Luso brasiliera accesso aberto wilbanks

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Luso brasiliera accesso aberto wilbanks

  1. 1. open science and open data @wilbanks 8 october 2013 sao paulo, brazil
  2. 2. 1. data = knowledge.
  3. 3. data regulated by...
  4. 4. data regulated by...
  5. 5. open is essential. it is not sufficient.
  6. 6. open is essential. it is not sufficient.
  7. 7. http://www.systemswiki.org/images/8/8a/Wisdom.png
  8. 8. accessibility adaptability leverage ease of mastery
  9. 9. accessibility adaptability leverage ease of mastery
  10. 10. accessibility adaptability leverage ease of mastery
  11. 11. accessibility adaptability leverage ease of mastery
  12. 12. accessibility adaptability leverage ease of mastery EASY TO USE NO OPEN LICENSE
  13. 13. 21
  14. 14. 23
  15. 15. accessibility adaptability leverage ease of mastery NO OPEN LICENSE DOWNLOAD AVAILABLE DOCUMENTATION IN PDF
  16. 16. 2. rationale for open data: it makes for better science.
  17. 17. may the best (statistical) model win
  18. 18. 28
  19. 19. 21 february 2013 17 april 2013 ongoing...
  20. 20. SHOW ME THE CODE!
  21. 21. ...
  22. 22. ...
  23. 23. ...
  24. 24. ...
  25. 25. ...
  26. 26. Omberg,  et  al.  Nature  Gene*cs
  27. 27. accessibility adaptability leverage ease of  mastery 0 25 25 25 25 THREE  OPTIONS  TO  DOWNLOAD NO  CLEAR  LICENSE PRIVACY  RESTRICTIONS METADATA
  28. 28. accessibility adaptability leverage ease of  mastery IMPACT  OF  PRIVATE  INTERVENTION
  29. 29. 68core projects
  30. 30. 248researchers
  31. 31. 28institutions
  32. 32. 1070datasets
  33. 33. 1723results
  34. 34. 18papers in press
  35. 35. colorectal cancer subtyping
  36. 36. A B C D E F 1 2 3 4 5 6 datasets subtypes analysis groups
  37. 37. A B C D E F 1 2 3 4 5 6 datasets analysis groups G ... subtypes
  38. 38. analysis groups G
  39. 39. A B C D E F 1 2 3 4 5 6 datasets analysis groups G ... subtypes
  40. 40. 3. science and culture are on a collision course, driven by data
  41. 41. tension between anonymity and utility.
  42. 42. “more like plutonium than gold”
  43. 43. tension between expectation and reuse.
  44. 44. 68% want their data shared for science
  45. 45. tension between value of individual and value of aggregate.
  46. 46. $.50 to $2.50 for SSN, birthdate, etc.
  47. 47. $5 to $15 for credit, background checks.
  48. 48. ~40 records for $2100
  49. 49. tension between “research” data and “consumer” data.
  50. 50. https://www.scienceexchange.com/
  51. 51. “open” is the only beginning that can adapt.
  52. 52. “open” is the only beginning that can adapt.
  53. 53. john.wilbanks@sagebase.gov wilbanks@nitrd.gov @wilbanks
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