Presented by the Charcot-Marie-Tooth Association                          www.wearethecmta.com <br />
Uniting across the country to work toward one common goal… …a world without CMT. <br />
 CMT Awareness Week events across the United States organized by your local facilitators: <br />
California<br /><ul><li>Los Altos Area Support Group:
  Garage Sale Fundraiser
 Collection Jars: “Time for Change, </li></ul>      Fund STAR™.”<br /><ul><li>Distribution of CMT Awareness Week </li></ul...
Poster and Donation Jars Throughout </li></ul>      County<br /><ul><li>Information Booth at Cypress Rehab
Distribution of CMT Awareness Week Materials
Local Media Relations- radio, newspaper</li></li></ul><li>California<br /><ul><li> Santa Barbara Area Support Group:
Wine tastings
Walks for CMT
Glee Fashion Show Preview at Macy’s
InformationBooths at Shopping Centers
Media Relations
Special Web Posts Featuring Articles from Doctors and CMT Patients
Distribution of CMT Brochures</li></li></ul><li>Colorado<br /><ul><li> Denver Area Support Group:
CMT Night at Chad’s Grill
Media Relations- Doctor and Patient </li></ul>      Interview for Local Daily<br /><ul><li>Health Fair participation at St...
Florida<br /><ul><li> Tampa Bay Area Support Group:
Awareness Table at Eckerd </li></ul>     College<br /><ul><li>Information Set-Up at </li></ul>     Local Library<br /><ul>...
Media Relations
Outreach to U.S. </li></ul>      Representative Kathy Castor<br /><ul><li>Distribution of CMT Awareness </li></ul>     Wee...
Georgia<br /><ul><li> Atlanta Area Support Group:
Meetings with Local Congressman
Display Booth at CHOA Egelston
Newsletter Articles
Media Relations- Local Dailies and TV
Discussions of CMT with Doctors at Neurology clinics
Information Display
Distribution of CMT Awareness Week Materials</li></li></ul><li>Illinois<br /><ul><li> Chicago Area Support Group:
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CMT Awareness Week: Support and Action Group Facilitators

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Thank you to all the Charcot-Marie-Tooth Support and Action Group Facilitators across the United States! We appreciate all that you do!

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CMT Awareness Week: Support and Action Group Facilitators

  1. 1. Presented by the Charcot-Marie-Tooth Association www.wearethecmta.com <br />
  2. 2. Uniting across the country to work toward one common goal… …a world without CMT. <br />
  3. 3. CMT Awareness Week events across the United States organized by your local facilitators: <br />
  4. 4. California<br /><ul><li>Los Altos Area Support Group:
  5. 5. Garage Sale Fundraiser
  6. 6. Collection Jars: “Time for Change, </li></ul> Fund STAR™.”<br /><ul><li>Distribution of CMT Awareness Week </li></ul> Materials<br /><ul><li> Visalia Area Support Group:
  7. 7. Poster and Donation Jars Throughout </li></ul> County<br /><ul><li>Information Booth at Cypress Rehab
  8. 8. Distribution of CMT Awareness Week Materials
  9. 9. Local Media Relations- radio, newspaper</li></li></ul><li>California<br /><ul><li> Santa Barbara Area Support Group:
  10. 10. Wine tastings
  11. 11. Walks for CMT
  12. 12. Glee Fashion Show Preview at Macy’s
  13. 13. InformationBooths at Shopping Centers
  14. 14. Media Relations
  15. 15. Special Web Posts Featuring Articles from Doctors and CMT Patients
  16. 16. Distribution of CMT Brochures</li></li></ul><li>Colorado<br /><ul><li> Denver Area Support Group:
  17. 17. CMT Night at Chad’s Grill
  18. 18. Media Relations- Doctor and Patient </li></ul> Interview for Local Daily<br /><ul><li>Health Fair participation at St. Andrews </li></ul> Catholic Church<br /><ul><li>Letter to Colorado Governor by Support </li></ul> Group Action Facilitators<br /><ul><li>Triathlon Competitors- Jonah Berger and</li></ul> Sean McKale<br /><ul><li>CMT Booth at Bike Rally at Exempla/Good </li></ul> Samaritan Medical Center in Lafayette, CO<br /><ul><li>Distribution of CMT Awareness Week </li></ul> Materials<br />
