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Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
Barcelona wilbanks 2013
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Barcelona wilbanks 2013

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Transcript

  • 1. prelude: how to spend a billion dollars.
  • 2. 3
  • 3. 4
  • 4. 5
  • 5. 6
  • 6. 7
  • 7. assume 1,000,000 downloads assume 10% false positive rate 100,000 doctor visits $1000 per biopsy
  • 8. 1. research + “citizen” is good for research.
  • 9. https://www.scienceexchange.com/
  • 10. 2. integrating (most) patient data is (mostly) incoherent.
  • 11. http://opensnp.org/users/615
  • 12. http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
  • 13. collaborations on coherent data are proven to create value.
  • 14. 23
  • 15. 24
  • 16. 3. collaboration implies new forms of governance.
  • 17. PLC: “portable” legal consent populate the open layer.
  • 18. terms in blue pop up definitions
  • 19. volunteer must click to proceed all boxes must be checked
  • 20. volunteer cannot skip video
  • 21. ~1000 enrolled ~65% contributing
  • 22. 35
  • 23. 36
  • 24. 37
  • 25. 38
  • 26. 4. building on the experience.
  • 27. 40
  • 28. patient email patient #XYZ123 researcher
  • 29. interoperable “sandbox” consent
  • 30. scalable incentives to behave.
  • 31. join the conversation john.wilbanks@sagebase.org wilbanks@nitrd.gov

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