Research from Pew Internet and American Life Foundation, The Social Life of Health Information, 2011 shows us that…..read stats.
As discussed in the short video, Social media is no longer a fad – it’s a fundamental shift in the way people are communicating and interacting. So my question to you is: (next slide)
Am I engaged online – yes! Come connect with me on twitter, like me on my Facebook like page or read my blog at hopewarshaw.com.
My experience inspired me to take action and connect others with diabetes through Diabetes Hands Foundation…
The time we spend with our doctors…
Represent this much (see the yellow slice in the doughnut) time in our lives as patients.You thought this was the World Diabetes Day symbol, huh?
Whether Twitter is your thing, with its 140 character constraints…
Or you are a blogger.Different types of flavors: citizen journalism, telling your personal story, institutionsSorry, make that 45,304 blogs!
Or you prefer to connect with thousands of people, like you…
The story of SimonOnline connections (through Twitter) Offline connectionsSimon had almost given up! Connecting is powerful clinically. ---
Met online, had almost given up, saved up, traveled from Australia to USA to connect with online peers.Doing better, as a connected patient.
Not only are patients connecting with each other and supporting each other…Pharma is waking up and recognizing the importance of the patient community as key influencers about what is going onExamples: Roche, Medtronic.
Mike’s story (new Managing Editor of Diabetes Mine):“Following the AADE conference in Vegas, I had an appointment with my CDE. We were talking about her visit out there, and the DOC in general and how I've felt it's helped my health. The DA came up. And she said, "This sounds familiar..." Reached into her desk, grabbed a bag, dug through it, and out came one of the DA brochures with our smiling faces.I was very impressed with how this materialized, and in talking more she agreed to talk to my Endo about putting even more brochures out in the office. I've been receiving emails from people in the months since then, reaching out after seeing the local connection and wanting to be a part of D-Meetups. My CDE and Endo talk up the DOC, and I'm proud of that.”
DHF Seeds: 9 grants x $2,000 = $18,000$5,000 in scholarships for diabetes conferencesNearly 100 membersMember blog traffic 2009-2012: over 125%
Creating your own online home. This is how I picture mine. Pretty nic,e right? :PLet’s talk about yourPersonalityAmbitions
What’s your platform personality?Match your personality and style of communication.FACT: You can’t be everywhere!Think about which one best fits you as we go through the list.
Only 11% of followers will see your posts. Facebook rewards high-levels of engagement by making your content more visible. Extremely easy to get started, but limited flexibility as you grow.
Facebook Accounts v. PagesAccount – personal account, based on your friends, post as yourselfPages – anyone can follow (you don’t need to accept their requests), many people can maintain it, post under your brand’s identityPages are free and easy to setup.
This is Bill AKA 1HappyDiabetic contributing to the You Can Do This Project
Amy will talk about this later..I’m mentioned it here to suggest that there really is a platform for every personality type.
Raise your hand if ___ best describes you.
We want your knowledge!
We want your knowledge!
Always explain your motivations. If you are directing someone back to one of your sites or to your book, be forthcoming about who you are and why you’re promoting it.
Don’t promote your financial self-interest (maybe a tiny bit once you are established). Less than 5% of your input.
Be general, not specific. Talk about core knowledge, not what someone should do in a specific situation. Requires educators to put a different hat on: engage on a peer-to-peer basis rather than as the all-knowing educator. We all know how much we love know-it-alls!Participate as an equal.
Type any of these names into Google.Easy-to-setup Widgets!
WordPress is the software that lets you easily add pages or posts to your website. You can also automatically show your latest tweets, likes from your Facebook page, etc.
Sound tough? It’s not! You can have a simple, zen approach.
Get a domain name from a registrar like GoDaddy.com. Cost is less than $10 per year. You can get a web host. We have DiabetesBlogs.com. WordPress has it’s own recommended list of places where you can install WordPress with one click.Install WordPress with one-click. With DiabetesBlogs.com, it’s already installed, so skip this stip. Install a theme, which we’ll talk about next, and setup your widgets.
