living well through data          @wilbanks       http://del-fi.org
1. doppler shifts.
sound is higher in pitch when it is approachingthan when it is receding
https://www.scienceexchange.com/
incremental advances    will not suffice
sound is higher in pitch when it is approachingthan when it is receding
sound is higher in pitch when it is approachingthan when it is receding ...is the sound of the medical        system screa...
2. health is not like    other data.
?:>,mnbjm;./   }p[;loikl; ]]=0-98ertdfl,;
using this level ofconsent, we can...
http://curiousfridays.files.wordpress.com/2012/02/pregnant-target1.jpg
savvy single
we can do this for health!
quantified self
can i have my data?
can i have my data?
if you don t fix this,    someone will.
noted for accuraterepresentations oftechnology in law!
the privacy community   is watching you.
3. what you need to do.
a. honesty
b. participants get a usable copy.
http://en.wikipedia.org/wiki/File:Heatmap.png
rdf:about=WhoWhatWhenWhereWhy
c. informed consent
10 minuteinvestment.
if you scale...
honesty, reusability,portability, and consent will change a clinical       outcome.
whether it s for thebetter or the worse is      up to you.
thank you
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
Living well through data
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Living well through data

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Slides on privacy given at "Living Well Through Data" - Mt Sinai Medical Center, NYC, 10/2/2012

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Living well through data

  1. 1. living well through data @wilbanks http://del-fi.org
  2. 2. 1. doppler shifts.
  3. 3. sound is higher in pitch when it is approachingthan when it is receding
  4. 4. https://www.scienceexchange.com/
  5. 5. incremental advances will not suffice
  6. 6. sound is higher in pitch when it is approachingthan when it is receding
  7. 7. sound is higher in pitch when it is approachingthan when it is receding ...is the sound of the medical system screaming.
  8. 8. 2. health is not like other data.
  9. 9. ?:>,mnbjm;./ }p[;loikl; ]]=0-98ertdfl,;
  10. 10. using this level ofconsent, we can...
  11. 11. http://curiousfridays.files.wordpress.com/2012/02/pregnant-target1.jpg
  12. 12. savvy single
  13. 13. we can do this for health!
  14. 14. quantified self
  15. 15. can i have my data?
  16. 16. can i have my data?
  17. 17. if you don t fix this, someone will.
  18. 18. noted for accuraterepresentations oftechnology in law!
  19. 19. the privacy community is watching you.
  20. 20. 3. what you need to do.
  21. 21. a. honesty
  22. 22. b. participants get a usable copy.
  23. 23. http://en.wikipedia.org/wiki/File:Heatmap.png
  24. 24. rdf:about=WhoWhatWhenWhereWhy
  25. 25. c. informed consent
  26. 26. 10 minuteinvestment.
  27. 27. if you scale...
  28. 28. honesty, reusability,portability, and consent will change a clinical outcome.
  29. 29. whether it s for thebetter or the worse is up to you.
  30. 30. thank you
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