Social Technologies for eHealth

Slide 1: Social Technologies (a.k.a. Web 2.0) for eHealth Patricia F. Anderson <pfa@umich.edu> UM Health Sciences Libraries November 28, 2007 © 2007 Regents of the University of Michigan. All rights reserved.

Slide 2: Social Tech for eHealth - Outline  Why  Healthcare communities  Consumers  Clinicians  Practice management  Students  How clinicians & consumers collaborate  Using common tools  Convergence of tools  Risks

Slide 3: People are social …

Slide 4: What Social Technologies Are All About  What do you want people to tell you?  What do you want to tell people?

Slide 5: Tim O’Reilly on Web 2.0  Slide from his talk, one week ago, in Europe  How did I get it?  Social tech -- Slideshare  http://www.slideshare.net/adunne /what-is-web-20-157107/

Slide 6: What Social Technologies Are All About  Who do you want to tell what?  Who are Your People?

Slide 7: What Social Technologies Are All About  Your people  Your interests  Anywhere  Anytime

Slide 8: The Experience of Social Technologies  “I don’t get it."

Slide 9: The Experience of Social Technologies  “Everything just made perfect sense! I solved all the problems, all the equations, everything! I was damn near perfect. Now I had failed math in prep school! But suddenly it all made sense to me! I thought I was going to be a physicist. But then I … discovered that Physics didn’t warm my spirit, particularly. There was nobody to talk with about it, but I found a friend who was a Harvard graduate. And he was a marvelous human being!”  “Interview with Charles Bigger.” Works & Conversations. <http://www.conversations.org/story.php?sid=2>

Slide 10: The Experience of Social Technologies  “And that's precisely what we do when we consult Wikipedia. It isn't an authoritative source in the professor-in-the-booth sense. It's more lifeline number 3 -- hive mind, emergent intelligence, smart mobs, there is no shortage of colorful buzzwords to describe it. We've always had lifeline number 2. It's who you know. The friend or relative on the other end of the phone line. Or think of the whispered exchange between students in the college library reading room, or late-night study in the dorm. … With Wikipedia, this friend factor is multiplied by an order of millions -- the live studio audience of the web. This is the lifeline number 3, or network, model of knowledge.”  “wikipedia, lifelines, and the packaging of authority.” if:book. <http://www.futureofthebook.org/blog/archives/2006/01/wikipedia_lifel ines_and_the_pa.html>

Slide 11: The Experience of Social Technologies  What gets you from point A to point B?  Immersion  Finding your community  Social tech doesn’t make sense without the “Social”

Slide 12: Healthcare Communities  Consumers & Consumer Advocates  Practitioners and Clinicians  Researchers  Students

Slide 13: Healthcare Communities

Slide 14: Is This New?  Support groups  Clubs  Email lists  Coffee Shops  Conferences …  Well, Duh - NO!!!

Slide 15: Social Healthcare: Listening  “In the afternoon, Mrs. Carlson breathes too fast in her sleep. He leaves nitroglycerin under her tongue, burning wood to her mouth. Later, when she wakes up, he listens to her story.”  Taniguchi, Yuko. “His Day.” Foreign Wife Elegy. Minneapolis, MN: Coffee House Press, 2004, p. 16.

Slide 16: Social eHealth: Listening

Slide 17: How Folks Use Social Tech: Healthcare Consumers  American Diabetes Association: American Diabetes Association - Message Boards

Slide 18: How Folks Use Social Tech: Healthcare Consumers  ACOR: Ovarian

Slide 19: How Folks Use Social Tech: Healthcare Consumers  TealTalk

Slide 20: How Folks Use Social Tech: Healthcare Consumers  ClinicaHealth: The Alliance Ovarian Cancer Community

Slide 21: How Folks Use Social Tech: Healthcare Consumers  ClinicaHealth: Rare Disease Community

Slide 22: How Folks Use Social Tech: Healthcare Consumers  ClinicaHealth

Slide 23: How Folks Use Social Tech: Healthcare Consumers  TauMed: TMK Syndrome Community

Slide 24: How Folks Use Social Tech: Healthcare Consumers  Daily Strength: TMJ Support COmmunity

