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Med.data.edu.au project

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Presentation by Mohammad Tawhidul Islam, Intersect, to the AHMEN meeting on 19 June 2017 in Sydney, Australia

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Med.data.edu.au project

  1. 1. A nationally-funded initiative to provide research data storage and related services for health and medical research Mohammad Islam, Intersect Australia This work is licensed under the Creative Commons Attribution 4.0 International License (CC-BY-4.0). To view a copy of the license, visit https://creativecommons.org/licenses/by/4.0/
  2. 2. What is med.data.edu.au? Nationally-funded Data Infrastructure for Health and Medical Research Data NCRIS-funding through the RDSI (Research Data Storage Infrastructure) and RDS (Research Data Services) projects
  3. 3. What is med.data.edu.au? Data Infrastructure
  4. 4. What is med.data.edu.au? Data Infrastructure Cloud Storage (Networked via AARNet) Management (Mediaflux, MyTardis, Aspera) Compute (Nectar Research Cloud, HPC) Analysis Tools (BYO Software)
  5. 5. What is med.data.edu.au? Data Infrastructure Cloud Storage (Networked via AARNet) Management (Mediaflux, MyTardis, Aspera) Compute (Nectar Research Cloud, HPC) Analysis Tools (BYO Software) Dissemination of Results and Data Access (Data Registry)
  6. 6. What is med.data.edu.au? Data Infrastructure Cloud Storage (Networked via AARNet) Management (Mediaflux, MyTardis, Aspera) Compute (Nectar Research Cloud, HPC) Analysis Tools (BYO Software) Dissemination of Results and Data Access (Data Registry) Resource Library Protecting Personal Health Information in Research Legislation (Commonwealth, All States &Territories) Codes, Policies and Best Practice (NHMRC, NIH) IT security framework (ASD Info Security Manual)
  7. 7. What is med.data.edu.au? Data Infrastructure Cloud Storage (Networked via AARNet) Management (Mediaflux, MyTardis, Aspera) Compute (Nectar Research Cloud, HPC) Analysis Tools (BYO Software) Dissemination of Results and Data Access (Data Registry) Resource Library Protecting Personal Health Information in Research Legislation (Commonwealth, All States &Territories) Codes, Policies and Best Practice (NHMRC, NIH) IT security framework (ASD Info Security Manual) Interactive Use Guide (Is med.data right for my data?)
  8. 8. What is stored The majority of 6PB data is re-identifiable/non- identifiable.
  9. 9. What is stored The majority of 6PB data is re-identifiable/non- identifiable. For individually identifiable data a discussion about risk management is required: • What is the sensitivity level of the data? • Use Cases: How, where and by who is the data to be used? Dictates the specifics of the IT security set-up (e.g. encryption, authentication) required.
  10. 10. Use Guide On-line wizard Navigates the user through relevant info
  11. 11. Info when requested Authoritative references Use Guide
  12. 12. Option to be contacted for Node Specific Information End Use Guide
  13. 13. Who manages it?
  14. 14. Who is using med.data nationally? 54 Data Collections 2.6 PB (~600,000 DVDs) May 2017
  15. 15. Acknowledgement Dr Jeff Christiansen Funding Operators
  16. 16. med.data.edu.au/support mohammad@intersect.org.au Thank You

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