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BDE SC1 Workshop 3 - MIDAS (Michaela Black)

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Overview of the MIDAS project presented at BDE SC1 Workshop 3, 13 December, 2017.

https://www.big-data-europe.eu/the-final-big-data-europe-workshop/
http://www.midasproject.eu/about/

Published in: Healthcare
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BDE SC1 Workshop 3 - MIDAS (Michaela Black)

  1. 1. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 H2020-SC1-2016-CNECT SC1-PM-18-2016 - Big Data Supporting Public Health Policies This project is funded by the European Union Dr Michaela Black
  2. 2. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union MIDAS - Strengths • Project Funding Review Score: 15/15 • Value: €4.5M • Duration: 40 months • Strong consortium – Academic Partners – Technical Partners – Policy Board Partners • Great opportunities – Opportunities for improved policies for health using big data across Europe – High impact research – High impact output potential
  3. 3. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union
  4. 4. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union Scientific/Technical Team Policy Board University of Ulster (Coordinator) South Eastern Health And Social Care Trust NHS (SET) Dublin City University (DCU) Health and Social Care Board (HSCB) Business Services Organisation (BSO) NI City of Oulu University Health Service Executive (HSE) Ireland VTT: Technical Research Centre of Finland Finland’s National Institute for Health and Welfare (THL) VICOMTECH (Spain) BIOEF Public Foundation of the Health Department of the Basque Government KU Leuven, Department of Electrical Engineering-ESAT (Belgium) Department of Health Public Health England (DH PHE) Industry: IBM Ireland Arizona State University/ Mayo Clinic SME: Analytics Engine (UK) SME: Quintelligence (Slovenia)
  5. 5. COLLECTION DATA PREPARATION ANALYTICS VISUALISATION DATA INTEGRATION Midas Secure Interoperable Data Architecture Platform Geographically Diverse Heterogeneous Data-Sets Member State Policy Makers & Citizens Citizen Focused Effective Informed Policy Development Within Regions, Member States and Across Member States – Health Policy as well as Integrated Policy Development e.g. Social Housing Member State Policy Makers & Citizens
  6. 6. Solution Drivers Data Providers MIDAS Platform Stakeholders VTT, Vicomtech,SME s, Universities, IBM HSC, BSO, HSE, ES (Basque), FI, BE, PHE Insurance Health Agencies Acute, Primary and Community Care Visualisation Analytics Data Connection Layer MIDAS Platform Policy Makers Ministries and Departments of Health, PHE, THL Citizens Social Media & ‘Mydata’ for Crowd Connection & Value Co-creation
  7. 7. Current Unstable Infrastructure MIDAS Platform Supported Stable Infrastructure • Increasing Aging Population • Less Resources & Finances in Health Care • Fractured Heterogeneous Data for Policies • Improved Data Access • Enhanced Policy Creation & Effectiveness • Empowered Patient Stakeholders: Policy Board Members - Testing, Evaluation & User Feedback Leading Solution Drivers 1. Access Heterogeneous Data Sources for Policies Including Governance & Consent 2. Data Connector Layer 3. Data Analytics Layer 4. Visualization Tool for Policy makers
  8. 8. Stakeholders: Policy Board Members - Testing, Evaluation & User Feedback Leading Solution Drivers 1. Access Heterogeneous Data Sources for Policies Including Governance & Consent 2. Data Connector Layer 3. Data Analytics Layer 4. Visualization Tool for Policy makers Emerging data driven analytics = Meaningful, Actionable Information for Prevention & Risk Stratification = Co-created Benefit to Citizens and Stakeholders • Data Sources: OpenData (EU), MyData (FI) Open Data Providers • Data Consent & Governance: Ministries of Health in partner regions • Connect Internal & External Existing data Sources • Technical Consortium • [Machine Learning], Forecasting, Simulation • Technical Consortium • Policy Review ,Forecasting ,Simulation, Effectiveness • Technical Consortium MIDAS Platform For Policy Makers
  9. 9. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union Improved Policy Process Policy Review Assure Governance Collect & Use Data with Key Indicators Explore & Simulate Models Evaluation Build Evidence for Policy Review
  10. 10. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union HEALTH CHECK-UP 2.0 Analysing & evaluations needs Wellbeing trainer view Health nurse view Health care provider invites customer for a visit when risk levels rise  Early intervention Continuous feedback and guidance HEALTH ACCOUNT MyData in MIDAS COLLECTION DATA INTEGRATION ANALYTICS DATA PREPARATION VISUALISATION Policy Makers & Citizens
  11. 11. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union Policy Board Members Pilots ● Key stakeholders have been identified from each pilot and with them the most relevant scenarios and user stories for the pilot topic: ● Basque Country (BIOEF): Child overweight and obesity prevention prioritised policy ● Finland (THL): Preventive mental health and substance abuse of young people ● Northern Ireland (BSO): Children in Care ● Republic of Ireland (HSE): “Healthy Ireland” framework and related policies
  12. 12. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union Co-creative Workshop on User Personas 1. Decision makers and public health authorities: who mainly use predefined dashboards. They need to be aware of the current and past situation of the health domain and be able to test the outcomes of possible decision scenarios 2. Information Officers: the supporting personnel of health care policymakers, who create the dashboards for the first group according to the current need 3. Data Scientist: the health care research oriented users, who can even develop the analytics further, define new forecasting models and analytics scenarios 4. System management: updates health system metadata, maintains interfaces to virtual data storage, grants access rights to users In addition we added 2 new personas: 5. Clinical Policy Directorate 6. CEO of a Charity
