That’s what I do. I am building a system, with the non profit Sage Bionetworks, that makes it easy for those willing to make the gift of data to do so, with full informed consent. It has no silos, just connections. We build on the power of informed consent, but we turn it around to make the data clearly open to research – an inversion of the traditional approach. We make a signal to the world – come look in our data, you need ask no more permission. We understand the risks, the risk that we might be identified in the streams of raw data, that harms we don’t yet know may come to us. We think the benefits, to us, to society, are worth it. We are doing our best to remember the design lessons of the internet, of wikipedia, of the web. Of systems that have not only scaled, but radically changed the world.
Great : grand aamc wilbanks ppt
accelerating discovery in a digital world john wilbanks @wilbanks http://del-ﬁ.org
1. next generation research = old generation research
a. cambered airfoilb. four vector forces inﬂuencing aircraft - thrust, lift, drag, and gravityc. dihedral angle for lateral stability in ﬂightd. shifted forces in landing gear wheel from compression to tension by using string as wires
we can predict...when someone issecretly pregnant. http://curiousfridays.ﬁles.wordpress.com/ 2012/02/pregnant-target1.jpg
we can predict... future location of users with an error margin of 60ft.http://www.dailymail.co.uk/sciencetech/article-2190531/Mobile-phone-companies-predict-future-movements- users-building-proﬁle-lifestyle.html
we can predict... that researchersare not integrating into day to day processes.
we can predict... that researchinstitutions will ask for money to buy more shovels.
3. glimpses and glimmers of accelerated discovery
Data from the ﬁrst round of the#SciFund Challenge suggests thata ﬁnancial target up to a thousanddollars is very achievable. Aproject target of low to mid-thousands is also doable, thoughmore diﬃcult to hit and requiringof a more eﬀort.