Reducing barriers to health information in the age of the e-environment Michael Marr Advocacy and Information Project Work...
Changing times? <ul><li>The changes in which our service operates has been dramatic since the introduction of effective tr...
Aims of organisation <ul><li>Our key objectives are: </li></ul><ul><ul><li>To promote the welfare of people with HIV and s...
HIV stigma and discrimination <ul><li>HIV-related stigma arises mostly from fear and ignorance about the disease and/or ho...
Adaptation? <ul><li>New ways of delivering information but people living with HIV are disproportionally affected by stigma...
Real life!!!!! <ul><li>Social exclusion </li></ul><ul><li>Literacy </li></ul><ul><li>Language </li></ul><ul><li>Physical a...
FuturePlus <ul><li>FuturePlus was established with the aim to enable people with HIV to plan a future for themselves and f...
Skill building <ul><li>One to one </li></ul><ul><li>Mentoring </li></ul><ul><li>Art therapy </li></ul><ul><li>Counselling ...
Building partnerships <ul><li>Adult education </li></ul><ul><li>Employment services </li></ul><ul><li>Emotional and practi...
New technology <ul><li>Accessing information outside the office </li></ul><ul><li>Secure and confidential networks </li></...
28/07/09 www.waverleycare.org
28/07/09 www.waverleycare.org
28/07/09 www.waverleycare.org
Health Videos 28/07/09 www.waverleycare.org
New initiatives for young people <ul><li>CHIVA has received three years funding from the Elton John AIDS Foundation to dev...
The future <ul><li>Growth of social networking sites and its impact for us as an information providers? </li></ul>28/07/09...
Real life!!!!! <ul><li>Social exclusion </li></ul><ul><li>Literacy </li></ul><ul><li>Language </li></ul><ul><li>Physical a...
Michael Marr Waverley Care Advocacy & Information Project 28/07/09 www.waverleycare.org
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Reducing barriers to health information in the age of the e-environment, by Michael Marr

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A presentation from Michael Marr, Advocacy and Information Project Worker for Waverley Care, explaining how the service has exploited digital technologies to best help support and educate service users. This talk was a contribution to the ELISA Open Forum 2009.

Published in: Education, Health & Medicine
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Reducing barriers to health information in the age of the e-environment, by Michael Marr

  1. 1. Reducing barriers to health information in the age of the e-environment Michael Marr Advocacy and Information Project Worker 28/07/09 www.waverleycare.org
  2. 2. Changing times? <ul><li>The changes in which our service operates has been dramatic since the introduction of effective treatment for HIV in the mid 1990s. </li></ul><ul><ul><li>Treatments options? </li></ul></ul><ul><ul><li>Populations affected? </li></ul></ul><ul><ul><li>Internet and new technology!!!! </li></ul></ul>28/07/09 www.waverleycare.org
  3. 3. Aims of organisation <ul><li>Our key objectives are: </li></ul><ul><ul><li>To promote the welfare of people with HIV and similar conditions and those affected by them. </li></ul></ul><ul><ul><li>To provide care and assistance. </li></ul></ul><ul><ul><li>To advance education and understanding of these conditions and their prevention. </li></ul></ul>28/07/09 www.waverleycare.org
  4. 4. HIV stigma and discrimination <ul><li>HIV-related stigma arises mostly from fear and ignorance about the disease and/or hostility and existing prejudices about the groups most affected by it. </li></ul><ul><li>HIV-related discrimination is the unfair treatment of people on the basis of their actual or suspected HIV status. </li></ul><ul><li>HIV related discrimination is unique and is linked and reinforces other forms of discrimination such as racism and homophobia. </li></ul>28/07/09 www.waverleycare.org
  5. 5. Adaptation? <ul><li>New ways of delivering information but people living with HIV are disproportionally affected by stigma and discrimination which can impact on people’s ability to access information. </li></ul>28/07/09 www.waverleycare.org
  6. 6. Real life!!!!! <ul><li>Social exclusion </li></ul><ul><li>Literacy </li></ul><ul><li>Language </li></ul><ul><li>Physical and mental capabilities </li></ul><ul><li>Disclosure/Confidentiality </li></ul><ul><li>Accessibility of services </li></ul><ul><li>Changing demands of service users </li></ul><ul><li>Legal framework </li></ul><ul><li>Information overload </li></ul>28/07/09 www.waverleycare.org
  7. 7. FuturePlus <ul><li>FuturePlus was established with the aim to enable people with HIV to plan a future for themselves and find the means to achieve and maintain it. </li></ul><ul><ul><li>FP Skills - Information and advice on employment issues and other skill based opportunities. </li></ul></ul><ul><ul><li>FP Health - Supporting people to make choices and gain skills to live as well as possible. </li></ul></ul>28/07/09 www.waverleycare.org
  8. 8. Skill building <ul><li>One to one </li></ul><ul><li>Mentoring </li></ul><ul><li>Art therapy </li></ul><ul><li>Counselling skills </li></ul><ul><li>Life coaching </li></ul><ul><li>Health activities </li></ul><ul><li>Men’s, Women’s and Young People’s activities </li></ul><ul><li>Practical activities </li></ul><ul><li>Assertiveness/self esteem training </li></ul><ul><li>IT skills </li></ul>28/07/09 www.waverleycare.org
  9. 9. Building partnerships <ul><li>Adult education </li></ul><ul><li>Employment services </li></ul><ul><li>Emotional and practical support </li></ul><ul><li>Advice agencies </li></ul><ul><li>Health and information providers </li></ul><ul><li>BME agencies </li></ul><ul><li>Disability agencies </li></ul><ul><li>UK/Scottish HIV and BBV agencies </li></ul>28/07/09 www.waverleycare.org
  10. 10. New technology <ul><li>Accessing information outside the office </li></ul><ul><li>Secure and confidential networks </li></ul><ul><ul><li>Social networking/mentoring </li></ul></ul><ul><ul><li>Specialised dating sites </li></ul></ul><ul><li>HIV focused websites </li></ul><ul><ul><li>UKCAB/HIV i-base/NAM </li></ul></ul><ul><ul><li>Scottish Netreach Network </li></ul></ul><ul><ul><li>Connected Scotland </li></ul></ul>28/07/09 www.waverleycare.org
  11. 11. 28/07/09 www.waverleycare.org
  12. 12. 28/07/09 www.waverleycare.org
  13. 13. 28/07/09 www.waverleycare.org
  14. 14. Health Videos 28/07/09 www.waverleycare.org
  15. 15. New initiatives for young people <ul><li>CHIVA has received three years funding from the Elton John AIDS Foundation to develop a ‘one-stop shop’ website relating to children, young people and HIV. </li></ul><ul><li>The aim is to provide HIV positive young people a secure site containing information, on-line support and signposting to other relevant sites for themselves and their peers. </li></ul>28/07/09 www.waverleycare.org
  16. 16. The future <ul><li>Growth of social networking sites and its impact for us as an information providers? </li></ul>28/07/09 www.waverleycare.org
  17. 17. Real life!!!!! <ul><li>Social exclusion </li></ul><ul><li>Literacy </li></ul><ul><li>Language </li></ul><ul><li>Physical and mental capabilities </li></ul><ul><li>Disclosure & Confidentiality </li></ul><ul><li>Accessibility of services </li></ul><ul><li>Changing demands of service users </li></ul><ul><li>Legal framework </li></ul><ul><li>Information overload </li></ul>28/07/09 www.waverleycare.org
  18. 18. Michael Marr Waverley Care Advocacy & Information Project 28/07/09 www.waverleycare.org

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