Social Technologies (a.k.a. Web 2.0) for eHealth Patricia F. Anderson <pfa@umich.edu> UM Health Sciences Libraries November 28, 2007 © 2007 Regents of the University of Michigan. All rights reserved.

Social Tech for eHealth - Outline Why Healthcare communities Consumers Clinicians Practice management Students How clinicians & consumers collaborate Using common tools Convergence of tools Risks

Why

Healthcare communities

Consumers

Clinicians

Practice management

Students

How clinicians & consumers collaborate

Using common tools

Convergence of tools

Risks

People are social …

What Social Technologies Are All About What do you want people to tell you? What do you want to tell people?

What do you want people to tell you?

What do you want to tell people?

Tim O’Reilly on Web 2.0 Slide from his talk, one week ago, in Europe How did I get it? Social tech -- Slideshare http://www.slideshare.net/adunne/what-is-web-20-157107/

Slide from his talk, one week ago, in Europe

How did I get it?

Social tech -- Slideshare

http://www.slideshare.net/adunne/what-is-web-20-157107/

What Social Technologies Are All About Who do you want to tell what? Who are Your People?

Who do you want to tell what?

Who are Your People?

What Social Technologies Are All About Your people Your interests Anywhere Anytime

Your people

Your interests

Anywhere

Anytime

The Experience of Social Technologies “ I don’t get it.&quot;

“ I don’t get it.&quot;

The Experience of Social Technologies “ Everything just made perfect sense! I solved all the problems, all the equations, everything! I was damn near perfect. Now I had failed math in prep school! But suddenly it all made sense to me! I thought I was going to be a physicist. But then I … discovered that Physics didn’t warm my spirit, particularly. There was nobody to talk with about it, but I found a friend who was a Harvard graduate. And he was a marvelous human being!” “ Interview with Charles Bigger.” Works & Conversations. <http://www.conversations.org/story.php?sid=2>

“ Everything just made perfect sense! I solved all the problems, all the equations, everything! I was damn near perfect. Now I had failed math in prep school! But suddenly it all made sense to me! I thought I was going to be a physicist. But then I … discovered that Physics didn’t warm my spirit, particularly. There was nobody to talk with about it, but I found a friend who was a Harvard graduate. And he was a marvelous human being!”

“ Interview with Charles Bigger.” Works & Conversations. <http://www.conversations.org/story.php?sid=2>

The Experience of Social Technologies “ And that's precisely what we do when we consult Wikipedia. It isn't an authoritative source in the professor-in-the-booth sense. It's more lifeline number 3 -- hive mind, emergent intelligence, smart mobs , there is no shortage of colorful buzzwords to describe it. We've always had lifeline number 2. It's who you know. The friend or relative on the other end of the phone line. Or think of the whispered exchange between students in the college library reading room, or late-night study in the dorm. … With Wikipedia, this friend factor is multiplied by an order of millions -- the live studio audience of the web. This is the lifeline number 3, or network, model of knowledge.” “ wikipedia, lifelines, and the packaging of authority.” if:book. <http://www.futureofthebook.org/blog/archives/2006/01/wikipedia_lifelines_and_the_pa.html>

“ And that's precisely what we do when we consult Wikipedia. It isn't an authoritative source in the professor-in-the-booth sense. It's more lifeline number 3 -- hive mind, emergent intelligence, smart mobs , there is no shortage of colorful buzzwords to describe it. We've always had lifeline number 2. It's who you know. The friend or relative on the other end of the phone line. Or think of the whispered exchange between students in the college library reading room, or late-night study in the dorm. … With Wikipedia, this friend factor is multiplied by an order of millions -- the live studio audience of the web. This is the lifeline number 3, or network, model of knowledge.”

“ wikipedia, lifelines, and the packaging of authority.” if:book. <http://www.futureofthebook.org/blog/archives/2006/01/wikipedia_lifelines_and_the_pa.html>

The Experience of Social Technologies What gets you from point A to point B? Immersion Finding your community Social tech doesn’t make sense without the “Social”

What gets you from point A to point B?

Immersion

Finding your community

Social tech doesn’t make sense without the “Social”

Healthcare Communities Consumers & Consumer Advocates Practitioners and Clinicians Researchers Students

Consumers & Consumer Advocates

Practitioners and Clinicians

Researchers

Students

Healthcare Communities

Is This New? Support groups Clubs Email lists Coffee Shops Conferences … Well, Duh - NO!!!

Support groups

Clubs

Email lists

Coffee Shops

Conferences …

Well, Duh - NO!!!

