Living well through data
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Living well through data

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Slides on privacy given at "Living Well Through Data" - Mt Sinai Medical Center, NYC, 10/2/2012

Slides on privacy given at "Living Well Through Data" - Mt Sinai Medical Center, NYC, 10/2/2012

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    Living well through data Living well through data Presentation Transcript

    • living well through data @wilbanks http://del-fi.org
    • 1. doppler shifts.
    • sound is higher in pitch when it is approachingthan when it is receding
    • https://www.scienceexchange.com/
    • incremental advances will not suffice
    • sound is higher in pitch when it is approachingthan when it is receding
    • sound is higher in pitch when it is approachingthan when it is receding ...is the sound of the medical system screaming.
    • 2. health is not like other data.
    • ?:>,mnbjm;./ }p[;loikl; ]]=0-98ertdfl,;
    • using this level ofconsent, we can...
    • http://curiousfridays.files.wordpress.com/2012/02/pregnant-target1.jpg
    • savvy single
    • we can do this for health!
    • quantified self
    • can i have my data?
    • can i have my data?
    • if you don t fix this, someone will.
    • noted for accuraterepresentations oftechnology in law!
    • the privacy community is watching you.
    • 3. what you need to do.
    • a. honesty
    • b. participants get a usable copy.
    • http://en.wikipedia.org/wiki/File:Heatmap.png
    • rdf:about=WhoWhatWhenWhereWhy
    • c. informed consent
    • 10 minuteinvestment.
    • if you scale...
    • honesty, reusability,portability, and consent will change a clinical outcome.
    • whether it s for thebetter or the worse is up to you.
    • thank you