Themes are the part that you seeYou can try on different costumes without losing all of the great content that you’ve created itThemes can be free or paid
Lifestyle Theme by StudioPress - $80This is different from a custom designed website. They are out-of-the-box templates.
This checklist is here for later if you’d like to know the process of setting up a blog.
Now that you’ve got your home base setup, it’s time to look ahead to the things on the horizon that will impact you. So Amy, please look into your crystal ball and give us a glimpse of what’s to come.. And why it matters.
We can’t talk about using Social Media without talking at some point about technology. A lot of exciting things are emerging that will change the face of diabetes care forever…
Specifically, there are four trends you should know about: mobile apps (using your cell phone to do “health things”)devices that connect and share our health data using games for healthand new online platforms that keep popping up
The other thing making a big splash is games for health. Since behavior change is so essential to healthy lifestyle – and disease management – experts have realized that you need to make it engaging and fun to get people committed. What’s also really important is a sense of Mastery, or Accomplishment. Playing health games and collecting points or “winning” makes people feel like they’re achieving something, instead of just droning on trying to “do the right thing” day after day.Games are geared towards education, and helping people commit to certain actions in real life to improve their health outcomes.
Now, let’s turn our attention back to what YOU are gonna do in social media. You want to leave this room with at least a rough idea of a plan.
Like you tell patients when you talk to them about exercising: JUST DO IT.Get yourself started… take small steps… and you can keep getting more active over time.
Power Your Practicein Our Socially Networked World AADE, 2012 David Edelman, diabetesdaily.com Manny Hernandez, diabeteshf.org Amy Tenderich, diabetesmine.com Hope Warshaw, hopewarshaw.com
Healthcare & Social Media: Are you connected?34% of U.S. google traffic was health related53% of patients would like reliable information about their condition online http://www.youtube.com/watch?v=X2lxPnCU30c&feature=related
Twitter: The New Telephone http://www.webanalyticsworld.net/2012/03/twitter-stats-in-2012-infographic.html (3/12)
Today people think: “I’ve got…diabetes, I better get a Twitter account.” • “#1: “Real-time conversations with people who’ve been there; ….others who’ve been through it.” • #2: “…incredible [HCPs] sharing time and talents…answering questions, sharing insights, links to their blogs, etc.” • #3: “Tweetchats bring peers and pros together in one place.” • #4: Breaking health news: “Now I see things on Twitter before I see them in [top] news outlets.”
Social Media: Who’s THE EXPERT?• Lines are BLURRED – levels playing field• Everyone, anyone can be “AN EXPERT”• Diabetes Educators as experts need a presence, voice with HCPs, PWD & general public
Social media isn’t a fad… it’sa fundamental shift in the way we communicate. R U Using? Should U B?
When people in the DOC meet in real life http://www.youtube.com/watch?v=X2lxPnCU30c
Perla• Dec. 2009: Type 1 Dx • Spring 2012: A1c =6.9• Sep. 2011: TuDiabetes • Connected and hopeful• Nov. 2011: A1c = 7.6
Mike Durbin• Type 2 Dx: 12/29/2008• CHF: 12/30/2008www.mydiabeticheart.com“There is no shame inhaving diabetes or CHF, Ihope that by sharing mystory, I will inspire others tofight on and live their life tothe fullest.”
The DOC and…• JDRF Government Day• DC research event• Signature events: Las Vegas, Austin, Phoenix
The DOC and…• Diabetes Forecast featuring DA members• Call to DOC for input to Strategic Plan
The DOC and…• San Diego (2011)• DC, Des Moines, San Diego (2012)
Tool/Handout:Connect YOUR Clients to the DOC Web version with links, downloadable/printable version available at: http://www.hopewarshaw.com/connectdiabetes
AADE Building Bridges with DOC • Initiated, 2011 • Quarterly conf calls b/w DOC members, AADE staff • Goals: – Support growth – Learn, share – Embrace, engage
DEs Engaged: Who’s Doing What?Michelle Litchman, NP Jill Weisenberger, MS, RD, CDE • Build your practice • Offer educ/coaching • Conduct research Kit McKinney, RD, CDE • Peer educ/support • Be entrepreneurial Claire Blum, MS Ed, RN, CDE
Social Media… Compresses, Connects Our WorldFrom @HopeWarshaw: Seeking examples from #diabetes educators for AADE AnnualMeeting 2012: How are you powering your practice using social media? DM me PLZ.
