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open science and open data
@wilbanks
8 october 2013
sao paulo, brazil
1.
data = knowledge.
data regulated by...
data regulated by...
open is essential.
it is not sufficient.
open is essential.
it is not sufficient.
http://www.systemswiki.org/images/8/8a/Wisdom.png
accessibility
adaptability
leverage
ease
of mastery
accessibility
adaptability
leverage
ease
of mastery
accessibility
adaptability
leverage
ease
of mastery
accessibility
adaptability
leverage
ease
of mastery
accessibility
adaptability
leverage
ease
of mastery
EASY TO USE
NO OPEN LICENSE
21
23
accessibility
adaptability
leverage
ease
of mastery
NO OPEN LICENSE
DOWNLOAD AVAILABLE
DOCUMENTATION IN PDF
2.
rationale for open data:
it makes for
better science.
may the best (statistical) model win
28
21 february 2013
17 april 2013
ongoing...
SHOW ME THE CODE!
...
...
...
...
...
Omberg,	
  et	
  al.	
  Nature	
  Gene*cs
accessibility
adaptability
leverage
ease
of	
  mastery
0
25
25
25
25
THREE	
  OPTIONS	
  TO	
  DOWNLOAD
NO	
  CLEAR	
  LIC...
accessibility
adaptability
leverage
ease
of	
  mastery
IMPACT	
  OF	
  PRIVATE	
  INTERVENTION
68core projects
248researchers
28institutions
1070datasets
1723results
18papers in press
colorectal cancer subtyping
A
B
C
D
E
F
1
2
3
4
5
6
datasets subtypes
analysis
groups
A
B
C
D
E
F
1
2
3
4
5
6
datasets
analysis
groups
G ...
subtypes
analysis
groups
G
A
B
C
D
E
F
1
2
3
4
5
6
datasets
analysis
groups
G ...
subtypes
3.
science and culture are
on a collision course,
driven by data
tension between
anonymity and utility.
“more like plutonium
than gold”
tension between
expectation and reuse.
68% want their data
shared for science
tension between value of
individual and value of
aggregate.
$.50 to $2.50 for SSN,
birthdate, etc.
$5 to $15 for credit,
background checks.
~40 records for $2100
tension between
“research” data and
“consumer” data.
https://www.scienceexchange.com/
“open” is the only beginning
that can adapt.
“open” is the only beginning
that can adapt.
john.wilbanks@sagebase.gov
wilbanks@nitrd.gov
@wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
Luso brasiliera accesso aberto wilbanks
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Transcript of "Luso brasiliera accesso aberto wilbanks"

  1. 1. open science and open data @wilbanks 8 october 2013 sao paulo, brazil
  2. 2. 1. data = knowledge.
  3. 3. data regulated by...
  4. 4. data regulated by...
  5. 5. open is essential. it is not sufficient.
  6. 6. open is essential. it is not sufficient.
  7. 7. http://www.systemswiki.org/images/8/8a/Wisdom.png
  8. 8. accessibility adaptability leverage ease of mastery
  9. 9. accessibility adaptability leverage ease of mastery
  10. 10. accessibility adaptability leverage ease of mastery
  11. 11. accessibility adaptability leverage ease of mastery
  12. 12. accessibility adaptability leverage ease of mastery EASY TO USE NO OPEN LICENSE
  13. 13. 21
  14. 14. 23
  15. 15. accessibility adaptability leverage ease of mastery NO OPEN LICENSE DOWNLOAD AVAILABLE DOCUMENTATION IN PDF
  16. 16. 2. rationale for open data: it makes for better science.
  17. 17. may the best (statistical) model win
  18. 18. 28
  19. 19. 21 february 2013 17 april 2013 ongoing...
  20. 20. SHOW ME THE CODE!
  21. 21. ...
  22. 22. ...
  23. 23. ...
  24. 24. ...
  25. 25. ...
  26. 26. Omberg,  et  al.  Nature  Gene*cs
  27. 27. accessibility adaptability leverage ease of  mastery 0 25 25 25 25 THREE  OPTIONS  TO  DOWNLOAD NO  CLEAR  LICENSE PRIVACY  RESTRICTIONS METADATA
  28. 28. accessibility adaptability leverage ease of  mastery IMPACT  OF  PRIVATE  INTERVENTION
  29. 29. 68core projects
  30. 30. 248researchers
  31. 31. 28institutions
  32. 32. 1070datasets
  33. 33. 1723results
  34. 34. 18papers in press
  35. 35. colorectal cancer subtyping
  36. 36. A B C D E F 1 2 3 4 5 6 datasets subtypes analysis groups
  37. 37. A B C D E F 1 2 3 4 5 6 datasets analysis groups G ... subtypes
  38. 38. analysis groups G
  39. 39. A B C D E F 1 2 3 4 5 6 datasets analysis groups G ... subtypes
  40. 40. 3. science and culture are on a collision course, driven by data
  41. 41. tension between anonymity and utility.
  42. 42. “more like plutonium than gold”
  43. 43. tension between expectation and reuse.
  44. 44. 68% want their data shared for science
  45. 45. tension between value of individual and value of aggregate.
  46. 46. $.50 to $2.50 for SSN, birthdate, etc.
  47. 47. $5 to $15 for credit, background checks.
  48. 48. ~40 records for $2100
  49. 49. tension between “research” data and “consumer” data.
  50. 50. https://www.scienceexchange.com/
  51. 51. “open” is the only beginning that can adapt.
  52. 52. “open” is the only beginning that can adapt.
  53. 53. john.wilbanks@sagebase.gov wilbanks@nitrd.gov @wilbanks
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