In Albania, UNICEF works with the NGO STOP AIDS and a young injecting drug user named Armand to implement the Break the Cycle intervention. Break the Cycle aims to prevent adolescent drug users from initiating injecting drug use and spreading HIV. Armand shares his story of becoming addicted to heroin at a young age and contracting infections from sharing needles. He now advocates to other drug users on the risks of sharing needles and promotes HIV prevention services. The intervention has shown success in changing attitudes and preventing young users from initiating injection.
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HIV Prevention for At-Risk Youth
1. EXPERIENCES
FROM THE FIELD:
HIV PREVENTION AMONG
MOST AT RISK ADOLESCENTS
in Central and Eastern Europe and the
Commonwealth of Independent States
2. FOREWORD
The countries of Central and Eastern Europe and the Commonwealth
of Independent States (CEE/CIS) have the fastest growing HIV epi-
demic in the world. The number of people living with HIV has almost
tripled since 2000 and there are currently over 1.4 million people living
with HIV in CEE/CIS1
.
The HIV epidemic is affecting ever younger, vulnerable adolescents in
CEE/CIS, and yet it is masked by official overall HIV prevalence rates
that are, for the most part, relatively low. Still, within these countries,
we are seeing sub-groups of young people with infection rates on a par
with the worst-affected populations in sub-Saharan Africa.
The spread of HIV in this region goes hand in hand with the social
exclusion of those who are most vulnerable. Those who are most likely
to become infected with HIV are those who are already shut out of
society or denied services because of their poverty, ethnicity and be-
haviours that put them at risk, or who are made vulnerable because of
family breakdown, violence, social exclusion or conflict with the law.
The experiences of UNICEF, working together with government and
civil society partners, have increased our understanding of the needs
and vulnerabilities of most-at-risk adolescents. Much of what we know
about adolescents and HIV in the CEE/CIS region has emerged from
programming in numerous countries of Eastern Europe. Those fea-
tured in this publication, including Albania, Bosnia and Herzegovina
(BiH), Moldova, Montenegro, Romania, Serbia and Ukraine, have
been working with those adolescent boys and girls who inject drugs or
engage in transactional sex, young males who have sex with males,
street-connected adolescents and those coming from disadvantaged
socio-economic or ethnic backgrounds.
Tragically our work is deepening our understanding that a growing
number of adolescents are being drawn into sex work and drug abuse
as a way to cope with or escape from family problems, poverty, vio-
lence and a sense of isolation, creating vicious cycles of risk and
vulnerability to HIV.
These adolescents, who are most vulnerable to HIV infection, are
also the least likely to know the risks or how to avoid them, least
likely to have access to services that they need, and least likely to be
adequately protected by regulations, policies and laws.
UNICEF believes that the experiences in this publication represent
an important source of information that can motivate global learning
and continued work to prevent HIV infection and provide care and
support to those who are already affected by HIV. This in turn can
help to pull most-at-risk and vulnerable adolescents back into socie-
ties, giving them a “second chance” and supporting them in the full
realization of their rights. Some of the photographs in this document
may cause discomfort among readers. Nevertheless, they portray
the realities of the lives of these young people. True equity means
reaching out, protecting and caring for all, including those who have
been excluded and pushed to the margins of society. This publica-
tion is a call for change in policies, services and programmes to pro-
tect their rights and reduce their vulnerabilities.
Marie-Pierre Poirier
UNICEF Regional Director
CEE/CIS
1
http://www.unaids.org/en/regionscountries/regions/easterneuropeandcentralasia/
i
4. ACKNOWLEDGEMENTS
UNICEF Regional Office for Central and Eastern Europe/Com-
monwealth of Independent States (CEE/CIS) would like to ac-
knowledge the support received from many individuals who
helped make this documentation possible.
Regional Office for CEE/CIS: Paul Nary and Nina Ferencic, with
support from Marie-Christine Belgharbi, Nicola Bull, Jadranka
Mimica, Ruslan Malyuta, John Budd, Lely Djuhari, and Sharad
Agarwal. Special thanks to Marie-Pierre Poirier and Kirsi Madi
for their support and leadership.
Support for development of Country Experiences from: UNICEF
Country Offices; Albania: Alketa Zazo; Bosnia & Herzegovina:
Selena Bajraktarevic, Alma Herenda, Nineta Popovic; Moldova:
Angela Capcelea, Svetlana Stefanets, Sergiu Thomsa; Monte-
negro: Branka Kovacevic, Ana Zec, Jadranka Vucinic; Roma-
nia: Eugenia Apolzan; Serbia: Jelena Zajeganovic –Jakovljevic,
Jadranka Milanovic; Ukraine: Olena Sakovych, Sergiy Prokhorov.
Thanks to UNICEF Representatives and Deputy Representatives
for their support in finalizing the Country Stories: Albania: Detlef
Palm; BiH: Anne-Claire Dufay, Lesley Miller; Moldova: Alexandra
Yuster, Sandie Blanchet; Montenegro: Noala Skinner, Benjamin
Perks; Romania: Edmond McLoughney, Voichita Pop; Serbia:
Judita Reichenberg, Lesley Miller; Ukraine: Yukie Mokuo, Ritta
Poutiannen.
Photography: Albania: Rob Few; BiH: Edin Tuzlak, Amer Ka-
petanovic, Almin Zrno; Moldova: Corina Zara, Angela Munte-
anu, Lina Osolianu; Montenegro: Silke Steinhilber; Romania:
Mugur Varzariu; Serbia: Zoran Jovanovic Maccak, Sladjana
Stankovic; Ukraine: Michal Novotny, G. Pirozzi;
Content styling, creative direction and design:Laxmi Panicker-
Graber and bylines.ch
iii
6. INTRODUCTION
In recent years, UNICEF has worked together with national and
local authorities and civil society partners in a number of countries
in Eastern Europe and Central Asia to develop and implement
HIV prevention programmes intended to reduce risks and vul-
nerabilities among most-at-risk adolescents (MARA.) This docu-
ment presents programming experiences from seven countries:
Albania, Bosnia and Herzegovina (BiH), Moldova, Montenegro,
Romania, Serbia and Ukraine.
