We ask President Obama to take a leading role in the UN NCD Summit, Sept. 2011

August 2, 2011 President Barack Obama The White House 1600 Pennsylvania Ave NW Washington, DC 20500 Dear Mr. President: We, the undersigned organizations and individuals, request that you attend the United Nations High-‐Level Summit on Non-‐Communicable Diseases (NCD) in September to push for better health for all of those living with diabetes. This September, you and your fellow political leaders will have a once-in-a-generation opportunity to halt a global epidemic that is killing and disabling millions of people, impoverishing families, and undermining economic progress. The UN NCD Summit is a chance for the Government of the United States of America to play a leading global role in confronting this major threat to the health, prosperity and security of all of us and future generations. Together, the four major NCDs – diabetes, cancer, heart disease and chronic respiratory disease – are the world’s number one killer. It is estimated that some 35 million people die from NCDs each year, and 14 million of these deaths could be averted or delayed. Diabetes alone creates a huge burden -‐ over 300 million people worldwide have diabetes now, and that figure will reach half a billion within a generation if we do not act now. One dollar in every eight spent across the world on healthcare last year went on diabetes – a staggering USD378 billion in total. No country rich or poor is immune from the impact. In the US alone, there are 25.8 million people with diabetes, and the Centers for Disease Control and Prevention estimate that by 2050, US prevalence will rise to as many as one in three Americans. EVERY one of us knows someone touched by diabetes. As a group of committed diabetes advocates, we ask you to attend the UN Summit and work with other political leaders to take action. We have attached the NCD Alliance’s1 proposals for the Summit outcomes, which we believe should be the basis of the political response to NCDs. The global failure to invest in NCDs has led to the current crisis, yet we have cost-‐effective solutions that can save lives and make economic sense. These include action on prevention and diagnosis as well as universal access to affordable, high-‐quality essential medicines and medical technologies. We are also calling for the establishment of a Stop NCDs partnership to lead multi-‐sectoral and coordinated action, and a UN Decade of Action on NCDs to implement the commitments governments will make at the UN Summit in New York. We would be pleased to provide your office with any further information in preparation for the UN Summit. NCDs such as diabetes affect us all. Diabetes increasingly strikes children, threatening international economic progress. But we are not powerless. We have achievable cost-‐effective solutions. We need political leadership now to make them a reality. Please be a champion for Non-Communicable Diseases by attending the UN Summit in September and safeguard the health and prosperity of future generations in the US and around the world. Yours sincerely, [All signatures on file] Kelly Close (diaTribe) Research & product news for 15,000+ people with diabetes Manny Hernandez (Diabetes Hands Foundation) Serving 200,000 people with diabetes every month Phil Southerland (Team Type 1) CEO/Founder Team Type 1, author of Not Dead Yet, and complication free after 29 years with Type 1 Diabetes due to always having had access to insulin and testing supplies. Bruce Buckingham, M.D. (Stanford Medical Center) Professor, Pediatrics - Division of Endocrinology and Diabetes 1 The NCD Alliance comprises the International Diabetes Federation, the International Union Against TB and Lung Disease, the Union for International Cancer Control, and the World Heart Federation. Together the NCD Alliance represents 900 member associations in 170 countries: www.ncdalliance.org 1

Jessica Apple, Michael Aviad, Karmel Allison (ASweetLife.org) Reaching 30,000 People Affected by Diabetes Each Month David Edelman, Elizabeth Edelman (DiabetesDaily.com) A diabetes community reaching 300,000 each month. Francine R. Kaufman, M.D. (Childrens Hospital Los Angeles) Emeritus Professor of Pediatrics and Communications at USC - The Center for Diabetes, Endocrinology & Metabolism Amy Tenderich (DiabetesMine) A leading diabetes blog serving 50,000 readers a month Riva Greenberg (the Huffington Post and DiabetesStories.com) Reaching more than 150,000 diabetes patients, professionals and readers each month Paula Ford-Martin (dLife) Editor-in-Chief, Patient Advocate, Author Zachary T. Bloomgarden, MD (www.jdiabetes.com) Editor, the Journal of Diabetes Sheri Colberg, PhD (www.shericolberg.com) Expert on diabetes and exercise, author of 8 books on lifestyle and diabetes management Sarah Knotts – Insulin, Glucose, Test Strip Stories Sharing real stories of living with Type 1 Diabetes since 1988. William “Lee” Dubois, Diabetes Author, Educator, & Advocate Reaching more than 3 million people a month via columns and articles Steven V. Edelman, M.D. Founder and Director of Taking Control of Your Diabetes Sandra Bourdette (Taking Control Of Your Diabetes) Co-Founder and Executive Director, Educating and empowering the diabetes community since 1995 Irl B. Hirsch, M.D. (University of Washington Med Ctr-Roosevelt) Professor of Medicine Neal Kaufman, M.D., M.P.H. (UCLA Schools of Medicine and Public Health) Professor of Pediatrics and Public Health Tom Karlya (Diabetesdad) Columnist at dLife, 1 million+ people with diabetes Lois Jovanovič, MD (Sansum Diabetes Research Institute) CEO & Chief Scientific Officer James S. Hirsch Author of "Cheating Destiny: Living with Diabetes" Bernard Farrell (Diaboogle.com and Diabetes Technology Blog) Diabetes answers for 1,000 people per month and reviewing technology for 3,000 readers/month. Scott K. Johnson (scottsdiabetes.com) Diabetes blog reaching thousands per month George Simmons (Ninjabetic) Sharing my story so others feel less alone. Randolph B. Linde, M.D. (Endocrinologist) Palo Alto Medical Foundation Brandy Barnes (www.DiabetesSisters.org) 2

