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  • 1. open science and open data @wilbanks 8 october 2013 sao paulo, brazil
  • 2. 1. data = knowledge.
  • 3. data regulated by...
  • 4. data regulated by...
  • 5. open is essential. it is not sufficient.
  • 6. open is essential. it is not sufficient.
  • 7. http://www.systemswiki.org/images/8/8a/Wisdom.png
  • 8. accessibility adaptability leverage ease of mastery
  • 9. accessibility adaptability leverage ease of mastery
  • 10. accessibility adaptability leverage ease of mastery
  • 11. accessibility adaptability leverage ease of mastery
  • 12. accessibility adaptability leverage ease of mastery EASY TO USE NO OPEN LICENSE
  • 13. 21
  • 14. 23
  • 15. accessibility adaptability leverage ease of mastery NO OPEN LICENSE DOWNLOAD AVAILABLE DOCUMENTATION IN PDF
  • 16. 2. rationale for open data: it makes for better science.
  • 17. may the best (statistical) model win
  • 18. 28
  • 19. 21 february 2013 17 april 2013 ongoing...
  • 20. SHOW ME THE CODE!
  • 21. ...
  • 22. ...
  • 23. ...
  • 24. ...
  • 25. ...
  • 26. Omberg,  et  al.  Nature  Gene*cs
  • 27. accessibility adaptability leverage ease of  mastery 0 25 25 25 25 THREE  OPTIONS  TO  DOWNLOAD NO  CLEAR  LICENSE PRIVACY  RESTRICTIONS METADATA
  • 28. accessibility adaptability leverage ease of  mastery IMPACT  OF  PRIVATE  INTERVENTION
  • 29. 68core projects
  • 30. 248researchers
  • 31. 28institutions
  • 32. 1070datasets
  • 33. 1723results
  • 34. 18papers in press
  • 35. colorectal cancer subtyping
  • 36. A B C D E F 1 2 3 4 5 6 datasets subtypes analysis groups
  • 37. A B C D E F 1 2 3 4 5 6 datasets analysis groups G ... subtypes
  • 38. analysis groups G
  • 39. A B C D E F 1 2 3 4 5 6 datasets analysis groups G ... subtypes
  • 40. 3. science and culture are on a collision course, driven by data
  • 41. tension between anonymity and utility.
  • 42. “more like plutonium than gold”
  • 43. tension between expectation and reuse.
  • 44. 68% want their data shared for science
  • 45. tension between value of individual and value of aggregate.
  • 46. $.50 to $2.50 for SSN, birthdate, etc.
  • 47. $5 to $15 for credit, background checks.
  • 48. ~40 records for $2100
  • 49. tension between “research” data and “consumer” data.
  • 50. https://www.scienceexchange.com/
  • 51. “open” is the only beginning that can adapt.
  • 52. “open” is the only beginning that can adapt.
  • 53. john.wilbanks@sagebase.gov wilbanks@nitrd.gov @wilbanks