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Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
Your Data, Your Rights
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Your Data, Your Rights

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Keynote delivered at TelX Marketplace Live 2013

Keynote delivered at TelX Marketplace Live 2013

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  • 1. your data, your rights.john wilbanks6 June 2013TELX marketplace live
  • 2. from analog data todigital data.
  • 3. i want it now!
  • 4. cheap data changes theepistemology of fields.
  • 5. “what makes justifiedbeliefs justified?”http://plato.stanford.edu/entries/epistemology/
  • 6. player x is a good hitterbecause
  • 7. OPS = AB(H + BB + HBP) +TB(AB + BB + SF + HBP) /AB(AB + BB + SF + HBP)
  • 8. “essentially, it’s the world’s mostsophisticated cluster of sensorsthat you can wear on yourperson, and it’s going to knowevery single thing you do,whether it’s driving, sleeping, ortaking a walk...”
  • 9. who owns thatinformation? andwho has rights to it?
  • 10. 1:how to waste a billiondollars - with big data.
  • 11. 18
  • 12. 19
  • 13. 20
  • 14. 21
  • 15. 22
  • 16. assume 1,000,000 downloadsassume 10% false positive rate100,000 doctor visits$1000 per biopsy
  • 17. everything isgetting representedvia data.
  • 18. “in the end, alldata is eitherdeleted ormade public”- quinn norton
  • 19. 2:we’re people. notresources to be extracted.
  • 20. “capacity to produceunanticipated change throughunfiltered contributions frombroad and varied audiences”- jonathan zittrain
  • 21. “When Campos contacted thecompany for the first time,Medtronic spokesman Steve Craglesaid that the patient services repdidn’t understand that Camposwanted the raw data.”
  • 22. "There is no reason anyonewould want a computer intheir home."Ken Olsen, founder of DigitalEquipment Corporation, 1977
  • 23. we do want somecontrol over ourdata.
  • 24. 3:data is not regulated likeother kinds ofinformation.
  • 25. copyrightdatabase rightspatentstrade secretscontracts
  • 26. ontologyAPIformatOAuthversion controlprovenance
  • 27. regulationunknown court ordersopen data policiescorporate policy
  • 28. tension between anonymity and utilityease of re-identificationchanging norms of privacy
  • 29. 4:citizen-driven sharing ofpersonal level data isgoing to happen.
  • 30. sharing by small butcoherent groups cancreate asymmetricallyvaluable resources.
  • 31. small groupsharing
  • 32. coherentism from:standard legal toolscommon infrastructurenormsmetadata
  • 33. proven to work in:softwarecontent
  • 34. but.
  • 35. our sharing of (most)personal data is (mostly)incoherent.
  • 36. 68
  • 37. 69
  • 38. terms in blue pop up definitions
  • 39. volunteer must click to proceedall boxes must be checked
  • 40. volunteer cannot skip video
  • 41. http://opensnp.org/users/615
  • 42. http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
  • 43. “Also there is no suggestion ofconsanguinity in your pedigree.”http://www.ianlogan.co.uk/
  • 44. but.
  • 45. 81
  • 46. if this is the worldwe’re entering
  • 47. those of us whogather data haveobligations.
  • 48. 1. citizens, not consumers.2. transparency, not obscurity.3. metcalfe, not moore.
  • 49. thank you@wilbanksjohn.wilbanks@sagebase.org

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