  19. 19. Florida<br /><ul><li> Tampa Bay Area Support Group:
  20. 20. Awareness Table at Eckerd </li></ul> College<br /><ul><li>Information Set-Up at </li></ul> Local Library<br /><ul><li>Post Office CMT Display
  21. 21. Media Relations
  22. 22. Outreach to U.S. </li></ul> Representative Kathy Castor<br /><ul><li>Distribution of CMT Awareness </li></ul> Week Materials<br />
  23. 23. Georgia<br /><ul><li> Atlanta Area Support Group:
  24. 24. Meetings with Local Congressman
  25. 25. Display Booth at CHOA Egelston
  26. 26. Newsletter Articles
  27. 27. Media Relations- Local Dailies and TV
  28. 28. Discussions of CMT with Doctors at Neurology clinics
  29. 29. Information Display
  30. 30. Distribution of CMT Awareness Week Materials</li></li></ul><li>Illinois<br /><ul><li> Chicago Area Support Group:
  31. 31. Reach for the STARs™- Walk and Roll for CMT
  32. 32. Media Relations
  33. 33. Distribution of CMT Awareness Week Materials</li></li></ul><li>Kansas<br /><ul><li> Wichita Area Support Group:
  34. 34. Balloon Launch
  35. 35. Information Displays
  36. 36. Distribution of CMT Awareness Week </li></ul> Materials<br />
  37. 37. Kentucky<br /><ul><li> Burlington Area Support Group:
  38. 38. School Outreach Through CMT T-shirts
  39. 39. Distribution of CMT Awareness Week Materials</li></li></ul><li>Maryland<br /><ul><li> Williamsport Area :
  40. 40. Scrapbooking Event and Fundraiser
  41. 41. Distribution of CMT Awareness Week Materials</li></li></ul><li>Massachusetts<br /><ul><li> Boston Area Support Group:
  42. 42. Pandora STAR™ </li></ul> Bead Fundraiser<br /><ul><li>Media Relations
  43. 43. Distribution of CMT </li></ul> Awareness Week Materials<br />
  44. 44. Michigan<br /><ul><li> Ann Arbor Area/Kalamazoo Area Support Groups :
  45. 45. Ministry Counter- Information Distribution
  46. 46. CMT Information on Community Forum Website
  47. 47. Media Relations with Local TV and Dailies
  48. 48. Distribution of CMT Awareness Week Materials</li></li></ul><li>Nevada<br /><ul><li> Las Vegas Area Support Group:
  49. 49. The Archy Train (Jerry Cross)
  50. 50. MDA Stride & Ride at Town Square
  51. 51. Pahrump Fair & Festival and Parade
  52. 52. Distribution of CMT Awareness Week Materials</li></li></ul><li>New Jersey<br /><ul><li> Central New Jersey Area Support Group:
  53. 53. “Dine to Donate” Fundraiser at 6 Locations
  54. 54. CMT Education at Marlboro Council Meeting
  55. 55. Distribution of CMT Awareness Week Materials</li></li></ul><li>New York<br /><ul><li> Albany Area Support Group:
  56. 56. “Dine to Donate” Fundraiser
  57. 57. Media Relations
  58. 58. Distribution of CMT Awareness Week Materials
  59. 59. Cornwall Area:
  60. 60. Poster distribution to Doctors and </li></ul> Physicians Offices<br /><ul><li>Mobile Display of Archy and CMT Poster
  61. 61. CMT Buttons and T-Shirt Distribution
  62. 62. Westchester Area Support Group:
  63. 63. Fundraising for Ken Gomez </li></ul> “Ride for a Cure”<br /><ul><li>Distribution of CMT Awareness Week </li></ul> Materials<br />
  64. 64. North Carolina<br /><ul><li> Triangle Area Support Group:
  65. 65. Materials Distribution
  66. 66. CMT Information Display </li></ul> at Local Shopping Centers<br /><ul><li>Creation of Educational Quizzes</li></li></ul><li>Pennsylvania<br /><ul><li>Johnstown Area Support Group:
  67. 67. CMT Education at Local Schools
  68. 68. “Cooking Adventures with Archy,”</li></ul> Cookbook/Coloring book for Kids<br /><ul><li>Booth at Conemaugh Neuroscience</li></ul> Center and “CMT Night” Presentation<br /><ul><li>Media Relations
  69. 69. Walk/Run on Incline Trail
  70. 70. CMT Balloon Release
  71. 71. Philadelphia Area Support Group:
  72. 72. Distribution of CMT Awareness Week Materials
  73. 73. Scheduled CMT Booth at Crozer-Chester </li></ul> Medical Center<br />
  74. 74. Tennessee<br /><ul><li>Savannah Area Support Group:
  75. 75. Trail of Tears- Motorcycle Booth