The overarching goal of these programmes has been to promote
HIV prevention among MARA and to ensure their integration into
national HIV/AIDS programme strategies and monitoring and
evaluation frameworks. Specific objectives included:
• Contributing to the evidence base on the risk profiles of MARA
and other vulnerable adolescents
• Advocating for protective policy environments
• Building capacity of government and civil society stakeholders
and service providers to support and provide MARA-oriented
services
• Piloting and monitoring interventions to reduce the risk and vul-
nerability of MARA to HIV.
Programmes began by targeting MARA who are at highest risk
of HIV infection, including: adolescent injecting drug users (IDU,)
adolescents selling sex1
, and males who have sex with males
(MSM,) to prevent risk behaviours (sharing needles and having
unprotected sex.) However, it soon became clear that these HIV
risks could not be addressed in isolation. Programmes had to
also respond to the circumstances that make adolescents vul-
nerable, including living and/or working on the streets, living in
institutions or in settlements for displaced persons.
1
The UN restricts its definition of “sex workers” to adults over 18 years of age and
affirms that the involvement of children (under the age of 18) in transactional sex/
sex work and other forms of sexual exploitation and abuse contravenes United Na-
tions conventions and international human rights law. Children under 18 years of
age who sell sex are victims who cannot be viewed as sex workers. Every reference
to “sex workers” in this report is used only as “short-hand” and should only be inter-
preted with the full understanding and in full agreement with the above definition.
v
8. ABOUT THIS DOCUMENT
The purpose of this document is to share experiences, including
the results of research, advocacy and interventions and to sup-
port programmers, policy makers and donors to carry out and
strengthen further programming among MARA and other vulner-
able adolescents in the CEE/CIS Region and beyond.
Country Experience
Country Experiences illustrate HIV Prevention programming for
MARA in seven Eastern European countries and include the per-
sonal stories and perspectives of most-at-risk adolescents and
young people themselves. Each Country Experience includes:
• Personal stories and photographs of MARA/young people
• Summaries of data, HIV Prevention programming processes
and results
• Hyperlinks to research reports, guidelines, case studies and
tools for programmes
Regional Perspective
The Regional Perspective section provides a “bigger picture” look
at the MARA programme development process, comparing coun-
try findings and experiences, and including hyperlinks to many of
the more universally-applicable tools, guidelines and advocacy
documents developed by the UNICEF Regional Office for CEE/
CIS. Please note:
All subjects of photos in this document granted consent to be photographed and
featured. UNICEF in no way endorses, supports or promotes the behaviours and
scenarios described and/or pictured in this document.
The resource documents referenced and hyperlinked throughout this publication
are intended to further inform work on MARA; their content does not necessarily
reflect UNICEF official policies or programming positions.
vii
10. TABLE OF CONTENTS
FOREWORD PAGE i
ACKNOWLEDGEMENTS PAGE iii
INTRODUCTION PAGE V
COUNTRY EXPERIENCE
ALBANIA PAGE 1
READ ABOUT THE ALBANIA COUNTRY EXPERIENCE AND THE STORY OF ARMAND, A YOUNG INJECTING DRUG USER (IDU)
FROM ALBANIA WHO IS TRYING TO “BREAK THE CYCLE” OF INITIATION OF INJECTING DRUG USE FROM OLDER TO YOUNGER
IDUs.
ix
11. TABLEOFCONTENTS
BOSNIA & HERZEGOVINA PAGE 11
READ ABOUT THE COUNTRY PROGRAMMING EXPERIENCE IN BOSNIA & HERZEGOVINA. AND READ ABOUT ANDREA AND LAM-
IJA, YOUNG INJECTING DRUG USING (IDU) WOMEN WHO SHARE THEIR STORIES OF DRUG USE, VIOLENCE AND STIGMA IN THE
HOPES THAT OTHERS LIKE THEM MIGHT FIND BETTER TREATMENT AND ACCEPTANCE IN THEIR COMMUNITIES.
MOLDOVA PAGE 25
READ ABOUT MOLDOVA’S PROGRAMME EXPERIENCE AND READ ABOUT TAMARA, A YOUNG HIV-POSITIVE MOTHER FROM MOL-
DOVA, WHO HAS OVERCOME FEAR AND FOUND A SOURCE OF STRENGTH AT A YOUTH-FRIENDLY HEALTH SERVICE (YFHS) IN
THE FACE OF STIGMA AND DISCRIMINATION AGAINST HER AND HER SON.
MONTENEGRO PAGE 37
READ ABOUT THE MONTENEGRO COUNTRY EXPERIENCE AND READ ABOUT IRFAN, A 16-YEAR OLD ROMA BOY FROM A CAMP
FOR INTERNALLY DISPLACED PERSONS (IDPs) IN MONTENEGRO, WHO STRUGGLES TO DEAL WITH SOCIAL EXCLUSION IN PUR-
SUIT OF HIS DREAMS.
x
12. ROMANIA PAGE 47
READ ABOUT THE ROMANIA COUNTRY EXPERIENCE AND READ ABOUT MARIA, A YOUNG INJECTING DRUG USER (IDU) FROM
ROMANIA WHO HAS FOUND TRUST AND HOPE IN COMMUNITY-BASED SERVICES (NGOs.) BUT WILL IT BE ENOUGH TO HELP
HER CHANGE HER LIFE?
SERBIA PAGE 59
READ ABOUT THE SERBIA COUNTRY EXPERIENCE AND READ ABOUT MIRELLA, A 17-YEAR OLD ROMA GIRL LIVING IN SERBIA
WHO HAS LEARNED TO COPE WITH CHALLENGES SUCH AS VIOLENCE AND POVERTY THAT WOULD MAKE EVEN THE STRONG-
EST AMONG US GIVE US HOPE.
