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Building a Biomedical Research Commons
 

Building a Biomedical Research Commons

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Slides for the Ohio State Personalized Medicine Conference, 10/3/2012

Slides for the Ohio State Personalized Medicine Conference, 10/3/2012

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    Building a Biomedical Research Commons Building a Biomedical Research Commons Presentation Transcript

    • building a medicalresearch commons @wilbanks john.wilbanks@sagebase.org
    • 1. the commons.
    • the tragedy of thetragedy of the commons
    • no single entity maintains control over the resource
    • http://www.flickr.com/photos/kalexanderson/6354182139/ http://www.flickr.com/photos/kalexanderson/6354182139/
    • all resting on astandard , open infrastructure
    • state of the art in biomedical sharing
    • requires near-simultaneous creation of complex infrastructure.
    • 2. this is not about EMR.
    • this is about acomplete phase change.
    • 3. essentialcomponents.
    • storage, provenance, version control
    • http://synapse.sagebase.org
    • informed consent
    • http://weconsent.us
    • [at least some] people really liketo share as their form of controlTHREE SCENARIOS
    • can researchers contact me
    • incentives and community
    • 31
    • changed roles
    • http://sagebridge.org
    • 34
    • 35
    • if we scale...
    • honesty, reusability,portability, and consent will change a clinical outcome.
    • thank you