A national nonprofit organization devoted to the issues faced by women with diabetes) and a woman who has lived with diabetes for more than 21 years. Kelly Booth (kellywpa.wordpress.com) Helping people with diabetes complications Kerri Sparling (SixUntilMe.com) Patient Blogger, Diabetes Advocate, and Living with Type 1 Diabetes Howard Zisser, MD (Sansum Diabetes Research Institute) Director of Clinical Research and Diabetes Technology Bruce W. Bode MD FACE Atlanta Diabetes Associate Michael W. Hoskins (The Diabetics Corner Booth) Personal blog reaching 5,500 globally each month. Karen Graffeo (BitterSweetDiabetes.com) Patient blog reaching several hundred subscribers Gina Capone (DiabetesTalkfest.com, Juvenation.org) Patient blogger and community manager reaching over 19,000+ affected by diabetes. Crystal Lane (Randomly capitalizeD) Diabetes Advocate letting hundreds know they are not alone Scott Strange (StrangelyDiabetic.com) Sharing decades of diabetes trials and tribulations Lorraine Sisto (This is Caleb...) Daily readers in excess of 500. Wendy K. Rose, RN (www.CandyHeartsBlog.com) Diabetes Advocate Aliza Chana Zaleon (Aliza With Diabetes) 1,000+ readers and counting Michael W. Durbin (www.mydiabeticheart.com) Diabetes Advocate, living with Type 2 Diabetes and Congestive Heart Failure Kim Vlasnik (Texting My Pancreas; You Can Do This Project) Reaching 12,000+ people with diabetes every month Mari Ruddy (Team WILD and Red Rider Recognition Program Founder) Representing over 5,000 cyclists and athletes with diabetes Scott Strumello (Scotts Web Log) A Patient-Written Blog Reaching An Average of 2,500 Visitors Per Month Lahle Wolfe (Isletsofhope.com, Pre-Diabetes.com) 7.9 million visitors since 2005, 10,000+ subscribers Bill Woods (1HappyDiabetic.com) “It’s All About Your Attitude!” Martin Wood (DiabeticallySpeaking.com) Type 1 diabetes blogger and advocate. Sharing my life with diabetes so that others may have a voice. Chris Stocker (The Life of a Diabetic) Reaching 1,000s of people with diabetes every day! Naomi Kingery, The Diabetic Diva (www.livetolovediabetes.com) Author and blogger who has reached over 10,000 people with diabetes. 3

Victoria Cumbow (www.victoriacumbow.com) Type 1 diabetic for 18 years, advocate, patient and health blogger at Dia-Beat-This and @victoriacumbow Hallie K. Addington (The Princess and The Pump) I am a wife, mother, teacher… and a pancreas! Kelly Kunik (diabetesaliciousness.blogspot.com) Spreading Diabetes Validation through Humor,Ownership & Advocacy Elissa R. Weitzman, ScD, MSc Assistant Professor Harvard Medical School | Children’s Hospital Boston Cherise Shockley (Diabetes Social Media Advocacy) Diagnosed with Latent Autoimmune Diabetes in Adults in June 2004. Creator of Diabetes Social Media Advocacy (DSMA) weekly twitter chat and blog talk radio. Merle Gleeson (Type 1 Diabetes Lounge) Meri Schuhmacher (Our Diabetic Life) Blogger, advocate, friend to 1000+ mothers and fathers of children with diabetes. Satish K. Garg, MD (Barbara Davis Center for Childhood Diabetes, University of Colorado Denver) Professor of Medicine and Pediatrics; Director, Adult Program; Clinical and Research Endowed Chairs Editor-in-Chief, Diabetes Technology and Theraputics Beatriz Dominguez (Sweet Bea) Diabetes Patient and Advocate Jessica Collins (jess-meandd.blogspot.com) Diabetes blogger and advocate Allison Blass (Lemonade Life) A personal blog about living with diabetes serving 5,000 readers a month Leighann Calentine (D-Mom Blog) Mom of a child with type 1 diabetes, author of D-Mom Blog reaching 8,000+ families per month, diabetes advocate. Hope Warshaw, RD, CDE (www.hopewarshaw.com) Diabetes educator, author with nearly 1 million books in print Nicolas Cuttriss, MD, MPH (www.ayudainc.net) Empowering youth to serve as agents of change in diabetes communities abroad Jane Jeffrie Seley, DNP MPH MSN BC-ADM CDE (New York Presbyterian/Weill Cornell) Diabetes Nurse Practitioner Barry H Ginsberg, MD, PhD Diabetes Consultants Prof. Dr. Lutz Heinemann, PhD (Profil Institut für Stoffwechselforschung GmbH) Partner and Scientific Consultant Bennet Dunlap (Your Diabetes May Vary, The BetesNOW) Advocate for families living with diabetes. Father of two type 1 teens. Jay Skyler, MD (University of Miami Miller School of Medicine, Diabetes Research Institute) Professor of Medicine, Pediatrics and Psychology at Associate Director for Academic Programs at DRI Darrell M Wilson, MD (Stanford University and the Lucile Packard Childrens Hospital) Professor and Chief, Pediatric Endocrinology and Diabetes 4