UKRAINE PAGE 69
READ ABOUT THE UKRAINE COUNTRY EXPERIENCE AND READ ABOUT VIKTOR, A 14-YEAR OLD HOMELESS ORPHAN WHO,
AMONG OTHER STREET CHILDREN IN UKRAINE, HAS SUFFERED REPEATED TRAUMAS DURING HIS SHORT LIFE YET MAY HAVE
A CHANCE OF AN EASIER FUTURE.
xi
13. TABLEOFCONTENTS
REGIONAL PERSPECTIVE PAGE 89
READ ABOUT THE MARA PROGRAMME DEVELOPMENT PROCESS; A SUMMARY OF RESEARCH FINDINGS ACROSS EASTERN
EUROPEAN COUNTRIES; ETHICAL CHALLENGES OF RESEARCH AND PROGRAMMING WITH MARA; RESULTS OF ADVOCACY TO
CHANGE NATIONAL POLICIES AND STRATEGIES; AND CONSIDERATIONS AND LESSONS LEARNED FROM DEVELOPMENT OF IN-
TERVENTIONS AND SERVICES FOR MARA.
REFERENCES (ON-LINE) PAGE 101
xii
14. “I see great value in Break the Cycle. It has changed
the way I think and act. I see it changing others, too.”
We work with ARMAND
in ALBANIA
“I’ve been injecting for 10 years,” says 24-year-old
Armand, as he shares his story with a counsellor
at STOP AIDS, an NGO supported by UNICEF.
“A few years ago I started to get wounds on my feet
because I couldn’t find any veins ... People were
saying I would have to cut my feet off.” Armand now
works with STOP AIDS, promoting Break the Cycle,
an intervention designed to prevent adolescent drug
users from beginning to inject.
19. Qualitative research was also carried out to clarify
the social dynamics and networks among adoles-
cents and young IDUs. The research confirmed
that young people are commonly introduced to in-
jecting heroin by older friends, siblings or sexual
partners. The study also found that girls are often
initiated into injecting by their boyfriends and that
harm reduction services typically do not reach
them.
A Service Capacity Assessment3
confirmed that
existing harm reduction service providers lack the
capacity and resources to target and address the
needs of adolescent IDUs or those at high risk of
initiating injecting.
Research among 15–24-year-old males
in Tirana (See data summary2
)
• 86% had shared needles in the previous
month and more than 50% injected every day.
• One-third of the sample group had tested for
HIV but none of the adolescents in the study
had done so.
• Up to 34% of IDUs were Roma adolescents.
• Condom use among respondents at last sex
was extremely low – 14% with regular
partners and 19% with casual partners.
• Over one-quarter (26%) of young IDUs
surveyed had never been to school and 30%
were homeless.
DATA AT A GLANCE
6
21. 2. Strengthening capacities to develop
appropriate responses
To identify service delivery gaps, NGOs were as-
sessed for their capacity to provide services to
at-risk and vulnerable adolescents. A Service
Capacity Assessment3
was used to identify the
training needs of 20 organizations. Training pro-
grammes were developed and UNAIDS integrat-
ed findings from the Assessment into its National
Technical Support Plan.
Given the complex social challenges that MARA
face, as highlighted by the qualitative research,
new partnerships were set up to link HIV pre-
vention interventions to child protection and
social welfare services. The Municipality of
Tirana established a special unit of social work-
ers to receive and refer MARA and their families
to a range of social protection services.
3. Developing and piloting Break the Cycle
in Tirana and Vlora
Research findings confirmed that a MARA pre-
injector population warranted special attention,
and revealed:
• a young injecting drug population with a risk
of rapid spread of HIV
• insufficient national capacity to scale up HIV
prevention interventions for IDUs as rapidly
as required
• evidence that transitions to injecting
frequently occur during adolescence.
An assessment of the drug-using environment5
also confirmed that there were several sub-
groups of users, each administering heroin in
different ways, through snorting, smoking or
injecting.
This suggested an opportunity to intervene to
prevent non-injectors from becoming injectors,
through Break the Cycle6
, an intervention origin-
aly developed in England.
InAlbania, Break the Cycle was delivered through
two NGOs: STOP AIDS, which provides needle/
syringe exchange services, and Aksion Plus7
,
which offers methadone substitution treatment.
Both work with IDUs to exert a positive influ-
ence on young non-injectors within their social
networks. The programme targets adolescents
who are already dependent on heroin and at high
risk of beginning to inject. IDUs who express a
willingness to be involved are taught about HIV/
AIDS and other health risks associated with in-
jecting drugs. They are also trained to share this
information with others, particularly adolescents,
and to provide them with information about where
they can access medical services and support.
8
22. The programme builds on the fact that many IDUs disapprove
of initiating new injectors. It supports them to avoid injecting in
the presence of non-injectors and discourages them from talking
about the drug’s effects, telling a non-injector to inject, or demon-
strating how to inject in front of non-injecting drug users. The pro-
gramme also aims to increase IDUs’ skills to resist any request
from a non-injector for a first hit. Those interested were taught
about HIV/AIDS and other health risks from injecting and trained
to share this information with their peers.
Early evaluation of Break the Cycle6
is encouraging. IDUs re-
sponded well to the notion that they could help protect young
drug users from starting to inject drugs. They were motivated to
take part in the programme and reported heightened self-worth
because they were consulted and saw their views being taken
into account. Peer educators provided information and encour-
aged young IDUs to access services. Strategies were developed
to reach marginalized young female injectors.
9
24. “You know, as the saying goes, that we have an angel
on one shoulder and a devil on the other. I had the devil
on both of them ...”
We work with ANDREA and LAMIJA
in BOSNIA AND HERZEGOVINA
Andrea and Lamija are among a small number of young
female injecting drug users (IDUs) from Bosnia and Her-
zegovina (BiH) who agreed to discuss their lives, their
experience of drug use, violence, stigma, discrimination
and other sensitive topics with UNICEF and partners.
