Swiss public health 2013 Wilbanks

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Keynote presentation for the Swiss Public Health Conference 2014. Details at http://sph13.organizers-congress.ch/french/programOverview.php

Keynote presentation for the Swiss Public Health Conference 2014. Details at http://sph13.organizers-congress.ch/french/programOverview.php

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Transcript

  • 1. every age has its own lever.
  • 2. ours is data.
  • 3. 1. how do we change the way we gather data?
  • 4. centered around authenticated individuals at authenticated institutions
  • 5. gathering pre-determined data from pre-determined phenotypes
  • 6. there is no center, and what is authentication?
  • 7. “just record everything and figure out significance later”
  • 8. 2. it’s about cheap data, not big data.
  • 9. cheap data changes the way we justify our beliefs.
  • 10. OPS = AB(H + BB + HBP) + TB(AB + BB + SF + HBP) / AB(AB + BB + SF + HBP)
  • 11. cheap data = better decisions
  • 12. 21
  • 13. 22
  • 14. 23
  • 15. 24
  • 16. assume 1,000,000 downloads assume 10% false positive rate 100,000 doctor visits $1000 per biopsy
  • 17. $900,000,000 per app?
  • 18. 3. how might we connect cheap data, research, and health systems?
  • 19. sharing by small but coherent groups can create asymmetrically valuable resources.
  • 20. “When Campos contacted the company for the first time, Medtronic spokesman Steve Cragle said that the patient services rep didn’t understand that Campos wanted the raw data.”
  • 21. if i want to give it away, i have to understand the gift.
  • 22. terms in blue pop up definitions
  • 23. volunteer must click to proceed all boxes must be checked
  • 24. volunteer cannot skip video
  • 25. real-time genotype sharing:
  • 26. http://opensnp.org/users/615
  • 27. http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
  • 28. “Also there is no suggestion of consanguinity in your pedigree.” http://www.ianlogan.co.uk/
  • 29. a relief, but no insight.
  • 30. 4. cheap data to insight via open systems.
  • 31. 47
  • 32. 48
  • 33. accessibility adaptability leverage ease of mastery
  • 34. accessibility adaptability leverage ease of  mastery 0 25 25 25 25 THREE  OPTIONS  TO  DOWNLOAD NO  CLEAR  LICENSE PRIVACY  RESTRICTIONS METADATA
  • 35. which patients have tumor and normal samples amidst a group of celfiles?
  • 36. accessibility adaptability leverage ease of  mastery IMPACT  OF  PRIVATE  INTERVENTION
  • 37. free as in speech or free as in beer?
  • 38. john.wilbanks@sagebase.gov wilbanks@nitrd.gov @wilbanks