Supporting families through a  paediatric bone marrow         transplant        Georgina Meyers
Snap-shots of one family’s journey …  … viewed from the pointy end of the canula.
In the beginning The   people   CanI buy you dinner?   How much chocolate do you have? The   system  I need you to kn...
Countdown The   people   Place cannulas so you can still play computer games.   Catering quantities of Emla (hold the B...
T-0 … off and running The   people   Doctor  was off-duty but came to see us anyway.   Salad dressing.   The Ninja Nig...
Discharge … the music stops   The people   The system     Outreach   nurses. Clone them.
The waiting game   The people?      LEGO Limbo.      Why did this happen to me? I just want to be normal.       Do you ...
The other side (?)   The school     Other   patients are always “going great”.   The system     Regional clinics.    ...
Please …   Ongoing, regular contact with our school and hospital    communities. Phone? Skype? Schedules?   Three-way pa...
Thank you   Ronald McDonald Charities (House and Learning    Program)   Sydney Children’s Hospital
Upcoming SlideShare
Loading in …5
×

Georgina Meyers - Supporting Families Through A Paediatric Bone Marrow Transplant

371 views

Published on

This presentation was given by Georgina Meyers at the October 2012 CHA Conference, The Journey, in the 'Beyond Hospital Walls: Community Care' stream.

Published in: Health & Medicine
0 Comments
0 Likes
Statistics
Notes
  • Be the first to comment

  • Be the first to like this

No Downloads
Views
Total views
371
On SlideShare
0
From Embeds
0
Number of Embeds
2
Actions
Shares
0
Downloads
1
Comments
0
Likes
0
Embeds 0
No embeds

No notes for slide

Georgina Meyers - Supporting Families Through A Paediatric Bone Marrow Transplant

  1. 1. Supporting families through a paediatric bone marrow transplant Georgina Meyers
  2. 2. Snap-shots of one family’s journey … … viewed from the pointy end of the canula.
  3. 3. In the beginning The people  CanI buy you dinner?  How much chocolate do you have? The system I need you to know I talk to everybody.  The red folder.  She’s needle-phobic, we can do the tests here.
  4. 4. Countdown The people  Place cannulas so you can still play computer games.  Catering quantities of Emla (hold the Band-aids) The system  He’s going to have a transplant. That’s good! (At least she doesn’t have to have a transplant.)  Here is your appointment list for the week.  You don’t need to know that.
  5. 5. T-0 … off and running The people  Doctor was off-duty but came to see us anyway.  Salad dressing.  The Ninja Night Nurse.  He’ll be OK, don’t worry. The system  Not one, but two, doctors.
  6. 6. Discharge … the music stops The people The system  Outreach nurses. Clone them.
  7. 7. The waiting game The people?  LEGO Limbo.  Why did this happen to me? I just want to be normal. Do you think sometimes you can be so unhappy it would just be better if you were dead?  How is he going? (OK, the same, not so good.)  What can we do to help? (Give blood. I don’t know.) The system  It must be exhausting dealing with that every day.
  8. 8. The other side (?) The school  Other patients are always “going great”. The system  Regional clinics.  How’s school? Do you need us to write a letter of support?
  9. 9. Please … Ongoing, regular contact with our school and hospital communities. Phone? Skype? Schedules? Three-way partnerships between schools, hospitals and parents. Recognise that, just as medical care is not only about test results, neither is school. Both are part of the thing we call health.
  10. 10. Thank you Ronald McDonald Charities (House and Learning Program) Sydney Children’s Hospital

×