UNICEF collaborated with the NGO Viktorija in Banja
Luka andAssociation of Citizens Proi in Sarajevo to con-
duct qualitative research aimed at better understanding
how the health and social sectors and society in general
can better help these marginalized and misunderstood
young women.
27. Lamija, from Sarajevo, described the mis-
treatment she experienced at an outpatient
clinic following complications from injecting:
“[My] arms were swollen, full of pus, I had
abscesses ... I came [to the clinic] at 5:30, I
was first in line with a temperature of 40 de-
grees ... They did not call me in first; several
people were examined before me ... A male
nurse, not knowing that I could hear him –
because I sat alone next to the door of the
office – said, ‘Junkie, let her drop dead, she
got what she deserved ... let her arm burst
up.’ And I was in pain, I cannot describe how
much ... The driver of their van came in and
saw me lying on the tiles [with] cold hands,
and yelled to them, ‘What’s the wait? She
could die ...’ Only then they entered me in
the clinic and began to work.”
Yet Lamija, and many other female IDUs
showed exceptional motivation to become ac-
tively involved in drug abuse and HIV preven-
tion activities. They express the view that if they
quit, they could offer their own personal experi-
ence and they would feel useful and fulfilled: “It
is incredible how much desire I have to save at
least one person ... to explain how many bad
situations there will be and to tell the person
that the beginning should be the end ... that’s it
... so that, in some way, the person would know
that what they think and what the drugs provide
is a false sense of security, an escape from re-
ality ... I have been there and lived to regret it. I
put my grandmother and my brother in difficult
situations ... It is a big step that leads to chaos
… That is what I want to tell them.”
LAMIJA’S STORY
14
29. 18 were reached, suggesting that the same legal
barriers would also prevent adolescents from ac-
cessing HIV prevention services. Consequently,
the Ministry of Health of BiH and UNICEF decid-
ed to use the BBS to gain a retrospective under-
standing of the risk behaviours and vulnerability
of young IDUs. The decision was made to build
a more effective response to prevention among
IDUs in general, to address legal and other ser-
vice access barriers, and to explore risk and vul-
nerability among other marginalized adolescents.
Findings from the BBS confirmed that risk be-
haviours start at an early age. The research also
found that younger IDUs are not being reached
by existing harm reduction and HIV prevention
services. While the high prevalence of hepatitis
B and C showed that there is no room for com-
placency, low HIV prevalence suggested there
was a temporary window of opportunity for the
Government and its partners to take action with
effective HIV prevention interventions.
16
31. Qualitative research among female IDUs2
found
that young female IDUs are influenced to start
injecting by peers and partners, denied access
to health and prevention services including
counselling, and abused by law enforcement of-
ficers.
“I was terribly afraid of crisis.
I attempted suicide in the moments of
crisis. I would see it all before me, as in
some misty mirror, all that gnawed on
me and burdened my conscience … that
was horrible, I did not endure and I tried
to cut my veins. But the intervention by
doctors was swift, they stitched me up
and sent me home. When I came home,
I threw myself on the railroad tracks. I
remember the sound of the train and the
strong pressure from my mother. She
managed to pull me off the rails and save
me. I do not know
where she got her strength … ”
(Young female IDU, Sarajevo.)
18
33. “When advocating for MARA, it is eas-
ier to take advantage of ongoing leg-
islation development processes or the
adjustment of those laws that have re-
cently been endorsed by the authori-
ties, rather than putting efforts into
the development of completely new
legislation or strategies.”
UNICEF Programme Specialist
20
35. Laws and strategies to increase adolescent ac-
cess to HIV testing and other health services
• Laws, policies and practices were reviewed3
to
assess legal barriers to adolescents accessing
information and health services related to HIV/
AIDS and sexually transmitted infections (STIs).
The analysis3
found that adolescents under age
18 were not accessing services and not allowed
to request “invasive” health interventions without
prior parental consent. These interventions in-
cluded HIV testing.
• UNICEF and health sector partners advocated
for changes to the law, providing technical assis-
tance and data from the BBS surveys to support
the case of adolescents. In response, the Ministry
of Health and Social Welfare of Republika Srpska
developed the Law on Health, and the Ministry
of Health of the Federation of BiH developed
the Law for the Protection of Patients’ Rights.
Both laws lower the age at which a young per-
son can access health services, including HIV
testing, without parental consent – from age 18
to age 15. Both laws have been endorsed.
• A Strategy for Diminishing Drug Use was de-
veloped under the leadership of the Ministry of
Security of BiH. The strategy provides a legal
framework for NGOs to provide HIV preven-
tion and harm reduction services without com-
ing into conflict with the law. Adolescents and
young people are included in the strategy.
• The National AIDS Strategy refers to adoles-
cents as a sub-group of most-at-risk popula-
tions.
2. Improving the quality of HIV testing and
counselling services
The work to develop a protective legislative en-
vironment for HIV prevention services was com-
plemented by efforts to increase access to VCT
services that meet the needs of at-risk and vul-
nerable adolescents.
With support from UNICEF, protocols were ap-
proved for VCT for HIV for most-at-risk popula-
tions (MARPS), including adolescents. A VCT
Guidebook for Service Providers4
, which includes
guidance on providing services to MARA, was
produced. A pool of trainers was established to
train service providers in VCT, including test-
ing for MARA and other vulnerable adolescents.
Health workers and NGO staff were trained to
provide VCT to MARPs, including adolescents.
22
36. At community level, the VCT centre in Banja Luka was strength-
ened to provide improved HIV counselling and testing services
for MARA, people living with HIV, and other at-risk populations.
In the first few months after capacity building, 563 clients were
seen, nearly a quarter (24%) of whom were adolescents. Test kits
were supplied to increase testing and improve access to health
information, in recognition of the high levels of Hepatitis B and C
evidenced in the BBS.
