MAF2 master powerpoint presentation

1. Members Advisory Forum

2. Welcome Remarks
Henry Simmons, Chief Executive

3. Early Diagnosis Campaign
How to start those difficult conversations &
what would a campaign look like?
Chris Lynch, Deputy Director, Communications & Marketing

4. Let’s talk about dementia!

5. Questions:
1) From your own experiences: How can we encourage
people to initiate the difficult conversations – especially
the ‘worried about your memory’ conversation? What
works, where, when and who?
2) It’s a busy, noisy world - full of marketing messages.
How can we get people’s attention? If it was you – how
would we get your attention?

6. Let’s talk about dementia!
Members’ Advisory Forum in April 2014.
Barriers to getting a diagnosis
•Fear
•Stigma
•Perceptions of dementia
•Lack of knowledge of illness or help available
•Response from professionals

7. Social marketing research.
Changing Attitudes to Dementia
Dr Nicholas Jenkins - University of Edinburgh:
Recommendations:
1)Involve people with a diagnosis, carers, partner, family, friends, plus professionals and
experts. Case studies.
2)The campaign should seek to promote a positive message, emphasising what is possible
following diagnosis, rather than highlighting the symptoms or ‘warning signs’ of dementia.
3)Disseminated information via a wide range of channels, including: local newspapers and
websites, local TV & radio, websites, buses and leaflets.
4)Care should be taken to ensure outputs from the campaign are accessible to people from
BME communities. This includes translation into key BME languages (e.g. Urdu, Hindi,
Cantonese) and dissemination through local BME channels (e.g. Awaz FM)

8. Let’s talk about dementia!

9. Lots of opportunities.

10. Educating Rita
Michael Caine’s character:
“How you would resolve the staging difficulties inherent in a
production of Ibsen's Peer Gynt?”
Julie Walter’s character:
“do it on the radio"

11. “Do it on the radio!”

12. “Do it on the radio!”
Bauer Radio Group:
Clyde 2
Forth 2
Moray Firth Radio (Inverness, Highland, Moray)
Northsound (Aberdeen/shire)
Radio Borders
Tay AM (Dundee, Perth, Kinross, Fife)
West FM (Ayrshire)
West Sound (Dumfries & Galloway)

13. Lots of opportunities.

14. Questions:
1) From your own experiences: How can we encourage
people to initiate the difficult conversations – especially
the ‘worried about your memory’ conversation? What
works, where, when and who?
2) It’s a busy, noisy world - full of marketing messages.
How can we get people’s attention? If it was you – how
would we get your attention?

15. Break

16. Paying for care
Jim Pearson, Deputy Director, Policy

17. Mixed economy of care in Scotland
‒ NHS healthcare
‒ Local Authority services
‒ Voluntary sector providers
‒ Private sector providers
‒ Social Security Benefits – (e.g. Attendance Allowance,
Disability Living Allowance, Personal Independent Payment)
‒ Unpaid care

18. Economic Impact of Dementia in Scotland
Source: Dementia
UK, 2014

19. Paying for care
‒ Health Care (free at point
of delivery)
‒ Social Care (subject to
charges)
‒ Two separate charging
frameworks
• Non residential care
• Residential Care

20. Non Residential Care Charging
‒ Sect 87 Social Work (Scot) Act 1968 makes provisions
for local authorities to charge for social care
• Charges must be reasonably practical to pay
• Must not exceed the actual cost of providing the
social care
‒ Free personal and Nursing Care
‒ Convention of Scottish Local Authorities (COSLA)
Guidance
‒ 32 Local Authorities = 32 Charging policies
• Lack of transparency – many variables

21. Local Authority Charging Taper variations
‒ Aberdeen City 67%
‒ Aberdeenshire 100%
‒ Angus 66%
‒ Argyll & Bute 75%
‒ Clackmannanshire 75%
‒ Dumfries & Galloway 55%
‒ Dundee City 65%
‒ East Ayrshire 60%
‒ East Dunbartonshire 50%
‒ East Lothian 45%
‒ East Renfrewshire 60%
‒ Edinburgh City 31.89
‒ Eilean Siar 50%
‒ Falkirk 100%
‒ Fife 50%
‒ Glasgow City 50%
(100% for older people)
‒ Highland 50%
‒ Inverclyde 25%
‒ Midlothian 70%
‒ Moray 100%
‒ North Ayrshire 40%
‒ North Lanarkshire 50%
‒ Orkney Islands 15%
‒ Perth & Kinross 100%
‒ Renfrewshire 85%
‒ Scottish Borders 24%
‒ Shetland Islands 30%
‒ South Ayrshire 25%
‒ South Lanarkshire 50%
‒ Stirling 75%
‒ West Dunbartonshire 50%

22. Care Homes
‒ National legal framework for charging [National
Assistance (Assessment of Resources Regulations)
(Scot) 1992]
‒ Charging for residential accommodation guidance
(CRAG)
‒ These are national rules – setting out how local
authorities treat an individual’s income and capital
(including heritable property) in financial assessments
• Counted in full
• Fully Disregarded
• Partially Disregarded

