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ECCU Survivor Workshop: Newman
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The National SCA Survivor Network

The National SCA Survivor Network

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  • 1. The National SCA Survivor Network SCA Survivors Forum ECCU December 8, 2010 Mary Newman
  • 2. What is the Sudden Cardiac Arrest Foundation?
    • The SCA Foundation is an independent, nonprofit center of excellence focused exclusively on reducing death and disability from sudden cardiac arrest.
    • Its mission is “ To raise awareness and support programs that give ‘ordinary’ people the power to save a life.” For more information, visit www.sca-aware.org.
  • 3. Scope of the Problem Sudden Cardiac Arrest: A Public Health Crisis
  • 4. Chain of Survival
  • 5. Survival Rates
  • 6. National SCA Survivor Registry
    • Opportunity for survivors and families to:
    • Find their peers
    • Share experiences and provide mutual support
    • Participate in research and awareness initiatives
  • 7. Characteristics of Survivors in Network
    • White (96%)
    • Male (63%)
    • Mean age=45
    • No prior known history (71%)
    Self-reported data n=246
  • 8. Location of Arrest
    • Most common locations:
      • Park, golf course, sports field, other outdoor location (20%)
      • Work (16%)
      • Home (13%)
  • 9. Emergency Response
    • Bystander CPR (73%)
      • Co-workers (49%)
      • Friends/family members (30%)
      • Strangers (29%)
    • Treated with defibrillator (28%)
  • 10. Post-Survival Care
    • Mild therapeutic hypothermia (cooling) 28%
    • ICD therapy (72%)
  • 11. Outcomes
    • Returned to previous level of functioning (71%)
    • Returned to previous level of functioning, with some limitations (10%)
  • 12. Limitations and Conclusions
    • Self-reported information based on hearsay
    • Generally reflect the literature with two exceptions:
      • Younger (45 vs. 65 years old)
      • Unaware of treatment with defibrillators
  • 13. Common Concerns
    • “ I have mild memory loss and confusion.”
    • “ I am very tired after a day’s work at the office.”
    • “ It has caused me great anxiety about another event.”
    • “ I am afraid to go to sleep.”
    • “ Physically I have recovered. Emotionally, it is hard.”
  • 14. Joy and Appreciation
    • “ I cherish the fact that I am here for my kids.”
    • “ Things that were once important no longer are.”
    • “ I am much more grateful to be alive.”
    • “ It made us more aware of the value of each moment.”
  • 15. Joy and Appreciation
    • “ Each day is a gift.”
    • “ I am thankful constantly for God’s grace.”
    • “ It brought us a lot closer.”
    • “ I feel very blessed to be alive.”
    • “ We are a much, much closer family.”
  • 16. Paying It Forward
    • “ I am more aware of SCA and the need for AEDs.”
    • “ Since my event, I have become an EMT.”
    • “ I am working to make people aware of SCA.”
    • “ I’ll do anything I can to help others survive.”
  • 17. Join Our Community
    • Survivors
    • Register here: www.sca-aware.org/sca-survivor-network Registration is free!
    • Survivors and Loved Ones
    • Register here:
    • http://www.sca-aware.org/sca-community
    • Registration is free!
    • Join the discussion here: http://www.sca-aware.org/forum
    • Become our fan on Facebook: http://www.facebook.com/youcansavealife
    • Follow us on Twitter: http://www.twitter.com/youcansavealife
    • Join our Group on LinkedIn: http://www.linkedin.com , search S u dden Cardiac Arrest Foundation
    • V i sit our YouTube Channel: http://www.youtube.com/SCAfoundation