An independent Canadian Registered Charity established in May 2006 We support caregivers of those with Alzheimer’s disease or related dementia.In doing so we fund, administer and/or market programs and services that: Make a difference in the day to day lives of caregivers and their loved ones, often a life partner or parent Are not currently available through statutory assistance but complement that already existing within the communityThereby easing the burden of care giving –one family at a time. All programs and services are provided by qualified service providers and are dependent on funding.
Project Lifesaver or Friendship ConnectionGreater Victoria VHF radio frequency A companion program wander location & recovery whereby clients of Lifetime program for seniors with Networks and their support dementia, dedicated to workers visit seniors with bringing loved ones home Alzheimer’s or dementia providing a “friendship connection”
Dementia is an umbrella term Many different types Shared signs & symptoms Most common is memory loss Alzheimer Disease is the most common form of dementia effecting about 67% Diagnosis given when other forms of dementia have been ruled out
Alzheimers and dementia kills more people than Breast and Prostate Cancers combined! Alzheimer Disease is now the 6th leading cause of death It is the only cause of death among the top 10 that cannot be prevented, cured, or even slowed Alzheimer’s or dementia is now the second most frightening disease behind cancer 1 in 11 Canadians over age 65 has AD or dementia A new case of dementia is diagnosed in Canada every 5 minutes 70% of people with AD or dementia live at home cared for by family and friends 25% of caregivers experience economic hardship Caregivers assume 75-85% of the financial responsibility of caring
Signs & Symptoms Art’s Effect 1. Memory not required or old 1. Memory loss memories still in tact 2. Difficulty performing 2. Simply create familiar tasks 3. Problems with language 3. No language needed for art4. Disorientation of time and 4.Time/place not relevant place5. Poor or decreased judgment 5 & 6. No judgement or abstract thinking necessary, just doing 6. Problems with abstract thinking 7. Misplacing things 7. Necessary materials provided 8. Changes in mood or 8. Simply express themselves behaviour 9. Elevates mood, focuses attention, 9. Changes in personality distracts, calms & relaxes 10. Loss of initiative 10. Engages, allows expression
Music Singing Dancing Painting Drawing Colouring Sculpting Collage Making Imprinting Decorating Flower Arranging StorytellingEssentially: Creating Even viewing great art
Arts & Alzheimer’s Concept: art & music participation for seniors with dementia Focus on 70% of people at home with caregiver Engaging the minds of those with dementia Providing respite to caregivers Pilot launched April 2011 in Oak Bay 2 - 8 week pilots running spring & fall
2 programs (Oak Bay Untied Church & Saanich Silver Threads 2 days a week (Tuesdays & Thursdays) 2 hours each day 10 consecutive weeks 3 cycles of 10 weeks in a year (New Year, Spring & Fall)
Simple & consistent format Only art & music No other activities or outings Not therapy No expectations We are not trying to rehabilitate
Employing the best practices of dementia care: Socialization Interaction with other Structured routine Non-verbal activity Expressive outlet Beyond that: Unconditional acceptance Compassion, understanding, encouragement
Clients: Socialize & new friends Freedom of expression Cultivation new or renewed talent Sense of pride & accomplishment Fun Caregivers: Respite Support New friends Companionship Social activity
Distraction Deep relaxation Supports pain management Reduces stress Reduces blood pressure Increases endorphins in the brain Boosts the immune system Elevates mood Relieves four As - anxiety, aggression, agitation & apathy
Emotional Memory They don’t remember us (volunteers, organizers or art & music guides) They don’t remember the program or what they do there They don’t remember the people they meet or befriend They remember how it makes them feel! "Is today the day we go to class?"
1. Stop asking your loved one or client questions!2. They don’t need tough love, they need unconditional love.3. If you have met one person with Alzheimer’s, you have met one person with Alzheimer’s!4. Caregiver’s Mantra:It’s the disease not the person.
We Rage We Weep Alzheimer Foundation Easing the burden of care giving - one family at a time www.werageweweep.com Registered Charity BN: 80814 2277 RR0001 Proudly funding, administrating & marketing Project Lifesaver of Greater Victoria Arts & Alzheimer’s Friendship Connection