How to foster your familys resilience and buildemotional well-being while living with chronic illnessCaroline Hill, LCSWUC...
Introduction How to know if someone in your family needspsychological help Most common mental health conditions Differe...
The Emotional Life of Chronic Illness A lifelong process with ups and downs Characterized by periods of stability and pe...
Siblings Feelings of fear, anger, jealousy, confusion, worry Minimizing or disbelief Express their feelings in a variet...
Parents Feelings of guilt, frustration, responsibility andhelplessness Vulnerable to symptoms of anxiety and depression...
Depression vs. AnxietyDepressive symptoms Anxiety symptoms Depressed/”down” mood; inchildren/teens anger orirritability ...
Important Considerations Persistence: how long? Severity: how bad? Impairment: how much does it affect your everydaylife?
Red Flags Marked change in behavior Cutting or other forms of self harm Suicidal thoughts, notes or statements Thought...
Where to Start Pediatrician Rheumatology team School counselor or social worker Local mental health agency Insurance ...
A Bit About Counseling A very common referral A series of conversations with a trained professional Variables: Kind of...
Counseling (con’t) 2 main benefits: Emotional outlet in a confidential space Help with coping and problem solving Fami...
Good News Depression and anxiety are very treatable conditions(and not necessarily with medications) Many different moda...
Resilience The ability to adapt and do well despite adversity Children facing chronic adversity do better when they: Ha...
Building Family ResilienceDevelop a support networkHave an outlet for feelingsIdentify and build on your family’s stren...
Family Resilience (con’t)Help your child identify their skills and strengthsMaintain perspective and hope for the future...
Conclusions Children and teens living with chronic illness are athigher risk for mental health disorders as are theirfami...
JA Family Education Day Keynote: The Ups and Downs of Arthritis--How to foster your family's resilience and build emotiona...
JA Family Education Day Keynote: The Ups and Downs of Arthritis--How to foster your family's resilience and build emotiona...
JA Family Education Day Keynote: The Ups and Downs of Arthritis--How to foster your family's resilience and build emotiona...
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JA Family Education Day Keynote: The Ups and Downs of Arthritis--How to foster your family's resilience and build emotional well-being while living with chronic illness

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  • JA Family Education Day Keynote: The Ups and Downs of Arthritis--How to foster your family's resilience and build emotional well-being while living with chronic illness

    1. 1. How to foster your familys resilience and buildemotional well-being while living with chronic illnessCaroline Hill, LCSWUCSF Benioff Children’s Hospital
    2. 2. Introduction How to know if someone in your family needspsychological help Most common mental health conditions Different kinds of help available and how to accessservices Issues pertaining to siblings and parents What you can do as parents to support your family’semotional well-being and resilience
    3. 3. The Emotional Life of Chronic Illness A lifelong process with ups and downs Characterized by periods of stability and periods ofchallenge, not necessarily illness related Additional burdens of chronic illness Big range of normal reactions Different family members may respond differently Most families regain stability within weeks to months
    4. 4. Siblings Feelings of fear, anger, jealousy, confusion, worry Minimizing or disbelief Express their feelings in a variety of ways Withdrawal/clinginess Regression (younger children) Attention getting or “acting out” behaviors Complaints that they feel sick too
    5. 5. Parents Feelings of guilt, frustration, responsibility andhelplessness Vulnerable to symptoms of anxiety and depression Torn between the needs of the child with chronicillness and the needs of their other children Changing roles/identities Work stress Financial burden
    6. 6. Depression vs. AnxietyDepressive symptoms Anxiety symptoms Depressed/”down” mood; inchildren/teens anger orirritability Loss of interest or pleasure inactivities Significant weight loss or gain Insomnia or sleeping too much Fatigue or loss of energy Feelings of worthlessness orexcessive guilt Problems with concentration Recurrent thoughts of death Excessive worry For children, clinginess,school refusal, loss ofmilestones Restlessness or feeling onedge Easily fatigued Difficulty concentrating Irritability Muscle tension Sleep disturbance
    7. 7. Important Considerations Persistence: how long? Severity: how bad? Impairment: how much does it affect your everydaylife?
    8. 8. Red Flags Marked change in behavior Cutting or other forms of self harm Suicidal thoughts, notes or statements Thoughts of hurting others Substance abuse
    9. 9. Where to Start Pediatrician Rheumatology team School counselor or social worker Local mental health agency Insurance plan for information and referrals Emergency room or 911
    10. 10. A Bit About Counseling A very common referral A series of conversations with a trained professional Variables: Kind of counseling (individual, marital, group, etc.) Setting (private office, school, hospital, etc.) Training (LCSW, LMFT, Ph.D., MD) Modality (CBT, brief, play therapy, etc.)
    11. 11. Counseling (con’t) 2 main benefits: Emotional outlet in a confidential space Help with coping and problem solving Family-therapist fit is important: interview a fewtherapists Give it a chance
    12. 12. Good News Depression and anxiety are very treatable conditions(and not necessarily with medications) Many different modalities besides medication thathave been proven effective (talk/play therapy, arttherapy, biofeedback and other integrative therapies) Changes in lifestyle (e.g. diet, sleep, exercise) can yieldpositive results Benefits possible within a few weeks of treatment
    13. 13. Resilience The ability to adapt and do well despite adversity Children facing chronic adversity do better when they: Have a positive relationship with a competent adult Are good learners and problems solvers Have areas of competence that they value
    14. 14. Building Family ResilienceDevelop a support networkHave an outlet for feelingsIdentify and build on your family’s strengthsHelp your children have valued roles in the familySpend time together having funHelp others in needEncourage and model self care
    15. 15. Family Resilience (con’t)Help your child identify their skills and strengthsMaintain perspective and hope for the futureEducate yourself and your children about the diagnosisKnow your child’s educational rights (504 Plan)Consider being an advocate or helping your child to beone
    16. 16. Conclusions Children and teens living with chronic illness are athigher risk for mental health disorders as are theirfamilies Help is available in a variety of forms Building resilience in your family is possible and canmake your family stronger, happier, and betterprepared to cope with the challenges of living withchronic illness

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