Ginger Vieira (www.Living-in-Progress.com) Type 1 diabetes advocate, vlogger, author and health coach. Lee Ann Thill, MA, ATR-BC, LPC (www.thebuttercompartment.com) Type1 diabetic for 32 yrs, blogger, art therapist, diabetes/mental health advocate, artist. Mariela Glandt, MD Endocrinology Department, Bronx-Lebanon Hospital Gonzalo Bacigalupe, EdD, MPH International Health Council Representative at , Ikerbasque Research Professor, Associate Editor at Family, Systems, & Health Sysy Morales (TheGirlsGuidetoDiabetes.com) Encouraging 10,000 women with diabetes to live their best life every month Kitty Castellini, Founder, President & CEO (Diabetes Living Today®) National Broadcast News on Diabetes for 120,000 with diabetes Kathy White (kathy-mynewislets.blogspot.com) Islet cell transplant recipient Anne Findlay (annetics, Team Type 1 cyclist) Advocating for healthier living through exercise for people with diabetes Gretchen Becker (www.gretchenbecker.com) Author of "The First Year: Type 2 Diabetes" Cheryl Alkon Author of Balancing Pregnancy With Pre-Existing Diabetes: Healthy Mom, Healthy Baby Ronnie Gregory (www.thepoordiabetic.com) Erin D. ONeill Argueta (www.edonadesigns.blogspot.com) Living creatively for over 39 years with Type I Diabetes Cara Richardson (countrygirldiabetic.blogspot.com) Every Day, Every Hour, Every Minute Cheri Pate (princessladybug.blogspot.com) Michael Robinton (Insulin Pumpers) Executive Director 5

sectIon 4: resources, tooLs AnD pubLIcAtIons IDF - Calling the World to aCtion on diabetes: an adVoCaCY toolKit 39J. ncd AlliAnce proposed oUTcomes docUmenT – pAGe 1 Proposed Outcomes Document for the United Nations High-Level Summit on Non-Communicable Diseases We, the NCD Alliance, request Governments of the world at the UN High-level Summit on NCDs taking place 19-20th September 2011 to commit to: Leadership Prevention • Implement the WHO 2008-2013 Action Plan for the Global • ccelerate the effective implementation of the Framework A Strategy for the Prevention and Control of NCDs; Global Strategy Convention on Tobacco Control. on Diet, Physical Activity and Health; and the Global Strategy to Reduce the Harmful Use of Alcohol. • Establish effective population-wide prevention, early detection, screening and awareness-raising programmes for NCDs targeting • nclude NCDs in the global development goals that succeed the I high-risk populations by 2020, including, but not limited to: Millennium Development Goals in 2015. o By 2018, reduce the mortality and morbidity of gastric, colorectal, breast, cervical cancer; diabetes; and • By 2016, 60% of countries implement a national NCDs Action cardiovascular diseases (including heart disease and stroke) Framework, a Coordinating Authority and a country-level by increasing early detection programmes. Monitoring and Evaluation System and develop national health o By 2018, implement national immunisation strategies for plans with specific objectives and targets for the prevention, early HPV and HBV for populations at high risk and strategies to detection, treatment and care of NCDs. prevent rheumatic fever to avert rheumatic heart disease. o Reduce or eliminate environmental (including indoor air • Develop, implement, monitor and evaluate strategies addressing pollution), occupational and other contextual risk factors NCDs engaging the whole of government, the private sector and associated with NCDs. civil society and adopt a ‘health in all policies’ approach where all major policies and capital projects are subject to a health impact • mplement global and national trade and fiscal measures to I assessment. provide incentives for production, distribution and marketing of vegetables, fruit and unprocessed food. • Establish a UN interagency coordination mechanism on NCDs by 2012. • By 2013, develop and implement comprehensive strategies to decrease childhood obesity, and eliminate all forms of marketing, • Establish a ‘Stop NCDs Partnership’ within the UN system to particularly those aimed at children, for foods high in saturated coordinate follow-up action on UN Summit commitments fats, trans-fats, salt and refined sugars by 2016. working with governments, NGOs and the private sector. • By 2013, develop and implement regulatory measures to achieve • Establish a UN Decade of Action on NCDs 2012–2022 to substantial reductions in levels of saturated fats, trans-fats, salt implement the Outcomes Document and ensure that by 2016, and refined sugars in processed foods. Aim to reduce worldwide 85% of the world’s population have access to information, salt intake to less than 5g/day per capita (2,000 mg sodium/day) education and services to reduce their vulnerability to NCDs. by 2025. • Reduce NCD death rates by at least 2% per annum. • Develop and implement policies for urban design to include safe open spaces and encourage walking, cycling and other physical activities. • Develop and implement comprehensive strategies to decrease the harmful use of alcohol, in particular, among youth. Non-Communicable Diseases (NCDs): Cancer, cardiovascular disease, chronic respiratory disease and diabetes, and the four shared risk factors of tobacco use, unhealthy diet, physical inactivity and the harmful use of alcohol, as identified by the World Health Organization (WHO).

