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Step 2: Registering Potential Donors


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A narrated walk-through of the bone marrow registration process

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Step 2: Registering Potential Donors

  1. 1. 1000 Cranes for HOPE<br />National APAMSA Bone Marrow Campaign<br />
  2. 2. Just the facts<br /> NMDP registry: 7 million total<br />Caucasian: 73%<br />Hispanic/Latino: 10%<br />African American: 8%<br />Asian/API: 7%<br />Multi Race: 3%<br />American Indian: 1%<br />75% of Asian/API patients who need a bone marrow transplant do NOT get a lifesaving transplant<br />
  3. 3. Thank youAPAMSA members for your effort! ! !<br />Together we can recruit and expand the National Bone Marrow Registry to help patients find a life saving bone marrow match.<br />
  4. 4. Registrant Eligibility<br />Between age of 18-60<br />Be in overall good health and meet medical guidelines (see packet)<br />Live in the United States.<br />Have they already joined?<br />
  5. 5. Committed potential donor<br />We are responsible for making sure that the potential donor is fully committed at registration.<br />Registrants who match and later refuse to donate do MORE HARM than good for the patients and their families.<br />
  6. 6. INFORM the potential donor<br />The potential donor must understand the entire process. They must be aware of:<br />What it means to register<br />How long they will be listed in the registry<br />Understanding what will happen if they match <br />Knowing the 2 ways to donate<br />Knowing their obligations at the time of match<br />
  7. 7. Donor is unsure?<br />Try to address any and all of the donor’s questions or issues with the process.<br />Refer them to or call 1 (800) MARROW2 for available materials in Chinese, Korean, Tagalog, Spanish, and Vietnamese.<br />Remind the potential donor that they have many opportunities to join the registry when they feel ready.<br />AGAIN, it is important that we register committed donors!<br />
  8. 8. Begin Registration Process<br />Have the potential donor read the INSERT in the consent form. <br />Have a representative be present to answer any questions they may have.<br />
  9. 9. Make sure to place a large whiteBARCODE on the top right corner of the page.<br />The same barcode number will be used for the entire packet.<br />
  10. 10. Fill out all information on this page. <br />If the registrant does not want to give his/her social security number, ask for a driver’s license number and 2 completely different contactsNOT at the same permanent address as the registrant.<br />Affix a large whiteBARCODE on this page.<br />
  11. 11. Employer and spouse information is optional.<br />1st and 2nd contact must allhave DIFFERENT addresses than the registrants and from each other. They cannot be living at the same place. This is very important!<br />
  12. 12. Make sure the registrant answers “YES” to Q1 and Q2.<br />Check the “NO” to Q3-Q9 regarding their health. Refer to the NMDP medical guide or onsite coordinator if the registrant answers “YES” to any problems with their health. <br />
  13. 13. Have the registrant read the consent form. <br />
  14. 14. Have the registrant SIGN this form.<br />
  15. 15. IMPORTANT!!! Double check the following before moving on:<br />Name <br />Birth Date<br />Address/phone number<br />Driver’s License or Social Security<br />Address & phone number<br />2 contacts with different addresses<br />Full understanding of the health questionaire<br />Signature<br />
  16. 16. Donor ID card:Give card to the registrant<br />Affix a small white BARCODE on the card. GIVE CARD to the registrant.<br />Make sure that the donor knows to update their information when they move. Update at: or at 1(800) Marrow2<br />Donor ID Card is a handy reminder of their commitment to helping someone in need. <br />
  17. 17. Buccal Cheek Swabs<br />TOTAL: 4 cotton tipped swabs<br />Put the PINK labels on each swab<br />Tell the registrant to:<br />use 1 swab to brush one corner of their cheek for 10 seconds<br />Put the used swab into the foam slits in the buccal card<br />Repeat with each individual swab at a different corner of the mouth<br />It is IMPORTANT that the swabs are not CONTAMINATED by someone touching the tip. Swab should only touch the registrant’s cheek.<br />
  18. 18.
  19. 19. Affix a small whiteBARCODE onto the envelop and seal the envelop<br />
  20. 20. Leftover labels<br />Original labels<br />2 large white barcodes (registration form)<br />2 small white barcodes (Donor ID card, envelop)<br />4 pink barcodes (buccal swabs)<br />
  21. 21. Checklist<br />Put everything together inside the form to return to the NMDP office:<br />Completed forms with barcodes<br />Buccal swab envelop with barcode<br />Unused barcode labels<br />
  22. 22. Reminders<br />REGISTER your drive for the APAMSA “1000 Cranes for HOPE” national campaign via email at with the following info:<br />Date, time, location, contact person, organization (A3M, Cammy Lee, Be the Match)<br />APAMSA will also be holding an online bone marrow drive beginning MARCH 1st – MAY 30th with registration fee waved if you use the code “SWAB4APAMSA” at  <br />