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We are the Change - Deirdre Ni Cheallaigh

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We are the Change - Deirdre Ni Cheallaigh

  1. 1. www.trocaire.org We are the change: dealing with HIV related self-stigma in Zimbabwe Deirdre Ní Cheallaigh
  2. 2. Background • Trócaire HIV programme • Zimbabwe National Network of PLHIV • Impact Research International • PLHIV Stigma Index • Nadine Ferris France formative research OHH • Royal College of Surgeons in Ireland • Trócaire HIV and Gender team • Inquiry based stress reduction: the work of Byron Katie • Byron Katie International Foundation
  3. 3. Vision and Goal Vision A Zimbabwean community of men and women living with HIV free of self- stigma Goal To empower and equip men and women living with HIV to tackle their self-stigma
  4. 4. Objectives 1. To reduce levels of self-stigma in Zimbabwe 2. To successfully adapt and scale-up Inquiry-based Stress Reduction (IBSR): The Work of Bryon Katie throughout PLHA support groups in Zimbabwe 3. To develop a cadre of people living with HIV highly trained as facilitators of IBSR: The Work 4. To advocate and raise awareness of self-stigma and the need to address the gap in programming within this area of the national response 5. To advocate internationally, using the Zimbabwean experience, for this method as a recognised response strategy to self-stigma for PLHIV
  5. 5. Programme Model Phase I 2012-2013 • Research • Programme design and delivery • Local adaptation, • Advocacy Phase II 2014 • Building Capacity for local facilitators • Localising facilitators programme • Advocacy Phase III 2015-2016 • Research • Local Programme delivery • Zimbabwean Facilitators supported • Advocacy
  6. 6. The Methodology IBSR: The Work of Byron Katie
  7. 7. What others think What others think
  8. 8. How HIV limits me
  9. 9. Treatment Treatment
  10. 10. My HIV story
  11. 11. My Body and HIV
  12. 12. Sex since HIV - She can’t get close to me - I need to be careful - I will transfer the disease - I can’t satisfy him - My sex life is gone -It’s not fair on others to have sex - … Sex since HIV
  13. 13. Shame and guilt •The thing I’m most ashamed of is… - I infected my daughter with HIV - I lied to my partner about my status - I have an ugly body - ... •And that means that…
  14. 14. Fears around disclosure
  15. 15. Death - I will be in constant pain - I’m losing the battle with my health - It can attack me at any time - I will die slowly, piece by piece - I need more time -I will die in pain - They will miss me - I will miss them - It will all be over - I will be punished in the next world - I have to fix everything before I go
  16. 16. God
  17. 17. Who I Truly Am
  18. 18. Certification • 340 hour + process for certification  12 week self stigma and HIV course  training of facilitators course  9-day school  1-4-1 sessions  thematic workshop  Helpline/drop in • 400 hour + process for certification and trainer of the Work and HIV  As above & supported delivery of self stigma course
  19. 19. Phase 3 and Beyond • Delivery of 12 week course by Zimbabwean facilitators • Final self-stigma curriculum produced • Graduation of ‘Zimbabwean Certified Facilitators of the Work for HIV’ and ‘Zimbabwean Certified Facilitators & Trainers of the Work for HIV’, November 2015 • Resource Centre and base available for TCWZ and Facilitators • Nine/seven-day School for the Work in Zimbabwe 2016 • Ongoing self-stigma and HIV courses offered through Connect • Scale up • Ongoing support to clients • Reaching new groups – Prisons and Support Group Members • Zim Capacity to support other countries
  20. 20. Advocacy •National AIDS Strategy •Irish Aid Annual Lecture •Conferences •Round tables •Stigma Index Phase II •etc
  21. 21. Partners TCWZ ZNNP+ Connect The Work for Change Trócaire Others i.e. SAfAIDS, UNAIDS etc Management Committee: ZNNP+ (TCWZ), Trócaire, Connect
  22. 22. We are the Change https://vimeo.com/112904832
  23. 23. www.trocaire.org Trócaire is the official overseas development agency of the Catholic Church in Ireland.

Editor's Notes

  • Existing programme ‘PLHIV Stand Up for your Rights!’ Oct 2010-2013
    Mid-term results; persistent levels and forms of self stigma
    Underlying assumptions in programme design
    Shared interest and mutual benefit

  • Objectives:
    To design a 12 week programme with and for women and men living with HIV to help them cope with self-stigma and improve well being
    To explore if the programme is suitable for resource-poor settings such as Zimbabwe
    To produce a curriculum on self-stigma and HIV
    Partnership ZNNP+, Trócaire with support from BKI
    Research was key – we needed to prove if it worked
    Ethical approval secured
  • Sessions - 3.5 hours each run over 9 weeks
  • Sessions - 3.5 hours each run over 9 weeks
  • Sessions - 3.5 hours each run over 9 weeks
  • Identify a belief: e.g. ‘he rejected me’
  • So what is it all about? People.
    60 hour course:
    12 x 4hour group sessions
    12 x 1hour private sessions
    Run over 9-12 weeks
    Weekly one-hour private sessions with Certified Facilitator
  • Identify a belief: e.g. ‘he rejected me’
  • Course – 60 hours
    Training of Facilitators course – 56 hrs
    School – 50 hours
    1-4-1 sessions (10 cycles) 80 hours
    5 workshops 15 hrs
    Helpline/ drop in – 20 hrs
    12 x 3 hours briefing and debriefing
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