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patient ownership ofclinical research data            @wilbanks   john.wilbanks@sagebase.org
1. what do you meanby clinical? research?         data?
1. what do you meanby clinical? research?         data?
1. what do you meanby clinical? research?         data?
2. we re not very    patient.
http://opensnp.org/users/615
http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
Also there is no suggestion ofconsanguinity in your pedigree.http://www.ianlogan.co.uk/
https://www.scienceexchange.com/
3. principles for    sharing.
honesty. reusability. portability.
http://synapse.sagebase.org
http://weconsent.us
24
http://sagebridge.org
26
if we scale...
honesty, reusability, and portability will  change a clinical     outcome.
thank you
Patient Driven Clinical Sharing
Patient Driven Clinical Sharing
Patient Driven Clinical Sharing
Patient Driven Clinical Sharing
Patient Driven Clinical Sharing
Patient Driven Clinical Sharing
Patient Driven Clinical Sharing
Patient Driven Clinical Sharing
Patient Driven Clinical Sharing
Patient Driven Clinical Sharing
Patient Driven Clinical Sharing
Patient Driven Clinical Sharing
Patient Driven Clinical Sharing
Patient Driven Clinical Sharing
Patient Driven Clinical Sharing
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Patient Driven Clinical Sharing

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Transcript of "Patient Driven Clinical Sharing"

  1. 1. patient ownership ofclinical research data @wilbanks john.wilbanks@sagebase.org
  2. 2. 1. what do you meanby clinical? research? data?
  3. 3. 1. what do you meanby clinical? research? data?
  4. 4. 1. what do you meanby clinical? research? data?
  5. 5. 2. we re not very patient.
  6. 6. http://opensnp.org/users/615
  7. 7. http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
  8. 8. Also there is no suggestion ofconsanguinity in your pedigree.http://www.ianlogan.co.uk/
  9. 9. https://www.scienceexchange.com/
  10. 10. 3. principles for sharing.
  11. 11. honesty. reusability. portability.
  12. 12. http://synapse.sagebase.org
  13. 13. http://weconsent.us
  14. 14. 24
  15. 15. http://sagebridge.org
  16. 16. 26
  17. 17. if we scale...
  18. 18. honesty, reusability, and portability will change a clinical outcome.
  19. 19. thank you
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