Word camp gold coast 5 november 2011 kate swaffer_final for onlinePresentation Transcript
My Unseen DisappearingWorld: Using WordPress to Capture Memories. Kate Swaffer 5th November 2011
My life was interesting,busy and very fulfilling.
‘Live with urgency,before the emergency’Robyn Moore, Alzheimer s Australia National Conference, 2011
I did not thinkdementia wouldbe at my door atmy age, if at all,and certainlynot until I wasmuch older…
...it is imperative we all understand the human cost of dementia. Baroness Susan Greenfield, June 2011
We are mothers, fathers,lovers, daughters, wives,husbands, employees,bloggers…it is a tragedy so many just see ourdeficits.
My high functioning mind hasslipped away, sometimesshowing itself like a ghost, tryingto tease me into believing it willbe okay, but now outside of myreach. My thoughts fly aroundinside my head like heliumballoons high inside anauditorium, also out of my reach.
I read then I forget…I read then I forget…I read, I take notes, andthen I forget…I blog, and it isalways there!
Hallucinationssometimes take overmy mind, asstrangers and wildcats stalk me. Thefeeling that thesethings are real ismomentary, butstartling none theless and theyincrease the feelingof madness creepinginto my soul.
It can look like aswan – calm andserene on thesurface, but legspaddling athousand timesfaster below thesurface to makethings ‘look ok’ toothers.Christine Bryden, Dancingwith dementia, 2005.
It is as if I am drowning…
Dementia represents the end ofdreaming...WordPress has brought back thedreaming.
WordPress has alsoopened up a vibrantchannel of dialogue andcommunication…and a memory bank
My life continues tobe interesting, busy and very fulfilling.
Statistics:1500 new cases per week in Australia, i.e.214 per day, no cure, treatment available forabout 60%, which reduces symptoms for 2years, and 100% of us die.THANK YOU.