Best Practices in Cancer Survivorship and Supportive Care


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"Early detection, better diagnostic tools, and more effective treatments are resulting in long-term cancer survivorship, with 62% of adults and 77% of pediatric cancer patients now living more than 5 years beyond their initial diagnosis.

While survival rates are rising…according to the National Cancer Institute there are nearly 12 million cancer survivors in the United States. The hurdle now facing many cancer survivors is how to achieve long-term quality of life after treatment has ended. According to the National Action Plan for Cancer Survivorship, fully one-third of survivors say they experience ongoing physical, psychological, or financial consequences of their cancer diagnosis and treatment.
Recognizing the need for a comprehensive approach to long-term survivorship care, many academic medical centers, community hospitals and oncologists in private practices are developing survivorship care programs to manage the ongoing care of their patients. In planning survivorship services, however, we need to delineate survivorship from other periods of care, so we take a pragmatic approach and define survivorship as the period in which patients treated with curative intent have completed their initial therapy and require follow-up care.”

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Best Practices in Cancer Survivorship and Supportive Care

  1. 1. How bad will the economy get, and how long will the crisis last? Is the economic recovery program going to help or hurt healthcare? Thank You for Joining us!!! S BEST PRACTICES IN CANCER SURVIVORSHIP AND SUPPORTIVE CARE JULY 28 – JULY 29, 2011 – BALTIMORE, MARYLANDHighlighting the modern trends, pioneering strategies and best case studies from leading healthcare organizations that have implemented successful Cancer Survivorship and Supportive Care Programs geared at increasing cancer survivorsurvival rates with the use of better diagnostic tools, more effective treatments, and early detection strategies with the major goal of achieving long-term quality of life after treatment has ended. Confirmed Speakers Confirmed Speakers 5 Reasons To Attend Lillie Shockney, RN, BS, MAS Mandi Pratt-Chapman, MA Event Chairperson  Outstanding Case-Study Presentations Director, Division of Cancer Survivorship/Co- Director of Breast Center, University Director, Center for the Advancement of CancerDistinguished Service Associate Professor of  Leading-Edge Techniques & Solutions Survivorship, Navigation & Policy Breast Cancer, JHU School of Medicine GW CANCER INSTITUTE JOHNS HOPKINS AVON FOUNDATION  Exclusive Speaker Face-to-Face Time BREAST CENTER Julie Silver, MD  Excellent Networking Opportunities Assistant Professor Deborah Boyle, RN, MSN, AOCNS, FAAN HARVARD MEDICAL SCHOOL Oncology Clinical Nurse Specialist  Learn From Top Facilities & Health Systems BOYLE CONSULTING Gary Deng, MD, PhD Kenneth D. Miller, MD President, Society for Integrative Oncology, Co-Director, Perini Family Survivors Center; Integrative Medicine Service Director, Lance Armstrong Adult Cancer Available via Downloadable Link MEMORIAL SLOAN-KETTERING CANCER Survivorship Program CENTER DANA-FARBER CANCER INSTITUTE • Speaker Presentations Elizabeth Wiley, MS, CGC Tanya Abreu • Event Handouts Certified Genetic Counselor President and National Program Director • Sponsor Brochures JOHNS HOPKINS HOSPITAL SPIRIT OF WOMEN Steve Bonner Paul Pugsley Username: CSSC1 President and Chief Executive Officer Director of Oncology Services Password: e6tn2jf6au CANCER TREATMENT CENTERS OF AMERICA PRIORITY CONSULT ONSITE CONTACTS: Akin Akinsanya – (414) 349-3142 OR Brian Zech – (414) 405-1710 Event Partners & Sponsors CONFERENCE DAY 1:8:00 AM – 8:30 AM Registration, Continental Breakfast & Exhibits8:30 AM – 8:45 AM Chairperson’s Welcoming Remarks: Lillie Shockney, RN, BS, MAS8:45 AM – 9:45 AM PREPARING FOR THE PARADIGM SHIFT- WHO WILL TAKE CARE OF THE CANCER SURVIVORS AT YOUR CANCER CENTER? Lillie Shockney, RN, BS, MAS, University Distinguished Service Assistant Professor of Breast Cancer, Administrative Director of Breast Center Assistant Professor, Dept of Surgery, Assistant Professor, Dept of Obstetrics and Gynecology, JHU School of Medicine Assistant Professor, JOHNS HOPKINS AVON FOUNDATION BREAST CENTER
