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Quantified Self and the Self-tracking Patient (Body_track)
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Quantified Self and the Self-tracking Patient (Body_track)

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  • 1.
    • Anne Wright BodyTrack Project
    • Carnegie Mellon University
    • Pittsburgh, PA
    Implementing Self-Tracking in the Wild Paul Abramson, M.D. My Doctor Medical Group UCSF Clinical Faculty San Francisco, CA @paulabramsonMD @annerwright
  • 2. ? Backstory
  • 3. Medicine 2.0 Self Tracking Panel
  • 4. ( + ) x 20 = ? How can we harness this opportunity?
  • 5.
    • Quant Friendly Doctor : Dr. Paul Abramson
    • Quant Coach : Anne Wright
    • Self-Trackers: Allan, Anna, Bari, Dale, Eric, Greg, Kathleen, Paul, Marcy, and Quinn
    Self Tracking Project
  • 6.
    • be more active
    Motivations to self track Want to explore how to: debug interactions with sleep partner spend less time stressed Want to understand impact of: exercise/diet on sleep experience more equanimity sleep quality on energy/alertness improve glycemic control food “Paleoness” on hunger/energy/mood unknown factors  sleep paralysis, gut pain, headaches, etc. better engage with their work
  • 7.
    • Current medical paradigm does not address certain issues well
    • Top-down standardized advice about lifestyle change is not always the best tool for the job
    • Finding effective strategies may be highly specific to the individual
    • Engaging in an exploratory/investigative process can be empowering
    Why self tracking?
  • 8.
    • Anna wants to be more active
    Example: BodyMedia data shows that Anna is more active -- sometimes
  • 9.
    • Anna was more active (and happy!)
    • when she was taking care of Zoe
    Self tracking insight Anna needs a puppy!
  • 10.
    • Goal is sustainable activity increase
    • Puppy would likely be sustainable
    • Final conference prep – not so much…
    Sustainability
  • 11. Towards a new model Self tracking Ecosystem
  • 12.
    • Works with self tracker to:
    Quant Coach
    • Refine their understanding of what they want to work on
    • Learn how to apply and configure available tools and techniques
    • Develop more precise and personally resonant terminology
    • Learn to use data for feedback to reflect on how they’re doing when
    Helps optimize time spent with Quant Friendly Doctor
  • 13. Quant Friendly Doctor
    • Reality check – safety, sanity, and efficacy of plan
    • Designing personal experiments
    • Obtaining and interpreting data needing a doctor’s order
    • Guiding self-tracking project to align with health goals
    Providing medical support and context for self-tracking Works with self tracker collaboratively:
  • 14.
    • A new culture of “N of 1” experiments
    • A collaborative aesthetic
    • Methods to deploy technology to patients
    • Data aggregation tools (BodyTrack)
    • Visualization tools integrated into practice
    • Ways to help coach and doctor be actively engaged
    Tools for Quant-Medicine most of the pieces exist, but need integration
  • 15. Diffuse/environmentally triggered conditions Greg Anne Thomas Bari
  • 16. Marcy at Burning Man Drive to Playa Packing Drive Home Set up camp
  • 17. Sleep quality transformation Marcy’s typical sleep pattern: Night after ritual at Temple of Transition:
  • 18. Quinn’s writing quest
    • “ How can I better engage with my writing?”
    • “ What factors relate to my ability to engage?”
    • Candidates:
      • Sleep quantity/quality
      • “ Role focus” vs. intrusive thoughts
      • Activity levels: low activity as success condition?
  • 19. “ Return from Distraction” High quality writing time
  • 20. Take Home Lessons Data is not the goal It is a tool to help us to improve the stories we tell ourselves about ourselves and write a better user’s manual
  • 21. Take Home Lessons
  • 22. Take Home Lessons
  • 23. Take Home Lessons We expect people to be able to undertake very complex endeavors But we don’t expect them to do it in isolation: it’s socially and culturally supported; self tracking should be too
  • 24.
    • Anne Wright BodyTrack Project
    • Carnegie Mellon University
    • Pittsburgh, PA
    Paul Abramson, M.D. My Doctor Medical Group UCSF Clinical Faculty San Francisco, CA @paulabramsonMD [email_address] www.quantdoctor.com @annerwright [email_address] www.bodytrack.org