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Your Data, Your Rights

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Keynote delivered at TelX Marketplace Live 2013

Keynote delivered at TelX Marketplace Live 2013

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  • 1. your data, your rights.john wilbanks6 June 2013TELX marketplace live
  • 2. from analog data todigital data.
  • 3. i want it now!
  • 4. cheap data changes theepistemology of fields.
  • 5. “what makes justifiedbeliefs justified?”http://plato.stanford.edu/entries/epistemology/
  • 6. player x is a good hitterbecause
  • 7. OPS = AB(H + BB + HBP) +TB(AB + BB + SF + HBP) /AB(AB + BB + SF + HBP)
  • 8. “essentially, it’s the world’s mostsophisticated cluster of sensorsthat you can wear on yourperson, and it’s going to knowevery single thing you do,whether it’s driving, sleeping, ortaking a walk...”
  • 9. who owns thatinformation? andwho has rights to it?
  • 10. 1:how to waste a billiondollars - with big data.
  • 11. 18
  • 12. 19
  • 13. 20
  • 14. 21
  • 15. 22
  • 16. assume 1,000,000 downloadsassume 10% false positive rate100,000 doctor visits$1000 per biopsy
  • 17. everything isgetting representedvia data.
  • 18. “in the end, alldata is eitherdeleted ormade public”- quinn norton
  • 19. 2:we’re people. notresources to be extracted.
  • 20. “capacity to produceunanticipated change throughunfiltered contributions frombroad and varied audiences”- jonathan zittrain
  • 21. “When Campos contacted thecompany for the first time,Medtronic spokesman Steve Craglesaid that the patient services repdidn’t understand that Camposwanted the raw data.”
  • 22. "There is no reason anyonewould want a computer intheir home."Ken Olsen, founder of DigitalEquipment Corporation, 1977
  • 23. we do want somecontrol over ourdata.
  • 24. 3:data is not regulated likeother kinds ofinformation.
  • 25. copyrightdatabase rightspatentstrade secretscontracts
  • 26. ontologyAPIformatOAuthversion controlprovenance
  • 27. regulationunknown court ordersopen data policiescorporate policy
  • 28. tension between anonymity and utilityease of re-identificationchanging norms of privacy
  • 29. 4:citizen-driven sharing ofpersonal level data isgoing to happen.
  • 30. sharing by small butcoherent groups cancreate asymmetricallyvaluable resources.
  • 31. small groupsharing
  • 32. coherentism from:standard legal toolscommon infrastructurenormsmetadata
  • 33. proven to work in:softwarecontent
  • 34. but.
  • 35. our sharing of (most)personal data is (mostly)incoherent.
  • 36. 68
  • 37. 69
  • 38. terms in blue pop up definitions
  • 39. volunteer must click to proceedall boxes must be checked
  • 40. volunteer cannot skip video
  • 41. http://opensnp.org/users/615
  • 42. http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
  • 43. “Also there is no suggestion ofconsanguinity in your pedigree.”http://www.ianlogan.co.uk/
  • 44. but.
  • 45. 81
  • 46. if this is the worldwe’re entering
  • 47. those of us whogather data haveobligations.
  • 48. 1. citizens, not consumers.2. transparency, not obscurity.3. metcalfe, not moore.
  • 49. thank you@wilbanksjohn.wilbanks@sagebase.org