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Your Data, Your Rights
 

Your Data, Your Rights

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Keynote delivered at TelX Marketplace Live 2013

Keynote delivered at TelX Marketplace Live 2013

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    Your Data, Your Rights Your Data, Your Rights Presentation Transcript

    • your data, your rights.john wilbanks6 June 2013TELX marketplace live
    • from analog data todigital data.
    • i want it now!
    • cheap data changes theepistemology of fields.
    • “what makes justifiedbeliefs justified?”http://plato.stanford.edu/entries/epistemology/
    • player x is a good hitterbecause
    • OPS = AB(H + BB + HBP) +TB(AB + BB + SF + HBP) /AB(AB + BB + SF + HBP)
    • “essentially, it’s the world’s mostsophisticated cluster of sensorsthat you can wear on yourperson, and it’s going to knowevery single thing you do,whether it’s driving, sleeping, ortaking a walk...”
    • who owns thatinformation? andwho has rights to it?
    • 1:how to waste a billiondollars - with big data.
    • 18
    • 19
    • 20
    • 21
    • 22
    • assume 1,000,000 downloadsassume 10% false positive rate100,000 doctor visits$1000 per biopsy
    • everything isgetting representedvia data.
    • “in the end, alldata is eitherdeleted ormade public”- quinn norton
    • 2:we’re people. notresources to be extracted.
    • “capacity to produceunanticipated change throughunfiltered contributions frombroad and varied audiences”- jonathan zittrain
    • “When Campos contacted thecompany for the first time,Medtronic spokesman Steve Craglesaid that the patient services repdidn’t understand that Camposwanted the raw data.”
    • "There is no reason anyonewould want a computer intheir home."Ken Olsen, founder of DigitalEquipment Corporation, 1977
    • we do want somecontrol over ourdata.
    • 3:data is not regulated likeother kinds ofinformation.
    • copyrightdatabase rightspatentstrade secretscontracts
    • ontologyAPIformatOAuthversion controlprovenance
    • regulationunknown court ordersopen data policiescorporate policy
    • tension between anonymity and utilityease of re-identificationchanging norms of privacy
    • 4:citizen-driven sharing ofpersonal level data isgoing to happen.
    • sharing by small butcoherent groups cancreate asymmetricallyvaluable resources.
    • small groupsharing
    • coherentism from:standard legal toolscommon infrastructurenormsmetadata
    • proven to work in:softwarecontent
    • but.
    • our sharing of (most)personal data is (mostly)incoherent.
    • 68
    • 69
    • terms in blue pop up definitions
    • volunteer must click to proceedall boxes must be checked
    • volunteer cannot skip video
    • http://opensnp.org/users/615
    • http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
    • “Also there is no suggestion ofconsanguinity in your pedigree.”http://www.ianlogan.co.uk/
    • but.
    • 81
    • if this is the worldwe’re entering
    • those of us whogather data haveobligations.
    • 1. citizens, not consumers.2. transparency, not obscurity.3. metcalfe, not moore.
    • thank you@wilbanksjohn.wilbanks@sagebase.org