Slide 25: How Folks Use Social Tech: Healthcare Consumers  Traineo

Slide 26: How Folks Use Social Tech: Healthcare Consumers  MDJunction

Slide 27: How Folks Use Social Tech: Healthcare Consumers  Medziva for lab tests

Slide 28: How Folks Use Social Tech: Healthcare Consumers  VetRating

Slide 29: How Folks Use Social Tech: Healthcare Consumers  Yelp Ratings for local providers

Slide 30: How Folks Use Social Tech: Healthcare Consumers  Blogs: Diabetes Mine

Slide 31: How Folks Use Social Tech: Healthcare Consumers  Blog posts:  The Cancer Blog: Mouth Cancer section

Slide 32: How Folks Use Social Tech: Healthcare Consumers  Asperger Wiki

Slide 33: How Folks Use Social Tech: Healthcare Consumers  Autism TV in Youtube

Slide 34: How Folks Use Social Tech: Healthcare Consumers  Use a wiki to write a book (Survival guide for people on the autistic spectrum)

Slide 35: How Folks Use Social Tech: Healthcare Consumers  Microsoft: Health Vault  Keep your personal health information online

Slide 36: How Folks Use Social Tech: Healthcare Consumers  Wellocities from Canada

Slide 37: How Folks Use Social Tech: Healthcare Consumers  Revolution Health

Slide 38: How Folks Use Social Tech: Healthcare Consumers  Revolution Health

Slide 39: How Folks Use Social Tech: Healthcare Providers  AskDrWiki

Slide 40: How Folks Use Social Tech: Healthcare Providers  Clinical Informatics Wiki

Slide 41: How Folks Use Social Tech: Healthcare Providers  Clinical Cases and Images blog

Slide 42: How Folks Use Social Tech: Healthcare Providers  Biowizard

Slide 43: How Folks Use Social Tech: Healthcare Providers  Sermo

Slide 44: How Folks Use Social Tech: Healthcare Providers  Sermo: Jaw malocclusion q&a

Slide 45: How Folks Use Social Tech: Healthcare Providers  Youtube videos from clinicians for clinicians & patients  How to apply dental whitening bleach to your bleaching tray

Slide 46: How Folks Use Social Tech: Healthcare Clinic Staff  Medical practice billing and compliance wiki

Slide 47: How Folks Use Social Tech: Healthcare Students  TiroMed - mentoring site

Slide 48: How Folks Use Social Tech: Healthcare Students  PimpNotes for med students (NOTE: USMLE review wiki being implemented)

Slide 49: Using Common Social Tech Tools for eHealth  Flickr for image sharing  Browsing by medical tags

Slide 50: Using Common Social Tech Tools for eHealth  Flickr for groups (med and dent)

Slide 51: Using Common Social Tech Tools for eHealth  Wikipedia - it is what you make it. (Medicine Portal)

Slide 52: Using Common Social Tech Tools for eHealth  Technical and procedure videos in YouTube (Dental implant surgery)

Slide 53: Using Common Social Tech Tools for eHealth  Facebook Diabetes group

Slide 54: Using Common Social Tech Tools for eHealth  Facebook Empower patients group

Slide 55: Using Common Social Tech Tools for eHealth  Facebook Health 2.0 group

Slide 56: Using Common Social Tech Tools for eHealth  Del.icio.us for link discovery (TMJ)

Slide 57: Healthcare Consumers and Clinicians Collaborate  Clinicians use social tech to communicate with patients  Example: Youtube patient education videos

Slide 58: Healthcare Consumers and Clinicians Collaborate  VideoJug: Medical

Slide 59: Healthcare Consumers and Clinicians Collaborate  VideoJug: Dental

Slide 60: Healthcare Consumers and Clinicians Collaborate  Ask the Podcast Doctor

Slide 61: Healthcare Consumers and Clinicians Collaborate  MedHelp.org - Dental Forum

Slide 62: Healthcare Consumers and Clinicians Collaborate  Cleveland Clinic - MyChart

Slide 63: Healthcare Consumers and Clinicians Collaborate  E-Patients.net

Slide 64: Healthcare Consumers and Clinicians Collaborate  ACOR’s Patient-Centered Wikis

