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Regional Breakout- Region 1


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Regional Breakout- Region 1

  1. 1. Region One Breakout session Facilitator: Jennifer Bogin The meeting was opened with a brief period of introductions. Carol Curtin Shriver Center LEND UCEDD Kathleen from the Shriver Center LEND UCEDD Deb Parnell DPH RI Steve Fountain LEND UVM Rae Sondmeyer Lend NH Janet LEND trainee (special education) Ellen Volpe MCHB Region One Title V grant coordinator Liz Corona Boston Medical Center DBP Lenny Rappaport DPB Children’s Hospital Boston Carol Weisman Yale University DBP John Baruch UMASS Boston Allan Krutz- University of Maine Research project in collaboration with UNH Emily Feinberg BU SPH Gisela Boras DBP RI Pam High DBP RI Next we discussed the goal of the meeting which is to leave with two focused activities with deadlines – which will increase cross program collaboration across the region. The summit date may be changed based upon a conflict with another meeting PAS. A large number of the DBP people will be attending the PAS meeting. December 9, 2009 Minutes recorded by HM Kuhaneck
  2. 2. Activities: The group generated a list of activities they are currently involved in that they felt perhaps could be shared or could generate further collaboration. Participants have:  Developed an online curriculum for residents, family medicine, psychologists, and child development practitioners. This curriculum will include videos of typical and atypical development. The project should be completed by the spring. It will be interactive with links to other sites as we. There are 3 modules:  What is autism  Screening and diagnosis  Interventions and family resources  Created a rubric that trainees use to guide their classroom observations  Created state standards for diagnosis and assessment, who should do it and how  Created best practice guidelines for interventions using evidence based practices  Created a state plan with 150 different goals, trained LEND fellows in ADOS, created a website with current information which was difficult to maintain and keep current  Created programs to train local docs and providers to do screenings  Created resource maps for transition services to link transitioning students with adult services  Created collaborative relationships with local practices to use MCHAT and integrate into medical records  Completed second tier LEND training with advanced trainees who have developed inservices for their own professions  Created a website  Created mini fellowships with local practitioners to improve screening and diagnosis  Created a local autism consortium  Started the process to examine and compare different methods of screening  Partnered with local EI providers to address follow-up following positive MCHAT  Created projects to examine transition services and adult life outcomes, Family Centered Transition Planning. There will be training materials and products available as outcomes of this research. December 9, 2009 Minutes recorded by HM Kuhaneck
  3. 3. There was discussion about issues such as the following:  There was discussion about the need for a video bank of well done videos that people could download and use for their own trainings.  How do we let people know what we are doing and share information?  Can LEND trainees all present their work to let people know what they are doing?  We need to address issues of funding. How can we get paid for our services so we are not chasing grant money?  There was a question about the inclusion of insurance people / Medicaid people at these meetings Possible Outcomes  The themes generated from the discussion included o Transition services o Online products and shared videos/training materials, FAQs o MCHAT and training- what to say when you get a positive screen and best practices for evaluation of young children- what are the next steps following a positive screen?  There was discussion about which issues were regional and which were national- and how national issues can be dealt with differently because of regional differences?  There was also discussion about which topics would be appropriate given that not everyone in the group dealt with all aspects of the themes (for example not everyone was involved with transition directly).  There was also discussion of other needs o Information packets for parents that would be given to the docs to give out o Information for local docs – such as a referral pad with local contacts and referral information  Regional Bank of Experts o Can we create a list of everyone’s professional expertise so people can contact and assist each other December 9, 2009 Minutes recorded by HM Kuhaneck
  4. 4. Collaborative Products or Outcomes: The items selected included  ITAC sharepoint site for the region where people can post and share information, videos, and the list of expertise for technical assistance. A one page survey will be created to ask everyone in the region to provide their areas of expertise  Evaluation of this meeting and future meetings o More time available for people to explain in 5 minutes, what problems and challenges they have had and what their solutions have been. Action Items with name and proposed date of completion  Carol Weisman from Yale will create the one page survey of people’s expertise Support Needs  Created of the regional ITAC sharepoint site December 9, 2009 Minutes recorded by HM Kuhaneck