23. Care Home Charges
‒ Standard rates for public funding:
• £587.00 with nursing care
• £499.38 without nursing care
‒ Self funding rates
• Between £650 & £800 on average
‒ Free personal and nursing care
• £169 for personal care (people aged 65 +)
• £77 for nursing care
• £246 (combined total)
‒ Capital Limits :
• Lower limit £16,000
• Upper limit £26,000

24. Current Landscape
‒ Health and social care integration
‒ Self Directed Support
‒ Review of NHS continuing health care
‒ Residential Care Task force report
‒ Dilnot Report – UK Care and Support Bill
‒ Non-residential care charging guidance review
‒ Review of national charging for residential care charging
guidance
‒ Welfare reforms – social security benefits

25. Dilnot Report & Care and Support Bill (UK)
‒ £72k cap on life time care costs (Dilnot recommended
£35k)
‒ People will be expected to pay around £12,000 a year
towards their general living costs if they can afford it
‒ The State will be responsible for:
• any further care costs once an individual reaches the
£72,000 cap
• financial help to people with their care and/or general
living costs, if they have less than around £17,000 in
assets, and insufficient income to cover care costs.

26. The Future of Residential Care for Older People
in Scotland (recommendations)
‒ Extra-care Housing
‒ Short-term Residential
Intermediate Care (step
up step down)
‒ Specialist Residential

27. The Future of Residential Care for Older People
in Scotland (recommendations)
‒ Accommodation, hotel, care, leisure and recreation costs
should be separated.
‒ Financial modelling work to ascertain the cost effect of
raising capital limits in Scotland
‒ Free Personal and Nursing Care contributions should be
reviewed
‒ Financial modelling to establish the costs of
implementing a national commitment to pay the Living
Wage in the care sector.

28. NHS Continuing Care
‒ NHS Continuing
Healthcare is a package
of health care that is
arranged and fully funded
by the NHS
‒ CEL 6 (2008) sets out
assessment and eligibility
criteria
‒ ISD Annual Census
‒ NHS Continuing
Healthcare is currently
under review

29. Independent Review of NHS Continuing
Healthcare
‒ Key recommendations
• NHS CHC should be replaced with the term "Hospital
Based Complex Clinical Care" and only provided in
facilities wholly funded and managed by the NHS.
• Three month multi disciplinary team assessment
after admission to hospital (excluding delayed
discharge), and ongoing review every three months.
• Those currently receiving NHS continuing healthcare
should not be financially disadvantaged.

30. Alzheimer Scotland’s contribution
Influencing improvement throughout the illness
‒Promoting earlier diagnosis
‒Improving Diagnosis (rates and experience)
‒Post Diagnostic Support guarantee – 5 Pillars
‒Integrated & coordinated community support – 8 Pillars
‒Advanced Dementia
Alongside work on
‒Improvements in health care
‒Dementia friendly communities/ dementia friends

31. Questions
1.What should people with dementia pay for, or not pay for,
in an integrated health and social care system?
2.How should care and support be funded for people with
dementia in Scotland?
3.Almost half of the current cost of care for dementia in
Scotland is met by unpaid care – how can this gap be
closed and carers better supported?

32. Lunch

33. Our Research Activity
Maureen Thom, Information Manager

34. Aiming for maximum impact
• Scottish Dementia Research Consortium
• Alzheimer Scotland Dementia Research Centre,
University of Edinburgh
• Alzheimer Scotland Centre for Policy and Practice,
University of West of Scotland
• Building relationships with Universities across Scotland,
sponsoring doctoral training programmes and funding
research projects

35. Scottish Dementia Research Consortium
• Bringing together Scottish based dementia researchers
from all disciplines to promote collaboration and co-ordination
• Represent Scottish research interests at UK level and
Internationally
• Communication with public about dementia research
taking place in Scotland

36. Alzheimer Scotland Dementia Research Centre
• Commission and build a balanced portfolio of scientific
and clinical research
• Attract external dementia research funding
• Brain Tissue Bank
Website: www.alzscotdrc.ed.ac.uk

37. Alzheimer Scotland Centre for Policy &
Practice, University of West of Scotland
Aims to advance dementia policy and practice through:
•Education
•Research and
•Social enterprise
Website:
www.uws.ac.uk/research/research-institutes/health/alzheimer-scotland-

38. Our additional research activity
• Building relationships with universities and dementia
researchers across Scotland
• Sponsoring doctoral training programmes (PhDs)
• Funding research projects

39. Questions to Membership
1. What are your views on the approach outlined today?
What comments would you like to make on our
research activity?
2. The G8 Dementia Summit placed the priority for
research on developing a cure or disease modifying
treatment for dementia - what do you consider to be the
priority/s for dementia research?

40. Closing Remarks
Henry Simmons, Chief Executive

41. Members Advisory Forum