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Plain Language for Democracy and Citizenship

Cathy Basterfield
Access Easy English, Australia

Mark Starford
Board Resource Center, USA
Our Presentation
Basic
Rights
Literacy
Data

Case
Stories
Challenges
Strategies

Increased
• Life quality
• Participation

Healthcare
Finances
Engagement
Convention on the Rights of Persons
with Disabilities (CRPD)
United Nations Treaty, 2006

Key Principles
•
•
•
•

Equal opportunity
Full participation and inclusion in society
Disability accepted as a part of human diversity
Accessibility (community, information)
CRPD Key Articles

Article 9 – Accessibility
• Greater access to community life
• Public information in easy read format and Braille
• Access to technology
• Qualified support to get important information
CRPD Key Articles

Article 12 – Equal recognition under the law
• Abuse prevention
• Own or inherit property
• Control financial affairs
• Legal safeguards
CRPD Key Articles

Article 29 – Participation in political life
• Voting procedures and facilities accessible
• Materials easy to understand and use
• Secret ballot with support
• Hold office
Living the Treaty

Article 9: Access to information and technology

Article 7: Children treated equally

Article 12: Same rights under the law

Article 19: Being part of the community

Article 11: Protection in risky situations

Article 27: Work, equal job rights and pay
Who are we talking about?
Australia
Channel 7, Melbourne Australia
June 5, 2013
http://au.news.yahoo.com/today-tonight/latest/article/-/17489370/adult-illiteracy/

United States

American Illiteracy
YouTube
http://www.youtube.com/watch?v=4LghnA2XbuU
Australia and USA literacy data
2006 and 2013

60
50
40
30

non functional literacy
functional literacy

20
% adults
15-74 yrs.

10
0

Australia
2006

Australia
2013

USA 2006

USA 2013
Literacy data from OECD countries
2006

80
70
60
50
40
30
% adults
15-74 yrs

20
10
0

non functional literacy
functional literacy
Snapshot
Data Reveals
More likely to:
 Live in poverty, underemployed
 Have poor health
 Be involved in the justice system
 Be less engaged in community life
Who are we talking about?
People:


Seniors



Diverse cultural backgrounds



Poor educational outcomes



Acquired and lifelong disabilities



Hearing impaired community



Mental and physical illness
Who are we talking about?
Also people who are:


Time poor



Stressed



Caregivers



Low comprehension readers
About Mary
Crafts & activity groups
Church & activities
U3A lecturer

Age 65
wife, mother,
grandmother
Outer suburban
semi-rural

Mary
Volunteer
Committee
member

Massive stroke
January 2012
About Mary
 Vision
 Attention and concentration
 Tiredness
 Reading and understanding
 Medical knowledge and terminology
 Understanding health related costs
 Rehabilitation choices & home modifications
 Initial stroke phase and later needs
 Husband’s lack of medical knowledge, stressed
Some written materials
Useful
Our dream for Mary
New life together

Expectations
and changes

Emergency
information

$$
Financial
information
Information
for husband –
now the carer

Now
&
Later

Leisure access
options

Rehabilitation
choices and
options

New medical
status and
risks

Exercise and
rehab
program
About Karen
Supportive
extended family

Age 45
single mother
Lives alone
Support:
4 hours week

Karen
No use of technology

Mild
intellectual
and other
disabilities
About Karen

 Limited education
 General knowledge limited to life experience
 Functional reading (bills, simple recipes)
 Limited community connections
 Support required to use government services
Karen’s needs - some
Health information

 Preventative and medicines

Government Entitlements


Housing, pension, child support

Employment Resources
Civic participation
 Voting and community engagement
 Leisure activities
 Financial management
 General knowledge
Some needs are met
...Medical

