Patient Driven Clinical Sharing
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Patient Driven Clinical Sharing

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  • 1. patient ownership ofclinical research data @wilbanks john.wilbanks@sagebase.org
  • 2. 1. what do you meanby clinical? research? data?
  • 3. 1. what do you meanby clinical? research? data?
  • 4. 1. what do you meanby clinical? research? data?
  • 5. 2. we re not very patient.
  • 6. http://opensnp.org/users/615
  • 7. http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
  • 8. Also there is no suggestion ofconsanguinity in your pedigree.http://www.ianlogan.co.uk/
  • 9. https://www.scienceexchange.com/
  • 10. 3. principles for sharing.
  • 11. honesty. reusability. portability.
  • 12. http://synapse.sagebase.org
  • 13. http://weconsent.us
  • 14. 24
  • 15. http://sagebridge.org
  • 16. 26
  • 17. if we scale...
  • 18. honesty, reusability, and portability will change a clinical outcome.
  • 19. thank you