Social Healthcare: Listening “ In the afternoon, Mrs. Carlson breathes too fast in her sleep. He leaves nitroglycerin under her tongue, burning wood to her mouth. Later, when she wakes up, he listens to her story.” Taniguchi, Yuko. “His Day.” Foreign Wife Elegy. Minneapolis, MN: Coffee House Press, 2004, p. 16.

“ In the afternoon, Mrs. Carlson breathes too fast in her sleep. He leaves nitroglycerin under her tongue, burning wood to her mouth. Later, when she wakes up, he listens to her story.”

Taniguchi, Yuko. “His Day.” Foreign Wife Elegy. Minneapolis, MN: Coffee House Press, 2004, p. 16.

Social eHealth: Listening

How Folks Use Social Tech: Healthcare Consumers American Diabetes Association: Message Boards American Diabetes Association - Message Boards

American Diabetes Association: Message Boards

American Diabetes Association - Message Boards

How Folks Use Social Tech: Healthcare Consumers ACOR: Ovarian

ACOR: Ovarian

How Folks Use Social Tech: Healthcare Consumers TealTalk

TealTalk

How Folks Use Social Tech: Healthcare Consumers ClinicaHealth: The Alliance Ovarian Cancer Community

ClinicaHealth: The Alliance Ovarian Cancer Community

How Folks Use Social Tech: Healthcare Consumers ClinicaHealth: Rare Disease Community

ClinicaHealth: Rare Disease Community

How Folks Use Social Tech: Healthcare Consumers ClinicaHealth

ClinicaHealth

How Folks Use Social Tech: Healthcare Consumers TauMed: TMK Syndrome Community

TauMed: TMK Syndrome Community

How Folks Use Social Tech: Healthcare Consumers Daily Strength: TMJ Support COmmunity

Daily Strength: TMJ Support COmmunity

How Folks Use Social Tech: Healthcare Consumers Traineo

Traineo

How Folks Use Social Tech: Healthcare Consumers MDJunction

MDJunction

How Folks Use Social Tech: Healthcare Consumers Medziva for lab tests

Medziva for lab tests

How Folks Use Social Tech: Healthcare Consumers VetRating

VetRating

How Folks Use Social Tech: Healthcare Consumers Yelp Ratings for local providers

Yelp Ratings for local providers

How Folks Use Social Tech: Healthcare Consumers Blogs: Diabetes Mine

Blogs: Diabetes Mine

How Folks Use Social Tech: Healthcare Consumers Blog posts: The Cancer Blog: Mouth Cancer section

Blog posts:

The Cancer Blog: Mouth Cancer section

How Folks Use Social Tech: Healthcare Consumers Asperger Wiki

Asperger Wiki

How Folks Use Social Tech: Healthcare Consumers Autism TV in Youtube

Autism TV in Youtube

How Folks Use Social Tech: Healthcare Consumers Use a wiki to write a book (Survival guide for people on the autistic spectrum)

Use a wiki to write a book (Survival guide for people on the autistic spectrum)

How Folks Use Social Tech: Healthcare Consumers Microsoft: Health Vault Keep your personal health information online

Microsoft: Health Vault

Keep your personal health information online

How Folks Use Social Tech: Healthcare Consumers Wellocities from Canada

Wellocities from Canada

How Folks Use Social Tech: Healthcare Consumers Revolution Health

Revolution Health

How Folks Use Social Tech: Healthcare Consumers Revolution Health

Revolution Health

How Folks Use Social Tech: Healthcare Providers AskDrWiki

AskDrWiki

How Folks Use Social Tech: Healthcare Providers Clinical Informatics Wiki

Clinical Informatics Wiki

How Folks Use Social Tech: Healthcare Providers Clinical Cases and Images blog

Clinical Cases and Images blog

How Folks Use Social Tech: Healthcare Providers Biowizard

Biowizard

How Folks Use Social Tech: Healthcare Providers Sermo

Sermo

How Folks Use Social Tech: Healthcare Providers Sermo: Jaw malocclusion q&a

Sermo: Jaw malocclusion q&a

How Folks Use Social Tech: Healthcare Providers Youtube videos from clinicians for clinicians & patients How to apply dental whitening bleach to your bleaching tray

Youtube videos from clinicians for clinicians & patients

How to apply dental whitening bleach to your bleaching tray

How Folks Use Social Tech: Healthcare Clinic Staff Medical practice billing and compliance wiki