  76. 76. CMT Education at ECM Hospital </li></ul> and Helen Keller Hospital<br /><ul><li>Information Distribution at </li></ul> Bone and Joint Clinics<br /><ul><li>Display at Sunset Trust Bank
  77. 77. Distribution of CMT Awareness </li></ul> Week Materials<br />
  78. 78. Virginia<br /><ul><li>Williamsburg Area Support Group:
  79. 79. Local PSA Distribution to Radio </li></ul> Stations<br /><ul><li>Media Relations- Local Dailies
  80. 80. Information Distribution to </li></ul> Doctors Offices, Local Businesses<br /> and Libraries<br /><ul><li>Classroom Presentation at Local </li></ul> Elementary Schools<br /><ul><li>Distribution of CMT Awareness </li></ul> Week Materials<br />
  81. 81. Washington, D.C.<br /><ul><li> Washington, D.C. Metro Area
  82. 82. Support Group Meetings
  83. 83. Distribution of CMT Awareness Week Materials</li></li></ul><li>Other Support and Action Groups Across the U.S. <br />Many other CMT support groups across the nation played an integral role in distributing information, CMT materials and awareness about CMT throughout the community and online. <br /><ul><li> AL- Birmingham Area
  84. 84. AZ- Phoenix Area
  85. 85. CA- Los Angeles Area
  86. 86. CA- Sacramento Area
  87. 87. CA- San Diego Area
  88. 88. CA- Santa Rosa Area
  89. 89. CA- SF/East Bay Area
  90. 90. CT- East Providence Area
  91. 91. FL- Inverness Area
  92. 92. FL- Orlando Area
  93. 93. LA- Mississippi/Louisiana Area
  94. 94. MD- Hagerstown Area
  95. 95. ME- Portland Area
  96. 96. MI- Chesaning Area
  97. 97. MN- Benson Area
  98. 98. MO- Anderson Area
  99. 99. MO- St. Louis Area
  100. 100. NV- Reno Area
  101. 101. NH- New Hampshire Area
  102. 102. NM- Albuquerque Area
  103. 103. NY- Greater New York Area
  104. 104. NY- Horseheads Area
  105. 105. NC- Triangle Area
  106. 106. OH- Greenville Area
  107. 107. OR- Portland Area
  108. 108. PA- Bucks County Area
  109. 109. PA- Northwestern Area
  110. 110. PA- Pittsburgh Area
  111. 111. RI- Rhode Island Area
  112. 112. TN- Nashville Area
  113. 113. TX- Dallas Area
  114. 114. TX- Houston Area
  115. 115. VT- Vermont Area
  116. 116. VA- Harrisonburg Area
  117. 117. WA- Seattle Area
  118. 118. WA- Tacoma Area</li></li></ul><li>A Special Thanks to the STARs that Rose Above and Beyond<br /><ul><li>Gretchen Glick (Extensive Community Outreach)
  119. 119. Dick Kutz (Collage Project)
  120. 120. Susan Ruediger (Email Chain Project)
  121. 121. Karen Smith (Archy Project)
  122. 122. Mark Willis (Social Media Profile Picture Change Initiative)
  123. 123. Pat Dreibelbis
  124. 124. Kim Magee
  125. 125. Elizabeth Ouellette
  126. 126. Dana Schwertfeger
  127. 127. Jeana Sweeney </li></li></ul><li>Around the CountryAfter Awareness Week: Onward and Upward!<br /><ul><li>Cooterfest- www.cooterfestival.com
  128. 128. igive donations: www.igive.com
  129. 129. Zazzle CMTA Store - Archy T-Shirts and Stamps: www.zazzle.com/cmtaatzazzle
  130. 130. ebay Sales through Mission Fish: www.ebay.com
  131. 131. Tim Phillips: CMT Creates Music: www.timjohnphillips.com
  132. 132. Active Forever: www.cmtausa.org
  133. 133. Ken Gomez Ride for the Cure: http://www.facebook.com/ken.gomez
  134. 134. San Diego CMT2 Neurology Meeting: Nov. 10-12, 2010
  135. 135. Mike Shy and Steve Scherer Present in California
  136. 136. Daily Dundee’s Bar and Grill Event: Information and Donations
  137. 137. GE Aviation: 2nd Annual Golf Outing Oct. 21
  138. 138. CMT Education in the Classroom
  139. 139. Future Fundraising Appeals
  140. 140. Bowling Fundraiser California
  141. 141. Chris Wodke’s Run for the Cure
  142. 142. And MORE!</li></li></ul><li>Activate. <br />
  143. 143. Educate. <br />
  144. 144. Donate. <br />
  145. 145. The time is now. <br />
  146. 146. “A leader is one who knows the way, goes the way and shows the way.”<br /> - John C. Maxwell<br />Thank you for all that you do!<br />http://www.danosongs.com<br />

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