40 sectIon 4: resources, tooLs AnD pubLIcAtIons IDF - Calling the World to aCtion on diabetes: an adVoCaCY toolKit J. ncd AlliAnce proposed oUTcomes docUmenT – pAGe 2 Diagnostics and Treatment • Ensure universal access to affordable high-quality essential NCD medicines and medical technologies including, but not limited to: o Diagnostic technologies, radiotherapy and cancer medicines by 2020. o Anti-hypertensives, statins, aspirin and penicillin by 2015. o Insulin and other diabetes medicines, and diabetes diagnostic and monitoring technologies by 2015. o Good-quality, affordable asthma inhalers by 2012. • Provide improved access to high quality palliative care, including opioid analgesics, for those suffering from pain associated with NCDs. • By 2013 develop and implement strategies to address NCD treatment and care in emergencies, natural disasters and conflicts. Health Systems Research • By 2015, establish and strengthen national health information • Encourage, increase and accelerate research on NCD causes and systems (including registries) for monitoring and evaluation of cures, including longitudinal research into the ‘early origins’ of NCDs and risk factors and morbidity/mortality statistics by cause. NCDs. • By 2016, 60% and by 2020 80% of countries to develop strategies • Encourage operational research on prevention, treatment and to integrate health-system management of NCDs, especially at management of NCDs. primary health care levels. • Strengthen national and community-based health systems to ensure continuity of care and support through to effective referral Human Rights / Vulnerability by 2020. • Accelerate approaches to address the social determinants of • Develop and implement strategies to strengthen human NCDs, including malnutrition, and reduce the vulnerability resources for health, including public health and community of women, children, indigenous peoples and populations at health workers, to ensure equitable access to NCD prevention, particularly high risk. early detection, treatment and care. • By 2016, implement NCD screening into maternal and child health programmes. Resources • Implement legislation, policies and public awareness campaigns to reduce stigma and discrimination associated with NCDs. • Allocate sufficient funds to the United Nations and member states to support the implementation of the UN Summit Outcomes Document. Monitoring / Follow up • Develop and implement innovative financing mechanisms for NCDs at global and country level. • By 2012, establish a high-level Commission on Accountability for Action on NCDs with representatives from government, donors, • Leverage existing essential medicine procurement mechanisms multi-lateral institutions, civil society and the private sector and develop new solutions to provide access to affordable NCD to ensure ongoing monitoring of commitments from the UN medicines and technologies. Summit. • Increase the percentage of national health budgets allocated to • Every year devote time at the UN General Assembly to review a NCDs. report from the Secretary General on progress, and conduct a high-level review of progress in 2016. • By 2012, bilateral donor agencies and multilateral organisations to support NCD programmes in low- and middle-income countries. NCD Alliance UN Summit Partners American Cancer Society, American Heart Association, Framework Convention Alliance, Global Health Council, LIVESTRONG, Norwegian Cancer Society and World Lung Foundation. To comment on this Proposed Outcomes Document and get more information about the NCD Alliance, please visit: www.ncdalliance.org

http://victoriacumbow.com	13
http://www.diatribe.us	3
http://kellysplayblog.wordpress.com	3
http://kellywpa.com	1

We ask President Obama to take a leading role in the UN NCD Summit, Sept. 2011

by Diabetes Hands Foundation

Accessibility

Categories

Upload Details

Usage Rights

4 Embeds 20

Statistics