  2. 2. (Case-Study Focused) It has been projected that by the year 2020 there will be a 41-48% deficit of oncology specialists in the United States. This is due to a steady increase in the number of people being diagnosed with cancer while at the same time there is a steady decrease in the number of healthcare professionals choosing oncology as their specialty. Survivorship care is paramount and cannot be ignored. The necessity to develop and implement a plan now to address the needs of long term survivorship care is critical for the success of any comprehensive cancer program. Additionally it no longer is “enough” for a patient to survive their cancer; the patient also wants to have good quality of life as a survivor. • Understand the Cause of the Impending Shortage of Oncology Specialist in the US • Identify the Key Factors that Survivors are Dealing with Related to Long Term Side Effects/Development of the New Cancers • Learn How Johns Hopkins Has Addressed This Issue For Breast Cancer Survivors With A “Shared Care Model” Along With a “Transitional Survivorship Consultation” • Understand the Necessity of Partnering with PCPS and Gynecologist as Well as Advance Practice Nurses in Your Community to Educate Them About Survivorship Care Needs • Learn Some Methods of Incorporating Survivorship Care Into the Nursing School and Medical Residency Curriculum Including Fellowship Training Programs9:45 AM – 10:45 AM CANCER REHABILITATION: THE NEXT FRONTIER IN SURVIVORSHIP CARE Julie Silver, MD, Assistant Professor, HARVARD MEDICAL SCHOOL (Case-Study Focused) Cancer rehabilitation is an emerging part of the cancer care continuum. Similar to other rehabilitation models, cancer rehab should involve a multi-disciplinary team with core rehab professionals including physicians (physiatrists), nurses and physical/occupational/speech therapists. Though cancer survivors are often counseled to “accept a new normal” this may come at a time when there is still healing that may be accomplished. Rehabilitation interventions are typically part of the care continuum for other serious illnesses and injuries such as stroke, spinal cord injury, traumatic brain injury, orthopedic and cardiac conditions and trauma. This presentation will cover the evidence-based benefits of cancer rehab and how it can be inserted effectively into the cancer care continuum—helping survivors to heal optimally before accepting a new normal. • Identify the 10 Key Recommendations From the Institute of Medicine’s Report “From Cancer Patient to Cancer Survivor: Lost in Transition” • List the Steps Needed to Develop a Multidisciplinary Cancer Survivorship Team That Includes Cancer Rehabilitation • Cite Barriers to Implement Cancer Rehabilitation Care • Describe Specific Examples of Evidence-Based Care in Cancer Rehabilitation • Energy Length of Stays as it Relates to Patient Outcomes • Energy Management – Demand Side vs. Supply Side10:45 AM – 11:00 AM Morning Break & Refreshments11:00 AM – 12:00 PM THE ROLE OF CANCER GENETICS – IDENTIFY AND MANAGE THOSE AT HIGH RISK Elizabeth Wiley, MS, CGC, Certified Genetic Counselor, JOHNS HOPKINS HOSPITAL (Case-Study Focused) Approximately 5-10% of cancers are hereditary, and genetic testing is an increasingly significant component of prevention, early detection, and treatment of cancers. Certified genetic counselors play an important role in cancer centers by counseling and educating individuals at risk for a hereditary cancer syndrome, facilitating genetic testing, and coordinating follow-up care. There are various approaches to implementing genetic programs, so medical centers are able to integrate genetic counselors in a manner that complements their healthcare delivery model. • Overview of Cancer Genetics • How Genetic Testing Plays a Role in Cancer Prevention and Early Detection • Benefit of Utilizing a Certified Genetic Counselor to Perform Genetic Counseling and Facilitate Genetic Testing • Review Models of Implementing Cancer Genetics Programs in Hospitals12:00 PM – 1:00 PM Networking Luncheon1:00 PM – 1:50 PM INTEGRATIVE MEDICINE AND CANCER SURVIVORSHIP: WHAT PATIENTS CAN DO FOR THEMSELVES Gary Deng, MD, PhD, President, Society for Integrative Oncology, Integrative Medicine Service, MEMORIAL SLOAN- KETTERING CANCER CENTER (Case-Study Focused) Many cancer survivors are interested in exploring complementary and alternative therapies. What are the underlying psychological needs? How should we guide patients to take advantage of some of those therapies while avoiding harm? What more can we do to promote health and wellness in body, mind, spirit in cancer survivors? These are the issues which will be discussed in this session. • Recognize Cancer Survivor’s Needs to Explore Complementary and Alternative Medicine • Identify Common Complementary Therapies Relevant to Cancer Care • Define the Key Principles of Integrative Medicine in the Context of Cancer Survivorship • Describe How Integrative Medicine Can Facilitate Self-Care
