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ECCU Survivor Workshop: Newman
ECCU Survivor Workshop: Newman
ECCU Survivor Workshop: Newman
ECCU Survivor Workshop: Newman
ECCU Survivor Workshop: Newman
ECCU Survivor Workshop: Newman
ECCU Survivor Workshop: Newman
ECCU Survivor Workshop: Newman
ECCU Survivor Workshop: Newman
ECCU Survivor Workshop: Newman
ECCU Survivor Workshop: Newman
ECCU Survivor Workshop: Newman
ECCU Survivor Workshop: Newman
ECCU Survivor Workshop: Newman
ECCU Survivor Workshop: Newman
ECCU Survivor Workshop: Newman
ECCU Survivor Workshop: Newman
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ECCU Survivor Workshop: Newman

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The National SCA Survivor Network

The National SCA Survivor Network

Published in: Health & Medicine
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  1. The National SCA Survivor Network SCA Survivors Forum ECCU December 8, 2010 Mary Newman
  2. What is the Sudden Cardiac Arrest Foundation? <ul><li>The SCA Foundation is an independent, nonprofit center of excellence focused exclusively on reducing death and disability from sudden cardiac arrest. </li></ul><ul><li>Its mission is “ To raise awareness and support programs that give ‘ordinary’ people the power to save a life.” For more information, visit www.sca-aware.org. </li></ul>
  3. Scope of the Problem Sudden Cardiac Arrest: A Public Health Crisis
  4. Chain of Survival
  5. Survival Rates
  6. National SCA Survivor Registry <ul><li>Opportunity for survivors and families to: </li></ul><ul><li>Find their peers </li></ul><ul><li>Share experiences and provide mutual support </li></ul><ul><li>Participate in research and awareness initiatives </li></ul>
  7. Characteristics of Survivors in Network <ul><li>White (96%) </li></ul><ul><li>Male (63%) </li></ul><ul><li>Mean age=45 </li></ul><ul><li>No prior known history (71%) </li></ul>Self-reported data n=246
  8. Location of Arrest <ul><li>Most common locations: </li></ul><ul><ul><li>Park, golf course, sports field, other outdoor location (20%) </li></ul></ul><ul><ul><li>Work (16%) </li></ul></ul><ul><ul><li>Home (13%) </li></ul></ul>
  9. Emergency Response <ul><li>Bystander CPR (73%) </li></ul><ul><ul><li>Co-workers (49%) </li></ul></ul><ul><ul><li>Friends/family members (30%) </li></ul></ul><ul><ul><li>Strangers (29%) </li></ul></ul><ul><li>Treated with defibrillator (28%) </li></ul>
  10. Post-Survival Care <ul><li>Mild therapeutic hypothermia (cooling) 28% </li></ul><ul><li>ICD therapy (72%) </li></ul>
  11. Outcomes <ul><li>Returned to previous level of functioning (71%) </li></ul><ul><li>Returned to previous level of functioning, with some limitations (10%) </li></ul>
  12. Limitations and Conclusions <ul><li>Self-reported information based on hearsay </li></ul><ul><li>Generally reflect the literature with two exceptions: </li></ul><ul><ul><li>Younger (45 vs. 65 years old) </li></ul></ul><ul><ul><li>Unaware of treatment with defibrillators </li></ul></ul>
  13. Common Concerns <ul><li>“ I have mild memory loss and confusion.” </li></ul><ul><li>“ I am very tired after a day’s work at the office.” </li></ul><ul><li>“ It has caused me great anxiety about another event.” </li></ul><ul><li>“ I am afraid to go to sleep.” </li></ul><ul><li>“ Physically I have recovered. Emotionally, it is hard.” </li></ul>
  14. Joy and Appreciation <ul><li>“ I cherish the fact that I am here for my kids.” </li></ul><ul><li>“ Things that were once important no longer are.” </li></ul><ul><li>“ I am much more grateful to be alive.” </li></ul><ul><li>“ It made us more aware of the value of each moment.” </li></ul>
  15. Joy and Appreciation <ul><li>“ Each day is a gift.” </li></ul><ul><li>“ I am thankful constantly for God’s grace.” </li></ul><ul><li>“ It brought us a lot closer.” </li></ul><ul><li>“ I feel very blessed to be alive.” </li></ul><ul><li>“ We are a much, much closer family.” </li></ul>
  16. Paying It Forward <ul><li>“ I am more aware of SCA and the need for AEDs.” </li></ul><ul><li>“ Since my event, I have become an EMT.” </li></ul><ul><li>“ I am working to make people aware of SCA.” </li></ul><ul><li>“ I’ll do anything I can to help others survive.” </li></ul>
  17. Join Our Community <ul><li>Survivors </li></ul><ul><li>Register here: www.sca-aware.org/sca-survivor-network Registration is free! </li></ul><ul><li>Survivors and Loved Ones </li></ul><ul><li>Register here: </li></ul><ul><li>http://www.sca-aware.org/sca-community </li></ul><ul><li>Registration is free! </li></ul><ul><li>Join the discussion here: http://www.sca-aware.org/forum </li></ul><ul><li>Become our fan on Facebook: http://www.facebook.com/youcansavealife </li></ul><ul><li>Follow us on Twitter: http://www.twitter.com/youcansavealife </li></ul><ul><li>Join our Group on LinkedIn: http://www.linkedin.com , search S u dden Cardiac Arrest Foundation </li></ul><ul><li>V i sit our YouTube Channel: http://www.youtube.com/SCAfoundation </li></ul>

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