Living well through data

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Slides on privacy given at "Living Well Through Data" - Mt Sinai Medical Center, NYC, 10/2/2012

Slides on privacy given at "Living Well Through Data" - Mt Sinai Medical Center, NYC, 10/2/2012

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  • 1. living well through data @wilbanks http://del-fi.org
  • 2. 1. doppler shifts.
  • 3. sound is higher in pitch when it is approachingthan when it is receding
  • 4. https://www.scienceexchange.com/
  • 5. incremental advances will not suffice
  • 6. sound is higher in pitch when it is approachingthan when it is receding
  • 7. sound is higher in pitch when it is approachingthan when it is receding ...is the sound of the medical system screaming.
  • 8. 2. health is not like other data.
  • 9. ?:>,mnbjm;./ }p[;loikl; ]]=0-98ertdfl,;
  • 10. using this level ofconsent, we can...
  • 11. http://curiousfridays.files.wordpress.com/2012/02/pregnant-target1.jpg
  • 12. savvy single
  • 13. we can do this for health!
  • 14. quantified self
  • 15. can i have my data?
  • 16. can i have my data?
  • 17. if you don t fix this, someone will.
  • 18. noted for accuraterepresentations oftechnology in law!
  • 19. the privacy community is watching you.
  • 20. 3. what you need to do.
  • 21. a. honesty
  • 22. b. participants get a usable copy.
  • 23. http://en.wikipedia.org/wiki/File:Heatmap.png
  • 24. rdf:about=WhoWhatWhenWhereWhy
  • 25. c. informed consent
  • 26. 10 minuteinvestment.
  • 27. if you scale...
  • 28. honesty, reusability,portability, and consent will change a clinical outcome.
  • 29. whether it s for thebetter or the worse is up to you.
  • 30. thank you