Luso brasiliera accesso aberto wilbanks
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Luso brasiliera accesso aberto wilbanks

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Luso brasiliera accesso aberto wilbanks Luso brasiliera accesso aberto wilbanks Presentation Transcript

  • open science and open data @wilbanks 8 october 2013 sao paulo, brazil
  • 1. data = knowledge.
  • data regulated by... View slide
  • data regulated by... View slide
  • open is essential. it is not sufficient.
  • open is essential. it is not sufficient.
  • http://www.systemswiki.org/images/8/8a/Wisdom.png
  • accessibility adaptability leverage ease of mastery
  • accessibility adaptability leverage ease of mastery
  • accessibility adaptability leverage ease of mastery
  • accessibility adaptability leverage ease of mastery
  • accessibility adaptability leverage ease of mastery EASY TO USE NO OPEN LICENSE
  • 21
  • 23
  • accessibility adaptability leverage ease of mastery NO OPEN LICENSE DOWNLOAD AVAILABLE DOCUMENTATION IN PDF
  • 2. rationale for open data: it makes for better science.
  • may the best (statistical) model win
  • 28
  • 21 february 2013 17 april 2013 ongoing...
  • SHOW ME THE CODE!
  • ...
  • ...
  • ...
  • ...
  • ...
  • Omberg,  et  al.  Nature  Gene*cs
  • accessibility adaptability leverage ease of  mastery 0 25 25 25 25 THREE  OPTIONS  TO  DOWNLOAD NO  CLEAR  LICENSE PRIVACY  RESTRICTIONS METADATA
  • accessibility adaptability leverage ease of  mastery IMPACT  OF  PRIVATE  INTERVENTION
  • 68core projects
  • 248researchers
  • 28institutions
  • 1070datasets
  • 1723results
  • 18papers in press
  • colorectal cancer subtyping
  • A B C D E F 1 2 3 4 5 6 datasets subtypes analysis groups
  • A B C D E F 1 2 3 4 5 6 datasets analysis groups G ... subtypes
  • analysis groups G
  • A B C D E F 1 2 3 4 5 6 datasets analysis groups G ... subtypes
  • 3. science and culture are on a collision course, driven by data
  • tension between anonymity and utility.
  • “more like plutonium than gold”
  • tension between expectation and reuse.
  • 68% want their data shared for science
  • tension between value of individual and value of aggregate.
  • $.50 to $2.50 for SSN, birthdate, etc.
  • $5 to $15 for credit, background checks.
  • ~40 records for $2100
  • tension between “research” data and “consumer” data.
  • https://www.scienceexchange.com/
  • “open” is the only beginning that can adapt.
  • “open” is the only beginning that can adapt.
  • john.wilbanks@sagebase.gov wilbanks@nitrd.gov @wilbanks