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UC-Research eXchange (UC-ReX): Connecting Data Across our Clinical Data Warehouses UC-Wide Biomedical Research Acceleratio...
 
<ul><li>Research project funded by the NHGRI </li></ul><ul><li>Private institutions </li></ul><ul><li>5 diseases ONLY  </l...
Status of Clinical Data Warehouses (CDW) and EMR systems <ul><li>UC Davis </li></ul><ul><ul><li>2M patients in CDW, full E...
Planned Evolution of Data Sharing Cross-institutional Cohort Discovery Extract  Combined Limited Data Sets Quality Improve...
Researcher wants AATD and COPD data  Semantic Integration for Cohort Discovery Return data D Request for data D UCD (Epic)...
Year 0 Proof-of-Concept   of Cross-Institutional Cohort Discovery UC Davis Researcher UCSF UC System data sets UC Davis UC...
Year 1 Real  Cross-Institutional Cohort Discovery UC Davis Researcher UC System data sets Reference Ontology UC San Diego ...
Discussion <ul><li>IRB Workgroup </li></ul><ul><ul><li>Unified IRB or federated? </li></ul></ul><ul><ul><ul><li>Federated ...
Clinical Data at UC UC is investing > $500,000,000 to collect patient data through EMRs 1% of this to enable data sharing ...
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Connecting data across our clinical data warehouses: UC-Research eXchange (UC-ReX)

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Presented at the UC Braid Retreat: Imagine a statewide research engine of pooled resources, data, and expertise that accelerates the “translation” of academic research to direct patient benefit. That's the goal of the University of California Biomedical Research Acceleration, Integration, and Development (UC BRAID) program.

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Connecting data across our clinical data warehouses: UC-Research eXchange (UC-ReX)

  1. 1. UC-Research eXchange (UC-ReX): Connecting Data Across our Clinical Data Warehouses UC-Wide Biomedical Research Acceleration Initiative Retreat 9/23/11
  2. 3. <ul><li>Research project funded by the NHGRI </li></ul><ul><li>Private institutions </li></ul><ul><li>5 diseases ONLY </li></ul><ul><ul><li>Long QT </li></ul></ul><ul><ul><li>Cataract </li></ul></ul><ul><ul><li>Dementia </li></ul></ul><ul><ul><li>PAD </li></ul></ul><ul><ul><li>DM </li></ul></ul><ul><li>8 year project </li></ul><ul><li>4 year budget is 25 million </li></ul><ul><li>Pediatric RFA up </li></ul>
  3. 4. Status of Clinical Data Warehouses (CDW) and EMR systems <ul><li>UC Davis </li></ul><ul><ul><li>2M patients in CDW, full EMR (in- and out-patient) </li></ul></ul><ul><li>UC Irvine </li></ul><ul><ul><li>1.5M patients in CDW, full EMR (in- and partial out-patient) </li></ul></ul><ul><li>UC SD </li></ul><ul><ul><li>2M patients in CDW, full EMR (in- and out-patient) </li></ul></ul><ul><li>UC SF </li></ul><ul><ul><li>2.7M patients in IDR, EMR under implementation </li></ul></ul><ul><li>UC LA </li></ul><ul><ul><li>> 2M, CDW under construction, EMR under implementation </li></ul></ul>
  4. 5. Planned Evolution of Data Sharing Cross-institutional Cohort Discovery Extract Combined Limited Data Sets Quality Improvement Query tools Integration with Analytics Comparative Effectiveness / Clinical Trials De-identification Integration with IRB UC-ReX is funded for Cross-institutional work, each campus is responsible for their own Data Warehouse Development $5M over 5 years Y1 Accrual for CTs
  5. 6. Researcher wants AATD and COPD data Semantic Integration for Cohort Discovery Return data D Request for data D UCD (Epic) UC Irvine (Allscripts) UCLA (Epic) UCSF (Epic) UCSD (Epic) Querying Across Institutions Extraction Transformation Load (even with same vendor the EMRs are configured differently) UCD (DW) UC Irvine (DW) UCLA (DW) UCSF (DW) UCSD (DW)
  6. 7. Year 0 Proof-of-Concept of Cross-Institutional Cohort Discovery UC Davis Researcher UCSF UC System data sets UC Davis UC Irvine Reference Ontology Research Project Limited number of diseases Not 24/7 production system
  7. 8. Year 1 Real Cross-Institutional Cohort Discovery UC Davis Researcher UC System data sets Reference Ontology UC San Diego UC Irvine UCSF UC System data sets UC LA UCLA UC Davis UC Davis
  8. 9. Discussion <ul><li>IRB Workgroup </li></ul><ul><ul><li>Unified IRB or federated? </li></ul></ul><ul><ul><ul><li>Federated requires uniform guidelines </li></ul></ul></ul><ul><ul><li>Protocol for count queries across campus approved by early Spring’ 12 </li></ul></ul><ul><li>Contracts Workgroup </li></ul><ul><ul><li>Need contract with vendor signed now </li></ul></ul>
  9. 10. Clinical Data at UC UC is investing > $500,000,000 to collect patient data through EMRs 1% of this to enable data sharing initiatives for research and quality improvement

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