Medical practice billing and compliance wiki

How Folks Use Social Tech: Healthcare Students TiroMed - mentoring site

TiroMed - mentoring site

How Folks Use Social Tech: Healthcare Students PimpNotes for med students (NOTE: USMLE review wiki being implemented)

PimpNotes for med students (NOTE: USMLE review wiki being implemented)

Using Common Social Tech Tools for eHealth Flickr for image sharing Browsing by medical tags

Flickr for image sharing

Browsing by medical tags

Using Common Social Tech Tools for eHealth Flickr for groups (med and dent)

Flickr for groups (med and dent)

Using Common Social Tech Tools for eHealth Wikipedia - it is what you make it. (Medicine Portal)

Wikipedia - it is what you make it. (Medicine Portal)

Using Common Social Tech Tools for eHealth Technical and procedure videos in YouTube (Dental implant surgery)

Technical and procedure videos in YouTube (Dental implant surgery)

Using Common Social Tech Tools for eHealth Facebook Diabetes group

Facebook Diabetes group

Using Common Social Tech Tools for eHealth Facebook Empower patients group

Facebook Empower patients group

Using Common Social Tech Tools for eHealth Facebook Health 2.0 group

Facebook Health 2.0 group

Using Common Social Tech Tools for eHealth Del.icio.us for link discovery (TMJ)

Del.icio.us for link discovery (TMJ)

Healthcare Consumers and Clinicians Collaborate Clinicians use social tech to communicate with patients Example: Youtube patient education videos

Clinicians use social tech to communicate with patients

Example: Youtube patient education videos

Healthcare Consumers and Clinicians Collaborate VideoJug: Medical

VideoJug: Medical

Healthcare Consumers and Clinicians Collaborate VideoJug: Dental

VideoJug: Dental

Healthcare Consumers and Clinicians Collaborate Ask the Podcast Doctor

Ask the Podcast Doctor

Healthcare Consumers and Clinicians Collaborate MedHelp.org - Dental Forum

MedHelp.org - Dental Forum

Healthcare Consumers and Clinicians Collaborate Cleveland Clinic - MyChart

Cleveland Clinic - MyChart

Healthcare Consumers and Clinicians Collaborate E-Patients.net

E-Patients.net

Healthcare Consumers and Clinicians Collaborate ACOR’s Patient-Centered Wikis

ACOR’s Patient-Centered Wikis

Healthcare Consumers and Clinicians Collaborate ReliefInSite for pain tracking and health diaries

ReliefInSite for pain tracking and health diaries

Healthcare Consumers and Clinicians Collaborate iGuard for your current meds and interactions

iGuard for your current meds and interactions

Healthcare Consumers and Clinicians Collaborate SugarStats

SugarStats

Healthcare Consumers and Clinicians Collaborate Does it have to be a specialized application? No … You can use generic social tech tools in creative ways to share health information

Does it have to be a specialized application? No …

You can use generic social tech tools in creative ways to share health information

Social Technologies Tend to Converge & Blend Youtube video on web searching as a tool for clinician-patient communication

Youtube video on web searching as a tool for clinician-patient communication

Social Technologies Tend to Converge & Blend YouTube video to recruit participants in community wiki

YouTube video to recruit participants in community wiki

Social Technologies Tend to Converge & Blend AskDrWiki talked about in blogs

AskDrWiki talked about in blogs

Social Technologies Tend to Converge & Blend MedGadget blog announces ReliefInSite

MedGadget blog announces ReliefInSite

Social Technologies Tend to Converge & Blend Facebook group announcement for ReliefInSite

Facebook group announcement for ReliefInSite

Social Technologies Tend to Converge & Blend SLHealthy - a wiki to collect consumer health and healthcare groups and locations in Second Life

SLHealthy - a wiki to collect consumer health and healthcare groups and locations in Second Life

Social Technologies Tend to Converge & Blend Nursing ACLS training in Second Life

Nursing ACLS training in Second Life

Social Technologies Tend to Converge & Blend Blog of Youtube video about data visualisation mashup in Second Life

Blog of Youtube video about data visualisation mashup in Second Life

Risks of Social Tech Sometimes the tech won’t support your audience

Sometimes the tech won’t support your audience

Risks of Social Tech Feeling overwhelmed - “ wondering .. How many online presences does one need? Must we twit, live second, even active lives, ning, digg, and facebook, as del.icio.us as it might be to be in myspace.com, on top of IM, email, phone, and cold beers with friends?” Larry Johnson

