Patient Driven Clinical Sharing
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Patient Driven Clinical Sharing

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Patient Driven Clinical Sharing Patient Driven Clinical Sharing Presentation Transcript

  • patient ownership ofclinical research data @wilbanks john.wilbanks@sagebase.org
  • 1. what do you meanby clinical? research? data?
  • 1. what do you meanby clinical? research? data?
  • 1. what do you meanby clinical? research? data?
  • 2. we re not very patient.
  • http://opensnp.org/users/615
  • http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
  • Also there is no suggestion ofconsanguinity in your pedigree.http://www.ianlogan.co.uk/
  • https://www.scienceexchange.com/
  • 3. principles for sharing.
  • honesty. reusability. portability.
  • http://synapse.sagebase.org
  • http://weconsent.us
  • 24
  • http://sagebridge.org
  • 26
  • if we scale...
  • honesty, reusability, and portability will change a clinical outcome.
  • thank you