  3. 3. • Understand the Added Value and the Perceived Barriers of an Integrative Oncology Program1:50 PM – 2:40 PM SURVIVORSHIP NAVIGATION: CORE OUTCOMES AND SUCCESS STORIES Mandi Pratt-Chapman, MA, Director, Division of Cancer Survivorship/Co-Director, Center for the Advancement of Cancer Survivorship, Navigation & Policy, GW CANCER INSTITUTE (Case-Study Focused) The George Washington Cancer Institute (GWCI) is a leader in the fields of patient navigation and cancer survivorship. Through the 2010 patient navigation leadership summit coordinated by the American Cancer Society (ACS), GWCI spearheaded efforts to establish common outcome measures for patient navigation in the post-treatment period (Survivorship Navigation). Through GWCI’s Center for Advancement of Cancer Survivorship, navigation and policy and the work of the National Cancer Survivorship Resource Center (NCSRC) – A collaboration between the ACS and GWCI, funded by a 5 year cooperative agreement between the ACS and the Centers for Disease Control and Prevention – GWCI provides training for other navigators to expand navigation through the post-treatment transition. This presentation will outline core measures of survivorship navigation and ongoing activities of the NCSRC to ensure optimal access to care for cancer survivors at a national level. The session will invite questions and engagement from the audience to assess how best to catalyze survivorship navigation as a field and appropriately train navigators for this special role. • Describe the Role of The Survivorship Navigator • List Core Outcomes of Survivorship Navigation • Describe Success Stories of Survivorship Navigation • Contribute to an Assessment of Ongoing Training Needs to be Considered by the NCSRC2:40 PM – 3:00 PM Afternoon Break & Refreshments3:00 PM – 4:30 PM PANEL DISCUSSION: INTERDISCIPLINARY ENGAGEMENT: WHO SHOULD BE ‘AT THE TABLE’ Session Moderator: Lillie Shockney, RN, BS, MAS, JOHNS HOPKINS AVON FOUNDATION BREAST CENTER Session Panelists: • Deborah Boyle, RN, MSN, AOCNS, FAAN, Boyle Consulting • Gary Deng, MD, PhD, Memorial Sloan-Kettering Cancer Center • Anne Willis, MA, The George Washington University Medical Center Cancer Institute A lively, thorough exploration into healthcare through an interactive panel discussion will focus on measuring and benchmarking cancer survivorship best practices. This session will discuss methods and case examples that focus on understanding Interdisciplinary Engagement and who needs to be involved. Collaborate amongst each other to decipher and implement best practices centered at quality patient care delivery. Topics of Discussion: • Streamlined Ways to Develop Survivorship Care Plans • Best Practices for Cancer Rehabilitation Care • Motivating Survivorship Stakeholders at a National Level4:30 PM – 4:45 PM DAY 1 RECAP – Led By: Lillie Shockney, RN, BS, MAS – END OF DAY 1 CONFERENCE DAY 2:8:00 AM – 9:30 AM Registration, Continental Breakfast & Exhibits8:30 AM – 8:45 AM Chairperson’s Day 2 Opening Remarks: Lillie Shockney, RN, BS, MAS8:45 AM – 9:45 AM PROCESSES, PROGRAMS AND PRACTICALITIES TO GENERATE EXEMPLARY CANCER SURVIVORSHIP CARE Deborah Boyle, RN, MSN, AOCNS, FAAN, Oncology Clinical Nurse Specialist, BOYLE CONSULTING (Case-Study Focused) Based on the presenter’s decades-long research, advocacy and program planning experiences, this presentation will share key considerations for developing novel cancer survivorship initiatives. Session participants will hear recommendations specific to process enhancements, programmatic elements for inclusion in a comprehensive ‘menu’ of offerings, and practical suggestions for contemporary program development. Emphasis will be placed on the creation of an individualized endeavor unique to specific markets and consumer needs. • Strategy Suggestions Unique to Preliminary and Early Phase Program planning • Two Process Considerations For Use During Initial Survivorship Endeavor Deliberations • Key Components of an Initiative Matrix Based on Evidence-Based Survivor Needs Assessment • Two Elements of a Future’s-Oriented Cancer Survivorship Care Delivery Model9:45 AM – 10:45 AM “SEASONS OF SURVIVORSHIP”- OPTIMIZING CANCER SURVIVORSHIP CARE Kenneth D. Miller, MD, Co-Director, Perini Family Survivors Center; Director, Lance Armstrong Adult Cancer Survivorship Program, DANA-FARBER CANCER INSTITUTE (Case-Study Focused) There are 12 million cancer survivors in the U.S. now and that number is expected to increase to 20 million by 2020. This will be a review of the natural history of cancer survivorship including during treatment, transitioning back to a “new normal”, surveillance, and then permanent survivorship. In addition, we will discuss the specific medical, psychosocial, and “practical” needs of cancer
