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Step 2: Registering Potential Donors


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Narrated walk-through of the registration process.

Published in: Health & Medicine, Technology
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Step 2: Registering Potential Donors

  1. 1. 1000 Cranes for HOPE <ul><li>National APAMSA Bone Marrow Campaign </li></ul>
  2. 2. Just the facts <ul><li>NMDP registry: 7 million total </li></ul><ul><ul><ul><ul><ul><li>Caucasian: 73% </li></ul></ul></ul></ul></ul><ul><ul><ul><ul><ul><li>Hispanic/Latino: 10% </li></ul></ul></ul></ul></ul><ul><ul><ul><ul><ul><li>African American: 8% </li></ul></ul></ul></ul></ul><ul><ul><ul><ul><ul><li>Asian/API: 7% </li></ul></ul></ul></ul></ul><ul><ul><ul><ul><ul><li>Multi Race: 3% </li></ul></ul></ul></ul></ul><ul><ul><ul><ul><ul><li>American Indian: 1% </li></ul></ul></ul></ul></ul><ul><li>75% of Asian/API patients who need a bone marrow transplant do NOT get a lifesaving transplant </li></ul>
  3. 3. <ul><li>Thank you APAMSA members for your effort! ! ! </li></ul><ul><li>Together we can recruit and expand the National Bone Marrow Registry to help patients find a life saving bone marrow match. </li></ul>
  4. 4. Registrant Eligibility <ul><li>Between age of 18-60 </li></ul><ul><li>Be in overall good health and meet medical guidelines (see packet) </li></ul><ul><li>Live in the United States. </li></ul><ul><li>Have they already joined? </li></ul>
  5. 5. Committed potential donor <ul><li>We are responsible for making sure that the potential donor is fully committed at registration . </li></ul><ul><li>Registrants who match and later refuse to donate do MORE HARM than good for the patients and their families. </li></ul>
  6. 6. INFORM the potential donor <ul><li>The potential donor must understand the entire process. They must be aware of: </li></ul><ul><li>What it means to register </li></ul><ul><li>How long they will be listed in the registry </li></ul><ul><li>Understanding what will happen if they match </li></ul><ul><li>Knowing the 2 ways to donate </li></ul><ul><li>Knowing their obligations at the time of match </li></ul>
  7. 7. Donor is unsure? <ul><li>Try to address any and all of the donor’s questions or issues with the process. </li></ul><ul><li>Refer them to or call 1 (800) MARROW2 for available materials in Chinese, Korean, Tagalog, Spanish, and Vietnamese . </li></ul><ul><li>Remind the potential donor that they have many opportunities to join the registry when they feel ready . </li></ul><ul><li>AGAIN, it is important that we register committed donors! </li></ul>
  8. 8. Begin Registration Process <ul><li>Have the potential donor read the INSERT in the consent form. </li></ul><ul><li>Have a representative be present to answer any questions they may have. </li></ul>
  9. 9. <ul><li>Make sure to place a large white BARCODE on the top right corner of the page. </li></ul><ul><li>The same barcode number will be used for the entire packet. </li></ul>
  10. 10. <ul><li>Fill out all information on this page. </li></ul><ul><li>If the registrant does not want to give his/her social security number, ask for a driver’s license number and 2 completely different contacts NOT at the same permanent address as the registrant. </li></ul><ul><li>Affix a large white BARCODE on this page. </li></ul>
  11. 11. <ul><li>Employer and spouse information is optional. </li></ul><ul><li>1 st and 2 nd contact must all have DIFFERENT addresses than the registrants and from each other. They cannot be living at the same place. This is very important! </li></ul>
  12. 12. <ul><li>Make sure the registrant answers “ YES ” to Q1 and Q2. </li></ul><ul><li>Check the “ NO ” to Q3-Q9 regarding their health. Refer to the NMDP medical guide or onsite coordinator if the registrant answers “ YES ” to any problems with their health. </li></ul>
  13. 13. <ul><li>Have the registrant read the consent form. </li></ul>
  14. 14. <ul><li>Have the registrant SIGN this form. </li></ul>
  15. 15. IMPORTANT!!! Double check the following before moving on: <ul><li>Name </li></ul><ul><li>Birth Date </li></ul><ul><li>Address/phone number </li></ul><ul><li>Driver’s License or Social Security </li></ul><ul><li>Address & phone number </li></ul><ul><li>2 contacts with different addresses </li></ul><ul><li>Full understanding of the health questionaire </li></ul><ul><li>Signature </li></ul>
  16. 16. Donor ID card: Give card to the registrant <ul><li>Affix a small white BARCODE on the card. GIVE CARD to the registrant. </li></ul><ul><li>Make sure that the donor knows to update their information when they move. Update at: or at 1(800) Marrow2 </li></ul><ul><li>Donor ID Card is a handy reminder of their commitment to helping someone in need. </li></ul>
  17. 17. Buccal Cheek Swabs <ul><li>TOTAL: 4 cotton tipped swabs </li></ul><ul><li>Put the PINK labels on each swab </li></ul><ul><li>Tell the registrant to: </li></ul><ul><ul><li>use 1 swab to brush one corner of their cheek for 10 seconds </li></ul></ul><ul><ul><li>Put the used swab into the foam slits in the buccal card </li></ul></ul><ul><ul><li>Repeat with each individual swab at a different corner of the mouth </li></ul></ul><ul><li>It is IMPORTANT that the swabs are not CONTAMINATED by someone touching the tip. Swab should only touch the registrant’s cheek. </li></ul>
  18. 19. <ul><li>Affix a small white BARCODE onto the envelop and seal the envelop </li></ul>
  19. 20. Leftover labels <ul><li>2 large white barcodes (registration form) </li></ul><ul><li>2 small white barcodes (Donor ID card, envelop) </li></ul><ul><li>4 pink barcodes (buccal swabs) </li></ul>Original labels
  20. 21. Checklist <ul><li>Put everything together inside the form to return to the NMDP office: </li></ul><ul><li>Completed forms with barcodes </li></ul><ul><li>Buccal swab envelop with barcode </li></ul><ul><li>Unused barcode labels </li></ul>
  21. 22. Reminders <ul><li>REGISTER your drive for the APAMSA “1000 Cranes for HOPE” national campaign via email at [email_address] with the following info: </li></ul><ul><ul><li>Date, time, location, contact person, organization (A3M, Cammy Lee, Be the Match) </li></ul></ul><ul><li>APAMSA will also be holding an online bone marrow drive beginning MARCH 1 st – MAY 30 th with registration fee waved if you use the code “ SWAB4APAMSA ” at .  </li></ul>