Thalassemia Programme
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Thalassemia Programme

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Thalassemia Programme Thalassemia Programme Presentation Transcript

  • AS OCIAL P ROJECT ON THALASSEMIA PROGRAMME UNDERGONE AT AHMEDABAD
  • Project guide: Prof. Jitendra Sharma Submitted by: Parakhiya Vasant
  • ABOUT INDIAN RED CROSS SOCIETY  The British Government, after the II world war and failure of the League of Nations, started establishment of National Red Cross Societies in their colonial nations. The Act 15 of 1920 established the Indian Red Cross Society in 1920.  Subsequently the Indian Red Cross Society Ahmedabad District was established in 1923. The collector Shri Garret became the 1st President and Sir Ramanlal Nilkanth became the Hon. Secretary of the Society.  The act was last amended in 1992 and of rules were formed in 1994.  The IRCS has 35 State / Union Territories Branches with their more than 700 districts and sub district branches.  The President of India is the President and Hon'ble Union Health Minister is the Chairman of the Society.  The Secretary General is the Chief Executive of the Society View slide
  • President IRCS Hon'ble President of India: (Smt.) Pratibha Devisingh Patil Chairman Secretary General Dr. Anbumani Ramadoss Dr. S.P. Agarwal View slide
  • PROGRAMMES AND ACTIVITIES  Promoting humanitarian principles and values  Disaster response  Disaster preparedness  Health and Care in the Community.
  • OTHER MAJOR ACTIVITIES  Hospital services  Blood Bank  HIV/AIDS Programmes  Home for disabled servicemen  Vocational training centers  Tracing activities  Maternity railway & other accidents and events  Child and family welfare  Nursing  Junior Red cross activities  Preparedness and prevention of communicable & infectious diseases  Relief operations in fire  Railway & other accidents and events
  • OBJECTIVES OF THE STUDY  To Study thalassemia program at Indian Red Cross Society, Ahmedabad.  To study awareness level among student.  To study how Indian Red Cross Society are providing treatment and blood units to patients.  To know the working area of Indian Red Cross Society.  How NGO like Indian Red Cross Society working for our society.
  • SCOPE OF THE PROJECT  To find out awareness of Thalassemia among students.  To spread awareness among students how to prevent from Thalassemia.  To spread awareness about medical treatment of Thalassemia.
  • RESEARCH METHODOLOGY  Sampling Design:  Target Population: College Students  Sample Frame: Gandhinagar  Sampling Technique: Convenience Sampling.  Sample Size: 50  We have collected secondary data from websites of the Indian Red Cross Society, Ahmedabad and other websites related to the Thalassemia and broachers of Indian Red Cross Society, Ahmedabad.
  • INTRODUCTION OF THALASSEMIA  It’s a Genetic blood disorder.  A Blood cell consists of two different proteins, an alpha and a beta.  Red blood cells do not form properly and cannot carry sufficient oxygen.  Thalassemia is not a single disorder but a group of related disorder.  There are 23 pairs of chromosome, in thalassemia minor one chromosome of 11 pair is defected.
  • PROBABILITY OF THALASSEMIA
  • THALASSEMIA MAJOR  Thalassemia major, occurs when a child inherits two mutated genes, one from each parent.  Thalassemia major usually develop the symptoms of severe anemia within the first year of life.  They lack the ability to produce normal adult hemoglobin (red blood cells).  Patients are regular transfusions of red blood cells every (Every 4 to 6 weeks).  Probability of Thalassemia Major- 25%
  • THALASSEMIA MINOR  Thalassemia trait in one gene are known as carriers or Thalassemia minor.  Special blood test called hemoglobin electrophoresis which can identify the gene.  Probability of Thalassemia Minor- 50%.
  • THALASSEMIA INTERMEDIA  Milder form of Thalassemia.  One of the more severe thalassemic genes.  Develop symptoms later in life.
  • CAUSES OF THALASSEMIA  There are red cells, white cells and plate cells in our blood.  Hemoglobin in red blood cells carries oxygen from lungs to all parts of body.  Lack of Protein(hemoglobin)- can't carry enough oxygen- thalassemia occur.  People with moderate to severe forms of thalassemia have inherited abnormal genes from both parents.
  • SIGN & SYMPTOMS OF THALASSEMIA  Severity of symptoms depends on the severity of the disorder.  Alpha thalassemia - No signs or symptoms of the disorder.  Mild Anemia- People feel tired.  Beta thalassemia- Slowed growth and delayed puberty.  Severe Thalassemia-Pale and listless appearance, Poor appetite, Slowed growth and delayed puberty.
  • DIAGNOSE OF THALASSEMIA  Complete blood count (CBC) – provide amount of hemoglobin and the different kinds of blood cells.  Special hemoglobin tests - Types of hemoglobin in a blood.
  • TREATMENT OF THALASSEMIA  Blood Transfusions - Main treatment for people who have moderate or severe thalassemias.  Red blood cells live for only about 120 days.  Thalassemia Major - Need regular blood transfusions ( every 21 days).  It is expensive and carry a risk of transmitting infections and viruses.  IRCS provide calferal to remove excessive Iron from body.
  • IRON CHELATION THERAPY  Needed to remove excess iron from the body.  Deferasirox is a pill taken once a day.  Deferoxamine is a liquid medicine that's given slowly under the skin.  Folic Acid Supplements: - Folic acid is a B vitamin that helps build healthy red blood cells.
  • DATA ANALYSIS 1. Have you donated blood? Yes No
  • 2. Do you know about the Thalassemia? Yes No
  • 3. Do you know how this disease spreads? Yes No
  • 4. Do you know about treatment? _________________________________________ _____
  • 5. Do you think that Thalassemia test is necessary before marriage? Yes No
  • 6. Do you think you have to join this awareness programme of Thalassemia? _________________________________________ _____
  • ANALYSIS OF STUDENTS  We have made questionnaire for students and from that we have analyze that most of student know about Thalassemia but not in detail but they know that it is necessary to test before marriage.
  • SUGGESTION  Government should organize awareness programme of Thalassemia in colleges.  The Leader of each and every cast and society organize seminar for the same.  Government should make a compulsory test for Thalassemia and it should be free of charge.  Government should make a compulsory blood donation for healthy people
  • LIMITATIONS OF STUDY  Sample size of 50 units cannot give accurate conclusion regarding students awareness.  This research is done only for the students of Gandhinagar not for the students of other cities of Gujarat or India.  Research works, analysis, interpretation and finding are influences by time constrains  There may be possibilities for Bias or dishonesty on the part of respondents.
  • REFERENCE  www.indianredcross.org  http://sickle.bwh.harvard.edu/thal_inheritance.html  http://sickle.bwh.harvard.edu/menu_thal.html  http://www.nhlbi.nih.gov/health/dci/Diseases/Thalas semia/Thalassemia_WhatIs.html  Broachers and Video CD of Indian Red Cross Society, Ahmedabad
  • THANK YOU