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NHMRC and data sharing

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Presentation from Dr Wee-Ming Boon, National Health and Medical Research Council, to the AHMEN meeting on 19th June 2017, in Sydney, Australia.

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NHMRC and data sharing

  1. 1. Australasian Health and Medical Journal Editors’ Network Australian National Data Service Meeting 19 June 2017 Dr Wee-Ming Boon, Senior Research Scientist Research Policy & Translation NHMRC
  2. 2. Presentation overview • National Health and Medical Research Council (NHMRC) overview • Open Data: Whole of Government approach • Open Data: NHMRC requirements • Australian Code for the Responsible Conduct of Research
  3. 3. NHMRC Overview • NHMRC is a Commonwealth entity • The NHMRC’s main responsibilities are: o Fund high quality health and medical research and build research capability o Support the translation of health and medical research into better health outcomes o Promote the highest ethical standards in health and medical research.
  4. 4. 2016-17 Federal Budget - $450.6 billion
  5. 5. 2016-17 Federal Budget – R&D $10.1 billion
  6. 6. NHMRC Funding NHMRC expenditure on health and medical research is: • ~$800 million per annum • ~15% of all Australian health R&D • ~10% of Commonwealth expenditure on all R&D
  7. 7. • 7 December 2015 • Grow the economy, transform policy & improve service delivery by: o Optimising the use and reuse of public data o Collaborating with private and research sectors o Releasing non sensitive data as open by default • Public data: All data collected by government entities. Australian Govt. Public Data Policy Statement
  8. 8. Australian Government / Sector Initiatives Department of Education and Training working group • Developing government strategy for open access to publicly funded publications and data. • National Innovation and Science Agenda to promote innovation through publishing and sharing public data. • Boosting the Commercial Returns from Research agenda to open business and community access to publicly funded publications and data.
  9. 9. • National ICT Australia (NICTA) and CSIRO’s digital research unit merger: Data61 to connect government datasets and release them on open platforms. • data.gov.au to find, access, and reuse Government datasets. • Australia’s First Open Government National Action Plan 2016-18 draft. • Productivity Commission Data availability and use final report. • F.A.I.R Statement Australian Government / Sector Initiatives
  10. 10. Australian National Data Service • National Collaborative Research Infrastructure Strategy funding. • Research Data Australia discovery portal that provides access for research organisations, government and cultural institutions. Australian Data Archive • Collection and preservation of digital research data for secondary analysis . • Consistent with ARC data management requirements. Australian Government / Sector Initiatives
  11. 11. International research funders • Data management or sharing plan: National Science Foundation, National Institutes of Health (USA), Research Councils, Wellcome Trust (UK) • Retaining research datasets: Canadian Institutes of Health, Social Sciences and Humanities Research Council (Canada) • Provide/specify which repository to use: Economic and Social Research Council, SRC, National Environment Research Council , Medical Research Council, Cancer Research, Wellcome Trust (UK).
  12. 12. “NHMRC encourages data sharing and providing access to data and other research outputs (metadata, analysis code, study protocols, study materials and other collected data) arising from NHMRC supported research.” NHMRC: Statement on Data Sharing
  13. 13. NHMRC: Principles for accessing and using publicly funded data for health research • common set of priorities • encourage communication • understand each other’s roles and responsibilities • optimise data use to benefit all
  14. 14. Open Access Policies: Publications • NHMRC: requires that any publication arising from NHMRC supported research must be deposited into an open access institutional repository and/or made available in another open access format within a twelve (12) month period from the date of publication.
  15. 15. Australian Code for the Responsible Conduct of Research and Data Management 2007
  16. 16. Responsibilities Management of research data (section 2) o Institutions: Ownership, data management & access o Researchers: Data management, access and privacy/ethics Dissemination of research (section 4) o Institutions: publication, promotion and communication o Researcher: dissemination and the level of coverage
  17. 17. Review of the Code • Review is to ensure the Code remains practical and relevant in an evolving research sector and landscape, both domestically and internationally. • A principles-based Code with accompanying Better Practice Guides (BPG) is currently being considered. This approach: • allows institutions flexibility in how to apply the principles and responsibilities supporting them • includes adopting an approach that is best suited to their size and internal systems. • designed to be effective across all disciplines.
  18. 18. Data management and the Code • A new potentially principles-based Code will specify responsibilities for both institutions and researchers in relation to the management of research data. • A specific BPG on data management is currently under development in consultation with the Australian National Data Service (ANDS). • Input from appropriately experienced individuals within institutions will also be sought. • Guide institutions and individuals to manage their data for maximum benefit and for long term use. maximise the potential value of data and materials for future research. • Public consultation on the BPG will occur later in the year.
  19. 19. wee-ming.boon@nhmrc.gov.au 03 8866 0449

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