Preventative information
Consent forms
0

Some needs are met
...Government

Dad and Partner pay
brochure

But lots of reports......
0

Some needs are met
...Employment

Safety at work
0

Some needs are met
...Civic participation

Victorian Election 2012

Survey

Relationships
0

Some needs are met
...Safety

NSW police safety
fact sheets

Red Cross - International

NSW Police
0

Our dream for Karen
And more

Newspapers &
magazines

Websites

Bills

Now
and
later

Future
planning
- money

Government
information

Rights
& laws
About Miguel
High school

Age 32
Single
Activist-Advocate

Miguel
Bilingual

Urban
Lives at home
About Miguel







Interested in civil rights and advocacy
Limited literacy in English and Spanish
Mild developmental impairment
Never employed – government entitlements
Family provides care support
About Miguel

 Board member - $140 million case management agency
 Chair, peer advocacy council
 Represents over 10,000 peers
 Limited “facilitation” support for positions
 Never received governance training
Miguel needs

•

Board meeting structure modified

•

Meeting materials adapted

•

Governance training

•

Qualified “meeting facilitation” support:
before – during - after
A job!

•
Some needs are met

FOR FACILITATORS
Training manual
FOR AGENCIES:
Accessible meeting
organization handbook

FOR MIGUEL:
Online governance training

http://www.brcenter.org/BRC_Board_Training/publications.shtml
About Jane
Fixed Income

Age 52
Grandmother
Activist-Advocate

Jane
Limited education

Mental health challenges
About Jane

 Not employed – government entitlement
 Lives at the poverty level
 Has significant debt - “payday loan” scheme
 Hides personal financial crisis
 Does not understand tax procedures and forms
Jane needs

 Understand money and numeracy
 Learn about loans, interest and terms
 Understand “Payday loans”
 Learn about and follow a budget
 Begin future planning
 Competent support staff
 Professional mental health support
Some needs being met

Support team –getting trained

Money management
Decision making process

Mental health website
Supports and services
Opportunities

Turn to the person beside you
 Think about new policies or practices that can make

accessible information available to people with low
literacy.
Opportunities
Think about new policies or practices that
can make accessible information available to
people with low literacy.

Policies

Practices
Challenges

Turn to the person beside you
 Think about what are the challenges to developing

documents for people with low literacy.
The message
Plain Language for Democracy and Citizenship

 The silent % of those with low literacy
 Social inclusion and participation
 Equal opportunity
 Civic engagement
Cathy Basterfield
Access Easy English, Australia

Mark Starford
Board Resource Center, USA

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Plain2013 Democracy Engagement C Basterfield M Starford

