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Cushing's Quality of Life Webinar, 2017

CSRFnet
Jun. 13, 2017
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Cushing's Quality of Life Webinar, 2017

  1. Self-Care Strategies & Passionate Pursuits May 6, 2017 Quality of Life:
  2. “To keep a lamp burning, we have to keep putting oil in it.” Mother Theresa Inspiration
  3. To give participants a time and place to explore their own self-care strategies, passionate pursuits and develop strategies to enhance these as desired. Goal
  4. Objectives:  Participants will be able to identify 3 self-care strategies.  Participants will be able to identify one passionate pursuit.  Participants will be able to create a plan of action to better meet overall self-care.
  5. Definitions  Self-Care: Actions or thoughts executed to maintain quality of life and well-being.  Self-Compassion: Offering ourselves kindness and self-awareness without judgment.  Passionate Pursuits: Activities engaged in that bring purpose and meaning, joy, the quick passing of time, a sense of contentment, accomplishment and/or pride.
  6. Why is this important?  Our self-care strategies directly impact our quality of life. CSRF article, p.10-11, Spring 2017 newsletter
  7. Self-care Strategies Overview  Cognitive  Behavioral  Spiritual  Interpersonal
  8. Cognitive  “The mind is everything. What you think you become.” Buddha
  9. Cognitive  As we consider self-care, we must be able to imagine wellness again, in fact, to spend time daily thinking about and feeling it in our bodies.
  10. Cognitive Strategies  Positive Self-talk for anxiety and depression v.s. negative automatic thoughts such as:  “all or nothing” thinking  “shoulding”  “jumping to conclusions”  “mind-reading”  “emotional reasoning”  -From Feeling Good book-David Burns
  11. Cognitive Strategies  Self-compassion: “Comforting and caring for ourselves.”  Three components Kristen Neff PhD self-compassion.org  Self-kindness v.s. judgment  Common humanity v.s. isolation We are all in this together. Everyone has struggles.  Mindfulness v.s. over-identification I am aware of how I feel. However, I am NOT my illness. I refuse to let it define me.
  12. Cognitive Strategies  Create a Gratitude Journal, capturing any healing changes in your body and mind, helpful coping strategies and relationships.
  13. Cognitive Strategies  Identify real or imagined Nurturing, Protective, and Wise figures and imagine them surrounding you in a circle, available for consultation and support as needed. Tapping In book by Laurel Parnell, Ph.D.
  14. Cognitive Strategies  Mental training alone can build muscle. “Mind Over Matter: Mental Training Increases Physical Strength.” article By Shackell and Standing
  15. Cognitive Strategies  Mindfulness: Awareness of our body, emotions and thought “BET” without judgment.  Goal: Stop the circular thinking.  Mantra: “I am capable”.
  16. Behavioral Strategies  Physical activity: gentle movement focused on breath and calming, i.e. yoga, any bilateral stimulation may calm the body such as walking and biking.  Eating well and taking helpful supplements recommended by your Dr.  Good sleep hygiene without the use of electronics for 2 hours prior to bed.  Medication compliance.
  17. Behavioral Strategies  Body Language awareness and adjustment. Research by Amy Cuddy reflects that two minutes of “power poses”:  increased testosterone by 20%  decreased salivary cortisol by 25%
  18. Behavioral Strategies  While we have no idea the impact of this on Cushings patients, it is worth noting that how we feel about ourselves impacts our body language, which may affect hormones.
  19. Behavioral Strategies  Amy Cuddy recommends: “Fake it ‘til you make it and become it”.  Two “Power Poses”:  Wonder woman  “V” pose for victory
  20. Spiritual Strategies  If you wait until the wind and the weather are just right, you will never plant anything and never harvest anything.” Ecclesiastes 11:4
  21. Spiritual Strategies  Having a belief in something larger than oneself is a factor in resilience and quality of life, as well as a component of self-care.
  22. Spiritual Strategies  Often, when people have faith, this allows them to believe they will heal and, in fact, begin to feel more hopeful and well.
  23. Spiritual Strategies  Purpose and Meaning are essential to thriving rather than just surviving.  “Humans don’t mind hardship, in fact they thrive on it; what they mind is not feeling necessary.” Sebastian Junger from Tribe
  24. Spiritual Strategies “God, grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference…” Reinhold Niebuhr
  25. Spiritual Strategies “Practice the pause. When in doubt, pause. When angry, pause. When tired, pause. When stressed, pause. And when you pause, pray.” Unknown author
  26. Interpersonal Strategies Focus on connecting with people who give you “TESHD”:  Touch  Eye contact  Seen accurately  Heard accurately  Delighted in
  27. Interpersonal Strategies Focus on connecting with people who give you “ARP”: • Available • Reliable • Prioritize you
  28. Interpersonal Strategies “Rarely does a response make something better. What makes something better is connection.” Brene Brown “On Empathy” TED Talk
  29. Interpersonal Strategies Research shows that connection with others can decrease pain. Find a supportive network, either online or in person.
  30. Passionate Pursuits  Ask, “What gives me purpose and meaning, joy and contentment, and a sense of accomplishment today?”  “What makes time fly?”
  31. Passionate Pursuits  Engage in these activities as able, with your “new normal”, remembering your self-compassion.
  32. Passionate Pursuits  Involve others.  “Share with people who have earned the right to hear your story.” Brene Brown
  33. In Summary  Continue to care for yourself, daily, in little ways.  Be kind, be compassionate, be creative, be forgiving. You are making a difference every day.
  34. Resources Resources to calm the body and mind and assist with depression and anxiety • Tapping In, book by Laurel Parnell • EFT Manual, book by Gary Craig • Feeling Good The New Mood Therapy, book by David Burns • www.Self-compassion.org Kristen Neff PhD • “Your Body Language Shapes Who You Are” TED talk Amy Cuddy(20:00) • Yoga Nidra meditations (numerous) by Tripura Mandala on YouTube for sleep and stress management • www.emdria.org for EMDR therapists • Therapists.psychologytoday.com for therapists Resources for Relationships • The Seven Principless for Making Marriage Work Book by John Gottman • The Gottman Institute www.gottman.com for couples • “It’s not about the Nail” YouTube video (1:41) for couples communication • “Brene Brown on empathy”, animated YouTube video (2:53) Resources for Support System • Option B Facing Adversity, Building Resilience, and Finding Joy book by Sandberg and Grant • www.butyoudontlooksick.com website “spoon theory” to help explain Cushings to loved ones.

Editor's Notes

  1. Shock absorbers of stress
  2. Self-kindness: being warm and understanding
  3. EMDR: slow BLS calms the body, fast BLS assists in processing.
  4. “Your Body Language Shapes Who You Are” TED Talk Amy Cuddy (20 minutes)
  5. Attachment Theory: John Bowlby Harry Harlow and the Rhesus monkey study , Dr. Koan, a neuroscientist at VA U. studied the brains of married women in pain and touch Attachment Styles: Mary Main Together they inform us we all need TESHD to varying degrees Touch can decrease pain, wound healing time, increase immune system functioning.
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