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DHF - Progress report 2009 DHF - Progress report 2009 Document Transcript

  •   March  20,  2008     to  April  30,  2009   Progress Report March 20, 2008 to April 30, 2009    
  • Progress Report | March 20, 2008 to April 30, 2009   Letter from the President March 20, 2008 marked our incorporation as a nonprofit in the State of California, bringing our communities, TuDiabetes.org and EsTuDiabetes.org, and Word In Your Hand (our first diabetes awareness initiative) under the umbrella of the newly formed Diabetes Hands Foundation. We licensed Word In Your Hand to LifeScan in 2008. Thanks to this partnership, all our programs obtained significant media and public exposure. TuDiabetes jumped from 2,000 members in March 2008 to nearly 7,000 in April 2009. EsTuDiabetes grew six-fold, going from less than 500 members in March 2008 to 3,000 members in April 2009. Our 2008 fundraising campaigns resulted in more than US$7,500 collected through online donations. In 2008, our Drawing Diabetes video received more than 40,000 views. We also gathered submissions from our members for the Diabetes Supplies Art initiative, resulting in another successful diabetes awareness video with thousands of views in early 2009. In 2008, as a result of our commitment to World Diabetes Day, the International Diabetes Federation recognized TuDiabetes and EsTuDiabetes as Friends of World Diabetes Day. We then organized and promoted an online petition to Google asking them to acknowledge World Diabetes Day through a Diabetes Doodle on their home page, Nov. 14, 2008. Although this effort did not produce the intended result, we collected nearly 15,000 signatures, confirming the potential support we can expect from social media-based awareness campaigns. During December 2008 and January 2009, we partnered with numerous P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | info@diabeteshf.org | www.diabeteshandsfoundation.org 2  
  • Progress Report | March 20, 2008 to April 30, 2009   patient advocacy groups and medical professionals to appeal to the incoming FDA leadership on behalf of patients with diabetes. In early 2009, we ran the No-Sugar Added Poetry contest, which will lead to our first book in early 2010. In April 2009, we also partnered with DiabetesDaily to develop the Simple Steps for Health awareness program. Finally, in early 2009, we started collaborating with the Health Informatics team from Children’s Hospital Boston at Harvard Medical School. The goal of this collaboration is to create an application through which our members will be able to conveniently track and optionally share their diabetes data starting in early 2010. Members who use this application will also be able to participate in nonprofit research studies conducted by Harvard Medical School to better understand how social networks can be used to improve the health of those who participate in them. In 2008 and 2009, the foundation received extensive media coverage in the US and internationally. EsTuDiabetes was featured in Don Francisco’s shows in Univision and TuDiabetes was featured in Hallmark Heroes, a Christmas show hosted by Regis Philbin. Our work was also highlighted on NPR’s Diane Rehm Show, in national publications such as Time, People and Diabetic Living and internationally in El Pais (Spain), Diabetes Hoy (Mexico) and El Universal (Venezuela). Starting May 2009, we began diversifying sources of funding by conducting online and offline fundraising, securing grants to help develop new diabetes awareness initiatives, identifying sponsors for our programs and including limited ads on our communities and newsletters. Although this belongs in next year’s Annual Report, we feel it’s important to the reader to know that effective September 21, 2009 the Diabetes Hands Foundation became exempt from US Federal income tax under section 501(c)(3) of the Internal Revenue Code. As a result, donations to Diabetes Hands Foundation are eligible to be tax-deductable. Manny Hernandez President P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | info@diabeteshf.org | www.diabeteshandsfoundation.org 3  
  • Progress Report | March 20, 2008 to April 30, 2009   About the Diabetes Hands Our Mission Foundation The Diabetes Hands Foundation (DHF) is a 501(c)3 nonprofit that connects To provide an open space for people touched by diabetes and raises diabetes awareness. people touched by diabetes to connect with others in pursuit of a The roots of DHF go back to 2006, when the idea of creating a social network for a higher purpose for those affected by diabetes, started brewing. This idea healthy life through support, turned into TuDiabetes.org, our first online community, in March 2007. information and creative EstuDiabetes.org, a sister community in Spanish, followed in August 2007, expression. becoming a top global destination for people searching for support and information about diabetes in Spanish. Between March 20, 2008 and April 30, 2009, the two communities received more than 700,000 unique visitors (including registered members) who viewed more Our Vision than 6.5 million pages. We develop programs that involve the participation of our community members on the generation of diabetes awareness materials. Each program revolves We work towards a world where around a specific theme and works as an interactive conduit that connects people with diabetes do not feel individuals through self-expression and creativity. alone and people without As a result, the community participates in the generation of useful and authentic diabetes are well aware of content, which in turn, strengthens the community through the participation and empowerment of its members. Some of our community-generated content diabetes and its implications at initiatives are: Word in Your Hand®, Drawing Diabetes, Diabetes Supplies Art and large. No-Sugar Added Poetry. P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | info@diabeteshf.org | www.diabeteshandsfoundation.org 4  
