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SCA Survivors Forum: A Workshop for Patients, Families, and Medical Professionals
SCA Survivors Forum: A Workshop for Patients, Families, and Medical Professionals
Sudden Cardiac Arrest Survivors Forum: A Workshop for Patients, Families, and Medical Professionals 2010 Emergency Cardiovascular Care Update Pres ented j oi ntly by th e Sudd en Car diac Arr es t As soci a tio n a nd th e Sudd en Car diac Arr es t Fo unda tio n Manchester Grand Hyatt Hotel Betsy B San Diego, California December 8, 2010 1:00-5:00 pm PART 1: PATIENTS, FAMILIES AND MEDICAL PROFESSIONALS1:00-1:10 PM Welcome and Introductions Mary Newman, President, SCA Foundation Lisa Levine, CAE, President, SCAA1:10-1:40 PM: Life After Death: What We Can Learn From Survivors of Sudden Cardiac Arrest Bobby V. Khan, MD, PhD, and Mary Newman SCA Foundation Dr. Khan will share his experiences and insights related to the prevention and treatment of sudden cardiac arrest. In addition, Ms. Newman will present a profile of sudden cardiac arrest survivors and their experiences, based on the SCA Foundation’s searchable database of survivors of sudden cardiac arrest, which enjoys representation from nearly every state and territory in the U.S. Research using this database reveals surprising information about the characteristics and experiences of this remarkable, growing community.1:40-2:10 PM Extending the Chain of Survival: th The 7 Link of Rehabilitation and Recovery Vince Mosesso, MD University of Pittsburgh Department of Emergency Medicine For many years, the goal of resuscitation has been to restore spontaneous circulation and achieve sufficient neurological recovery, so that survivors can be discharged from the hospital and function with some degree of independence. Recently, with the formation of survivor support groups, an array of more subtleDecember 8, 2010 1
neuro-psychiatric problems has been recognized. These include emotional lability, memory and other cognitive deficits, plus various psychiatric effects. These symptoms and deficits have not been widely examined and little in the way of research, professional counseling, or assistance is available. This presentation will review what is known, suggest additional research, and propose a framework for improving awareness and understanding of these issues. The need for professional education on this topic for providers who care for survivors of cardiac arrest and for comprehensive rehabilitation programs tailored for survivors of cardiac arrest will be discussed.2:10-2:50 PM Living and Loving Life: After Cardiac Arrest Eva Serber, PhD Brown University First you survive. Then you learn how to live again. Your family also undergoes changes as they adapt to the shock of your experience. Dr. Eva Serber, an expert in the psychological care and quality of life outcomes of implantable cardioverter defibrillator (ICD) patients, will provide practical information, and facilitate a discussion among survivors and family members. Topics will include: Resiliency, behavioral health, prevention of poor adjustment, emotions and cardiovascular disease, what to look for in self and loved ones, ways to improve mood and return to life.2:50-3:00 PM Resources for Survivors and Families Lisa Levine, CAE, and Mary Newman Ms. Newman and Ms. Levine will present an overview of their national SCA survivor initiatives, resources and communities.3:00-3:15 PM BREAK: Survivors depart for orientation.December 8, 2010 2
PART 2: MEDICAL PROFESSIONALS3:15-3:45 PM The Survivor Experience, Pre- and Post- Resuscitation Ben Abella, MD, MPhil University of Pennsylvania Given traditionally low survivor rates, research on SCA survivors is lacking. Working with the Sudden Cardiac Arrest Association, the University of Pennsylvania Emergency Department’s Center for Resuscitation Science completed one of the largest studies of SCA survivors to date, identifying interesting trends about pre-SCA and post-resuscitation experiences.3:45-4:15 PM Optimizing Patient Outcomes: Role of the Healthcare Professional Eva Serber, PhD Brown University Allied professionals and first responders play a significant role in optimizing patients’ outcomes. Instilling confidence and providing hope to patients and families can go a long way from initial reaction to recovery and return to life. This presentation will review the benefits of support and education provided by health care professionals who spend time with the patients and families. The following topics will be addressed: • Social support and education, including the value of communication • Patient needs and preferences • Benefits of education and support group interventions • How to assess patient needs and/or concerns • Screening for psychological distress.4:15-5:00 PM Open Discussion BIOGRAPHIESBen Abella, MD, MPhil, is Attending Physician, Department of Emergency Medicine; ClinicalResearch Director, Center for Resuscitation