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State plan webinar

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Dementia State Plan: Virginia’s Response to the Needs of Individuals with Dementia and their Caregivers.

Dementia State Plan: Virginia’s Response to the Needs of Individuals with Dementia and their Caregivers.

Published in: Health & Medicine

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  • 1. Alzheimer’s Disease and Related Disorders Commission Dementia State Plan: Virginia’s Response to the Needs of Individuals with Dementia and their Caregivers December 15, 2011 Live WebinarPanelists: Members of the Virginia Alzheimer’s Disease and Related Disorders Commission’s CoresModerator: Dr. Patricia Slattum, Chair, Virginia Alzheimer’s Disease and Related Disorders Commission
  • 2. Background/NeedUS Now: ≈ 5.4 million people are living with AD, someone develops the disease every 69 seconds.2050: ≈ 16 million Americans will have AD someone will develop the disease every 33 seconds.In 2010, 14.9 million family members and friends provided 17 billionhours of unpaid care to those with Alzheimer’s and other dementias –care valued at $202.6 billion.For Virginia, these statistics are:Virginians Aged 65 and Older with Alzheimer’s by Age % Change Number of Total Hours of Total Value of YEAR 65-74 75-84 85+ Total from 2000 YEAR Caregivers Unpaid Care Unpaid Care 2000 7,100 56,000 41,000 100,000 2008 250,025 215,821,226 2,395,615,613 2010 6,600 59,000 61,000 130,000 30% 2009 280,043 318,912,890 3,667,298,236 2020 8,900 64,000 67,000 140,000 40% 2025 10,000 77,000 71,000 160,000 60% 2010 422,116 480,706,197 5,734,824,927
  • 3. How We Got Here? The Commonwealth of Virginias Alzheimers Disease and Related Disorders Commission was created in 1982. Since then, Commission has served as an advisory vehicle and information hub across the Commonwealth.In 2009, the Commission began reviewing other The Commission conductedexisting state plans for dementia with the intent Public Listening sessions in five of more formally creating a plan for action to locations across the improve the lives of Virginians affected by Commonwealth. Alzheimers disease and related disorders. These sessions were followed by extensive review by Commission members Once input was gathered, the and community stakeholders. Commission, guided by optimal aging theory and stress and coping theory, drafted the plan. The Commission partnered with stakeholders throughout Virginia who contributed to the development and who ultimately will work with the Commission to implement the plan.
  • 4. GOALSGOAL I: Coordinate Quality Dementia Services in the Commonwealth to Ensure Dementia CapabilityGOAL II: Use Dementia Related Data to Improve Public Health OutcomesGOAL III: Increase Awareness and Create Dementia Specific TrainingGOAL IV: Provide Access to Quality Coordinated Care for Individuals with Dementia in the Most Integrated SettingGOAL V: Expand Resources for Dementia Specific Translational Research and Evidence-Based Practices
  • 5. GOAL IGOAL I: Coordinate Quality Dementia Services in the Commonwealth to Ensure Dementia Capability A. Create a dementia services coordinator. B. Expand availability and access of dementia capable Medicaid and other state-level services. C. Create a statewide network of memory disorders clinics to assess and treat persons with dementia. Audience poll will be launched shortly: Can B) and C) be made possible without A)? Feel free to provide additional feedback/questions through the Questions tab.
  • 6. GOAL IIGOAL II: Use Dementia Related Data to Improve Public Health Outcomes A: Collect and monitor data related to dementia’s impact on the people of the Commonwealth. B: Remove barriers for community integration for persons with dementia. C: Collaborate with related public health efforts to encourage possible risk-reduction strategies. Audience poll will be launched shortly: How would you prioritize the three points, A), B), C)? Feel free to provide additional feedback/questions through the Questions tab.
  • 7. GOAL IIIGOAL III: Increase Awareness and Create Dementia Specific Training A: Provide standardized dementia specific training to individuals in the health-related field and require demonstrated competency. B: Provide dementia specific training to professional first responders, financial services personnel, and the legal profession. C: Link caregivers, family members and individuals with dementia to information about dementia services. Audience poll will be launched shortly: How would you prioritize the three points, A), B), C)? Feel free to provide additional feedback/questions through the Questions tab.
  • 8. GOAL IVGOAL IV: Provide Access to Quality Coordinated Care for Individuals with Dementia in the Most Integrated Setting A: Advocate for and increase awareness of integrated systems of care coordination that effectively support improved health outcomes for individuals with dementias and their families and loved ones. B: Explore tax incentives for family caregiving, respite care, long term care insurance purchases, locator devices, and additional long term care services. C: Advocate for accessible transportation systems. Audience poll will be launched shortly: How would you prioritize the three points, A), B), C)? Feel free to provide additional feedback/questions through the Questions tab.
  • 9. GOAL VGOAL V: Expand Resources for Dementia Specific Translational Research and Evidence-Based Practices A: Increase funding for the Alzheimer’s and Related Diseases Research Award Fund. B: Provide support to researchers across the Commonwealth through data sources and networking opportunities. C: Promote research participation in Virginia. Audience poll will be launched shortly: How would you prioritize the three points, A), B), C)? Feel free to provide additional feedback/questions through the Questions tab.
  • 10. INITIAL QUESTION Which of the five goals should be the top priority in implementation?1. GOAL I: Coordinate Quality Dementia Services in the Commonwealth to Ensure Dementia Capability2. GOAL II: Use Dementia Related Data to Improve Public Health Outcomes3. GOAL III: Increase Awareness and Create Dementia Specific Training4. GOAL IV: Provide Access to Quality Coordinated Care for Individuals with Dementia in the Most Integrated Setting5. GOAL V: Expand Resources for Dementia Specific Translational Research and Evidence-Based Practices
  • 11. Moving Forward1. The Commission specifically recommends and urges the creation of a Dementia Services Coordinator, as described in the Dementia State Plan. This position could be created within the new agency, proposed by the Governor to include the functions of the Department for the Aging. (Goal I, Recommendation A)2. The Commission supports a requirement that the Virginia Public Guardian and Conservator Program include person-centered practices to empower and support the person receiving guardianship services. Such a requirement would support access to dementia capable state-level services. (Goal I, Recommendation B)3. The Commission supports the inclusion of the Cognitive Impairment Module in the Virginia Behavioral Risk Factor Surveillance System (BRFSS). The inclusion would enhance collaboration with public health efforts to encourage possible risk-reduction strategies. (Goal II, Recommendation C)