Patient Driven Clinical Sharing

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Patient Driven Clinical Sharing

  1. 1. patient ownership ofclinical research data @wilbanks john.wilbanks@sagebase.org
  2. 2. 1. what do you meanby clinical? research? data?
  3. 3. 1. what do you meanby clinical? research? data?
  4. 4. 1. what do you meanby clinical? research? data?
  5. 5. 2. we re not very patient.
  6. 6. http://opensnp.org/users/615
  7. 7. http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
  8. 8. Also there is no suggestion ofconsanguinity in your pedigree.http://www.ianlogan.co.uk/
  9. 9. https://www.scienceexchange.com/
  10. 10. 3. principles for sharing.
  11. 11. honesty. reusability. portability.
  12. 12. http://synapse.sagebase.org
  13. 13. http://weconsent.us
  14. 14. 24
  15. 15. http://sagebridge.org
  16. 16. 26
  17. 17. if we scale...
  18. 18. honesty, reusability, and portability will change a clinical outcome.
  19. 19. thank you

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