Patient Driven Clinical Sharing
Upcoming SlideShare
Loading in...5
×
 

Like this? Share it with your network

Share

Patient Driven Clinical Sharing

on

  • 1,913 views

 

Statistics

Views

Total Views
1,913
Views on SlideShare
1,185
Embed Views
728

Actions

Likes
0
Downloads
2
Comments
0

5 Embeds 728

http://weconsent.us 712
http://www.linkedin.com 8
https://www.linkedin.com 4
https://twitter.com 3
https://si0.twimg.com 1

Accessibility

Categories

Upload Details

Uploaded via as Adobe PDF

Usage Rights

CC Attribution-ShareAlike LicenseCC Attribution-ShareAlike License

Report content

Flagged as inappropriate Flag as inappropriate
Flag as inappropriate

Select your reason for flagging this presentation as inappropriate.

Cancel
  • Full Name Full Name Comment goes here.
    Are you sure you want to
    Your message goes here
    Processing…
Post Comment
Edit your comment

Patient Driven Clinical Sharing Presentation Transcript

  • 1. patient ownership ofclinical research data @wilbanks john.wilbanks@sagebase.org
  • 2. 1. what do you meanby clinical? research? data?
  • 3. 1. what do you meanby clinical? research? data?
  • 4. 1. what do you meanby clinical? research? data?
  • 5. 2. we re not very patient.
  • 6. http://opensnp.org/users/615
  • 7. http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
  • 8. Also there is no suggestion ofconsanguinity in your pedigree.http://www.ianlogan.co.uk/
  • 9. https://www.scienceexchange.com/
  • 10. 3. principles for sharing.
  • 11. honesty. reusability. portability.
  • 12. http://synapse.sagebase.org
  • 13. http://weconsent.us
  • 14. 24
  • 15. http://sagebridge.org
  • 16. 26
  • 17. if we scale...
  • 18. honesty, reusability, and portability will change a clinical outcome.
  • 19. thank you