Feeling overwhelmed -

“ wondering .. How many online presences does one need? Must we twit, live second, even active lives, ning, digg, and facebook, as del.icio.us as it might be to be in myspace.com, on top of IM, email, phone, and cold beers with friends?” Larry Johnson

Risks of Social Tech Privacy, security, ethics

Privacy, security, ethics

When Social Goodness Goes Bad John Best Autism debate

John Best Autism debate

When Social Goodness Goes Right Leitch Autism Wiki reborn

Leitch Autism Wiki reborn

Transparency = Control? No matter how many laws are passed, it will prove quite impossible to legislate away the new surveillance tools and databases. They are here to stay. Light is going to shine into nearly every corner of our lives. The real issue facing citizens of a new century will be how mature adults choose to live -- how they might compete, cooperate and thrive -- in such a world. A transparent society. Will average citizens share, along with the mighty, the right to access these universal monitors? Will common folk have, and exercise, a sovereign power to watch the watchers? Brin, David. “Introduction.” The Transparent Society:Will Technology Force us to Choose Between Privacy and Freedom? NY: Basic Books, 1998. http://www.davidbrin.com/tschp2.html

No matter how many laws are passed, it will prove quite impossible to legislate away the new surveillance tools and databases. They are here to stay. Light is going to shine into nearly every corner of our lives.

The real issue facing citizens of a new century will be how mature adults choose to live -- how they might compete, cooperate and thrive -- in such a world. A transparent society.

Will average citizens share, along with the mighty, the right to access these universal monitors? Will common folk have, and exercise, a sovereign power to watch the watchers?

Brin, David. “Introduction.” The Transparent Society:Will Technology Force us to Choose Between Privacy and Freedom? NY: Basic Books, 1998. http://www.davidbrin.com/tschp2.html

Trust = Transparency? In spite of ample sources we may be left uncertain about the supposed evidence that certain drugs are risky, or that fluoride in the water harms, or that standards for environmental pollutants in water or air have been set too high (or too low or at the right level), that professional training of doctors or teachers are adequate or inadequate, that waste disposal by incineration or by landfill is safer. Milton asked rhetorically &quot;Who ever knew truth put to the worse in a free and open encounter?&quot;. Today the very prospect of a 'free and open encounter' is drowning in the supposedly transparent world of the new information order. O’Neill, Onora. “Trust and Tranparency.” A Question of Trust. Reith Lectures, 2002 (BBC Radio 4). http://www.bbc.co.uk/radio4/reith2002/lecture4.shtml

In spite of ample sources we may be left uncertain about the supposed evidence that certain drugs are risky, or that fluoride in the water harms, or that standards for environmental pollutants in water or air have been set too high (or too low or at the right level), that professional training of doctors or teachers are adequate or inadequate, that waste disposal by incineration or by landfill is safer.

Milton asked rhetorically &quot;Who ever knew truth put to the worse in a free and open encounter?&quot;. Today the very prospect of a 'free and open encounter' is drowning in the supposedly transparent world of the new information order.

O’Neill, Onora. “Trust and Tranparency.” A Question of Trust. Reith Lectures, 2002 (BBC Radio 4). http://www.bbc.co.uk/radio4/reith2002/lecture4.shtml

More Links to these resources and more: http://del.icio.us/rosefirerising/health2.0/ More podcasts: http://www.dent.umich.edu/informatics/bootcamp/ More slide presentations: http://www.slideshare.net/umhealthscienceslibraries/slideshows/

Links to these resources and more:

http://del.icio.us/rosefirerising/health2.0/

More podcasts:

http://www.dent.umich.edu/informatics/bootcamp/

More slide presentations:

http://www.slideshare.net/umhealthscienceslibraries/slideshows/

More Links to these resources and more: http://del.icio.us/rosefirerising/science2.0/ More podcasts: http://www.dentalinformatics.com http://www.dent.umich.edu/informatics/bootcamp/ http://www.lib.umich.edu/hsl/podcasts/ More slide presentations: http://www.slideshare.net/umhealthscienceslibraries/slideshows/

Links to these resources and more:

http://del.icio.us/rosefirerising/science2.0/

More podcasts:

http://www.dentalinformatics.com

http://www.dent.umich.edu/informatics/bootcamp/

http://www.lib.umich.edu/hsl/podcasts/

More slide presentations:

http://www.slideshare.net/umhealthscienceslibraries/slideshows/

Questions? Contact: Patricia Anderson at pfa@umich.edu

Contact: Patricia Anderson at pfa@umich.edu