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Patient involved eHealth

 Patient portal experiences

    Glen Griffiths MSc MBCS
 Health Informatics Scotland conference
Edinburgh -12th September 2011


          Glen Griffiths September 2011
Glen Griffiths September 2011
• Provide advice, develop and implement patient
  eHealth solutions – contracted to support
  www.htmc.co.uk which I will use for illustration
• Vice Chair - BCS Primary Health Care Specialist
  Group
• Retained by IMH UK (Instant Medical History)
• Thalidomide Trust eHealth platform project
  implementation – Patients Know Best / Instant
  Medical History

                Glen Griffiths September 2011
Background & Experience
•   Involved in Patient eHealth since 2002 –
    strategy, development and implementation
•   Support the initiatives of clinicians who
    have championed patient eHealth in
    practice
    – Dr Richard Sills
    – Dr Amir Hannan
    – Dr Richard Fitton
    – Dr Brian Fisher
    – Dr Mohammad Al-Ubaydli
    (amongst others)
               Glen Griffiths September 2011
Acknowledgement - theelusivefish.com

                                       Glen Griffiths September 2011
Patient eHealth portals

               Opportunity




The real pioneers




              Glen Griffiths September 2011
Build around an
    ‘affinity’
      group


   Glen Griffiths September 2011
Types of ‘affinity’ groups

• Disease / condition
 Renal medicine (national) – Renal Patient View

• Location
 Hospital / General Practice




               Glen Griffiths September 2011
Information signposting



       Glen Griffiths September 2011
Secure messaging /
  communications

     Glen Griffiths September 2011
Medical record access



      Glen Griffiths September 2011
Medical record input

Condition specific medical
          history
       Test results

        Glen Griffiths September 2011
Transactions
 clinical & administrative

Repeat Rx – Appointment
        booking


      Glen Griffiths September 2011
There is no lack of information
                  2006 study - ‘Assessing the quality
                  of information’
• 60,000 organisations provide health
  and social care information … phew!
• 80% actively seek information
  about coping with health problems
• 75% cite their doctor (GP) as the
  most important source
• One third use the internet (increased
 since then)
• One quarter use leaflets and books
               Glen Griffiths September 2011
Glen Griffiths September 2011
At a crossroads without signposts - April 2007




The struggle to access information about health and
                 social care services
               Glen Griffiths September 2011
Glen Griffiths September 2011
Health professionals – who are
 often responsible for first diagnosis,
or are a first port of call for help with a
condition – do not systematically or
 proactively provide their patients
 with information about the variety
    of local information services


            Glen Griffiths September 2011
Knowledge transfer

“Build a trust relationship between patient
and care provider so that rather than being
 fearful of patients knowledge – providers
   themselves contribute to and facilitate
           increased knowledge”.

   Encourage rather than dissuade



             Glen Griffiths September 2011
Providing good patient-centred
  health information is a challenge

 Too much to digest sometimes

Often
complex                                Time is
                                       short

Patient often not receptive until need
is greatest!
             Glen Griffiths September 2011
What is required to build an
effective health portal for patients?

• Motivation of organisation to inform
pro-actively and systematically
• Resources to make that happen
  – skills + ££ + long term commitment
• Commitment to activate users!



               Glen Griffiths September 2011
Glen Griffiths September 2011
Glen Griffiths September 2011
Glen Griffiths September 2011
Disease awareness




  Glen Griffiths September 2011
Patient access to detailed health records




             Glen Griffiths September 2011
Web forums for open discussion




        Glen Griffiths September 2011
There’s more….




 Glen Griffiths September 2011
Bringing it all
   together


    Glen Griffiths September 2011
Glen Griffiths September 2011
Trusted health information recommended
by doctors AND patients


    Local care pathways / health guides
    available from map of medicine


         Access to health records / online
         appointments and repeat Rx ordering



              Potential to offer online consultation with
              medical history taking

                  Glen Griffiths September 2011
Let’s try it!
• 49 year old man with back pain
• Saw the doctor over a month ago and was
  diagnosed with mechanical / non-specific
  back pain – prescribed co-codamol and
  was advised about possible side effects
• Back pain hasn’t really improved in fact if
  anything it has got worse
• Doctor suggested a follow up after a
  month and to look at map of medicine

               Glen Griffiths September 2011
Glen Griffiths September 2011
Glen Griffiths September 2011
Glen Griffiths September 2011
Initial diagnosis Non-
                                specific low back pain




Glen Griffiths September 2011
Now at follow up
                                stage and pain is
                                not improving




Glen Griffiths September 2011
Glen Griffiths September 2011
Information
                                supports GP
                                consultation




Glen Griffiths September 2011
Back pain follow up

Glen Griffiths September 2011
Glen Griffiths September 2011
Ensuring long term value
Main value derived from bringing elements
together to form coupled systems
Do the most we possibly can (integrate) from
the least necessary (resources) to make an
impact
… in order to reduce dependencies, improve
sustainability and increase value / cost ratio



