Nicolini, Gina Empowering Families In Transitions - Presentation Transcript
A Parents Guide to Maximizing Transitional Planning Gina Nicolini Special Education Graduate Program Indiana University Purdue University Indianapolis (Steere, Rose, & Cavaiuolo, 2007)
Commonly Felt Pre-Planning Challenges
Stress on family unit
Meeting and establishing Eligibility Criteria
Lengthy Waitlists
Gaps in Services from school-IDEA to adult service system
Stress on Individual
(Steere, Rose, & Cavaiuolo, 2007)
Meeting Challenges
Person Centered Planning
Family Systems Model
Family Configuration or Characteristics
Who is supporting? How? Why?
Interactions Subsystem
Patterns of interactions in the individuals family
Functions Subsystem
Activities done for family by family
Life Cycle Transitions
New events that effect family dynamic
(Steere, Rose, & Cavaiuolo, 2007) Image from http://or.ucr.edu/VCR/Centers.aspx
Additional Considerations
Cultural Differences
Attitudes and comfort levels must be considered
Insufficient or Incorrect Information
Previous ‘assurances’ or misconceptions
Changes in Law or Social Policy
New development in policies regarding disabilities
(Steere, Rose, & Cavaiuolo, 2007)
Challenges and Suggestions to Family Involvement in Planning
Schedule Changes
Program proximity to home, and members workplaces
Program Focus Changes
Push for Inclusive adult services and community integration
Professional Support Changes
Include potential service providers in transitional planning
Build rapport with current professionals
Avoid other changes, if possible (therapists, doctors, etc)
Finding best services for individual and Family
Follow family systems model & consider all options
(Steere, Rose, & Cavaiuolo, 2007)
Empowering the Family
Formally and informally seek family input
Seek input from individual
Respectfully value any concerns
Consider entire family dynamic
Provide family with resources
Encourage & support application processes
Think creatively and encourage the family to do the same!
(Steere, Rose, & Cavaiuolo, 2007)
Resources for Families
Beach Center on Disabilities
www.beachcenter.org
Partners in Policymaking
www.partnerspolicymaking.com
AAMR
www.aamr.org
Arc of the United States
www.thearc.org
(Steere, Rose, & Cavaiuolo, 2007)
Resources for Families cont.
Council for Exceptional Children
www.cec.sped.org
Learning Disabilities Association of America
www.ldanatl.org
National Alliance for the Mentally Ill
www.nami.org
TASH
www.tash.org
(Steere, Rose, & Cavaiuolo, 2007)
Proactive Professional Roles
Build trust
Heighten Awareness
Ask guiding questions
Provide information
Provide support and reassurance
Help Family Identify all possible resources
Connect to sources of Support
Interact and be involved with the child
(Steere, Rose, & Cavaiuolo, 2007)
Process Suggestions
Inquire & address any preplanning concerns
Follow the family systems model
Determine likely needs
Educate family on resources
Begin to explore resources and programs
Work collaboratively to seek solutions
Determine & begin any training for family or individual
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