UNICEF strengthened the capacities of local NGOs dealing with
MARPS and other key stakeholders to respond to the needs of
MARA. Partnerships were also built at various levels, ranging
from the Ministry of Security of BiH at the central level, as well as
“entity” ministries of health, education, social welfare and interior,
and the cantonal and municipal level governments and ministries
responsible for health, education and social welfare. These new
partnerships have been critical as the Global Fund project is im-
plemented.
3. Promoting an enabling community environment
UNICEF is also working to change community attitudes and in-
crease social support for MARA, other vulnerable adolescents
and those affected by HIV/AIDS. A BCC strategy to fight stigma
and discrimination was developed in partnership with young peo-
ple. UNICEF advocated for this strategy to be integrated into the
National AIDS Strategy.
An edutainment mass media campaign, “Without Risk,” which
addresses alcoholism, drug use and safe sex, was developed
for the wider youth population. A television serial for youth, and
videos and radio clips promoting HIV prevention, were produced
for national broadcast.
4. Increasing HIV knowledge and promoting safe services
for adolescents in institutions
UNICEF and local NGO Viktorija developed an intervention to
increase knowledge about HIV-related risk behaviours and im-
prove the social environment of adolescents living in collective
accommodation. This intervention targeted adolescents and staff
in institutions, school children from those primary schools at-
tended by the adolescents in institutions, and key stakeholders
responsible for the adolescents at the municipal level.
In addition to learning about HIV and AIDS, adolescents were
introduced to HIV testing facilities and youth-friendly health ser-
vices. Peer education sessions were conducted in schools and
institutions, staff members were trained, and roundtable discus-
sions were held for key stakeholders. In all, 954 adolescents and
294 adults were reached.
23
38. “We try to hide my HIV status, because people do not
know a lot about HIV and they do not understand
there is nothing to be afraid of.”
We work with TAMARA
in MOLDOVA
Tamara is one of about 5,000 young people who regu-
larly benefit from the services of ATIS1
, a youth-friendly
health service (YFHS) that opened in 2005 with UNICEF
support. ATIS offers information about sexually trans-
mitted diseases and HIV/AIDS, and provides counsel-
ling and testing services, access to contraceptives, and
care and support for the most vulnerable adolescents.
Located in one of Moldova’s most HIV/AIDS-affected
towns (Balti), ATIS offers services to vulnerable adoles-
cents and young people aged 10–25, not only from Balti
but also from nearby villages and small towns.
41. 28
specialized HIV centre in Chisinau each time I
had a health problem,” she says. “It would cost
me a lot, as I need medical examinations for
myself and my child every three months or so,
and here I don’t have to pay for anything, all the
services are free.” Tamara comes to the centre
every day, both for medical examinations and to
attend seminars and support groups and social-
ise with other young people and the staff.
THE APPROACH
Moldova is classified as a country with low HIV
prevalence. The HIV epidemic in Moldova is par-
ticularly concentrated among injecting drug users
and their sexual partners. In 2008 the Ministry of
Health, with UNICEF’s support, conducted a base-
line study among 369 IDUs aged 12–24 and their
sexual partners in Balti, Chisinau and Tiraspol2
.
The research confirmed that young IDUs are taking
risks: they are sharing needles and they are less
likely than older IDUs to use condoms with casual
partners. Young injectors are reluctant to use health
and harm-reduction services, and outreach activi-
ties are not managing to reach them.
43. 30
Fyodor, young IDU
“I saw for myself how these people were
using, and they said to me, ‘Don’t even
think about it.’ And I thought the oppo-
site, ‘Why are they using and yet per-
suading me not to?’”
Anatoli, IDU
“I am in withdrawal, I need money. I met
Vasya who has money and he wanted to
try, and tells me he will give me money.
Almost everyone would accept his mon-
ey to get the drug for himself and for this
guy. There are not many conscientious
people who would say, ‘I would not get
you the drug.’ ... As they say, ‘If it’s free,
even the vinegar is sweet.’ So of course
the drug addict will take the money and
will give him the drug without thinking
twice. When a person is a dependent
drug user, he has no boundaries.”
UNICEF undertook a qualitative study4
to clarify
these unusual results5
. Interviews in Balti with
31 current IDUs and 11 ex-injectors showed
that young injectors tend to be initiated into in-
jecting drugs by their peers.
This contrasts with the situation in Albania,
where older injectors were found to initiate new,
younger injectors. The research confirmed that
the Balti environment was unlikely to support
interventions aimed at working with older IDUs
to dissuade them from initiating younger, non-
injecting drug users into injecting.
45. 32
propriate national response. A National Action
Plan for MARA was developed by the govern-
ment, NGOs and young people from all sectors.
The Plan identifies the key issues and sets out
a range of actions required for a comprehensive
HIV prevention response.
2. Advocating for national strategies,
plans and monitoring systems to
include MARA
UNICEF’s advocacy led to integration of
MARA into the National AIDS Programme
2011–2015 (NAP)6
. The NAP includes refer-
ences to adolescents in its definition of at-risk
populations (ie, IDUs, sex workers and men
who have sex with men [MSM]) and, among
its list of vulnerable populations, identifies
children living/working on the streets, in con-
flict with the law and/or living in institutions.
A joint UN/Ministry of Health working group is
reviewing legislation to identify potential bar-
riers to adolescents’ access to reproductive
health services.
It was a new issue, and at the start of the
programme we didn’t have data.
Developing the MARA Action Plan gave
ministries and civil society the time to
absorb the issues. This process lasted a
year but it meant people understood the
issues and challenges MARA face. In the
end they became allies of MARA.
UNICEF Programme Specialist
47. 34
4. Improving cross-sectoral communication
and cooperation
Pilot projects have also been established in Bal-
ti, Chisinau and Tiraspol to determine how best
to provide integrated services for MARA and
other vulnerable adolescents using outreach ac-
tivities, case management approaches and re-
ferrals. These are focused on identifying at-risk
adolescents as early as possible and providing
high quality services that respond to their needs.