  13. 13. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union
  14. 14. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union Reasoning Loop Logic
  15. 15. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union MIDAS Dashboard Demonstrator
  16. 16. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union Open Data NI
  17. 17. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union Social Media - Our Goal Capture the ”voice of the public” through open social data. To provide a clear picture to policy makers, so they can make better informed decisions. Analyze and aggregate the data so that it can be read easily That drives a twitter chat bot to engage with the public Allows policy makers to create a custom campaign By building a tool that
  18. 18. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union Chatbots and Social Media Our application To post a question to the public via a tweet Uses the Twitter API We are free to Tweet them back and ask them to start a direct message session with a chatbot
  19. 19. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union • Twitter account: @iix_midas. • Either: – Reply to ”Pinned” tweet asking about depression #MidasDepression. – Open up Direct Messages, Private Messages, Messages etc. and start talking. • At any point type “start again” to be presented with questionnaire options.
  20. 20. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union WP 2 - Ethics Governance & Consent • Personal Identifiable Data (PID) or Personal Identifiable Information (PII) is data from which individuals may be identified • Issues around using PID/PII – Identifiable data can be used without an individual’s consent for various purposes (Great Britain, 1998) – The GDPR states that anonymised data is not subject to data protection considerations(The European Parliament and the Council of Europe, 2016) – However, linking disparate datasets represents a real risk to anonymity (Cohen et al., 2014) • Jigsaw Identification (Wellcome Trust, 2016) – Public perceptions of data usage?
  21. 21. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union WP 2 Continued • PHE will conduct primary research to explore public perceptions concerning the use of PID • How do public perceptions of data sharing vary depending on: – type/ nature of data – the context of sharing and – the recipient organisation?
  22. 22. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union Exploring MIDAS Datasets StreamStory An exploratory data mining tool based on a system for the analysis of multivariate time series. It computes and visualizes a hierarchical Markov chain model which captures the qualitative behavior of the systems’ dynamics. It aims finding periodicity over the TUDA dataset. It provides an interactive diagram representing the cycles in the dataset, based on a sequence of states of different size (representing time spent in them) and relation between states. This includes choice of parameters, timescale or clustering algorithm to use by choice on dropdown menus. Free Text Tool A text mining based tool that permits to extract information from fields in identified MIDAS datasets, such as the Intego dataset, enabling complementary analytics and visualisation based on automated text annotation.
  23. 23. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union Quintelligence Demos midas.quintelligence.com
  24. 24. Partners European Commission MIDAS Project Coordination Committee Scientific & Technical Manager Dissemination, Exploitation & Communication Manager Participant Managers Quality Manager WP LeadersWP1 .. WP 8WP1 Task Leaders Policy Board Chair & Co-chairs (Policy, Ethics & Governance) T1.2T1.1 Project Coordinator Dissemination, Exploitation & Communication Committee Scientific & Technology Committee T1.3 Ethical and Privacy Advisory Group (EPAG) Innovation Manager
  25. 25. WP5 – Policy Visualisation WP3 – Data Mapping WP4 – Data Analytics & Simulation WP8–EthicsRequirements WP2-Governance,ConsentandPrivacy WP6-EvaluationandImpactAssessment
  26. 26. WP1 - Project Management & Coordination WP2 - Governance, Consent & Privacy WP3 - Architecture & Data Sources WP4 - Data Analytics & Simulation WP5 - Data Visualisation for Public Health Decision Making WP6 – Integration Evaluation & Impact Assessment; WP2 Evaluation of Prototype; WP5 UI Testing & Validation WP7 - Project Dissemination, Exploitation & Awareness Raising WP2 - Governance, Consent & Privacy WP3 - Architecture & Data Sources WP4 - Data Analytics & Simulation WP5 - Data Visualisation for Public Health Decision Making WP3 WP4 WP5 WP8 – Ethics Requirements WP8 – Ethics Requirements WP6 – Integration Evaluation & Impact Assessment; WP2 Evaluation of Prototype; WP5 UI Testing & Validation Startup UCD Iteration 1 UCD Iteration 1 Shutdown
  27. 27. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union MIDAS - Achievements to Date • Strong Policy Board Interaction – Cross Site Visits – Sharing of Current Practice – Growing Policy Board • Impact journal and conference papers • Workshops • Pilot case videos • Show Case & Dissemination Events – Brussels – November 2016 – BIOEF - Bilbao – February 2017 – Helsinki – June 2017 – 16​ ​November​ ​2017​ ​- MIDAS​ ​Platform​ ​Co-Design​ ​Workshop, Focus​ ​On​ ​Big​ ​Data​ ​in​ ​Health, Belfast – 17​ ​November​ ​2017​ ​-​ ​MIDAS​ ​Consent,​ ​Ethics​ ​&​ ​GDPR​ ​Workshop, Ulster University
  28. 28. @MIDASProjectEUhttp://www.midasproject.eu Grant Agreement No. 727721 This project is funded by the European Union mm.black@ulster.ac.uk https://www.youtube.com/watch?v=yiVd4wgVA1s Thanks

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