  4. 4. survivors during each season and care models for providing this care. The need for a coordinated care approach involving both oncologists and primary care provides will be discussed as well. • Identify Some of the Common Long-Term Toxicities of cancer Treatment • Discuss Some Strategies for Early Identification of Long-Term Effects • Discuss the Natural History of Cancer Survivorship • Discuss the Integration of Oncology and Primary Care10:45 AM – 11:00 AM Morning Break & Refreshments11:00 AM – 12:00 PM WHEN TO MOVE THE HEALING FROM THE HOSPITAL TO THE HOME: LESSONS IN SURVIVAL, CANCER CARE MARKETING AND HOSPITAL BUSINESS Tanya Abreu, President and National Program Director, SPIRIT OF WOMEN Presentation will utilize research, cancer program case studies, and interactive discussion. Attendees will explore, discuss, and design models for extended cancer care outside of the clinical setting that: • Improve Survivor Outcomes • Enhance Cancer Program Brand and Reputation • Contribute to the Science of Healing12:00 PM – 1:00 PM Networking Luncheon1:00 PM – 1:50 PM CTCA AND PATIENT EMPOWERED CARE – FROM OUR PATIENT’S PERSPECTIVE Steve Bonner, President and Chief Executive Officer, SPIRIT OF WOMEN (Case-Study Focused) Introduction to CTCA and patient empowered care. Steve will introduce one of our patients, Jayne Ragner and describe her journey with cancer and her journey as a survivor with CTCA; What is CTCA doing to support her both while at CTCA and as a patient in remission; and how does this add to the national dialogue and initiative. • Patient Empowered Medicine • How Treating the Whole Person is Important in Cancer Care and Survivorship • What Does Quality Look Like in Cancer Care • What Are Our National Thought Leaders Are Saying1:50 PM – 2:50 PM RETREATS FOR CANCER PATIENTS AND SURVIVORS Lillie Shockney, RN, BS, MAS, University Distinguished Service Assistant Professor of Breast Cancer, Administrative Director of Breast Center Assistant Professor, Dept of Surgery, Assistant Professor, Dept of Obstetrics and Gynecology, JHU School of Medicine Assistant Professor, JOHNS HOPKINS AVON FOUNDATION BREAST CENTER Two types of retreats will be presented -- one on survivor retreats for patients who have completed their acute treatment and are having difficulty re-engaging in their lives emotionally healthy again. The second retreat described will be for those with metastatic cancer and living with their disease for several years to even a decade or more -- what are best termed as the "forgotten survivors." These individuals and their families need special support and time to connect with others in the same situation, discuss fears regarding the future and make plans for what lies ahead while still maintaining a sense of hope -- being optimistic for as long as it is realistic, and having their voice heard as a patient who is living with cancer. Survivor Retreats: • Recognize the Psychosocial Issues and Long Term Side Effects Impacting Patients Ability to Move Forward in Life and Believe They Are "Survivors" of Their Cancer • Understand the Severity for Some Patients of Fear of Recurrence and Its Ability to Paralyze a Patient From Enjoying Life Cancer Free • Learn Successful Ways to Create and Executive Retreats That Facilitate Cancer Survivors in Moving Forward in Their Lives and Ready to Support Someone Else in the Future Newly Diagnosed Metastatic Retreats: • Understand the Sense of Displacement Cancer Patients with Metastatic Disease Feel When in the Presence of Others Who are Cancer Survivors • Recognize the Importance of Serving as a Patient Advocate for Patients Who Are Not Able for Any Reason to Express Their Needs and Desires Including Quality of Life Expectations • Recognize the Impact Metastatic Disease Has on Family Care Givers and Friends2:50 PM – 3:00 PM Afternoon Break & Refreshments3:00 PM – 4:30 PM GROUP DISCUSSION: A BLUEPRINT FOR SUCCESS: DEVELOPING & GROWING CANCER SURVIVORSHIP PROGRAMS Session Moderator: Anne Willis, MA, THE GEORGE WASHINGTON UNIVERSITY MEDICAL CENTER CANCER INSTITUTE This interactive group discussion will openly discuss what is needed to develop and grow a Cancer Survivorship Program and what factors that have the greatest impact on the development and excellence of your programs. ***Audience Participation Is Highly Encouraged.