48. Methodological and support materials have been developed
to support the referral system. These include: a map of social
services describing education, health and social services in
Balti and their contact details; a guide on working with vul-
nerable children; leaflets for professionals about the referral
mechanism; and leaflets and posters for the general public
to promote attendance at services. The YFHS standards and
protocols help to ensure good communication between pro-
viders and contribute toward creating a “safety net” of ser-
vices for vulnerable young people.
Experience from the pilot clinics suggests that the referral
system can succeed. Outreach workers are working with lo-
cal authorities and social assistants to help street children go
back to school, help undocumented adolescents get identity
papers, and mediate contact between vulnerable families and
social assistance services in the community.
35
Prior to establishment of the referral mechanism, cooperation
between sectors in Balti was weak. Health professionals did not
refer their clients to other services, nor did they consult with pro-
fessionals from other sectors to provide a joint response.
In Balti, the social assistance, health, education and police de-
partments, prosecutor’s and probation offices, and civil society
organizations agreed to work together to identify and refer vul-
nerable and at-risk adolescents to the services they need. They
agreed that health professionals should provide direct referrals
to other services and that a social assistant, acting as a case
manager, would develop an intervention plan for adolescents,
referring them to a range of services, periodically evaluating
their progress and making adjustments as needed.
Piloting a referral mechanism to ensure compre-
hensive services for most-at-risk adolescents in
Balti
Experience has shown that services for MARA and other vul-
nerable adolescents need to be cross-sectoral – addressing
problems related to their health, education, experiences of vio-
lence and problems with the law. A referral system developed by
UNICEF and local partners in Balti aims to improve the commu-
nication and cooperation between sectors and provide quality
services that deal with adolescents’ complex needs.
“There are children who cannot even explain the prob-
lem they have. We work with children living in the
streets, with the victims of domestic violence, males
having sex with males, trafficked women and girls. We
counsel adolescents giving birth and thinking of aban-
doning their babies.”
Therapist, ATIS
53. Irfan attends youth workshops organized by a
local NGO with UNICEF support. It was there
he first heard about HIV/AIDS, gender issues
such as violence and the limitations of tradition-
al roles for girls, and sexual and reproductive
health. He realized the need for such spaces
where boys and girls can be together and speak
freely. “The leaders here in Konik do not pay
much attention to our needs as young people,”
he says. “We would like to form a group and do
our own youth leadership training now ... In the
end, all that I want is equal rights, as a Roma
and as a refugee.”
40
54. THE APPROACH
Overall, Montenegro has very low HIV prevalence. However,
young Roma are extremely vulnerable to the rapid spread of
HIV/AIDS in the region. Isolated from the wider community, dis-
criminated against, poorly educated and unable to easily access
health services, they lack both the knowledge to protect them-
selves and the confidence to demand better services.
There is a great need for sexual and reproductive health services
in Roma communities. Baseline research1
conducted in 2007–8
among a sample of Roma aged 15–24 in Podgorica and Nik-
sic demonstrated their poor knowledge of HIV/AIDS. In a society
with unequal gender relations, girls are particularly vulnerable.
Domestic violence is widespread. Early and unprotected sex is
very common and girls have little knowledge of how to protect
themselves. One-quarter of girls surveyed reported that they had
experienced forced sex and some of them reported having had
an abortion or miscarriage.
Based on these research findings, UNICEF engaged with nation-
al authorities and partners to develop targeted interventions for
young Roma in Podgorica and Niksic.
The approach encompassed:
• laying systemic foundations through policy and service
strengthening for long-term support to young Roma
• providing targeted, community-based services that will help
and encourage young Roma to make positive behaviour choic-
es to protect themselves and their peers.
41
MONTENEGRO
57. Capacity building and empowerment – This was
achieved through an HIV/AIDS analysis of Mon-
tenegro, a regional training package and brief-
ings on developing gender-sensitive prevention
programming for adolescents.
Promoting community dialogue – Openness was
the key, including provision of shared and fe-
male-only spaces to empower girls, weekly visits
by doctors and peers, and open exchanges be-
tween policy makers and community representa-
tives.
Empowering RAE adolescents – Two young men
were the first from Konik’s RAE community to
attend secondary school. Young women have
been empowered by open participation in the
programme. There is increased awareness that
girls lack role models, and of the effects of the
community’s restrictive gender norms.
2. Integrating young Roma into national
strategies
UNICEF and partners advocated successfully for
young Roma to be specifically targeted in national
plans, strategies and monitoring systems. The
National HIV/AIDS Strategy3
sets out the Govern-
ment’s long-term commitment to young Roma.
The national monitoring system for measuring the
national response to HIV/AIDS and STIs now in-
cludes indicators on knowledge levels and con-
dom use among young Roma. These are also
included as indicators for monitoring the imple-
mentation of Global Fund programmes.
Discussion workshops
In 2010, young Roma attended 56 workshops
and about 500 were influenced through peer dis-
cussion on such topics as human rights, gender
stereotypes, family violence, stigma and discrim-
ination, access to youth-friendly social services,
the right to education, and healthy lifestyles.
Opening such topics to discussion was an im-
portant achievement. Female-only discussions
allowed girls to speak openly about sensitive
topics, while mixed discussions gave them the
opportunity to voice their ideas in front of boys.
(See Gender Case Study2
.)
44
58. 3. Changing legal systems to improve
access to health services
UNICEF has successfully advocated for better systemic recogni-
tion and response, not only to HIV/AIDS-related needs but also
to the broader health needs of young Roma. As a result, the Gov-
ernment is committed to providing free, youth-friendly primary
health services (YFHS) across the country, offering information
on sexual and reproductive health and referrals. Young Roma
have been involved in developing protocols and standards for
YFHS appropriate to their needs and circumstances, and a set of
rights-based principles for use in YFHS has been promulgated.
As a result, access to YFHS will be increased.
