. 4, & Flicker, S5. — 1-York and Syracuse Universities — 2-Griffin Centre Mental Health Services — 3-York University, Institute for Health Research — 4-University of Toronto, Dalla Lana School of Public Health — 5-York University, Faculty of Environmental Studies
  11. 11. Acknowledgements ž This study was funded by: — Canadian Foundation for AIDS Research (CANFAR) — Centre for Urban Health Initiatives ž Additional support from: — Ontario Trillium Foundation — City of Toronto, AIDS Prevention Community Investment Program — Ontario HIV Treatment Network