               Glen Griffiths September 2011
Thank you
     griftech@gmail.com
        07775 863 404
             Ref:
  www.internetmedicineuk.org
       www.htmc.co.uk
www.investinengagement.info/79

         Glen Griffiths September 2011

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Griffiths patient portal

  • 1. Patient involved eHealth Patient portal experiences Glen Griffiths MSc MBCS Health Informatics Scotland conference Edinburgh -12th September 2011 Glen Griffiths September 2011
  • 3. • Provide advice, develop and implement patient eHealth solutions – contracted to support www.htmc.co.uk which I will use for illustration • Vice Chair - BCS Primary Health Care Specialist Group • Retained by IMH UK (Instant Medical History) • Thalidomide Trust eHealth platform project implementation – Patients Know Best / Instant Medical History Glen Griffiths September 2011
  • 4. Background & Experience • Involved in Patient eHealth since 2002 – strategy, development and implementation • Support the initiatives of clinicians who have championed patient eHealth in practice – Dr Richard Sills – Dr Amir Hannan – Dr Richard Fitton – Dr Brian Fisher – Dr Mohammad Al-Ubaydli (amongst others) Glen Griffiths September 2011
  • 5. Acknowledgement - theelusivefish.com Glen Griffiths September 2011
  • 6. Patient eHealth portals Opportunity The real pioneers Glen Griffiths September 2011
  • 7. Build around an ‘affinity’ group Glen Griffiths September 2011
  • 8. Types of ‘affinity’ groups • Disease / condition Renal medicine (national) – Renal Patient View • Location Hospital / General Practice Glen Griffiths September 2011
  • 9. Information signposting Glen Griffiths September 2011
  • 10. Secure messaging / communications Glen Griffiths September 2011
  • 11. Medical record access Glen Griffiths September 2011
  • 12. Medical record input Condition specific medical history Test results Glen Griffiths September 2011
  • 13. Transactions clinical & administrative Repeat Rx – Appointment booking Glen Griffiths September 2011
  • 14. There is no lack of information 2006 study - ‘Assessing the quality of information’ • 60,000 organisations provide health and social care information … phew! • 80% actively seek information about coping with health problems • 75% cite their doctor (GP) as the most important source • One third use the internet (increased since then) • One quarter use leaflets and books Glen Griffiths September 2011
  • 16. At a crossroads without signposts - April 2007 The struggle to access information about health and social care services Glen Griffiths September 2011
  • 18. Health professionals – who are often responsible for first diagnosis, or are a first port of call for help with a condition – do not systematically or proactively provide their patients with information about the variety of local information services Glen Griffiths September 2011
  • 19. Knowledge transfer “Build a trust relationship between patient and care provider so that rather than being fearful of patients knowledge – providers themselves contribute to and facilitate increased knowledge”. Encourage rather than dissuade Glen Griffiths September 2011
  • 20. Providing good patient-centred health information is a challenge Too much to digest sometimes Often complex Time is short Patient often not receptive until need is greatest! Glen Griffiths September 2011
  • 21. What is required to build an effective health portal for patients? • Motivation of organisation to inform pro-actively and systematically • Resources to make that happen – skills + ££ + long term commitment • Commitment to activate users! Glen Griffiths September 2011
  • 25. Disease awareness Glen Griffiths September 2011
  • 26. Patient access to detailed health records Glen Griffiths September 2011
  • 27. Web forums for open discussion Glen Griffiths September 2011
  • 28. There’s more…. Glen Griffiths September 2011
  • 29. Bringing it all together Glen Griffiths September 2011
  • 31. Trusted health information recommended by doctors AND patients Local care pathways / health guides available from map of medicine Access to health records / online appointments and repeat Rx ordering Potential to offer online consultation with medical history taking Glen Griffiths September 2011
  • 32. Let’s try it! • 49 year old man with back pain • Saw the doctor over a month ago and was diagnosed with mechanical / non-specific back pain – prescribed co-codamol and was advised about possible side effects • Back pain hasn’t really improved in fact if anything it has got worse • Doctor suggested a follow up after a month and to look at map of medicine Glen Griffiths September 2011
  • 36. Initial diagnosis Non- specific low back pain Glen Griffiths September 2011
  • 37. Now at follow up stage and pain is not improving Glen Griffiths September 2011
  • 39. Information supports GP consultation Glen Griffiths September 2011
  • 40. Back pain follow up Glen Griffiths September 2011
  • 42. Ensuring long term value Main value derived from bringing elements together to form coupled systems Do the most we possibly can (integrate) from the least necessary (resources) to make an impact … in order to reduce dependencies, improve sustainability and increase value / cost ratio Glen Griffiths September 2011
  • 43. Thank you griftech@gmail.com 07775 863 404 Ref: www.internetmedicineuk.org www.htmc.co.uk www.investinengagement.info/79 Glen Griffiths September 2011