UNICEF and partners continue to advocate for staff training pro-
grammes to be systematized by the health, education and social
protection systems. This is critical if quality services are to be
provided to vulnerable adolescents over the long term.
“We needed to promise that we would
take the girls home, one-by-one, after the
workshops; otherwise they would not be
allowed to participate.”
Workshop Organiser, Niksic
4. Working with adolescents who live in settlements
Participatory workshops were facilitated by UNICEF, with support
and participation from representatives of the Institute of Public
Health, the Ministries of Health, Education and Human and Minor-
ity Rights, professionals from primary health centres, NGO repre-
sentatives and young Roma.
Along with the workshops and peer-to-peer discussions, 350
home visits were conducted and resulted in an increased number
of girls participating in the workshops. UNICEF, in partnership with
the youth NGO Forum MNE and the Centre for Roma Initiative,
supported continuous, intensive training in project development
and report writing, NGO management, human rights, and educa-
tion and health issues, for 30 RAE adolescents from Podgorica
and Niksic, to enhance their knowledge and skills.
45
60. “People see us as … I don’t know! They don’t see us.
They look at us as criminals, knowing that we use drugs
and therefore we are the worst criminals.
I think that drug dependence is a disease and
we need support, not to be excluded …”
We work with MARIA
in ROMANIA
Maria struggles with drug addiction, hepatitis C and
many other challenges. UNICEF and partners are work-
ing with marginalized young people like Maria to build
trust and increase equitable access to community ser-
vices throughout Romania.
63. UNICEF Romania has focused in recent years
on prevention among at-risk and especially vul-
nerable young injecting drug users (IDUs), fe-
male sex workers (FSWs) and men who have
sex with men (MSM), in Bucharest, Iasi, Con-
stanta and Timisoara. The work with local part-
ners has centred upon a three-pronged strate-
gic approach that includes:
• building support for targeted HIV prevention
for most-at-risk-adolescents (MARA) at
national and community levels
• improving the quality of health and social
services
• piloting interventions linked to drop-in
centres, outreach activities, HIV testing and
counseling (HTC), and medical and social
services.
THE APPROACH
The following are some of the results from
UNICEF and partner programming among MARA
in Romania:
• Baseline research conducted in 20082
confirmed high rates of risk behaviour.
Especially striking was overlapping risk and
vulnerability among IDU and FSW populations
(see Data At-A-Glance).
• Advocacy led to the inclusion of marginalized
adolescents in the proposed 2011–2015
National AIDS Strategy.
• Standards, protocols and a training curriculum
were developed to ensure that services
reached adolescents effectively.
• Pharmacists and social service providers were
trained to refer and work with MARA and
other vulnerable adolescents.
• A voucher system was developed to increase
access to and use of health and social
50
64. services, including child protection services.
• Evaluation research conducted in 20103
showed that projects
intended for MARA are considered to be efficient and relevant
to the specific needs of these groups (IDUs, FSWs, MSM) both
by beneficiaries and by those who have managed the projects
on behalf of each of the eight organizations involved.
Community-based services were effective in reaching over 1000
MARA and other vulnerable adolescents. Of these, 200 were
tested for HIV and counselled. Pilot medical–social services
served over 500 young clients. However, changes in the politi-
cal environment led to delays in addressing laws that require
parental consent for minors to access testing, counselling and
other services. The political situation and economic crisis limited
government involvement in the programme overall, thus hinder-
ing efforts to integrate MARA programming into national plans,
budgets and systems. The programme has shown that govern-
ment leadership is critical if programmes and interventions are to
be sustained and taken to scale.
During initial consultations with government and civil society,
UNICEF and partners decided to investigate risk behaviours and
the extent to which existing services were addressing the needs
of young IDUs and FSWs. Recent data show that 15–24-year-
olds account for almost 50% of new cases of HIV.
The Faculty of Sociology and Social Work of the University of
Bucharest conducted a baseline study during 2008 among 300
IDUs aged 10–24 in Bucharest, and 295 FSWs aged 10–24 in
Bucharest, Constanta, Iasi and Timisoara2
. The study showed
that:
• IDUs and FSWs are at high risk of HIV infection, and their
level of risk increases as their age decreases.
• adolescents do not use harm reduction services as often as
older injectors
ROMANIA
51
67. 1. Building support for targeted
HIV prevention
UNICEF advocated with central and local authori-
ties to build a better understanding of at-risk ado-
lescents and create a supportive environment for
HIV prevention and harm reduction interventions.
As a result of UNICEF advocacy efforts, the draft
National HIV/AIDS Strategy 2011–2015 includes
a chapter on MARA. Data from the baseline stud-
ies and lessons learned from programming were
used to inform the chapter, which sets out actions
to develop, and provides communication strate-
gies and services tailored to at-risk adolescents.
UNICEF facilitated regional advocacy meetings
with government partners, the police, media,
pharmacists, at-risk adults and adolescents, par-
ents and service providers, to address HIV and
harm reduction. Special sessions on the stigma
and discrimination experienced by MARA were
included. Participants identified priorities and
developed action plans based on the research
findings and local capacity to respond.
2. Improving the quality of medical and
social services
National partners developed standards and
protocols to help ensure equity and quality of
HIV/STI services for young people, including at
harm reduction drop-in centres and in needle-
exchange programmes, HIV counselling and
testing, outreach and interventions for FSWs.
Guidelines for outreach, drop-in centres and
substitution treatment for IDUs and FSWs were
adapted to include MARA.
A capacity assessment of services for MARA
was undertaken. The assessment reviewed
medical and social units, state institutions and
NGOs. It found that both state and NGO services
had been affected by the political and economic
situation and the lack of funding. A training cur-
riculum on providing services, including VCT, to
at-risk adolescents was developed, and profes-
sionals from the health and child protection sec-
tors were trained.
