Swiss public health 2013 Wilbanks
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Swiss public health 2013 Wilbanks

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Keynote presentation for the Swiss Public Health Conference 2014. Details at http://sph13.organizers-congress.ch/french/programOverview.php

Keynote presentation for the Swiss Public Health Conference 2014. Details at http://sph13.organizers-congress.ch/french/programOverview.php

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Swiss public health 2013 Wilbanks Swiss public health 2013 Wilbanks Presentation Transcript

  • every age has its own lever.
  • ours is data.
  • 1. how do we change the way we gather data?
  • centered around authenticated individuals at authenticated institutions
  • gathering pre-determined data from pre-determined phenotypes
  • there is no center, and what is authentication?
  • “just record everything and figure out significance later”
  • 2. it’s about cheap data, not big data.
  • cheap data changes the way we justify our beliefs.
  • OPS = AB(H + BB + HBP) + TB(AB + BB + SF + HBP) / AB(AB + BB + SF + HBP)
  • cheap data = better decisions
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  • 24
  • assume 1,000,000 downloads assume 10% false positive rate 100,000 doctor visits $1000 per biopsy
  • $900,000,000 per app?
  • 3. how might we connect cheap data, research, and health systems?
  • sharing by small but coherent groups can create asymmetrically valuable resources.
  • “When Campos contacted the company for the first time, Medtronic spokesman Steve Cragle said that the patient services rep didn’t understand that Campos wanted the raw data.”
  • if i want to give it away, i have to understand the gift.
  • terms in blue pop up definitions
  • volunteer must click to proceed all boxes must be checked
  • volunteer cannot skip video
  • real-time genotype sharing:
  • http://opensnp.org/users/615
  • http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
  • “Also there is no suggestion of consanguinity in your pedigree.” http://www.ianlogan.co.uk/
  • a relief, but no insight.
  • 4. cheap data to insight via open systems.
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  • accessibility adaptability leverage ease of mastery
  • accessibility adaptability leverage ease of  mastery 0 25 25 25 25 THREE  OPTIONS  TO  DOWNLOAD NO  CLEAR  LICENSE PRIVACY  RESTRICTIONS METADATA
  • which patients have tumor and normal samples amidst a group of celfiles?
  • accessibility adaptability leverage ease of  mastery IMPACT  OF  PRIVATE  INTERVENTION
  • free as in speech or free as in beer?
  • john.wilbanks@sagebase.gov wilbanks@nitrd.gov @wilbanks