Word camp gold coast 5 november 2011  kate swaffer_final for online
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Word camp gold coast 5 november 2011  kate swaffer_final for online Word camp gold coast 5 november 2011 kate swaffer_final for online Presentation Transcript

  • My Unseen DisappearingWorld: Using WordPress to Capture Memories. Kate Swaffer 5th November 2011
  • My life was interesting,busy and very fulfilling.
  • http://www.youtube.com/watch?v=9ZUyIRq5DAs
  • ‘Live with urgency,before the emergency’Robyn Moore, Alzheimer s Australia National Conference, 2011  
  • I did not thinkdementia wouldbe at my door atmy age, if at all,and certainlynot until I wasmuch older…
  • ...it is imperative we all understand the human cost of dementia. Baroness Susan Greenfield, June 2011
  • We are mothers, fathers,lovers, daughters, wives,husbands, employees,bloggers…it is a tragedy so many just see ourdeficits.
  • My high functioning mind hasslipped away, sometimesshowing itself like a ghost, tryingto tease me into believing it willbe okay, but now outside of myreach. My thoughts fly aroundinside my head like heliumballoons high inside anauditorium, also out of my reach.
  • I read then I forget…I read then I forget…I read, I take notes, andthen I forget…I blog, and it isalways there!
  • Hallucinationssometimes take overmy mind, asstrangers and wildcats stalk me. Thefeeling that thesethings are real ismomentary, butstartling none theless and theyincrease the feelingof madness creepinginto my soul.
  • It can look like aswan – calm andserene on thesurface, but legspaddling athousand timesfaster below thesurface to makethings ‘look ok’ toothers.Christine Bryden, Dancingwith dementia, 2005.
  • It is as if I am drowning…
  • Dementia represents the end ofdreaming...WordPress has brought back thedreaming.
  • WordPress has alsoopened up a vibrantchannel of dialogue andcommunication…and a memory bank
  • Focusonyourbrainplasticity
  • My life continues tobe interesting, busy and very fulfilling.
  • Statistics:1500 new cases per week in Australia, i.e.214 per day, no cure, treatment available forabout 60%, which reduces symptoms for 2years, and 100% of us die.THANK YOU.