Slide 65: Healthcare Consumers and Clinicians Collaborate  ReliefInSite for pain tracking and health diaries

Slide 66: Healthcare Consumers and Clinicians Collaborate  iGuard for your current meds and interactions

Slide 67: Healthcare Consumers and Clinicians Collaborate  SugarStats

Slide 68: Healthcare Consumers and Clinicians Collaborate  Does it have to be a specialized application? No …  You can use generic social tech tools in creative ways to share health information

Slide 69: Social Technologies Tend to Converge & Blend  Youtube video on web searching as a tool for clinician-patient communication

Slide 70: Social Technologies Tend to Converge & Blend  YouTube video to recruit participants in community wiki

Slide 71: Social Technologies Tend to Converge & Blend  AskDrWiki talked about in blogs

Slide 72: Social Technologies Tend to Converge & Blend  MedGadget blog announces ReliefInSite

Slide 73: Social Technologies Tend to Converge & Blend  Facebook group announcement for ReliefInSite

Slide 74: Social Technologies Tend to Converge & Blend  SLHealthy - a wiki to collect consumer health and healthcare groups and locations in Second Life

Slide 75: Social Technologies Tend to Converge & Blend  Nursing ACLS training in Second Life

Slide 76: Social Technologies Tend to Converge & Blend  Blog of Youtube video about data visualisation mashup in Second Life

Slide 77: Risks of Social Tech  Sometimes the tech won’t support your audience

Slide 78: Risks of Social Tech  Feeling overwhelmed -  “wondering .. How many online presences does one need? Must we twit, live second, even active lives, ning, digg, and facebook, as del.icio.us as it might be to be in myspace.com, on top of IM, email, phone, and cold beers with friends?” Larry Johnson

Slide 79: Risks of Social Tech  Privacy, security, ethics

Slide 80: When Social Goodness Goes Bad  John Best Autism debate

Slide 81: When Social Goodness Goes Right  Leitch Autism Wiki reborn

Slide 82: Transparency = Control?  No matter how many laws are passed, it will prove quite impossible to legislate away the new surveillance tools and databases. They are here to stay. Light is going to shine into nearly every corner of our lives.  The real issue facing citizens of a new century will be how mature adults choose to live -- how they might compete, cooperate and thrive -- in such a world. A transparent society.  Will average citizens share, along with the mighty, the right to access these universal monitors? Will common folk have, and exercise, a sovereign power to watch the watchers?  Brin, David. “Introduction.” The Transparent Society:Will Technology Force us to Choose Between Privacy and Freedom? NY: Basic Books, 1998. http://www.davidbrin.com/tschp2.html

Slide 83: Trust = Transparency?  In spite of ample sources we may be left uncertain about the supposed evidence that certain drugs are risky, or that fluoride in the water harms, or that standards for environmental pollutants in water or air have been set too high (or too low or at the right level), that professional training of doctors or teachers are adequate or inadequate, that waste disposal by incineration or by landfill is safer.  Milton asked rhetorically "Who ever knew truth put to the worse in a free and open encounter?". Today the very prospect of a 'free and open encounter' is drowning in the supposedly transparent world of the new information order.  O’Neill, Onora. “Trust and Tranparency.” A Question of Trust. Reith Lectures, 2002 (BBC Radio 4). http://www.bbc.co.uk/radio4/reith2002/lecture4.sht ml

Slide 84: More  Links to these resources and more:  http://del.icio.us/rosefirerising/health2.0/  More podcasts:  http://www.dent.umich.edu/informatics/boot camp/  More slide presentations:  http://www.slideshare.net/umhealthsciencesl ibraries/slideshows/

Slide 85: More  Links to these resources and more:  http://del.icio.us/rosefirerising/science2.0/  More podcasts:  http://www.dentalinformatics.com  http://www.dent.umich.edu/informatics/bootcamp/  http://www.lib.umich.edu/hsl/podcasts/  More slide presentations:  http://www.slideshare.net/umhealthscienceslibraries /slideshows/

Slide 86: Questions?  Contact: Patricia Anderson at pfa@umich.edu