ECCU Survivor Workshop: Newman
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ECCU Survivor Workshop: Newman



The National SCA Survivor Network

The National SCA Survivor Network



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    ECCU Survivor Workshop: Newman ECCU Survivor Workshop: Newman Presentation Transcript

    • The National SCA Survivor Network SCA Survivors Forum ECCU December 8, 2010 Mary Newman
    • What is the Sudden Cardiac Arrest Foundation?
      • The SCA Foundation is an independent, nonprofit center of excellence focused exclusively on reducing death and disability from sudden cardiac arrest.
      • Its mission is “ To raise awareness and support programs that give ‘ordinary’ people the power to save a life.” For more information, visit
    • Scope of the Problem Sudden Cardiac Arrest: A Public Health Crisis
    • Chain of Survival
    • Survival Rates
    • National SCA Survivor Registry
      • Opportunity for survivors and families to:
      • Find their peers
      • Share experiences and provide mutual support
      • Participate in research and awareness initiatives
    • Characteristics of Survivors in Network
      • White (96%)
      • Male (63%)
      • Mean age=45
      • No prior known history (71%)
      Self-reported data n=246
    • Location of Arrest
      • Most common locations:
        • Park, golf course, sports field, other outdoor location (20%)
        • Work (16%)
        • Home (13%)
    • Emergency Response
      • Bystander CPR (73%)
        • Co-workers (49%)
        • Friends/family members (30%)
        • Strangers (29%)
      • Treated with defibrillator (28%)
    • Post-Survival Care
      • Mild therapeutic hypothermia (cooling) 28%
      • ICD therapy (72%)
    • Outcomes
      • Returned to previous level of functioning (71%)
      • Returned to previous level of functioning, with some limitations (10%)
    • Limitations and Conclusions
      • Self-reported information based on hearsay
      • Generally reflect the literature with two exceptions:
        • Younger (45 vs. 65 years old)
        • Unaware of treatment with defibrillators
    • Common Concerns
      • “ I have mild memory loss and confusion.”
      • “ I am very tired after a day’s work at the office.”
      • “ It has caused me great anxiety about another event.”
      • “ I am afraid to go to sleep.”
      • “ Physically I have recovered. Emotionally, it is hard.”
    • Joy and Appreciation
      • “ I cherish the fact that I am here for my kids.”
      • “ Things that were once important no longer are.”
      • “ I am much more grateful to be alive.”
      • “ It made us more aware of the value of each moment.”
    • Joy and Appreciation
      • “ Each day is a gift.”
      • “ I am thankful constantly for God’s grace.”
      • “ It brought us a lot closer.”
      • “ I feel very blessed to be alive.”
      • “ We are a much, much closer family.”
    • Paying It Forward
      • “ I am more aware of SCA and the need for AEDs.”
      • “ Since my event, I have become an EMT.”
      • “ I am working to make people aware of SCA.”
      • “ I’ll do anything I can to help others survive.”
    • Join Our Community
      • Survivors
      • Register here: Registration is free!
      • Survivors and Loved Ones
      • Register here:
      • Registration is free!
      • Join the discussion here:
      • Become our fan on Facebook:
      • Follow us on Twitter:
      • Join our Group on LinkedIn: , search S u dden Cardiac Arrest Foundation
      • V i sit our YouTube Channel: