Building a Biomedical Research Commons
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Building a Biomedical Research Commons

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Slides for the Ohio State Personalized Medicine Conference, 10/3/2012

Slides for the Ohio State Personalized Medicine Conference, 10/3/2012

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Building a Biomedical Research Commons Presentation Transcript

  • 1. building a medicalresearch commons @wilbanks john.wilbanks@sagebase.org
  • 2. 1. the commons.
  • 3. the tragedy of thetragedy of the commons
  • 4. no single entity maintains control over the resource
  • 5. http://www.flickr.com/photos/kalexanderson/6354182139/ http://www.flickr.com/photos/kalexanderson/6354182139/
  • 6. all resting on astandard , open infrastructure
  • 7. state of the art in biomedical sharing
  • 8. requires near-simultaneous creation of complex infrastructure.
  • 9. 2. this is not about EMR.
  • 10. this is about acomplete phase change.
  • 11. 3. essentialcomponents.
  • 12. storage, provenance, version control
  • 13. http://synapse.sagebase.org
  • 14. informed consent
  • 15. http://weconsent.us
  • 16. [at least some] people really liketo share as their form of controlTHREE SCENARIOS
  • 17. can researchers contact me
  • 18. incentives and community
  • 19. 31
  • 20. changed roles
  • 21. http://sagebridge.org
  • 22. 34
  • 23. 35
  • 24. if we scale...
  • 25. honesty, reusability,portability, and consent will change a clinical outcome.
  • 26. thank you