A study on access to sterile injecting equipment
and opioid substitution medication in pharma-
cies was developed and certified by the College
of Pharmacists11
. Attitudes, knowledge and prac-
tices of Bucharest pharmacists regarding inject-
ing equipment and opioid substitution treatment
were assessed. It was recommended that phar-
macists be involved more explicitly in developing
services for IDUs, that is, access to sterile inject-
ing equipment and availability of drug substitu-
tion treatment, with prescriptions from physicians
54
69. UNICEF collaborated with medical and child
protection services to pilot a voucher referral
system aimed at increasing access by MARA
to a range of health and social services.
The voucher system was coordinated by
ARAS and implemented by seven NGOs, in
partnership with service providers at hospi-
tals, clinics and child protection departments.
When outreach workers or staff at drop-in
centres identified a prospective referral client,
the client was given a voucher to present to
providers at relevant services. The voucher
included information on the client’s age, sex,
health issues and referral source. The system
used outreach workers to accompany young
clients to meet health and social services
staff who were trained and sensitized to pro-
vide appropriate and friendly services to ado-
lescents.
By monitoring voucher use, programme im-
plementers were able to identify barriers that
MARA encountered in accessing services.
Piloting the voucher referral
system to increase equitable
access to services
Monitoring data collected through the voucher
system included:
• routine project data from referring institutions
and referral sites
• data from client interviews conducted with
MARA
• data from interviews with service providers
• results of quality-of-care “spot checks”
undertaken at referral sites
• case studies documenting project
experience.
ARAS analyzed vouchers from hospital and
clinic service providers, confirming that more
at-risk populations were accessing the services
as a result of targeted interventions. Neverthe-
less, the voucher project encountered signifi-
cant challenges. At the service level,clients lost
their vouchers, which interrupted service provi-
sion. At the systems level, access to medical
care remained limited since laws require that
clients show identity papers and proof of medi-
cal insurance before services can be provided.
Even when service providers were open to as-
sisting MARA, they could not overlook the fun-
damental problem that their own medical costs
would not be reimbursed if they treated at-risk
adolescents who did not have identity or insur-
ance documents.
The voucher referral experience showed that,
despite best efforts, legislative changes are
needed to enable adolescents to access medi-
cal treatment (including HIV testing and coun-
seling) without parental consent and without
medical insurance.
“The syringes were very useful be-
cause I didn’t have to use someone
else’s, I didn’t have to beg for money
to buy a syringe, the vial was mine
and I didn’t share it with anybody and
that helped me a great deal. I stopped
picking paper off the ground to wipe
my arm and get infected; instead I
have gauze swabs, stuff like this.”
14-year-old IDU
Of all the young clients seen, 200 (153 fe-
male and 47 male) requested HIV counsel-
ling and testing, 28 of whom were under
age 18. HIV tests were provided by partner
NGOs.
56
71. Programming experience has shown that gov-
ernment leadership is critical if prevention in-
terventions for MARA and vulnerable young
people are to be sustained and taken to scale.
UNICEF will continue to advocate that MARA
be kept on the national HIV/AIDS agenda in
Romania. As the epidemic evolves, political
commitment and sustained support to the re-
sponse to the epidemic will be essential.
THE WAY FORWARD
Given the strength and long history of provi-
sion of community-based HIV prevention, care
and treatment services by NGOs in Romania,
UNICEF will continue working to strengthen
partnerships between government and civil
society organizations and to ensure the inclu-
sion of adolescents in programming.
MARA interventions have been ensured, at
least in the short term, owing to inclusion of
MARA as a target group within a programme
funded through European Union Structural
Funds, implemented by a consortium of NGOs
and supported in part by UNICEF.
ROMANIA
58
75. Three years ago, when the CYI1
field activ-
ists found her, Mirela had lost faith in people,
and was unwilling to communicate with outsid-
ers. Only recently did she come to the drop-in
centre for “street-involved” children, and she
gradually became involved in the centre’s HIV
and Hepatitis Prevention, Drop-In and Out-
reach services, initiated by CYI and supported
by Youth of JAZAS2
organisation and UNICEF.
Following a series of motivational and educa-
tional sessions, combined with psychological
support provided by the education officers and
psychologists at CYI, she gave up the idea of
adopting her family’s lifestyle.
Mirela has no documents, not one paper that
proves legally that she exists. She never had the
chance to attend elementary school, or to use
health care services. Getting a medical check-up
meant taking money from the food budget. Natu-
rally, she had medical treatment only when it was
absolutely necessary. All she hopes for now is to
get an ID card, with the help of CYI and UNICEF,
and become a Serbian citizen, entitled to health
care and work.
62
76. THE APPROACH
Serbia has low HIV prevalence (0.1%); HIV affects mainly se-
lect, at-risk populations. In partnership with the Ministry of Health,
the Global Fund to Fight AIDS, Tuberculosis and Malaria, and
other partners, UNICEF has worked to prevent new infections
among excluded adolescents – “social ghosts” marginalized or
stigmatised by society – including those who live and work on the
streets, and adolescents who inject drugs (IDUs).
Initial assessments confirmed a dearth of data on at-risk adoles-
cents, a lack of ethical guidance for research and programming
for adolescents, the absence of appropriate policies and legisla-
tion supporting programmes for minors, and weak provider skills
for working with at-risk and vulnerable adolescents. Policy mak-
ers, researchers, and service providers (even those working with
adult, most at-risk populations) had not recognised the need for
a specific focus on adolescents.
UNICEF and the Ministry of Health conducted baseline research
among adolescents who live and work on the streets and those
who inject drugs. This included a rapid assessment of 178 chil-
dren aged 10–19 who were living and working on the streets in
three cities in 2007–8. UNICEF also worked with research teams
funded by the Global Fund to formally integrate adolescents and
young people aged 15–24 into national data collection, bio-be-
havioural surveillance surveys (BBS) and interventions intended
for most-at-risk populations. The research confirmed that risk
behaviours start in adolescence and that adolescents living and
working on the streets are especially vulnerable to HIV and other
risks.
SERBIA
63