  • Progress Report | March 20, 2008 to April 30, 2009   Our Diabetes Awareness Programs Word In Your Hand: this project started with a post by a TuDiabetes member who posted a photo showing his hand O u r Va l u e s with a word written on it, describing how he felt about diabetes. We invited members of the community to • Community Support: We foster   contribute their photos. As a result, we produced a compilation video in time for World Diabetes Day 2007 a positive environment where showcasing the best submissions. our members support and help each other Drawing Diabetes: for this initiative we invited the children • Health and Well-Being: We in TuDiabetes and EsTuDiabetes to draw how diabetes actively promote positive and affects their daily lives or how do they thought it made the proactive actions to stay life of diabetic children different from the life of other healthy while having diabetes. kids. Once again, we produced a very touching video   highlighting some of the best entries with music by one of • Communication and the members of the community. Information: We encourage the exchange of information and storytelling about diabetes. Diabetes Supplies Art: this project is closely related to Drawing Diabetes. We asked our members to use • Diversity and Respect: We diabetes supplies to create art as a form of creative value diverse points of view. All expression and emotional healing. The submissions we people touched by diabetes received allowed us to create a video to highlight are welcome.   some of the challenges faced by patients with • Creative Expression: We see diabetes worldwide. creativity as a catalyst for emotional healing and raising No-Sugar Added Poetry: the idea for this project was born diabetes awareness. when one of our members had a dream of a poetry book written by our members, which she shared with the Diabetes • Transparency: We embrace Hands Foundation. This is an innovative, educational and openness and authenticity, as moving program through which we encourage our   long as it doesn’t conflict with members to share through poetry how diabetes has affected their lives. the other values. P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | info@diabeteshf.org | www.diabeteshandsfoundation.org 5  
  • Progress Report | March 20, 2008 to April 30, 2009   DHF financials         Revenue In Percent 18% Program service revenue (inc. government fees and contracts) 5% Contributions, gifts and grants received Other revenue 77%   Expenses In Percent Online community operations Word In Your Hand initiative 12% Diabetes Supplies Art initiative HelpTheFDA campaign 16% Drawing Diabetes initiative 49% No-Sugar Added Poetry initiative 1% Collaboration with Harvard 2% Google Doodle campaign 2% 2% Simple Steps for Health initiative 2% 7% 3% Management & Admin. expenses 3% Fundraising operations   P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 |   info@diabeteshf.org | www.diabeteshandsfoundation.org 6    
  • Progress Report | March 20, 2008 to April 30, 2009     Assets   Total Assets: $153,993 $51,895 Current Assets Fixed Assets $100,000 Long Term Assets $2,098 Liabilities Total Liabilities: $15,339 Long Term Liabilities Current Liabilities $0 $2,000 $4,000 $6,000 $8,000 $10,000 $12,000 $14,000 $16,000 $18,000 P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | info@diabeteshf.org | www.diabeteshandsfoundation.org 7  
  • Progress Report | March 20, 2008 to April 30, 2009       Officers, Directors & Advisors   Officers • Manuel Hernandez – Chairman of the Board • Henkel Garcia – Treasurer • Andreina Davila – Secretary   Directors • Manuel Hernandez – Chairman of the Board • Andreina Davila – Secretary – Director • Henkel Garcia – Treasurer – Director • Luis Emiro Garcia – Director • Cesar Castro - Director   Advisors • Kelly Close • Kerri Morrone Sparling • Maria Luisa O’Connel • Sean Ross   P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | info@diabeteshf.org | www.diabeteshandsfoundation.org 8  
  • Progress Report | March 20, 2008 to April 30, 2009   Major Contributors to the Diabetes Hands Foundation   Organizations • Hallmark Channel • Islets of Hope • HealthWarehouse.com Individuals • Saundra Barragan • Marie Bernegger • Denise Bevard • Judith Caterall • Luis Carlos Diaz • Jaimie Hernandez • Ramsey Makar • Landileigh Nelson • Kristin Nickel • Jonathan Olick • Esther Paredes-Hernandez • Olaf Saugen • Sohair Abdel-Rahman For a complete list of all of our 2008 contributors at all levels please visit our website at http://www.tudiabetes.org/notes/Community_Supporters P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | info@diabeteshf.org | www.diabeteshandsfoundation.org 9  
  • Progress Report | March 20, 2008 to April 30, 2009     More information…       Learn more about the Diabetes Hands Foundation at: • www.diabeteshandsfoundation.org Join our online communities: • www.TuDiabetes.org (in English) • www.EsTuDiabetes.org (en Español) Follow us on Twitter: • @DiabetesHF • @TuDiabetes • @EsTuDiabetes Become a fan of our Facebook page: • www.Facebook.com/DiabetesHF Subscribe to our YouTube Channel: • www.YouTube.com/DiabetesHands P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | info@diabeteshf.org | www.diabeteshandsfoundation.org 10