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Richard Corbridge, CIO at NIHR - Open data within clinical research environment

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Richard Corbridge, CIO at NIHR spoke at the CIO Event, March 2013

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Richard Corbridge, CIO at NIHR - Open data within clinical research environment

  1. 1. Open Data within Clinical ResearchRichard Corbridge Supporting research to make patients, and the NHS, better
  2. 2. Evolution & Creation of Research Capability There are two types of creation myths: those where life arises from mud, and those where life falls from the sky. In our myth computers arose from the mud, and code fell from the sky. George Dyson - Turing’s Cathedral Successful clinical research outcomes happen in two ways: moments of unplanned genius occurring under pressure and as a reaction to environments, and those where organisational intelligence is applied to ensure that delivery of a health outcome is probable and possible and where evidence is overwhelming to prove the benefit.Unattributed quote - Clinical Research Community
  3. 3. Evolution & Creation of Research Capability Clinical research is most akin to a mine, a great deal of waste rock requiring huge effort has to be removed before the rich seam of discovery can be got at.Sir Andrew Witty, CEO, GlaxoSmithKline Three things we have to do with informatics to hit the rich seam 1 Innovate, INNOVATE, Innovate 2 Remove COMPLEXITY for researchers and participants 3 Increase TRANSPARENCY of inputs and outputs
  4. 4. The needle in the BIG DATA haystack Higher Quality Lower Cost Quicker
  5. 5. The needle in the BIG DATA haystack What is OPEN DATA? The comedy answer is DATA that is OPEN… But it is as simple as that… Open data - data that can be made use of by anyone through analysis, linkages, and evidence based delivery. Real World Data – the Big Data of 2013!
  6. 6. The needle in the BIG DATA haystack Numerous scientists have pointed out the irony that right at the historical moment when we have the technologies to permit worldwide availability and distributed process of scientific data, broadening collaboration andaccelerating the pace and depth of discovery we are busy locking up that data and preventing the use of correspondingly advanced technologies on knowledge John Wilbanks, VP Science, Creative Commons Until now… UK PLC and a number of global Pharma all now have an Open Datastrategy and will, in 2013, move to facilitate the use of BIG DATA in an OPEN way
  7. 7. Blackpool Rock Data Information Insight Intelligence
  8. 8. Open Data within Clinical ResearchRichard Corbridge Supporting research to make patients, and the NHS, better

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