your data, your rights.john wilbanks6 June 2013TELX marketplace live
from analog data todigital data.
i want it now!
cheap data changes theepistemology of fields.
“what makes justifiedbeliefs justified?”http://plato.stanford.edu/entries/epistemology/
player x is a good hitterbecause
OPS = AB(H + BB + HBP) +TB(AB + BB + SF + HBP) /AB(AB + BB + SF + HBP)
“essentially, it’s the world’s mostsophisticated cluster of sensorsthat you can wear on yourperson, and it’s going to know...
who owns thatinformation? andwho has rights to it?
1:how to waste a billiondollars - with big data.
18
19
20
21
22
assume 1,000,000 downloadsassume 10% false positive rate100,000 doctor visits$1000 per biopsy
everything isgetting representedvia data.
“in the end, alldata is eitherdeleted ormade public”- quinn norton
2:we’re people. notresources to be extracted.
“capacity to produceunanticipated change throughunfiltered contributions frombroad and varied audiences”- jonathan zittrain
“When Campos contacted thecompany for the first time,Medtronic spokesman Steve Craglesaid that the patient services repdidn...
"There is no reason anyonewould want a computer intheir home."Ken Olsen, founder of DigitalEquipment Corporation, 1977
we do want somecontrol over ourdata.
3:data is not regulated likeother kinds ofinformation.
copyrightdatabase rightspatentstrade secretscontracts
ontologyAPIformatOAuthversion controlprovenance
regulationunknown court ordersopen data policiescorporate policy
tension between anonymity and utilityease of re-identificationchanging norms of privacy
4:citizen-driven sharing ofpersonal level data isgoing to happen.
sharing by small butcoherent groups cancreate asymmetricallyvaluable resources.
small groupsharing
coherentism from:standard legal toolscommon infrastructurenormsmetadata
proven to work in:softwarecontent
but.
our sharing of (most)personal data is (mostly)incoherent.
68
69
terms in blue pop up definitions
volunteer must click to proceedall boxes must be checked
volunteer cannot skip video
http://opensnp.org/users/615
http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
“Also there is no suggestion ofconsanguinity in your pedigree.”http://www.ianlogan.co.uk/
but.
81
if this is the worldwe’re entering
those of us whogather data haveobligations.
1. citizens, not consumers.2. transparency, not obscurity.3. metcalfe, not moore.
thank you@wilbanksjohn.wilbanks@sagebase.org
Your Data, Your Rights
Your Data, Your Rights
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Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
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Your Data, Your Rights
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Your Data, Your Rights
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Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
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Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
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Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
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Transcript of "Your Data, Your Rights"

  1. 1. your data, your rights.john wilbanks6 June 2013TELX marketplace live
  2. 2. from analog data todigital data.
  3. 3. i want it now!
  4. 4. cheap data changes theepistemology of fields.
  5. 5. “what makes justifiedbeliefs justified?”http://plato.stanford.edu/entries/epistemology/
  6. 6. player x is a good hitterbecause
  7. 7. OPS = AB(H + BB + HBP) +TB(AB + BB + SF + HBP) /AB(AB + BB + SF + HBP)
  8. 8. “essentially, it’s the world’s mostsophisticated cluster of sensorsthat you can wear on yourperson, and it’s going to knowevery single thing you do,whether it’s driving, sleeping, ortaking a walk...”
  9. 9. who owns thatinformation? andwho has rights to it?
  10. 10. 1:how to waste a billiondollars - with big data.
  11. 11. 18
  12. 12. 19
  13. 13. 20
  14. 14. 21
  15. 15. 22
  16. 16. assume 1,000,000 downloadsassume 10% false positive rate100,000 doctor visits$1000 per biopsy
  17. 17. everything isgetting representedvia data.
  18. 18. “in the end, alldata is eitherdeleted ormade public”- quinn norton
  19. 19. 2:we’re people. notresources to be extracted.
  20. 20. “capacity to produceunanticipated change throughunfiltered contributions frombroad and varied audiences”- jonathan zittrain
  21. 21. “When Campos contacted thecompany for the first time,Medtronic spokesman Steve Craglesaid that the patient services repdidn’t understand that Camposwanted the raw data.”
  22. 22. "There is no reason anyonewould want a computer intheir home."Ken Olsen, founder of DigitalEquipment Corporation, 1977
  23. 23. we do want somecontrol over ourdata.
  24. 24. 3:data is not regulated likeother kinds ofinformation.
  25. 25. copyrightdatabase rightspatentstrade secretscontracts
  26. 26. ontologyAPIformatOAuthversion controlprovenance
  27. 27. regulationunknown court ordersopen data policiescorporate policy
  28. 28. tension between anonymity and utilityease of re-identificationchanging norms of privacy
  29. 29. 4:citizen-driven sharing ofpersonal level data isgoing to happen.
  30. 30. sharing by small butcoherent groups cancreate asymmetricallyvaluable resources.
  31. 31. small groupsharing
  32. 32. coherentism from:standard legal toolscommon infrastructurenormsmetadata
  33. 33. proven to work in:softwarecontent
  34. 34. but.
  35. 35. our sharing of (most)personal data is (mostly)incoherent.
  36. 36. 68
  37. 37. 69
  38. 38. terms in blue pop up definitions
  39. 39. volunteer must click to proceedall boxes must be checked
  40. 40. volunteer cannot skip video
  41. 41. http://opensnp.org/users/615
  42. 42. http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
  43. 43. “Also there is no suggestion ofconsanguinity in your pedigree.”http://www.ianlogan.co.uk/
  44. 44. but.
  45. 45. 81
  46. 46. if this is the worldwe’re entering
  47. 47. those of us whogather data haveobligations.
  48. 48. 1. citizens, not consumers.2. transparency, not obscurity.3. metcalfe, not moore.
  49. 49. thank you@wilbanksjohn.wilbanks@sagebase.org

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