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AmyHolbert,LISW-CP,MSW JenaMartin,CCLS,CPLC
ExecutiveDirector DirectorofSpecialPopulationsandQuality
Engaging Families:
Ideas and Resources for Families of
Children with Special Healthcare Needs
Objectives
• Learner will recognize the importance of
involving families in a mutually beneficial
partnership between themselves, their child,
and healthcare professionals
• Participants will gain knowledge of the unique
issues that affect families who have children
with disabilities and special healthcare needs
• Learner will gain practical ideas for creating a
positive partnership with parents of children
who have special medical healthcare needs
My Story
Family Connection
S O U T H C A R O L I N A
Parent Support Connection:
One-on-one support for
parents/caregivers of a child
with a disability by a trained
Parent Navigator.
Healthcare Connection:
Assistance with Medicaid,
TEFRA, appeals and managed
care information.
Education Connection:
Workshops, webinars, online
trainings
Training Connection: Provide
training opportunities for
family members, professionals
and self advocates throughout
the state.
Advocacy Connection: Self-
advocacy training, leadership
opportunities for parents and
youth.
www.FamilyConnectionSC.org
Services We Provide
www.FamilyConnectionSC.org
Why is Family Engagement Important?
Promotes:
• Social,
• Emotional,
• Physical,
• Academic
• Occupational growth of children and youth
Leads to better health & post-school outcomes.
“us on behalf of them”…
“us versus them”…
“us with them”…
How would you describe
attitudes about parental
involvement and family
engagement
Yours?
Your organization?
Your families?

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  • 1. AmyHolbert,LISW-CP,MSW JenaMartin,CCLS,CPLC ExecutiveDirector DirectorofSpecialPopulationsandQuality Engaging Families: Ideas and Resources for Families of Children with Special Healthcare Needs
  • 2. Objectives • Learner will recognize the importance of involving families in a mutually beneficial partnership between themselves, their child, and healthcare professionals • Participants will gain knowledge of the unique issues that affect families who have children with disabilities and special healthcare needs • Learner will gain practical ideas for creating a positive partnership with parents of children who have special medical healthcare needs
  • 4. Family Connection S O U T H C A R O L I N A
  • 5. Parent Support Connection: One-on-one support for parents/caregivers of a child with a disability by a trained Parent Navigator. Healthcare Connection: Assistance with Medicaid, TEFRA, appeals and managed care information. Education Connection: Workshops, webinars, online trainings Training Connection: Provide training opportunities for family members, professionals and self advocates throughout the state. Advocacy Connection: Self- advocacy training, leadership opportunities for parents and youth. www.FamilyConnectionSC.org Services We Provide
  • 6. www.FamilyConnectionSC.org Why is Family Engagement Important? Promotes: • Social, • Emotional, • Physical, • Academic • Occupational growth of children and youth Leads to better health & post-school outcomes.
  • 7. “us on behalf of them”… “us versus them”… “us with them”… How would you describe attitudes about parental involvement and family engagement Yours? Your organization? Your families?