Who? Claire Blum, MS Ed, RN, CDE • RN, CDE, 25+ yrs • PWD, 34 yrs • Educator, research coordinator in endo (PWD) office • Health coach online • *Program Coordinator, Partners & Peers for Diabetes Care, Inc, Chattanooga, TN
Claire: What’s YOUR Home Base? • Partners & Peers for Diabetes Care, Inc. (non-profit) • Goals: • Improve ed to HCPs, PWD • Offer online content, support • Build local community • Grow internationally • *web: partnersandpeers.org • Facebook.com/PartnersandPeers • Twitter: @partnerspeers
Claire: Why Social Media? • Connecting further, wider “profit in his own country isn’t heard” • Create safe/secure place to empower PWD, support/learn from each other • Announce events • Target media • Outreach larger orgs, efforts
Claire’s Messages to Peers…• Requires new skills, knowledge, TIME• Respect PWD’s privacy – seek permission• “Let’s push this frontier”• People need, asking for support• “It IS how younger generation connects”• People want to be active participants in their healthcare
Who? Jill Weisenberger, MS, RD, CDE • RD, CDE • 10 years DE in research setting • Jill Weisenberger Health Communications, LLC • Writer, Diabetic Living, kidseatright.org, EN, etc. • ADA Author, new book • Entrepreneur, consultant • Online weight mgmt coach • Southern, VA
Jill: What’s YOUR Home Base? “I didn’t want to start a blog and have the pressure to keep feeding it with new content. Plus I already write so much.” “Video blogging and producing video tips is my way of getting my message out there, in my own voice.” “Its so much fun and easy to do, but it is time consuming.”
Jill: Why Social Media? • Goals: – Build reputation, professional brand – Promote accurate diabetes/nutrition info – Be an advocate for PWD • Web: jillweisenberger.com • Twitter: @nutritionjill • Facebook.com/nutritionjill
Jill’s Messages to Peers…• “No longer question of WANT, we MUST to advance our profession…just get over the resistance.”• “The various social media outlets are additive…in total they grow your business.”• “Working alone can be lonely. No more, I’ve now got an office full of colleagues…but I only have to connect with them when I want to.”
Who? G.E.T. Diabetes Education • Kit McKinney, RD, CDE, 18 yrs • G.E.T. Diabetes Education, LLC – In business 3 yrs – Kit, Lucy (“billing guru”) – Other RDs, 2 locations • East TX (near Dallas)
Kit: What’s YOUR Home Base? • Facebook.com/ G.E.T.Diabeteseducation • “I know Facebook best” • Fits demographics of my clients (older), they use Facebook • Nearly no cost vs. newspaper, other advertising
Kit: Why Social Media? • Gets my biz name out • Broad reach • Quick, easy, unlimited, do in my “spare time” • Fodder for content Facebook, Twitter: “easy to find and CE for me” • Twitter: @GETDiabetesEd • Web: getdiabetesed.com
Kit’s Messages to Peers?• Just got to do it: “If I don’t have online presence, I don’t exist”• “We’ve got to be out there as THE diabetes experts.”• “It’s been rewarding to see my reach to community, peers.”• Therapeutic “fuels my passion”
Who? Michelle Litchman, NP • FNP – 5 yrs endo office – Now IM/FP practice, sees only PWDs • e-patient supporter • Social media enthusiast • Working on PhD in Nursing – Thesis:“A Multidimensional Analysis of Peer- to-Peer Health and Apomediation Theory in a Diabetes Online Community” • Salt Lake City, UT
Michelle: What’s YOUR Home Base? Facebook.com/diabetesmixerproject • “Marriage b/w diabetes expo and a party” • Connect PWDs locally to support, share, empower each other • Allows her to market, build community • HCPs mixing in social setting with PWD