Science; and Assistant Professor of Pulmonary,Allergy and Critical Care at the University of Pennsylvania. He also serves as Associate Directorof the University of Pennsylvania Center for Resuscitation Science. Dr. Abella’s research focuseson evaluation of CPR and resuscitation performance, testing new methods to teach CPR in thecommunity, prognostication of neurological outcomes after cardiac arrest, and methods toimprove the application of therapeutic hypothermia. He is also the developer and medical directorof a novel training course for therapeutic hypothermia use in the hospital setting. Contact:Benjamin.Abella@uphs.upenn.eduBobby Khan, MD, PhD, immediate past Chairman of the Sudden Cardiac Arrest FoundationBoard of Directors, is Director of the Atlanta Vascular Research Foundation/ St. JosephsTranslational Research Institute. Dr. Khan’s research interests include studying mechanisms ofaction in the progression of atherosclerosis and heart failure and drug/ non-drug therapies thatmay slow or stall this progression. A Fulbright scholar and popular international lecturer, Dr.December 8, 2010 3
Khan’s work has been published in numerous peer-review journals. Contact:firstname.lastname@example.org.Lisa A. Levine, CAE, is President of the Sudden Cardiac Arrest Association in which she bringstogether a diverse community of policymakers, national thought leaders and advocates toadvance initiatives in the prevention and treatment of SCA. Prior to SCAA, Levine served asPresident of the Equipment Leasing and Finance Foundation for 10 years, where she oversawincreases in both membership and revenue growth, developed strategic coalition relationshipsand expanded the organization’s volunteer presence. Prior to that, she spent 15 years inleadership positions with the Community Association Institute and American Heart Association,Nation’s Capital Affiliate. Contact: email@example.com.Vincent Mosesso, MD, is Professor of Emergency Medicine at the University of Pittsburgh andmedical director of the UPMC pre-hospital care team. Throughout his career, Dr. Mosesso hasbeen active as a volunteer, paramedic, administrator, teacher, and researcher in the pre-hospitalfield. He chaired the American Heart Association (AHA) Allegheny Divisions Operation Heartbeatprogram and now serves on the national AHA Basic Life Support committee and AED TaskForce. His recent research includes serving as the principal investigator for the Pittsburgh site ofthe Public Access Defibrillation Trial and the ASPIRE Trial, which is evaluating a mechanical CPRdevice. Dr. Mosesso has coupled his distinguished career as a physician and educator with aleadership role in advocacy and patient support. He helped found the National Center for EarlyDefibrillation and then was a founding board member for its successor organization, the SuddenCardiac Arrest Association. He continues to serve as SCAA’s Medical Director. Contact:firstname.lastname@example.org.Mary M. Newman is President of the Sudden Cardiac Arrest Foundation, a national nonprofitorganization whose mission is to raise awareness and save lives threatened by sudden cardiacarrest. Previously she served as Executive Director of the National Center for Early Defibrillationat the University of Pittsburgh, where she led the creation of the nation’s first sudden cardiacarrest survivor network. Prior to that, Ms. Newman researched the use of AEDs by lawenforcement, at the workplace, and by the general public, while at Krannert Institute ofCardiology, Indiana University School of Medicine. She was founding editor of the Citizen CPRFoundation/ American Heart Association newsletter, Currents in Emergency Cardiac Care andserved on the Founding Board of Directors of the Citizen CPR Foundation for 17 years. Ms.Newman is co-author of Challenging Sudden Death: A Community Guide to Help Save Lives.Contact: email@example.com.Eva R. Serber, PhD, is a staff psychologist at The Miriam Hospital and an assistant professor(research) of psychiatry and human behavior at The Warren Alpert Medical School of BrownUniversity. Her primary research interests are in psychosocial and behavioral cardiology;optimizing medical, psychosocial, and behavioral interventions; and enhancing quality of life,particularly among cardiac patients with arrhythmias and cardiac devices. Dr. Serber is principalinvestigator of an NHLBI-funded clinical trial examining the effects of an exercise interventionversus a heart-healthy education intervention on autonomic function, and frequencies ofarrhythmias and ICD therapies, and psychosocial well-being among ICD patients. She alsoprovides clinical care to cardiac patients including education and support to both patients andcardiologists to enhance the patient’s wellbeing and wellness. In both her research and clinicalpatient care, Dr. Serber’s goal is to improve treatment of cardiac patients, thereby improving theirquality of life. Contact: firstname.lastname@example.org.December 8, 2010 4