Living well through data

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Slides on privacy given at "Living Well Through Data" - Mt Sinai Medical Center, NYC, 10/2/2012

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Living well through data

  1. 1. living well through data @wilbanks http://del-fi.org
  2. 2. 1. doppler shifts.
  3. 3. sound is higher in pitch when it is approachingthan when it is receding
  4. 4. https://www.scienceexchange.com/
  5. 5. incremental advances will not suffice
  6. 6. sound is higher in pitch when it is approachingthan when it is receding
  7. 7. sound is higher in pitch when it is approachingthan when it is receding ...is the sound of the medical system screaming.
  8. 8. 2. health is not like other data.
  9. 9. ?:>,mnbjm;./ }p[;loikl; ]]=0-98ertdfl,;
  10. 10. using this level ofconsent, we can...
  11. 11. http://curiousfridays.files.wordpress.com/2012/02/pregnant-target1.jpg
  12. 12. savvy single
  13. 13. we can do this for health!
  14. 14. quantified self
  15. 15. can i have my data?
  16. 16. can i have my data?
  17. 17. if you don t fix this, someone will.
  18. 18. noted for accuraterepresentations oftechnology in law!
  19. 19. the privacy community is watching you.
  20. 20. 3. what you need to do.
  21. 21. a. honesty
  22. 22. b. participants get a usable copy.
  23. 23. http://en.wikipedia.org/wiki/File:Heatmap.png
  24. 24. rdf:about=WhoWhatWhenWhereWhy
  25. 25. c. informed consent
  26. 26. 10 minuteinvestment.
  27. 27. if you scale...
  28. 28. honesty, reusability,portability, and consent will change a clinical outcome.
  29. 29. whether it s for thebetter or the worse is up to you.
  30. 30. thank you

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