Michelle: Why Social Media? • Goals: – Help HCPs gain clinical insights on daily mgmt – Get to know DOC • Blog: michellelitchman.wordpress.com – Express thoughts about DOC – Looking for HCP community • Twitter: @MichLitch
Michelle’s Messages to Peers…• “Stick to one media venue until comfortable enough to move on.”• “Don’t come off like know-it- all HCP to PWD – think collaborative learning”
Should YOU Worry about Risks? www.ncsbn.org http://womma.orghttp://business.ftc.gov/documents/bus71-ftcs-revised- Spring, 2012 endorsement-guideswhat-people-are-asking
Proceed with Caution… Stay Up-to-Date• Think HIPPA when concerns PWD – Info, photos, descriptions of encounters• Respect people’s privacy, confidentiality• Be transparent with endorsements, sponsorship, equipment mentions• Get, stay familiar with rules of engagement
You @HopeWarshaw support theADA/FDA dietary guidelines? I feelsorry for your "patients :( =, Are youa #DrugSalesman too? Know Your Enemies: Respond with science or Radio silence
David EdelmanCo-Founder Online community and health improvement platform Founded with Elizabeth type 1, CEO, foodie, yoga teacher Mission: Help people with diabetes live healthy, happy & hopeful lives. www.diabetesdaily.com facebook.com/diabetesdaily twitter.com/diabetesdaily
• It’s hard to build a stand-alone community. Join an existing one first or partner with someone that has a big following. Examples http://www.diabetesdaily.com http://www.diabeticconnect.com http://www.tudiabetes.org
• Post images• All about sharing• Less discussion
What’s Your Platform’s Personality?• Facebook – story-based• Twitter – short and fast-paced• Communities – topical conversations• YouTube – broadcasting• Blogs – very flexible• Pinterest – visual• None of the above• All of the above
14.7% of the top million sites 48 of the top 100 blogs
Get a Geek • Domain Name • Hosting account • Install WordPress = 2 Hours of WorkSomeone Like Me!
Select a ThemeVisit http://wordpress.org/extend/themes/
Getting Started Checklist• Purchase your domain name at a registrar like www.godaddy.com• Sign up for WordPress hosting – Options at http://wordpress.org/hosting/ – Request free hosting at http://diabetesblogs.com• Install WordPress – Select and install a theme – Install Recommended WordPress Plugins • Sharing: Digg Digg, AddThis or ShareThis • Facebook: Simple Facebook Connect • Twitter: Twitter Goodies – Start blogging!
Amy TenderichEditor-in-Chief of DiabetesMine.comwww.diabetesmine.comOne of the world’s Top 20 Health BlogsCommunity Manager, DiabeticConnect.com650,000 members and growingDiabetes advocate, Book author @DiabetesMine @AmyDBMine Facebook.com/DiabetesMine
1) Have a Clear Goal Lurking and learning are good!
2) Determine Your Time Commitment• Be honest with yourself• Be realistic!
3) If/When You Decide to Jump In:• Get a Platform.• Get an Audience.• Get some Help.
Search the Web for “How-To’s”• Google terms like “tools” and “tutorial”• Medscape has a Social Media Primer for HC Professionals• On YOUTUBE: – HootSuite Beginners Tutorial – Top Twitter Tools Exposed & Explained at Lightning Speed!
The 15 Minute / Week Plan• Add some bookmarks to your desktop• Subscribe to a few blogs by email• Start reading for a few minutes/day• Try to find a few new resources each week
The 60 Minute / Week Plan• Follow a #DSMA Twitter Chat (Wednesdays at 6pm PST/ 9pm EST)• Create your own online profiles…• Then do “something” every week – new posting(s), outreach emails, updated photos
Assess Your Own Realistic GoalsThree simple questions:• What do you hope to achieve with social media? – Priorities?• How much time do you want to/can you commit? – Per day, week, month? – Think when?• What’s your timeframe? – Specific to each goal?