  • 1. Plain Language for Democracy and Citizenship Cathy Basterfield Access Easy English, Australia Mark Starford Board Resource Center, USA
  • 3. Convention on the Rights of Persons with Disabilities (CRPD) United Nations Treaty, 2006 Key Principles • • • • Equal opportunity Full participation and inclusion in society Disability accepted as a part of human diversity Accessibility (community, information)
  • 4. CRPD Key Articles Article 9 – Accessibility • Greater access to community life • Public information in easy read format and Braille • Access to technology • Qualified support to get important information
  • 5. CRPD Key Articles Article 12 – Equal recognition under the law • Abuse prevention • Own or inherit property • Control financial affairs • Legal safeguards
  • 6. CRPD Key Articles Article 29 – Participation in political life • Voting procedures and facilities accessible • Materials easy to understand and use • Secret ballot with support • Hold office
  • 7. Living the Treaty Article 9: Access to information and technology Article 7: Children treated equally Article 12: Same rights under the law Article 19: Being part of the community Article 11: Protection in risky situations Article 27: Work, equal job rights and pay
  • 8. Who are we talking about? Australia Channel 7, Melbourne Australia June 5, 2013 http://au.news.yahoo.com/today-tonight/latest/article/-/17489370/adult-illiteracy/ United States American Illiteracy YouTube http://www.youtube.com/watch?v=4LghnA2XbuU
  • 9. Australia and USA literacy data 2006 and 2013 60 50 40 30 non functional literacy functional literacy 20 % adults 15-74 yrs. 10 0 Australia 2006 Australia 2013 USA 2006 USA 2013
  • 10. Literacy data from OECD countries 2006 80 70 60 50 40 30 % adults 15-74 yrs 20 10 0 non functional literacy functional literacy
  • 12. Data Reveals More likely to:  Live in poverty, underemployed  Have poor health  Be involved in the justice system  Be less engaged in community life
  • 13. Who are we talking about? People:  Seniors  Diverse cultural backgrounds  Poor educational outcomes  Acquired and lifelong disabilities  Hearing impaired community  Mental and physical illness
  • 14. Who are we talking about? Also people who are:  Time poor  Stressed  Caregivers  Low comprehension readers
  • 15. About Mary Crafts & activity groups Church & activities U3A lecturer Age 65 wife, mother, grandmother Outer suburban semi-rural Mary Volunteer Committee member Massive stroke January 2012
  • 16. About Mary  Vision  Attention and concentration  Tiredness  Reading and understanding  Medical knowledge and terminology  Understanding health related costs  Rehabilitation choices & home modifications  Initial stroke phase and later needs  Husband’s lack of medical knowledge, stressed
  • 19. Our dream for Mary New life together Expectations and changes Emergency information $$ Financial information Information for husband – now the carer Now & Later Leisure access options Rehabilitation choices and options New medical status and risks Exercise and rehab program
  • 20. About Karen Supportive extended family Age 45 single mother Lives alone Support: 4 hours week Karen No use of technology Mild intellectual and other disabilities
  • 21. About Karen  Limited education  General knowledge limited to life experience  Functional reading (bills, simple recipes)  Limited community connections  Support required to use government services
  • 22. Karen’s needs - some Health information  Preventative and medicines Government Entitlements  Housing, pension, child support Employment Resources Civic participation  Voting and community engagement  Leisure activities  Financial management  General knowledge
  • 23. Some needs are met ...Medical Preventative information Consent forms
  • 24. 0 Some needs are met ...Government Dad and Partner pay brochure But lots of reports......
  • 25. 0 Some needs are met ...Employment Safety at work
  • 26. 0 Some needs are met ...Civic participation Victorian Election 2012 Survey Relationships
  • 27. 0 Some needs are met ...Safety NSW police safety fact sheets Red Cross - International NSW Police
  • 28. 0 Our dream for Karen And more Newspapers & magazines Websites Bills Now and later Future planning - money Government information Rights & laws
  • 29. About Miguel High school Age 32 Single Activist-Advocate Miguel Bilingual Urban Lives at home
  • 30. About Miguel      Interested in civil rights and advocacy Limited literacy in English and Spanish Mild developmental impairment Never employed – government entitlements Family provides care support
  • 31. About Miguel  Board member - $140 million case management agency  Chair, peer advocacy council  Represents over 10,000 peers  Limited “facilitation” support for positions  Never received governance training
  • 32. Miguel needs • Board meeting structure modified • Meeting materials adapted • Governance training • Qualified “meeting facilitation” support: before – during - after A job! •
  • 33. Some needs are met FOR FACILITATORS Training manual FOR AGENCIES: Accessible meeting organization handbook FOR MIGUEL: Online governance training http://www.brcenter.org/BRC_Board_Training/publications.shtml
  • 34. About Jane Fixed Income Age 52 Grandmother Activist-Advocate Jane Limited education Mental health challenges
  • 35. About Jane  Not employed – government entitlement  Lives at the poverty level  Has significant debt - “payday loan” scheme  Hides personal financial crisis  Does not understand tax procedures and forms
  • 36. Jane needs  Understand money and numeracy  Learn about loans, interest and terms  Understand “Payday loans”  Learn about and follow a budget  Begin future planning  Competent support staff  Professional mental health support
  • 37. Some needs being met Support team –getting trained Money management Decision making process Mental health website Supports and services
  • 38. Opportunities Turn to the person beside you  Think about new policies or practices that can make accessible information available to people with low literacy.
  • 39. Opportunities Think about new policies or practices that can make accessible information available to people with low literacy. Policies Practices
  • 40. Challenges Turn to the person beside you  Think about what are the challenges to developing documents for people with low literacy.
  • 41. The message Plain Language for Democracy and Citizenship  The silent % of those with low literacy  Social inclusion and participation  Equal opportunity  Civic engagement
  • 42. Cathy Basterfield Access Easy English, Australia Mark Starford Board Resource Center, USA