TREND #1:COMPUTATIONAL RESEARCH ISUNREASONABLY EFFECTIVE
“in 2006, Google released a trillion-word corpuswith frequency counts for all sequences up tofive words long. In some ways this corpus is astep backwards…it’s taken from unfiltered Webpages and thus contains incomplete sentences,spelling errors, grammatical errors, and all sortsof other errors. It’s not annotated with carefullyhand-corrected part-of-speech tags. But the factthat it’s a million times larger…outweighs thesedrawbacks.”
UNCOMFORTABLE FACT:google would never make adecision on something asimportant as advertising …with asample size as small as a phase3 clinical trial.
UNCOMFORTABLE FACT:google would never make adecision on something asimportant as advertising…with asample size as small as a phase3 clinical trial.
TREND #2:“HEALTH” DATA BECAME EASYTO COLLECT OUTSIDE THECLINICTHREE SCENARIOS
data collected 1994-962695 participantsgrant cost $85 per personTHREE SCENARIOS
5 months ~ 7,680,000 ratings ~ 500,000 meals 50 countries no grant no IRB no academicsTHREE SCENARIOS
TREND #3:MASS CULTURE MOVESFASTER THAN INSTITUTIONALSYSTEMSTHREE SCENARIOS
“Privacy is about context, socialsituations, and control.” - danah boyd
[at least some] people really liketo share as their form of controlTHREE SCENARIOS
why is this so hard?THREE SCENARIOS
PROBLEM:HEALTH DATA CANNOT“COMMUNICATE COMPATIBLY”WITHOUT INTERVENTIONTHREE SCENARIOS
ROUTING THROUGH THEPATIENT IS THE FASTESTROUTE TO COMPATIBLECOMMUNICATION